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Demographics

Agreements naming it
188
In term in September 2026
129
Organisations
58
Files released
1,124

Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.

How the register describes it

Recorded against the dataset on each agreement, and not always the same from one agreement to the next, so every value found is listed.

Type of data
  • Anonymised - ICO Code Compliant
  • Identifiable
Sensitivity
  • Non-Sensitive
  • Sensitive
Frequency of release
  • Frequent Adhoc Flow
  • One-Off
  • Ongoing
Legal basis for provision
  • CV19: Regulation 3 (4) of the Health Service (Control of Patient Information) Regulations 2002
  • Consent (Reasonable Expectation)
  • Health and Social Care Act 2012 - s261 - 'Other dissemination of information'
  • Health and Social Care Act 2012 - s261(2)(d)
  • Health and Social Care Act 2012 - s261(5)(c)
  • Health and Social Care Act 2012 - s261(5)(d)
  • Health and Social Care Act 2012 – s261(2)(a)
  • Health and Social Care Act 2012 – s261(2)(b)(ii)
21 more
  • Health and Social Care Act 2012 – s261(2)(c)
  • Health and Social Care Act 2012 – s261(4)
  • Health and Social Care Act 2012 – s261(7)
  • Informed Patient consent to permit the receipt, processing and release of data by NHS Digital
  • National Health Service Act 2006 - s251 - 'Control of patient information'.
  • Other-(Regulation 3 of the associated Health Service (Control of Patient Information) Regulations 2002.)
  • Other-COPI Legislation
  • Other-COPI Notice - Regulation 3(3) and 3(1)
  • Other-CV19: Regulation 3 (1) of the Health Service (Control of Patient Information) Regulations 2002
  • Other-For data subjects who have given informed consent, data is disseminated under Health and Social Care Act 2012 – s261(2)(c)
  • Other-For one subset of the cohort the data is disseminated under Health and Social Care Act 2012 - s261(7) and National Health Service Act 2006 - s251 - 'Control of patient information'. For the remainder of the cohort the data is disseminated under Health and Social Care Act 2012 - s261(2)(c).
  • Other-Health and Social Care Act - section 251
  • Other-Health and Social Care Act 2008 s64(1)
  • Other-National Health Service Act 2006 - s251 - 'Control of patient information'.
  • Other-National Health Service Act 2006 - s251 - 'Control of patient information'. ,
  • Other-National Health Service Act 2006-S251- Control of Patient information'
  • Other-Regulation 3 of the associated Health Service (Control of Patient Information) Regulations 2002.
  • Other-Section 251
  • Other-Section 251 HRA approval
  • Other-Section 45A of The Statistics and Registration Service Act 2007 (SRSA) as amended by the Digital Economy Act 2017
  • for all other data subjects, data is disseminated under Health and Social Care Act 2012 - s261(7) and National Health Service Act 2006 - s251 - 'Control of patient information'

Organisations whose agreements name it (58)

Show the list, with the number of agreements for each

With an agreement in term in September 2026 (39)

With expired agreements only (19)

Agreements covering this dataset

Showing all 188 agreements.

Files: files of this dataset released under the agreement, across all its versions.

Agreements covering Demographics
AgreementOrganisationTypeFilesLatest termStatusCommercial
Generation New Era DARS-NIC-792066-B5D2T University College London (UCL) Academic 2 14 August 2026 to 16 February 2030 In term Yes
National Cardiac Audit Programme / Transcatheter Aortic Valve Implantation (TAVI) Registry - Welsh mortality data DARS-NIC-717493-V2R4K National Institute for Cardiovascular Outcomes Research Academic 0 29 June 2026 to 13 July 2029 In term No
STAMPEDE trial: Systemic Therapy in Advancing or Metastatic Prostate Cancer: Evaluation of Drug Efficacy (consent) DARS-NIC-59873-D8C6G University College London (UCL) Academic 16 9 March 2026 to 30 June 2029 In term Yes
STAMPEDE trial: Systemic Therapy in Advancing or Metastatic Prostate Cancer: Evaluation of Drug Efficacy (s251) DARS-NIC-798687-Z0Z8F University College London (UCL) Academic 0 9 March 2026 to 30 June 2029 In term Yes
Epidemiological Study of BRCA1 and BRCA2 Mutation Carriers DARS-NIC-302473-K6R0Z University of Cambridge Academic 4 17 June 2026 to 16 June 2029 In term No
The Roy Castle Lung Cancer Research Programme, Liverpool Lung Project - University of Liverpool DARS-NIC-147982-J7KGV University of Liverpool Academic 3 22 January 2026 to 4 May 2029 In term Yes
Demographic, morbidity and mortality data associated with the STOP-HCV Cirrhosis Study cohort. DARS-NIC-72626-V4P9B Nottingham University Hospitals NHS Trust NHS Trust 2 4 April 2026 to 3 April 2029 In term No
Evaluating the age extension of the NHS Breast Screening Programme - Age Extension Trial (AgeX) DARS-NIC-147931-DT25Y University of Oxford Academic 23 14 January 2026 to 31 March 2029 In term No
United Kingdom Childhood Cancer Study (UKCCS) DARS-NIC-147884-R7CBN University of York Academic 2 1 February 2026 to 31 March 2029 In term No
neoWONDER: Neonatal Whole Population Data linkage approach to improving long-term health and wellbeing of preterm and sick babies DARS-NIC-609893-N5P5L Imperial College London Academic 1 27 March 2026 to 26 March 2029 In term No
MyMelanoma database DARS-NIC-737123-P6P6G University of Oxford Academic 1 27 March 2026 to 26 March 2029 In term No
Toxicity from anti-TNF therapy DARS-NIC-148353-G88Q7 The University of Manchester Academic 6 25 March 2026 to 24 March 2029 In term Yes
MR1240 - Evaluation of centralisation in head and neck cancer (Head and Neck 5000) DARS-NIC-147901-2XMLG Bristol NHS Foundation Trust NHS Trust 3 22 March 2026 to 21 March 2029 In term No
NHSE UDAL- NHSCFA- For the purposes of the prevention and detection of crime. DARS-NIC-736310-S6T1Z NHS Counter Fraud Authority Agency/Public Body 0 27 February 2026 to 26 February 2029 In term No
The MANCHESTER and ARTISTIC COHORTS (HPV and Cervical Cancer) DARS-NIC-58603-S6Z1B London School of Hygiene and Tropical Medicine Research 4 23 January 2026 to 30 January 2029 In term No
British Regional Heart Study - follow-up of the BRHS cohort DARS-NIC-148411-Q64H8 University College London (UCL) Academic 12 18 February 2026 to 20 December 2028 In term No
Risk Of Aneurysm Rupture Study (ROAR) DARS-NIC-334745-L4J6P University Hospital Southampton NHS Foundation Trust NHS Trust 2 3 December 2025 to 2 December 2028 In term No
National Emergency Laparotomy Audit (NELA) DARS-NIC-355855-R4G6G Royal College of Anaesthetists Academic 10 6 June 2025 to 21 November 2028 In term No
SINGLE SIGMOIDOSCOPY SCREENING IN PREVENTION OF BOWEL CANCER(The UK Flexible Sigmoidoscopy Screening Trial; UKFSST) DARS-NIC-148071-QHNM8 Imperial College London Academic 3 21 November 2025 to 20 November 2028 In term No
MR1134 - The Oxford Monitoring System for Attempted Suicide: Mortality following Deliberate Self-harm DARS-NIC-147957-4444C University of Oxford Academic 5 7 November 2025 to 20 October 2028 In term No
United Kingdom Collaborative Trial of Ovarian Cancer Screening (UKCTOCS) DARS-NIC-334952-R5M7K University College London (UCL) Academic 4 13 October 2025 to 12 October 2028 In term Yes
Routine Data Extraction for CAP (Cluster randomised trial of PSA testing for Prostate cancer) Consent DARS-NIC-119910-K6W9Q University of Bristol Academic 10 19 September 2025 to 18 September 2028 In term No
Routine Data Extraction for CAP (Cluster randomised trial of PSA testing for Prostate cancer) Section 251 DARS-NIC-319171-G7H8K University of Bristol Academic 10 19 September 2025 to 18 September 2028 In term No
The Prospective Investigation Pesticide Users’ Health (PIPAH) Study DARS-NIC-385032-K3N9S Health and Safety Executive Agency/Public Body 9 15 September 2025 to 14 September 2028 In term No
Yorkshire and Humberside Haematology Network (YHHN) - Section 251 and Consultee Cohort DARS-NIC-346859-C9J6J University of York Academic 4 13 August 2025 to 12 August 2028 In term No
Yorkshire and Humberside Haematology Network (YHHN) - Consented Cohort DARS-NIC-390749-C4P0X University of York Academic 4 13 August 2025 to 12 August 2028 In term No
TwinsUK: Phenotypic enrichment of the TwinsUK cohort through linkage to electronic health records and other databases. DARS-NIC-147955-M8D2Q King's College London Academic 5 6 May 2025 to 7 August 2028 In term No
Yorkshire and Humberside Haematology Network Register (YHHN) Comparison Cohort DARS-NIC-06759-X5V7P University of York Academic 5 8 August 2025 to 7 August 2028 In term No
Database of UK recipients of pituitary-derived human growth hormone DARS-NIC-691697-K9L9B University College London (UCL) Academic 1 1 August 2025 to 31 July 2028 In term No
UK Biobank: A long-term prospective health research study DARS-NIC-08472-V9S6K UK Biobank Charity 21 25 July 2025 to 24 July 2028 In term Yes
Genes and Health DARS-NIC-338864-B3Z3J Barts and the London School of Medicine and Dentistry Academic 3 24 February 2026 to 23 July 2028 In term Yes
OxValve - Survival following a diagnosis of Valvular Heart Disease in a primary care population (OxValve-Survive) DARS-NIC-135294-P7L0F Oxford University Hospitals NHS Foundation Trust NHS Trust 3 7 March 2025 to 22 July 2028 In term No
Join Dementia Research DARS-NIC-366913-C2V5F National Institute for Health Research Research 21 18 July 2025 to 20 July 2028 In term No
London Life Sciences Population Study DARS-NIC-719923-Q5H1S Imperial College London Academic 3 30 January 2026 to 13 July 2028 In term No
Diabetes Alliance for Research in England (DARE) (Previously EXTRA) DARS-NIC-147863-CCGZN Royal Devon University Healthcare NHS Foundation Trust NHS Trust 9 22 April 2025 to 28 June 2028 In term No
The Oxford Vascular Study (section 251 cohort) DARS-NIC-148369-8PPWK University of Oxford Academic 16 30 May 2025 to 29 May 2028 In term No
The Oxford Vascular Study (consent cohort) DARS-NIC-653950-W8D4Z University of Oxford Academic 10 30 May 2025 to 29 May 2028 In term No
SLaM IG Clinical Dataset Linking Service DARS-NIC-292279-Z2S5T South London and Maudsley NHS Foundation Trust NHS Trust 11 28 March 2025 to 15 May 2028 In term No
Follow-up of participants in the After Diagnosis Diabetes Research Support System-2 (ADDRESS-2) Cohort DARS-NIC-672111-H3R2T Imperial College London Academic 2 12 May 2025 to 11 May 2028 In term No
MR360 - Early Breast Cancer Trialists' Collaborative Group DARS-NIC-148204-7B1XT University of Oxford Academic 1 5 February 2025 to 6 May 2028 In term No
The Pesticide Users' Health Study (PUHS) DARS-NIC-351522-Y6W3L Health and Safety Executive Agency/Public Body 6 2 May 2025 to 1 May 2028 In term No
RECOVERY - Pneumonia DARS-NIC-765236-C7C1B University of Oxford Academic 2 25 April 2025 to 24 April 2028 In term Yes
GENERATIONS study DARS-NIC-148096-PT589 The Institute of Cancer Research Research 14 18 April 2025 to 17 April 2028 In term No
Asbestos Workers' Survey (consent cohort) DARS-NIC-183842-H8L1J Health and Safety Executive Agency/Public Body 5 22 November 2024 to 31 March 2028 In term No
Asbestos Workers' Survey (s251 cohort) DARS-NIC-337801-K2N5Y Health and Safety Executive Agency/Public Body 5 22 November 2024 to 31 March 2028 In term No
Sentinel Stroke National Audit Programme DARS-NIC-387635-C9Y0W King's College London Academic 10 16 January 2026 to 31 March 2028 In term No
MR400 - Cohort Study of People with Insulin Treated Diabetes DARS-NIC-147748-XD18S The Institute of Cancer Research Research 0 31 March 2023 to 30 March 2028 In term No
MR465 - National Cohort study of mortality and cancer incidence in patients with cytogenetic and paediatric endocrine disorders DARS-NIC-147749-3SSRF The Institute of Cancer Research Research 1 31 March 2023 to 30 March 2028 In term No
MR287 - Study of Twins DARS-NIC-147923-P5DTX The Institute of Cancer Research Research 0 31 March 2023 to 30 March 2028 In term No
MRC National Survey of Health and Development (NSHD) - tracing DARS-NIC-774097-J9J0C University College London (UCL) Academic 2 31 March 2025 to 30 March 2028 In term No
Cancer Survivorship Studies DARS-NIC-148313-G56YY University of Birmingham Academic 3 28 February 2025 to 27 February 2028 In term No
The United Kingdom Aneurysm Growth Study DARS-NIC-148437-C9YSC University of Leicester Academic 3 29 November 2024 to 20 February 2028 In term No
Continuation of AVON LONGITUDINAL STUDY OF PARENTS AND CHILDREN (ALSPAC): consent DARS-NIC-152414-W3P6Q University of Bristol Academic 3 20 February 2026 to 19 February 2028 In term Yes
Continuation of AVON LONGITUDINAL STUDY OF PARENTS AND CHILDREN (ALSPAC): section 251 DARS-NIC-789772-N6S1N University of Bristol Academic 1 20 February 2026 to 19 February 2028 In term Yes
Children's Surgery Outcome Reporting (CSOR) Research Database - Clinical Data DARS-NIC-608743-H5X9Z University of Oxford Academic 12 9 January 2026 to 11 February 2028 In term No
1970 British Cohort Study - Tracing DARS-NIC-129836-D5F3W University College London (UCL) Academic 4 7 February 2025 to 6 February 2028 In term No
National Child Development Study (NCDS)- Tracing DARS-NIC-137864-T1P9B University College London (UCL) Academic 8 7 February 2025 to 6 February 2028 In term No
Next Steps Cohort Study- Tracing DARS-NIC-15226-X7Z9R University College London (UCL) Academic 15 7 February 2025 to 6 February 2028 In term No
Millennium Cohort Study (also known as Child of the New Century) - Tracing DARS-NIC-408892-F1R1Y University College London (UCL) Academic 6 7 February 2025 to 6 February 2028 In term No
The 3C Study (Campath, Calcineurin inhibitor reduction and Chronic allograft nephropathy) DARS-NIC-388486-D9M5N University of Oxford Academic 4 6 September 2024 to 31 January 2028 In term No
Long-term Anastrozole vs. Tamoxifen Treatment Effects (LATTE) DARS-NIC-37666-Z1C3M Queen Mary University of London Academic 2 31 January 2025 to 30 January 2028 In term No
GenOMICC COVID-19 Study DARS-NIC-374190-D0N1M Genomics England Research 24 30 January 2026 to 29 January 2028 In term Yes
ORION-4: Data linkage to support outcome and other clinical data collection for consented participants DARS-NIC-630656-V9W9M University of Oxford Academic 42 9 May 2024 to 31 December 2027 In term Yes
EPIC-Oxford. A prospective cohort study of 65,000 mainly vegetarian men and women, to examine how diet influences the risk of cancer, particularly for the most common types of cancer in Britain, as well as other chronic diseases. DARS-NIC-148322-TMFVQ University of Oxford Academic 17 6 December 2024 to 5 December 2027 In term No
PROSPECTIVE STUDY OF OUTCOMES IN SPORADIC VERSUS HEREDITARY BREAST CANCER (POSH) DARS-NIC-148334-51PXR University of Southampton Academic 1 3 December 2024 to 2 December 2027 In term No
MR1135 - Manchester self-harm project - Mortality and suicide after self-harm- a cohort study DARS-NIC-147916-DPQ3Q The University of Manchester Academic 4 17 October 2025 to 30 November 2027 In term No
QResearch Data Linkage Project DARS-NIC-382794-T3L3M Queen Mary University of London Academic 0 15 June 2026 to 27 November 2027 In term Yes
AIRWAVE HEALTH MONITORING STUDY DARS-NIC-148056-T6T5Z Imperial College London Academic 9 15 November 2024 to 14 November 2027 In term No
British Association of Dermatologists' Biologic and Immunomodulators Register (BADBIR) DARS-NIC-147941-XX4JP The University of Manchester Academic 5 8 November 2024 to 7 November 2027 In term No
UK STUDY OF THE FAMILIES OF ATAXIA TELANGIECTASIA PATIENTS DARS-NIC-148129-FK1JJ University of Cambridge Academic 0 1 November 2024 to 31 October 2027 In term No
MR1055 - HPS2-THRIVE Treatment of HDL to Reduce the Incidence of Vascular Events DARS-NIC-147885-0TV66 University of Oxford Academic 1 9 September 2024 to 31 October 2027 In term Yes
MR706 - SEARCH: Study of the Effectiveness of Additional Reductions in Cholesterol and Homocysteine DARS-NIC-148341-TC6TD University of Oxford Academic 1 2 September 2024 to 31 October 2027 In term Yes
Childhood Outcomes after Perinatal Brain Injury (Data flowing to DfE) DARS-NIC-475526-F3Z5H University College London (UCL) Academic 1 12 July 2024 to 17 October 2027 In term No
National Cancer Audit Collaborating Centre (NATCAN) DARS-NIC-709865-W9X6H The Royal College of Surgeons of England Academic 0 7 November 2025 to 30 September 2027 In term No
MR1142 - Self Harm Monitoring Project - Mortality Following Self-Harm DARS-NIC-147907-MLK7R Derbyshire Healthcare NHS Foundation Trust NHS Trust 3 18 September 2025 to 29 September 2027 In term No
SCAMP: Study of Cognition, Adolescents, and Mobile Phones DARS-NIC-27085-C5L5G Imperial College London Academic 6 27 June 2024 to 26 September 2027 In term No
The Million Women Study DARS-NIC-389134-S8L1C University of Oxford Academic 33 27 September 2024 to 26 September 2027 In term Yes
MRC/BHF HEART PROTECTION STUDY DARS-NIC-148069-ZB4GM University of Oxford Academic 1 23 August 2024 to 22 August 2027 In term No
Adjuvant Tamoxifen Treatment - Offer -More? - ATTOM DARS-NIC-148286-3RWRG University of Birmingham Academic 7 12 July 2024 to 31 July 2027 In term Yes
Twins’ Early Development Study (TEDS): Medical Record Linkage. DARS-NIC-729560-F2F3S King's College London Academic 1 15 June 2026 to 24 July 2027 In term No
CUREd+ Centre for Urgent and Emergency Care Research Database DARS-NIC-589868-W0K1B University of Sheffield Academic 6 15 May 2026 to 16 July 2027 In term No
Outcomes Data for A Study of Cardiovascular Events iN Diabetes – PLUS (ASCEND PLUS) DARS-NIC-717832-F6F3H University of Oxford Academic 8 25 July 2025 to 11 July 2027 In term Yes
Whitehall II DARS-NIC-346693-F2X1G University College London (UCL) Academic 4 5 July 2024 to 4 July 2027 In term No
Data-linkage project between the UK Bone and Joint Infection Registry (BAJIR) for Hospital Episode Statistics Admitted Patient Care (HES APC) and mortality data for the purposes of data quality assurance DARS-NIC-381948-L9M8Y Northumbria Healthcare NHS Foundation Trust NHS Trust 1 24 April 2026 to 30 June 2027 In term Yes
National Hip Fracture Database (MORTALITY DATA ONLY) DARS-NIC-468622-L9V8Z Royal College of Physicians of London Academic 15 19 June 2026 to 30 June 2027 In term No
BEST-4 Heartburn Health Programme - Outcomes (NHS Numbers) DARS-NIC-776147-F5N3V Queen Mary University of London Academic 59 13 June 2025 to 12 June 2027 In term Yes
Randomised Prevention Trial of H. Pylori Screening DARS-NIC-147843-8NKTW City St George’s, University of London Academic 12 3 July 2026 to 3 June 2027 In term No
UK Participants in the UK Atmospheric Nuclear Weapons Test (NWTPS) DARS-NIC-148161-XXPS5 UK Health Security Agency Agency/Public Body 2 5 April 2024 to 31 May 2027 In term No
National Registry for Radiation Workers DARS-NIC-148219-ZHB4Z UK Health Security Agency Agency/Public Body 3 5 April 2024 to 31 May 2027 In term No
UK Lung Cancer Screening Trial Lung Cancer Registry and Mortality data for consented individuals DARS-NIC-19237-R3T6S University of Liverpool Academic 10 15 May 2026 to 31 May 2027 In term No
University of Bristol - Longitudinal Linkage Collaboration - COPI Reg 3 DARS-NIC-420168-K4N1F University of Bristol Academic 39 29 May 2026 to 28 May 2027 In term No
Management of patients with chronic liver disease admitted to hospital as an emergency - ICNARC DARS-NIC-708052-S1L9J London School of Hygiene and Tropical Medicine Research 1 22 May 2026 to 21 May 2027 In term No
Children's Surgery Outcome Reporting (CSOR) Research Database - Case and contact details identification DARS-NIC-717299-R5H5N University of Oxford Academic 16 12 May 2025 to 11 May 2027 In term No
ONS Longitudinal Study DARS-NIC-705741-K8K9G Office for National Statistics (ONS) Agency/Public Body 1 1 April 2026 to 9 May 2027 In term No
A long term prospective cohort study on the effects of smoking and prophylactic aspirin on all-cause mortality in male British doctors DARS-NIC-643421-J9T3M University of Oxford Academic 1 9 March 2026 to 8 May 2027 In term No
Centre for Longitudinal Studies - Millennium Cohort Study (MCS) - Child of the New Century -Mortality DARS-NIC-147860-0RSHN University College London (UCL) Academic 2 8 May 2026 to 7 May 2027 In term No
Camden & Islington Clinical Record Interactive Search (CRIS) Linkage with HES/Mortality Data DARS-NIC-408171-X7F8W University College London (UCL) Academic 1 23 February 2026 to 2 May 2027 In term No
Whitehall Study of London Civil Servants DARS-NIC-148044-RGS7W University of Oxford Academic 1 28 April 2026 to 1 May 2027 In term No
Patient Choice and Provider Quality - Why Patients Change GPs DARS-NIC-218380-R8L2R Imperial College London Academic 3 24 April 2024 to 23 April 2027 In term No
MR487 - EPIC – European Prospective Investigation into Cancer in Norfolk DARS-NIC-321968-S4Q6L University of Cambridge Academic 25 18 April 2024 to 17 April 2027 In term No
Genomics England: Use of data within the National Genomics Research Library (NGRL) DARS-NIC-12784-R8W7V Genomics England Research 10 3 April 2024 to 2 April 2027 In term Yes
University of Bristol - Longitudinal Linkage Collaboration - s251 cohort DARS-NIC-420229-G9H9S University of Bristol Academic 3 29 May 2026 to 31 March 2027 In term No
Centre for Longitudinal Studies -1970 British Cohort Study-Mortality DARS-NIC-17218-B0W9X University College London (UCL) Academic 5 16 March 2026 to 27 March 2027 In term No
Centre for Longitudinal Studies -Next Steps Study - Mortality DARS-NIC-431565-K9V9N University College London (UCL) Academic 2 16 March 2026 to 27 March 2027 In term No
UK Longitudinal Linkage Collaboration (UK LLC) - Consent DARS-NIC-748729-Z8B3M University of Bristol Academic 2 23 March 2026 to 22 March 2027 In term No
MR1a - Health and Development Study - Consented Cohort Members DARS-NIC-148100-6RFK9 University College London (UCL) Academic 15 17 October 2024 to 8 March 2027 In term No
Prognostic Factors in Prostate Cancer for Patients Treated by Watchful Waiting (TAPG) DARS-NIC-245768-V0N2T Queen Mary University of London Academic 7 29 February 2024 to 28 February 2027 In term No
INTERVAL, COMPARE and STRIDES Bio Resource trial cohorts: Long-term follow up of health outcomes and associations with genetic, biological and lifestyle traits DARS-NIC-156334-711SX University of Cambridge Academic 9 11 February 2026 to 26 February 2027 In term Yes
Centre for Longitudinal Studies- National Child Development Study 1958 (NCDS) DARS-NIC-147922-T7W2F University College London (UCL) Academic 1 20 February 2026 to 19 February 2027 In term No
UK Genetic Prostate Cancer Study (consent) DARS-NIC-148118-VCXW9 The Institute of Cancer Research Research 0 22 August 2025 to 15 February 2027 In term No
HPS 3 / TIMI 55: REVEAL (Randomized EValuation of the Effects of Anacetrapib through Lipid-modification) DARS-NIC-147757-8SVGP University of Oxford Academic 2 13 March 2024 to 12 February 2027 In term No
MORSE (MORtality Study of former professional footballers in England and Wales) Study DARS-NIC-734273-H8R3Q Institute of Occupational Medicine (IOM) Research 2 16 March 2026 to 5 February 2027 In term No
MR1b - Health and Development Study - S251 Cohort members DARS-NIC-86954-Y0R2N University College London (UCL) Academic 5 18 October 2024 to 21 January 2027 In term No
Imperial College London - REACT Data and Connectivity National Core Studies DARS-NIC-431352-G7F1M Imperial College London Academic 0 16 January 2026 to 15 January 2027 In term No
ASCEND (A Study of Cardiovascular Events iN Diabetes) DARS-NIC-302994-C2Q2Y University of Oxford Academic 12 15 August 2025 to 7 January 2027 In term Yes
15-year follow-up of the Arterial Revascularisation Trial (ART) DARS-NIC-147755-C5H4X University of Oxford Academic 1 31 December 2025 to 30 December 2026 In term No
SABRE: Southall and Brent Revisited - Consented participants DARS-NIC-148407-LRP3M University College London (UCL) Academic 22 11 December 2024 to 10 December 2026 In term No
SABRE: Southall and Brent Revisited - S251 participants DARS-NIC-91374-Z5V6Y University College London (UCL) Academic 22 11 December 2024 to 10 December 2026 In term No
SABRE: Southall and Brent Revisited - S251 participants not cancer notifiable DARS-NIC-99077-Q0K6Z University College London (UCL) Academic 14 11 December 2024 to 10 December 2026 In term No
A Study of Cardiovascular Events iN Diabetes – PLUS (ASCEND PLUS) - Recruitment agreement DARS-NIC-655024-S2H5Q University of Oxford Academic 0 7 December 2024 to 6 December 2026 In term Yes
Family, household and environmental risk factors for hospital admissions in childhood DARS-NIC-234656-C3J1D University College London (UCL) Academic 2 25 October 2025 to 30 November 2026 In term No
Our Future Health Outcomes TRE Data Linkage Application with Sublicensing DARS-NIC-411795-X5N2V Our Future Health Charity 13 30 July 2025 to 28 November 2026 In term Yes
RECOVERY Trial - Communications to Participants DSA DARS-NIC-405749-N7T3M University of Oxford Academic 2 27 November 2023 to 26 November 2026 In term No
MR756: Knee Arthroplasty Trial (KAT) DARS-NIC-322051-S8N9N University of Aberdeen Academic 11 24 November 2023 to 23 November 2026 In term No
Caerphilly Prospective Study (CaPS) DARS-NIC-148336-V4SL1 University of Bristol Academic 2 1 November 2023 to 31 October 2026 In term No
Cohort Study Of Cancer Incidence And Mortality Amongst Women Treated For Subfertility DARS-NIC-147910-HHGGZ University of Oxford Academic 0 5 September 2025 to 31 October 2026 In term No
The Evaluation of Breast Screening DARS-NIC-147747-KRTQ8 Queen Mary University of London Academic 9 16 July 2025 to 30 September 2026 In term No
R1 (D09) - Data support to COVID-19 RCT (RECOVERY) DARS-NIC-365354-R3M0Q University of Oxford Academic 9 24 July 2026 to 15 September 2026 In term Yes
COSMOS: Cohort Study of mobile phone use and health DARS-NIC-370843-R6V8T Imperial College London Academic 4 15 July 2026 to 14 September 2026 In term No
Data linkage request for (TIME) Treatment in Morning versus Evening Study DARS-NIC-67135-G7D9V University of Dundee Academic 2 5 April 2024 to 3 July 2026 Expired No
The Role of Selective Neck Dissection Used Electively in Patients DARS-NIC-147858-KGYSS Saving Faces - The Facial Surgery Research Foundation Charity 3 14 April 2025 to 20 June 2026 Expired No
Our Future Health Recruitment Programme DARS-NIC-414067-K8R6J Our Future Health Charity 0 13 June 2025 to 12 June 2026 Expired Yes
MR795 - Cancer Risk & Mortality in a Sample of Service Personnel Deployed to Bosnia 1992 - 1996 DARS-NIC-147847-P6MMR King's College London Academic 2 8 November 2024 to 1 May 2026 Expired No
Pneumococcal Vaccination to Accelerate Immune Recovery in Sepsis Survivors (VACIRiSS) DARS-NIC-650245-T6C6T Guy's and St Thomas' NHS Foundation Trust NHS Trust 2 28 March 2025 to 31 March 2026 Expired No
Linkage of NHS Digital data to young people with perinatal HIV, to monitor cancers and deaths. DARS-NIC-368477-C9Q1X University College London (UCL) Academic 6 28 March 2025 to 27 March 2026 Expired No
Renewal request for ‘Allopurinol and cardiovascular outcomes in patients with ischaemic heart disease ALL-HEART’ study DARS-NIC-369348-H6H8B University of Dundee Academic 2 15 March 2024 to 14 March 2026 Expired No
MR785 - PD MED Trial- A randomised assessment of the cost-effectiveness of different classes of drugs for Parkinson's Disease DARS-NIC-147927-8K193 University of Birmingham Academic 0 5 January 2023 to 15 January 2026 Expired No
National Gastrointestinal Cancer Audit Programme (GICAP) - National Bowel Cancer Audit (NBOCA) DARS-NIC-376603-K2J9R NHS England Agency/Public Body 5 20 December 2024 to 31 December 2025 Expired No
National Gastrointestinal Cancer Audit Programme (GICAP) - National Oesophago-Gastric Cancer Audit (NOGCA) DARS-NIC-454669-H0H4X NHS England Agency/Public Body 5 1 January 2025 to 31 December 2025 Expired No
UK Early Life Cohort Feasibility Study (ELC-FS) DARS-NIC-482185-K8G0F University College London (UCL) Academic 5 28 March 2025 to 27 December 2025 Expired No
TRANSFUSION MEDICINE EPIDEMIOLOGY REVIEW DARS-NIC-148232-CPHLL National CJD Surveillance Unit Research 13 6 December 2024 to 5 December 2025 Expired No
HPS-4/TIMI 65/ORION-4: A double-blind randomized placebo-controlled trial assessing the effects of inclisiran on clinical outcomes among people with atherosclerotic cardiovascular disease. Application for data for invitation. DARS-NIC-172240-R4R0L University of Oxford Academic 38 25 October 2024 to 24 October 2025 Expired Yes
The South London Stroke Register: Preliminary List Clean DARS-NIC-729128-M5N1F King's College London Academic 2 7 October 2024 to 6 October 2025 Expired No
NHS Galleri Clinical Trial Communications via NHS DigiTrials request DARS-NIC-651660-J5T6C Grail Bio UK Ltd Commercial 0 4 October 2024 to 3 October 2025 Expired Yes
STEADFAST Modelling the associations between wider health and social characteristics and diabetes-related health - Cohort Matching Service for NPDA identifier data flows to DfE for linkage in ONS DARS-NIC-669808-V6T0M Cardiff University Academic 1 8 August 2024 to 4 August 2025 Expired No
STEADFAST Modelling the associations between wider health and social characteristics and diabetes-related health - Identifier data flows to DfE for linkage in ONS DARS-NIC-674735-Z0H6K Cardiff University Academic 2 8 August 2024 to 4 August 2025 Expired No
EMPA-KIDNEY (The Study of Heart and Kidney Protection With Empagliflozin) - Post-Trial Follow-up (PTFU) DARS-NIC-743681-L8G9L University of Oxford Academic 1 20 May 2024 to 19 May 2025 Expired Yes
Cancer Incidence and Mortality Experience of a British and an International Cohort of Workers Occupationally Exposed to Styrene DARS-NIC-169971-Z9M1C Institute of Occupational Medicine (IOM) Research 1 1 May 2024 to 30 April 2025 Expired No
MR76 - ORAL CONTRACEPTION STUDY DARS-NIC-147867-D8128 University of Aberdeen Academic 18 1 April 2022 to 31 March 2025 Expired No
MELODY Study (Mass evaluation of lateral flow immunoassays for the detection of SARS-CoV-2 antibody responses in immunosuppressed people) - Transplant Patients DARS-NIC-619023-C7K5V NHS Blood and Transplant (NHSBT) Agency/Public Body 2 1 March 2022 to 28 February 2025 Expired No
Educational outcomes in children born after assisted reproductive technology; a population-based linkage study DARS-NIC-258079-G7W1Y University College London (UCL) Academic 0 28 February 2022 to 27 February 2025 Expired No
OHID/Ipsos Infant Feeding Survey 2023/2024 DARS-NIC-663093-K1B0K Ipsos (Market Research) Ltd Research 1 2 February 2024 to 31 January 2025 Expired Yes
Turning6 - A Clinical and Neurodevelopmental follow up of EPIPEG participants at 60 months DARS-NIC-700125-B2Z7J Young Epilepsy Charity 3 14 June 2024 to 29 December 2024 Expired No
Mass evaluation of lateral flow immunoassays for the detection of SARS-CoV-2 antibody responses in immunosuppressed people (MELODY) DARS-NIC-609903-V6Q7S NHS England Agency/Public Body 1 17 December 2021 to 16 December 2024 Expired No
MR278 - Study of Birth Cohort from Hertfordshire DARS-NIC-148284-T2GPT University of Southampton Academic 5 15 September 2022 to 17 November 2024 Expired No
CLARITY IBD: Understanding the impact of biologic and immunomodulatory therapy on SARS-CoV-2 Infection and Immunity in Patients with Inflammatory Bowel Disease DARS-NIC-435152-C0H4N Royal Devon University Healthcare NHS Foundation Trust NHS Trust 1 17 July 2023 to 30 June 2024 Expired Yes
Continuation of order NIC-147204-CGWY5 MR1283: DARE (Diabetes Alliance for Research in England) - NE London Diabetes Research Network Locality DARS-NIC-291938-R6V3V Barts Health NHS Trust NHS Trust 7 31 May 2022 to 30 May 2024 Expired No
ADDITION: Anglo-Dutch-Danish study of Intensive Treatment In peOple with screeN-detected diabetes (MR798) DARS-NIC-147750-8GS7S University of Cambridge Academic 5 1 November 2023 to 9 April 2024 Expired No
Barts Health NICOR NCAP (Previously known as CCAD - Central Cardiac Audit Database - MR1233) DARS-NIC-359940-W1R7B National Institute for Cardiovascular Outcomes Research Academic 5 1 March 2021 to 31 December 2023 Expired No
National Hip Fracture Database DARS-NIC-10343-Z3M1B Royal College of Physicians of London Academic 3 11 May 2023 to 31 December 2023 Expired No
MR1164 - The Asymptomatic Carotid Surgery Trial (ACST-2) DARS-NIC-10123-M5K5H University of Oxford Academic 1 1 January 2023 to 31 December 2023 Expired No
Regional Heart Study (Female Cohort) DARS-NIC-148101-R7RSL University College London (UCL) Academic 0 19 May 2023 to 30 November 2023 Expired No
Pandemic Respiratory Infection Emergency System Triage (PRIEST) Study DARS-NIC-377644-X9J4P University of Sheffield Academic 4 8 September 2020 to 7 September 2023 Expired No
The Brighter study. Breast Reconstruction: Investigating long term clinical and cost-effectiveness in the National Mastectomy and Breast Reconstruction Audit cohort. DARS-NIC-363140-V3X2W University of Bristol Academic 4 26 August 2022 to 25 August 2023 Expired No
MR1415 - Application for ONS mortality data to be used for flagging and analysis of the RADICALS trial, which is a large phase III randomised controlled trial for people with prostate cancer (ISRCTN 40814031). DARS-NIC-37191-P5S9S University College London (UCL) Academic 7 2 August 2022 to 1 August 2023 Expired No
ONS Longitudinal Study DARS-NIC-194340-D6F3B Office for National Statistics (ONS) Agency/Public Body 22 14 February 2023 to 30 June 2023 Expired No
MR1376 - OHCAO (Out of Hospital Cardiac Arrest Outcomes) DARS-NIC-351810-N3G6N University of Warwick Academic 0 25 January 2017 to 30 June 2023 Expired No
EMPA-KIDNEY (The Study of Heart and Kidney Protection With Empagliflozin) DARS-NIC-449860-L0D6W University of Oxford Academic 2 24 May 2022 to 23 May 2023 Expired Yes
MR1485 - Development of a linked, de-identified database resource for research into the health, mortality and educational outcomes of children with a congenital anomaly DARS-NIC-64474-V4B2D St. George’s Hospital Medical School Academic 1 15 May 2020 to 14 May 2023 Expired No
Rehabilitation Exercise and psycholoGical support After covid-19 InfectioN (REGAIN) DARS-NIC-629056-F4L4B University of Warwick Academic 0 18 March 2022 to 17 March 2023 Expired No
MR480 - MRC Study of Cognitive Function and Ageing MR490 - Alpha Study (Liverpool) DARS-NIC-147829-5K4QP University of Cambridge Academic 5 14 December 2021 to 13 December 2022 Expired No
MR1268 - Evaluation of the Role of Inflammation in non pulmonary disease manifestations in Chronic Airways DARS-NIC-147978-LZDFC Cambridge University Hospitals NHS Foundation Trust NHS Trust 1 6 December 2021 to 5 December 2022 Expired No
Protect-CH: Prophylactic Therapy in Care Homes Trial DARS-NIC-437579-V8J5V University of Nottingham Academic 0 13 May 2021 to 13 November 2022 Expired No
BILAG Biologics Prospective Cohort: The Use of Novel Biological Therapies in the Treatment of Systemic Lupus Erythematosus (SLE) DARS-NIC-148247-CH0Z6 The University of Manchester Academic 0 1 October 2021 to 30 September 2022 Expired Yes
MRC Cognitive Function and Ageing Study - CFAS II, plusMaintaining function and wellbeing in later life: a Longitudinal cohort study (CFAS Wales) DARS-NIC-147034-XH3H2 University of Cambridge Academic 4 13 September 2021 to 12 September 2022 Expired No
GRAIL-009: A randomized, comparator-controlled trial to assess the clinical utility of a multi-cancer early detection (MCED) test for population screening in the United Kingdom (UK) when added to standard of care DARS-NIC-456778-J0G3H Grail Bio UK Ltd Commercial 0 30 July 2021 to 29 July 2022 Expired Yes
Birmingham and Black Country Atrial fibrillation cohort study follow up DARS-NIC-331733-T2K1Z Sandwell and West Birmingham Hospitals NHS Trust NHS Trust 1 22 June 2020 to 21 June 2022 Expired No
MR806: BSPAR Enbrel Cohort Study (BSPAR EN) (Formerly: BSPAR, BNDR (Biologics and New Drugs Registry) for Juvenile Idiopathic Arthritis ( JIA ) patients) DARS-NIC-179285-7RS6G The University of Manchester Academic 0 23 December 2021 to 22 May 2022 Expired No
ATEMPT: Antihypertensive Treatment in Elderly Multimorbid Patients (Pilot Study) DARS-NIC-311182-F5W4X University of Oxford Academic 1 29 April 2021 to 28 April 2022 Expired No
IPSOS MORI/Imperial REACT I Antigen study DARS-NIC-393650-B7J6F Department of Health and Social Care Ministerial Department 0 4 November 2021 to 31 March 2022 Expired No
IPSOS MORI/Imperial REACT II Antibody Study additional Rounds DARS-NIC-389914-N9R8R Department of Health and Social Care Ministerial Department 0 1 April 2021 to 22 March 2022 Expired No
MR1210 - The Long-term Safety and Efficacy of Biologic Therapies in Children with Rheumatic Diseases DARS-NIC-147774-MZT95 The University of Manchester Academic 0 21 January 2021 to 14 November 2021 Expired No
COVID-19 Vaccinations Survey – Over 80s DARS-NIC-434738-K7Z9L Office for National Statistics (ONS) Agency/Public Body 1 10 February 2021 to 30 September 2021 Expired No
MR1466 - Life and Bladder Cancer : The Yorkshire Cancer Research Bladder Cancer Patient Reported Outcomes Survey ( Longitudinal Study) DARS-NIC-194387-K3H5K University of Sheffield Academic 9 21 May 2020 to 17 February 2021 Expired No
MR1466 - Life and Bladder Cancer : The Yorkshire Cancer Research Bladder Cancer Patient Reported Outcomes Survey ( Longitudinal Study) DARS-NIC-374924-C8S5Y University of Sheffield Academic 9 21 May 2020 to 17 February 2021 Expired No
MR1033 - CROSS-SECTIONAL MULTI-CENTRE STUDY OF UK ADULTS WITH CONGENITAL ADRENAL HYPERPLASIA DARS-NIC-148364-RHMHS Society of Endocrinology Research 1 1 November 2019 to 31 January 2021 Expired No
IPSOS CQC COVID-19 inpatients study DARS-NIC-390964-G8W3R Care Quality Commission (CQC) Agency/Public Body 1 17 July 2020 to 16 January 2021 Expired No
Fenland study - application for participant tracking & mortality data MR1420 DARS-NIC-43771-N0W3Q University of Cambridge Academic 0 21 May 2020 to 13 December 2020 Expired No

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NHS England (2026) Data Uses Register, September 2026 edition, agreements naming Demographics. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/datasets/demographics/ (accessed [date]).

This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.