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NDRS Cancer Registrations

Agreements naming it
144
In term in September 2026
94
Organisations
60
Files released
266

Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.

How the register describes it

Recorded against the dataset on each agreement, and not always the same from one agreement to the next, so every value found is listed.

Type of data
  • Anonymised - ICO Code Compliant
  • Identifiable
Sensitivity
  • Non-Sensitive
  • Sensitive
Frequency of release
  • One-Off
  • Ongoing
Legal basis for provision
  • Consent (Reasonable Expectation)
  • Health and Social Care Act 2012 - s261(2)(d)
  • Health and Social Care Act 2012 - s261(5)(d)
  • Health and Social Care Act 2012 – s261(2)(a)
  • Health and Social Care Act 2012 – s261(2)(c)
  • Health and Social Care Act 2012 – s261(7)
  • National Health Service Act 2006 - s251 - 'Control of patient information'.
  • Other-Regulation 3 of the COPI Regs
5 more
  • Other-Regulation 3 of the Health Service (Control of Patient Information)
  • Other-Regulation 3 of the associated Health Service (Control of Patient Information) Regulations 2002.
  • Other-The Health Service (Control of Patient Information) Regulation 2002
  • Other-The Health Service (Control of Patient Information) Regulations 2002- Regulation 2
  • Other-The Health Service (Control of Patient Information) Regulations- Regulation 2

Organisations whose agreements name it (60)

Show the list, with the number of agreements for each

With an agreement in term in September 2026 (46)

With expired agreements only (14)

Agreements covering this dataset

Showing all 144 agreements.

Files: files of this dataset released under the agreement, across all its versions.

Agreements covering NDRS Cancer Registrations
AgreementOrganisationTypeFilesLatest termStatusCommercial
Multifrequency Bioimpedance in the Early Detection of Lymphoedema DARS-NIC-656836-T2J0T Manchester University NHS Foundation Trust NHS Trust 0 13 June 2025 to 12 June 2031 In term No
NHS Galleri Clinical Trial Outcomes Data Request DARS-NIC-604847-S4B5L Grail Bio UK Ltd Commercial 40 24 October 2025 to 29 March 2030 In term Yes
Yorkshire Cancer Research Bowel Cancer Improvement Programme - PROMs DARS-NIC-682571-Q6Z6Y University of Leeds Academic 2 13 March 2026 to 12 March 2030 In term No
Study to investigate the accuracy with which breast cancer recurrence can be identified in women registered with invasive breast cancer using routinely collected data compared with recurrence information collected by the AZURE trial ( ODR1718_364 ) DARS-NIC-656816-Z3N6R University of Oxford Academic 0 10 July 2026 to 19 September 2029 In term No
INTERACT Retrospective- Understanding inclusivity in oncology clinical trials: a data-driven approach DARS-NIC-756432-F0B1L The Institute of Cancer Research Research 0 4 September 2026 to 3 September 2029 In term No
Is travel burden associated with differences in health outcomes for patients diagnosed with breast, lung, prostate, colorectal or oral cancers living in Yorkshire & Humberside and the North East Regions. DARS-NIC-675446-G2S5Q University of Hull Academic 1 12 June 2026 to 30 June 2029 In term No
Project to Help Improve Decision Aids for Predicting Outcomes in Early Breast Cancer: (ODR1718_390) DARS-NIC-656818-N1B5Q University of Oxford Academic 2 12 August 2026 to 30 June 2029 In term No
BROCADE: BReast cancer OutComes from Addenbrooke's data Evaluation DARS-NIC-628636-Y3B1N Addenbrookes Independent Sector Healthcare Provider 0 26 May 2026 to 25 May 2029 In term No
Bowel-Star UK: Risk-Stratification Study DARS-NIC-762732-L6B5X Queen Mary University of London Academic 0 18 May 2026 to 17 May 2029 In term No
The Roy Castle Lung Cancer Research Programme, Liverpool Lung Project - University of Liverpool DARS-NIC-147982-J7KGV University of Liverpool Academic 2 22 January 2026 to 4 May 2029 In term Yes
Characterising cancer in individuals with cystic fibrosis DARS-NIC-715599-M3G8T University of Leeds Academic 0 24 April 2026 to 23 April 2029 In term No
Inequalities in Cancer Survival (ODR_1516_050) DARS-NIC-656757-J8V9D London School of Hygiene and Tropical Medicine Research 2 17 April 2026 to 16 April 2029 In term No
The Epidemiology of Cancer after solid Organ Transplantation (EPCOT) study is a data linkage project to analyse cancer epidemiology after solid organ transplantation. This is a major cause of morbidity and mortality with little empirical research to guide clinical management and patient counselling. DARS-NIC-77142-Q4D1D University Hospitals Birmingham NHS Foundation Trust NHS Trust 0 8 January 2026 to 31 March 2029 In term No
The UK Lung cancer Screening (UKLS) trial (ODR1819_074) DARS-NIC-656827-P2X2W University of Liverpool Academic 0 28 January 2026 to 31 March 2029 In term No
Evaluating the age extension of the NHS Breast Screening Programme - Age Extension Trial (AgeX) DARS-NIC-147931-DT25Y University of Oxford Academic 0 14 January 2026 to 31 March 2029 In term No
Understanding the epidemiology of cancer within the North West of England. DARS-NIC-745735-D8M0S Lancaster University Academic 1 2 March 2026 to 1 March 2029 In term No
BLISS - Blood cancer clinical trials Long-term follow-up using Integrated healthcare SystemS data DARS-NIC-781290-Q2Q6F University of Leeds Academic 1 9 February 2026 to 8 February 2029 In term No
Multicentre Study to determine Predictive and Prognostic Biomarkers and Therapeutic Targets for Oesophageal and Junctional Adenoarcinoma including whole genome sequencing (ODR1718_082) DARS-NIC-659284-W0T0H University of Cambridge Academic 2 26 September 2025 to 29 November 2028 In term No
SINGLE SIGMOIDOSCOPY SCREENING IN PREVENTION OF BOWEL CANCER(The UK Flexible Sigmoidoscopy Screening Trial; UKFSST) DARS-NIC-148071-QHNM8 Imperial College London Academic 0 21 November 2025 to 20 November 2028 In term No
Assessing the utility of healthcare systems data for trials: data utility comparisons in the STAMPEDE trial (DUCkS)(previously: ODR1718_094) DARS-NIC-656801-R9F6Z University College London (UCL) Academic 2 13 October 2025 to 12 October 2028 In term Yes
Understanding causal relationships between socio-economic inequalities, multi-morbidity, and cancer treatment and outcomes DARS-NIC-715080-X0J9J The University of Manchester Academic 1 1 October 2025 to 30 September 2028 In term No
Routine Data Extraction for CAP (Cluster randomised trial of PSA testing for Prostate cancer) Consent DARS-NIC-119910-K6W9Q University of Bristol Academic 1 19 September 2025 to 18 September 2028 In term No
Routine Data Extraction for CAP (Cluster randomised trial of PSA testing for Prostate cancer) Section 251 DARS-NIC-319171-G7H8K University of Bristol Academic 2 19 September 2025 to 18 September 2028 In term No
A retrospective observational study to evaluate demographic/clinical characteristics, treatments, patterns of therapy, and outcomes of patients with advanced non-small cell lung cancer (aNSCLC) in England DARS-NIC-748004-M6G9X Evidera Ltd Research 1 8 September 2025 to 7 September 2028 In term Yes
A National Study Of Breast Cancer And A Range Of Late Effects Of Hodgkin Lymphoma Treatments In Women (ODR1516_470) DARS-NIC-659282-H1F7C The Royal Marsden NHS Foundation Trust NHS Trust 0 10 June 2026 to 1 September 2028 In term No
YORKSURe: Early detection of bladder cancer in Yorkshire: Feasibility assessments for implementing a targeted study in populations with high disease specific mortality risk (Line Listing) DARS-NIC-626153-S6J6V King's College London Academic 0 20 August 2025 to 19 August 2028 In term No
YORKSURe: Early detection of bladder cancer in Yorkshire: Feasibility assessments for implementing a targeted study in populations with high disease specific mortality risk (Cohort Matched) DARS-NIC-689987-Z6D2Z King's College London Academic 0 20 August 2025 to 19 August 2028 In term No
UK Biobank: A long-term prospective health research study DARS-NIC-08472-V9S6K UK Biobank Charity 2 25 July 2025 to 24 July 2028 In term Yes
National Child Mortality Database (NCMD) DARS-NIC-331142-P5K6M University of Bristol Academic 1 8 July 2025 to 7 July 2028 In term No
PEUGIC root cause analysis project DARS-NIC-719879-K6X3J Sandwell and West Birmingham Hospitals NHS Trust NHS Trust 3 2 May 2025 to 30 June 2028 In term No
A follow-up of GLACIER (a study to investigate the Genetics of LobulAr Carcinoma In situ in EuRope) and ICICLE (A study to Investigate the genetiCs of In situ Carcinoma of the ductaLsubtypE). (ODR1920_145) DARS-NIC-656860-Q5Q9Q Guy's and St Thomas' NHS Foundation Trust NHS Trust 1 23 May 2025 to 22 May 2028 In term No
Inequalities in cancer care pathways DARS-NIC-777554-J2V4K University College London (UCL) Academic 1 29 April 2026 to 8 May 2028 In term No
Late-effects of treatments in breast cancer survivors in England. DARS-NIC-737073-H1C6D The Institute of Cancer Research Research 1 1 May 2025 to 30 April 2028 In term No
The role of inequalities in cancer care experience in mediating inequalities in cancer treatment receipt and time-to-treatment. DARS-NIC-785335-G6D8R University of Surrey Academic 0 1 May 2026 to 30 April 2028 In term No
Audit of cancer health inequalities in Southampton ( ODR1819_291 ) DARS-NIC-656845-G9J9W Southampton City Council Local Authority 2 6 March 2025 to 3 April 2028 In term No
ProtecT study (Prostate testing for cancer and treatment) ( ODR1617_311 ) DARS-NIC-656793-T4H6S University of Bristol Academic 0 17 March 2025 to 16 March 2028 In term No
Cancer Survivorship Studies DARS-NIC-148313-G56YY University of Birmingham Academic 1 28 February 2025 to 27 February 2028 In term No
Investigating the Application of Causal Inference Methods for Modelling the Impact of Treatment Sequences in Health Economic Evaluations: Utilising Real-world Evidence from the English Cancer Registry DARS-NIC-661854-W9V1H University of Sheffield Academic 1 20 May 2024 to 25 February 2028 In term No
Frequency of follow-up for patients with low-, intermediate- and high-risk colorectal adenomas DARS-NIC-147827-NC2TC Imperial College London Academic 0 20 February 2024 to 19 February 2028 In term No
Policy Research Unit on Awareness, Early Detection and Screening DARS-NIC-752432-W7V5T University of Leicester Academic 1 21 January 2025 to 20 January 2028 In term No
SUMMIT Study: Cancer screening study with or without low-dose lung CT to validate a multi-cancer early detection test (Previously ODR1718_316) DARS-NIC-656813-F4H5W University College London (UCL) Academic 23 20 December 2022 to 19 December 2027 In term Yes
EPIC-Oxford. A prospective cohort study of 65,000 mainly vegetarian men and women, to examine how diet influences the risk of cancer, particularly for the most common types of cancer in Britain, as well as other chronic diseases. DARS-NIC-148322-TMFVQ University of Oxford Academic 0 6 December 2024 to 5 December 2027 In term No
CANDID - Cancer diagnosis decision rules DARS-NIC-682551-T8V0S University of Southampton Academic 2 1 December 2024 to 30 November 2027 In term No
QResearch Data Linkage Project DARS-NIC-382794-T3L3M Queen Mary University of London Academic 0 15 June 2026 to 27 November 2027 In term Yes
A Comprehensive approach to International Cancer Survival Benchmarking – Assessing the Impact of Covid-19 on Cancer DARS-NIC-670080-S6J0Y NHS England Agency/Public Body 2 11 November 2024 to 10 November 2027 In term No
PRECISION: PREvent ductal Carcinoma In Situ Invasive Overtreatment Now DARS-NIC-727325-W4M7T NHS England Agency/Public Body 1 1 November 2024 to 31 October 2027 In term No
SYMPLIFY Study Clinical Trial Outcomes Data Request DARS-NIC-604851-W0M3S Grail Bio UK Ltd Commercial 10 14 October 2024 to 13 October 2027 In term Yes
National Cancer Audit Collaborating Centre (NATCAN) DARS-NIC-709865-W9X6H The Royal College of Surgeons of England Academic 5 7 November 2025 to 30 September 2027 In term No
The Million Women Study DARS-NIC-389134-S8L1C University of Oxford Academic 1 27 September 2024 to 26 September 2027 In term Yes
A service evaluation to review the baseline demographics of patients undergoing radical treatment for oropharyngeal cancer – and a comparison with the TORPEdO study cohort DARS-NIC-688768-Y9Q9S The Institute of Cancer Research Research 1 18 November 2025 to 19 September 2027 In term No
OLIVE: Improving the early detection of lung cancer in never-smokers DARS-NIC-740806-W2F6Q University College London (UCL) Academic 1 13 March 2026 to 12 September 2027 In term No
Mental Disorder and Cancer Care: a Data Linkage Study in South London II (ODR1516_358) DARS-NIC-659293-T1G7M South London and Maudsley NHS Foundation Trust NHS Trust 0 24 July 2026 to 10 September 2027 In term No
Characteristics, Treatment Patterns and Outcomes of patients with Refractory Metastatic Colorectal Cancer DARS-NIC-749150-S0M7G Evidera Ltd Research 1 8 September 2025 to 7 September 2027 In term Yes
Delivering integrated care systems and patient choice for specialist cancer treatments in the NHS: impact on access, equity and outcomes of care DARS-NIC-656815-R5X0N London School of Hygiene and Tropical Medicine Research 1 23 August 2024 to 22 August 2027 In term No
Investigating inequalities in utilisation of targeted therapies DARS-NIC-656847-K4L8H University of Newcastle upon Tyne Academic 1 15 August 2024 to 14 August 2027 In term No
Identifying Procedure Adjusted Quality Indicators For Upper Gastrointestinal Endoscopy From Multivariable Analysis Of Cohorts With Post Endoscopy Upper Gastrointestinal Cancer (POUGIC) In The National Endoscopy Database (NED) (ODR2021_163) DARS-NIC-656883-P3K5F Sandwell and West Birmingham Hospitals NHS Trust NHS Trust 0 12 June 2026 to 12 August 2027 In term No
Braina CaVa: Care, variation, outcomes, and costs in patients with brain tumours in England. (ODR1819_236) DARS-NIC-656838-J7H7S Imperial College Healthcare NHS Trust NHS Trust 0 26 June 2024 to 25 June 2027 In term No
PREMO CNS; The PREsentation, Management and Outcomes of patients with CNS disease secondary to Breast Cancer in England (ODR2021_030) DARS-NIC-687052-V2Q0M University of Liverpool Academic 2 14 June 2026 to 13 June 2027 In term No
A national retrospective cohort review of the epidemiology of lentigo maligna in England from 2013 to 2023. DARS-NIC-727732-M8C2N Norfolk and Norwich University Hospital NHS Trust Site 2 13 June 2025 to 12 June 2027 In term No
Cancer Stats Future: Incidence Data Request DARS-NIC-656826-M3Y6C Cancer Research UK Charity 3 10 July 2026 to 5 June 2027 In term No
Observational study of Age, test THreshold and frequency on English NAtional Mammography screening outcomes DARS-NIC-656870-H0K0G University of Warwick Academic 0 3 June 2024 to 2 June 2027 In term No
UK Participants in the UK Atmospheric Nuclear Weapons Test (NWTPS) DARS-NIC-682587-K5N5K UK Health Security Agency Agency/Public Body 2 5 December 2025 to 31 May 2027 In term No
National Registry for Radiation Workers DARS-NIC-682588-Z0V8G UK Health Security Agency Agency/Public Body 2 5 December 2025 to 31 May 2027 In term No
Lynch Syndrome Research Registry Pilot Study DARS-NIC-682461-D0Z7H Imperial College London Academic 2 23 May 2025 to 22 May 2027 In term No
CONCORD Programme (ODR1617_033) DARS-NIC-659283-N1S1H London School of Hygiene and Tropical Medicine Research 24 20 May 2024 to 19 May 2027 In term No
Establishing a UK Colorectal Cancer Intelligence Hub - The COloRECTal Cancer Data Repository (CORECT-R) (ODR2021_249) DARS-NIC-656885-M7T5X University of Oxford Academic 7 8 May 2026 to 7 May 2027 In term No
Determine mode of presentation, route to diagnosis, updated incidence, prevalence and survival of patients with Neuroendocrine Neoplasia, calculating total costs of care (ODR2021_020). DARS-NIC-656877-H3Z0P Hampshire Hospitals NHS Foundation Trust NHS Trust 2 1 May 2026 to 6 May 2027 In term No
Generations Study (ODR_2014_317B) DARS-NIC-656751-H5K0Y The Institute of Cancer Research Research 1 3 May 2024 to 2 May 2027 In term No
QResearch data linkage project (ODR1819_247) DARS-NIC-656839-K5V9L Queen Mary University of London Academic 2 11 July 2025 to 29 April 2027 In term Yes
Comparison of Real-World Evidence with Trial data for chemotherapies which have exited the Cancer Drug Fund DARS-NIC-701654-Q5Z9T The Newcastle upon Tyne Hospitals NHS Foundation Trust NHS Trust 1 18 April 2024 to 17 April 2027 In term No
CAP study: Cluster randomised triAl of prostate specific antigen (PSA) testing for Prostate cancer (ODR1617_022) DARS-NIC-656775-N0V8C University of Bristol Academic 1 18 April 2025 to 17 April 2027 In term No
ENHANCED SURVEILLANCE OF HUMAN PAPILLOMAVIRUS (HPV) GENOTYPES IN CERVICAL DISEASE (ODR1516_354) DARS-NIC-656767-M5W2L UK Health Security Agency Agency/Public Body 1 12 April 2024 to 11 April 2027 In term No
Curated NCRAS data for the The National Genomics Research Library (ODR1617_131) DARS-NIC-656890-V4L0D Genomics England Research 0 11 April 2024 to 10 April 2027 In term Yes
Investigating the association between X-ray guided endovascular aortic aneurysm repair and incidence of cancer DARS-NIC-264102-D2X7J King's College London Academic 1 2 April 2026 to 1 April 2027 In term No
The Role of Patient-Reported Outcome Measure in the Prediction of Late Cancer Outcomes (Survival) DARS-NIC-661733-V0T9G University of Leeds Academic 1 18 March 2024 to 17 March 2027 In term No
Yorkshire Specialist Register of Cancer in Children and Young People DARS-NIC-11809-H1Y3W University of Leeds Academic 8 22 May 2025 to 28 February 2027 In term No
Melanoma PREDICT Tool - Individualising prognostic stratification in melanoma ODR1920_246 DARS-NIC-681965-Y4H5P Cambridge University Hospitals NHS Foundation Trust NHS Trust 2 31 July 2026 to 22 February 2027 In term No
A comparison of the effectiveness of different treatment regimens for pancreatic cancer using English cancer registry data DARS-NIC-656862-L4M7T University of Sheffield Academic 0 19 September 2025 to 4 February 2027 In term No
Faecal Immunochemical Testing (FIT) for Adenoma Surveillance ( ODR_2014_293 ) DARS-NIC-656750-K1X5M Imperial College London Academic 0 17 January 2024 to 16 January 2027 In term No
Identifying Cancer Recurrence within Patient Care Pathways across Linked National Clinical Datasets DARS-NIC-671672-G6R6W London School of Hygiene and Tropical Medicine Research 1 10 January 2025 to 9 January 2027 In term No
An on-going case-control study to evaluate the NHS Breast Screening Programme (NHSBSP) (ODR1516_167) DARS-NIC-656762-V9J7N Queen Mary University of London Academic 0 15 July 2024 to 31 December 2026 In term No
Long-term outcomes in women diagnosed with non-invasive breast cancer (ODR1516_255) DARS-NIC-656763-K3F9R University of Oxford Academic 0 23 December 2025 to 30 December 2026 In term No
A population based study of genetic predisposition and gene-environment interactions in breast, ovarian and endometrial cancer (follow up of pre-2019 patients only) ( ODR1920_097 ) DARS-NIC-656857-F4D9R University of Cambridge Academic 0 8 March 2024 to 26 December 2026 In term No
Understanding and improving the use of investigations in primary care in patients subsequently diagnosed with cancer (ODR1920_196) DARS-NIC-656863-R0V6Q University College London (UCL) Academic 0 20 December 2023 to 19 December 2026 In term No
Un-CoV-er: Understanding the impact of SARS- CoV-2 infection in patients with blood cancer. (ODR1718__301) DARS-NIC-656811-F7T9C The Clatterbridge Cancer Centre NHS Foundation Trust NHS Trust 4 11 December 2023 to 10 December 2026 In term No
Our Future Health Outcomes TRE Data Linkage Application with Sublicensing DARS-NIC-411795-X5N2V Our Future Health Charity 15 30 July 2025 to 28 November 2026 In term Yes
A retrospective observational study of treatment patterns, resource use and outcomes in patients with early-stage Non-Small Cell Lung Cancer (NSCLC) in England DARS-NIC-682583-Z3V2H Adelphi Real World Commercial 2 7 November 2025 to 6 November 2026 In term Yes
Epidemiology and treatment of HR+/HER2- breast cancer in England (ROTOR) DARS-NIC-700547-S2M9L Corevitas Consultancy 1 6 February 2026 to 26 October 2026 In term Yes
Investigating the utility of machine learning methods to predict prognosis and guide treatment decisions for people with lung cancer (Lung-ORACLE) DARS-NIC-678273-F2S0V University College London (UCL) Academic 2 26 September 2025 to 20 October 2026 In term No
MesobanK (ODR1516_410) DARS-NIC-656770-J1L3N Royal Papworth Hospital NHS Foundation Trust NHS Trust 0 11 October 2023 to 10 October 2026 In term No
Advancing Survivorship after Cancer: Outcomes Trial (ODR1819_039) DARS-NIC-656825-X7T4K University College London (UCL) Academic 1 6 October 2023 to 5 October 2026 In term No
Small Area Health Statistics Unit (SAHSU) (ODR1516_371/A4) DARS-NIC-656768-C1Z1M Imperial College London Academic 0 27 September 2023 to 26 September 2026 In term No
The Epidemiology of breast cancer subtypes in England as defined by hormone receptor status and HER2 status (ODR1516_099) DARS-NIC-656758-N4H9Y University of Oxford Academic 3 30 April 2024 to 23 September 2026 In term No
The socioeconomic inequalities in the diagnosis and treatment of colorectal and ovarian cancers in the England (ODR2021_179) DARS-NIC-656884-R1N3C University of Hull Academic 0 20 July 2026 to 5 September 2026 In term No
Cancer Registry-wide study in infants with neuroblastoma; Task 11.4 of the ENNCCA Network of Excellence DARS-NIC-656760-F8Y3C University College London (UCL) Academic 1 6 June 2025 to 20 August 2026 Expired No
R23 - Clinical Practice Research Datalink (CPRD) Routine Linkages Application DARS-NIC-15625-T8K6L Medicines and Healthcare Products Regulatory Agency (MHRA) Agency/Public Body 4 13 February 2026 to 12 August 2026 Expired No
Investigation of 2018 National Cancer Diagnosis Audit (NCDA) results in London DARS-NIC-682529-F0V1M Royal Free London NHS Foundation Trust NHS Trust 1 19 May 2025 to 18 July 2026 Expired No
End of Life Care for Infants, Children and Young People: a mixed methods evaluation of current practice in England DARS-NIC-682554-L6G6Q University of York Academic 2 17 July 2023 to 16 July 2026 Expired No
The Role of Early Detection and Treatment of Anal Intraepithelial Neoplasia in the Prevention of Anal Squamous Cell Carcinoma in Women: Establishing the Disease Burden in Women with Genital Cancer DARS-NIC-664530-K6Q5H Imperial College London Academic 1 12 July 2023 to 11 July 2026 Expired No
Modelling impact of interruptions to cancer screening with COVID ( ODR2021_016 ) DARS-NIC-656876-L4B0V University College London (UCL) Academic 0 3 May 2024 to 6 July 2026 Expired No
Cancer survival methodological developments and their applications DARS-NIC-662234-T6B7J University of Leicester Academic 1 1 July 2023 to 30 June 2026 Expired No
Hodgkin and Non-Hodgkin Lymphoma:Using routine data to identify recurrence, and variation in the use of radiotherapy ( ODR1920_011 ) DARS-NIC-656849-P9M6C University of Oxford Academic 1 23 May 2023 to 22 May 2026 Expired No
Accessing and using routine datasets for future cancer clinical trials – Prospective validation project using data from TACT2 DARS-NIC-656778-L3D2T The Institute of Cancer Research Research 0 16 May 2025 to 15 May 2026 Expired No
Accessing and using routine datasets for future cancer clinical trials – Prospective validation project using data from POETIC DARS-NIC-656779-D9Y3Z The Institute of Cancer Research Research 0 16 May 2025 to 15 May 2026 Expired No
Accessing and using routine datasets for future cancer clinical trials – Prospective validation project using data from IMPORT HIGH DARS-NIC-656780-B1W0Y The Institute of Cancer Research Research 0 16 May 2025 to 15 May 2026 Expired No
FAST-Forward: a randomised clinical trial testing a 1-week course of curative whole breast radiotherapy against a standard 3-week schedule in terms of local cancer control and late adverse effects in women with early breast cancer. DARS-NIC-656781-W4B0L The Institute of Cancer Research Research 0 16 May 2025 to 15 May 2026 Expired No
Understanding and improving the use of investigations in primary care in patients subsequently diagnosed with cancer (ODR2122_2510) DARS-NIC-687063-J3V2C University of Exeter Academic 0 29 April 2024 to 28 April 2026 Expired No
Patient characteristics, treatment patterns and healthcare resource utilization of newly diagnosed locally advanced head and neck squamous cell carcinoma: an observational retrospective cohort analysis of real-world data in England (ODR2021_255) DARS-NIC-656886-D8H1H Adelphi Group Limited Consultancy 0 26 April 2024 to 25 April 2026 Expired Yes
Patient characteristics, treatment patterns and healthcare resource utilization of newly diagnosed Triple Negative Breast Cancer Patients: an observational retrospective cohort analysis of real-world data in England (ODR2021_259) DARS-NIC-656887-Q7M1C Adelphi Group Limited Consultancy 0 24 April 2024 to 23 April 2026 Expired Yes
Evaluating the age extension of the NHS Breast Screening Programme (AgeX Trial) (ODR_2014_367) DARS-NIC-656752-G2L2P University of Oxford Academic 4 1 July 2023 to 31 March 2026 Expired No
Using Large-scale Routine Data to Monitor and Improve Ethnic Inequalities in Cancer and Cardiovascular Disease (ODR1920_301) DARS-NIC-656874-T3L9D University College London (UCL) Academic 1 31 January 2025 to 8 February 2026 Expired No
National Lung Cancer Audit - NCRAS data request DARS-NIC-663539-G7F9X The Royal College of Surgeons of England Academic 6 25 December 2024 to 1 January 2026 Expired No
National Gastrointestinal Cancer Audit Programme (GICAP) (ODR1819_260) DARS-NIC-656842-S5V7V NHS England Agency/Public Body 7 20 December 2024 to 31 December 2025 Expired No
Clinical and economic burden of graft versus host disease in allogeneic stem cell transplant recipients in England – A retrospective cohort study DARS-NIC-682048-S9P4H Certara UK Commercial 1 8 January 2024 to 21 December 2025 Expired Yes
Investigating the Routes to Diagnosis in Head and Neck Cancer in England: population-based analysis of secondary data ( ODR1718_151/A1 ) DARS-NIC-659285-B3X8G University of Newcastle upon Tyne Academic 0 13 November 2023 to 12 November 2025 Expired No
A retrospective observational study of patient characteristics, treatment patterns and healthcare resource utilisation for stage II melanoma in England DARS-NIC-655446-P9K9Q Adelphi Group Limited Consultancy 1 8 November 2023 to 7 November 2025 Expired Yes
National Prostate Cancer Audit (ODR1920_024) DARS-NIC-656851-D6M5H Healthcare Quality Improvement Partnership (HQIP) Agency/Public Body 3 18 September 2024 to 30 September 2025 Expired No
The ROMIO Study. Randomised Oesophagectomy: Minimally Invasive or Open (ODR1718_315) DARS-NIC-595667-K4S9R University of Bristol Academic 2 12 September 2022 to 11 September 2025 Expired No
Tumours of the Central Nervous System: Incidence, Survival and Variation in Treatments (ODR1819_255) DARS-NIC-656841-D0P8Y University of Oxford Academic 3 7 August 2024 to 6 August 2025 Expired No
Life After Prostate Cancer Diagnosis DARS-NIC-656777-B0V8N University of Leeds Academic 0 5 July 2024 to 4 July 2025 Expired No
Retinoblastoma gene mutations and risk of secondary primary tumours (ODR1819_191) DARS-NIC-656834-N7Z3Q Barts Health NHS Trust NHS Trust 0 4 April 2024 to 3 April 2025 Expired No
An ongoing case-control study to evaluate the NHS Bowel Cancer Screening Programme (ODR1516_019) DARS-NIC-656755-W4N5C Queen Mary University of London Academic 0 8 March 2024 to 20 February 2025 Expired No
Metastatic cutaneous Squamous Cell Carcinoma (cSCC) in England 2013-2015– assessment of staging systems and histological risk factors for metastasis. ( ODR1819_225 ) DARS-NIC-656837-J7G8S Erasmus University Medical Centre Private Healthcare 3 26 July 2024 to 25 January 2025 Expired No
Treatment Pathway of HR+/HER2- Metastatic Breast Cancer in England ( ODR2021_059 ) DARS-NIC-656880-K7V7P Health IQ Ltd Commercial 0 17 January 2024 to 16 January 2025 Expired Yes
A phase III, double blind, placebo controlled, randomised trial assessing the effects of aspirin on disease recurrence and survival after primary therapy in common non metastatic solid tumours ( ODR1718_261 ) DARS-NIC-656806-N9V7N University College London (UCL) Academic 0 15 January 2024 to 14 January 2025 Expired No
Avoiding Cardiac Toxicity in lung cancer patients treated with curative-intent radiotherapy to improve survival ( ODR1819_034 ) DARS-NIC-656824-R8K0V Leeds Teaching Hospitals NHS Trust NHS Trust 0 27 March 2024 to 11 December 2024 Expired No
Life and Bladder Cancer (LABC): The Yorkshire Cancer Research Bladder Cancer Patient Reported Outcomes Survey (Cross-Sectional Evaluation) (ODR1920_114) DARS-NIC-656858-Y9D0P University of Leeds Academic 0 12 December 2023 to 11 December 2024 Expired No
European Prospective Investigation into Cancer and Nutrition (EPIC) - Oxford ( ODR1516_018 ) DARS-NIC-656754-C6S5Q University of Oxford Academic 1 23 October 2023 to 19 October 2024 Expired No
Non-Hodgkin Lymphoma in Young Adults A Prospective UK population-based study of incidence, treatment and outcomes. (ODR1516_460) DARS-NIC-656771-F4K5X Guy's and St Thomas' NHS Foundation Trust NHS Trust 0 15 March 2024 to 15 September 2024 Expired No
THE CREPE STUDY: Outcomes and treatment pathways for Castration Resistant Prostate Cancer in England: A Real-World Data Study (ODR1920_232) DARS-NIC-656866-V3H6X Health IQ Ltd Commercial 0 8 September 2023 to 7 September 2024 Expired No
Descriptive Epidemiology, Treatment Patterns, and Outcomes of Patients with Renal Cell Carcinoma in England: A Retrospective Cohort Study Using SACT Data and Cancer Registry (DORCES) ( ODR2021_055 ) DARS-NIC-656879-L3Y5Z Evidera Ltd Research 0 29 March 2024 to 31 August 2024 Expired No
How much geographical variation in access to Ovarian Cancer treatment is there in England and to what extent is this affected by health care system level factors? (ODR1718_153) DARS-NIC-656805-R5Z2Y Cancer Research UK Charity 0 11 August 2023 to 11 August 2024 Expired No
Variation in access to treatments for lung cancer ( ODR1718_079 ) DARS-NIC-656800-V6B5C Cancer Research UK Charity 0 25 July 2023 to 24 July 2024 Expired No
Favourable Outcome of canceR Therapy (ODR1920_062) DARS-NIC-656854-T9G6P The University of Manchester Academic 0 24 March 2023 to 28 June 2024 Expired No
Brain tumour diagnoses by hospital eye services: is there evidence of a Barker effect? ( ODR1920_288 ) DARS-NIC-656873-Q2C7L University of Bristol Academic 1 27 June 2023 to 26 June 2024 Expired No
Demographics and survival outcomes of young colorectal cancer patients. Implications for population-based screening, awareness and management. (ODR1819_262) DARS-NIC-656843-D8M4Z University Hospitals Plymouth NHS Trust NHS Trust 0 13 April 2023 to 12 April 2024 Expired No
Understanding the outcomes of patients with cirrhosis and hepatocellular carcinoma (HCC) in the England ( ODR1718_432 ) DARS-NIC-656823-G0Q2C University of Leeds Academic 0 12 April 2023 to 31 March 2024 Expired No
Yorkshire Specialist Register of Cancer in Children and Young People ( ODR1516_163 ) DARS-NIC-656761-R6H7W University of Leeds Academic 5 6 February 2024 to 5 March 2024 Expired No
Updating trends in the cancer survival index for England and Wales ( ODR1920_179 ) DARS-NIC-656861-S5H3R London School of Hygiene and Tropical Medicine Research 0 22 May 2023 to 31 December 2023 Expired No
CPRD Data Linkage Scheme (ODR1819_CRPD2019) DARS-NIC-656848-T9J1Q Medicines and Healthcare Products Regulatory Agency (MHRA) Agency/Public Body 0 11 January 2023 to 31 October 2023 Expired No
Comparison of treatment and survival in European patients with a gastrointestinal stromal tumor-EURECCA ( ODR1920_015 ) DARS-NIC-656850-Y1V4Q Leiden University Academic 0 25 April 2023 to 25 October 2023 Expired No
Epidemiology of Cancer after solid Organ Transplantation - EPCOT study ( ODR_2014_244 ) DARS-NIC-656749-G8K4G University Hospitals Birmingham NHS Foundation Trust NHS Trust 0 25 July 2023 to 24 October 2023 Expired No
National Audit of Breast Cancer in Older Patients ( ODR1617_169 ) DARS-NIC-656784-C7P5B Healthcare Quality Improvement Partnership (HQIP) Agency/Public Body 0 13 April 2023 to 12 October 2023 Expired No
Surgical margins in breast conserving surgery for ductal carcinoma in-situ (DCIS) and clinical outcomes (ODR1819_162) DARS-NIC-656832-M8F7G University of Nottingham Academic 1 24 February 2023 to 1 September 2023 Expired No

Cite this page

NHS England (2026) Data Uses Register, September 2026 edition, agreements naming NDRS Cancer Registrations. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/datasets/ndrs-cancer-registrations/ (accessed [date]).

This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.