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NDRS Linked HES Outpatient

Agreements naming it
61
In term in September 2026
38
Organisations
36
Files released
78

Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.

How the register describes it

Recorded against the dataset on each agreement, and not always the same from one agreement to the next, so every value found is listed.

Type of data
  • Anonymised - ICO Code Compliant
  • Identifiable
Sensitivity
  • Non-Sensitive
  • Sensitive
Frequency of release
  • One-Off
  • Ongoing
Legal basis for provision
  • Health and Social Care Act 2012 - s261(5)(a)
  • Health and Social Care Act 2012 - s261(5)(d)
  • Health and Social Care Act 2012 – s261(2)(a)
  • Health and Social Care Act 2012 – s261(2)(c)
  • Health and Social Care Act 2012 – s261(7)
  • National Health Service Act 2006 - s251 - 'Control of patient information'.
  • Other-The Health Service (Control of Patient Information) Regulation 2002
  • Other-The Health Service (Control of Patient Information) Regulations 2002- Regulation 2

Organisations whose agreements name it (36)

Show the list, with the number of agreements for each

With an agreement in term in September 2026 (28)

With expired agreements only (8)

Agreements covering this dataset

Showing all 61 agreements.

Files: files of this dataset released under the agreement, across all its versions.

Agreements covering NDRS Linked HES Outpatient
AgreementOrganisationTypeFilesLatest termStatusCommercial
Multifrequency Bioimpedance in the Early Detection of Lymphoedema DARS-NIC-656836-T2J0T Manchester University NHS Foundation Trust NHS Trust 0 13 June 2025 to 12 June 2031 In term No
NHS Galleri Clinical Trial Outcomes Data Request DARS-NIC-604847-S4B5L Grail Bio UK Ltd Commercial 9 24 October 2025 to 29 March 2030 In term Yes
Study to investigate the accuracy with which breast cancer recurrence can be identified in women registered with invasive breast cancer using routinely collected data compared with recurrence information collected by the AZURE trial ( ODR1718_364 ) DARS-NIC-656816-Z3N6R University of Oxford Academic 0 10 July 2026 to 19 September 2029 In term No
INTERACT Retrospective- Understanding inclusivity in oncology clinical trials: a data-driven approach DARS-NIC-756432-F0B1L The Institute of Cancer Research Research 0 4 September 2026 to 3 September 2029 In term No
Project to Help Improve Decision Aids for Predicting Outcomes in Early Breast Cancer: (ODR1718_390) DARS-NIC-656818-N1B5Q University of Oxford Academic 1 12 August 2026 to 30 June 2029 In term No
Inequalities in Cancer Survival (ODR_1516_050) DARS-NIC-656757-J8V9D London School of Hygiene and Tropical Medicine Research 0 17 April 2026 to 16 April 2029 In term No
Assessing the utility of healthcare systems data for trials: data utility comparisons in the STAMPEDE trial (DUCkS)(previously: ODR1718_094) DARS-NIC-656801-R9F6Z University College London (UCL) Academic 0 13 October 2025 to 12 October 2028 In term Yes
Understanding causal relationships between socio-economic inequalities, multi-morbidity, and cancer treatment and outcomes DARS-NIC-715080-X0J9J The University of Manchester Academic 1 1 October 2025 to 30 September 2028 In term No
A retrospective observational study to evaluate demographic/clinical characteristics, treatments, patterns of therapy, and outcomes of patients with advanced non-small cell lung cancer (aNSCLC) in England DARS-NIC-748004-M6G9X Evidera Ltd Research 2 8 September 2025 to 7 September 2028 In term Yes
A National Study Of Breast Cancer And A Range Of Late Effects Of Hodgkin Lymphoma Treatments In Women (ODR1516_470) DARS-NIC-659282-H1F7C The Royal Marsden NHS Foundation Trust NHS Trust 0 10 June 2026 to 1 September 2028 In term No
A follow-up of GLACIER (a study to investigate the Genetics of LobulAr Carcinoma In situ in EuRope) and ICICLE (A study to Investigate the genetiCs of In situ Carcinoma of the ductaLsubtypE). (ODR1920_145) DARS-NIC-656860-Q5Q9Q Guy's and St Thomas' NHS Foundation Trust NHS Trust 0 23 May 2025 to 22 May 2028 In term No
Late-effects of treatments in breast cancer survivors in England. DARS-NIC-737073-H1C6D The Institute of Cancer Research Research 1 1 May 2025 to 30 April 2028 In term No
ProtecT study (Prostate testing for cancer and treatment) ( ODR1617_311 ) DARS-NIC-656793-T4H6S University of Bristol Academic 0 17 March 2025 to 16 March 2028 In term No
Investigating the Application of Causal Inference Methods for Modelling the Impact of Treatment Sequences in Health Economic Evaluations: Utilising Real-world Evidence from the English Cancer Registry DARS-NIC-661854-W9V1H University of Sheffield Academic 1 20 May 2024 to 25 February 2028 In term No
SUMMIT Study: Cancer screening study with or without low-dose lung CT to validate a multi-cancer early detection test (Previously ODR1718_316) DARS-NIC-656813-F4H5W University College London (UCL) Academic 23 20 December 2022 to 19 December 2027 In term Yes
PRECISION: PREvent ductal Carcinoma In Situ Invasive Overtreatment Now DARS-NIC-727325-W4M7T NHS England Agency/Public Body 1 1 November 2024 to 31 October 2027 In term No
SYMPLIFY Study Clinical Trial Outcomes Data Request DARS-NIC-604851-W0M3S Grail Bio UK Ltd Commercial 9 14 October 2024 to 13 October 2027 In term Yes
National Cancer Audit Collaborating Centre (NATCAN) DARS-NIC-709865-W9X6H The Royal College of Surgeons of England Academic 0 7 November 2025 to 30 September 2027 In term No
BladderPath: Image Directed Redesign of Bladder Cancer Treatment Pathways DARS-NIC-664431-F3G8W University of Birmingham Academic 1 1 October 2024 to 30 September 2027 In term No
Mental Disorder and Cancer Care: a Data Linkage Study in South London II (ODR1516_358) DARS-NIC-659293-T1G7M South London and Maudsley NHS Foundation Trust NHS Trust 0 24 July 2026 to 10 September 2027 In term No
Characteristics, Treatment Patterns and Outcomes of patients with Refractory Metastatic Colorectal Cancer DARS-NIC-749150-S0M7G Evidera Ltd Research 1 8 September 2025 to 7 September 2027 In term Yes
Delivering integrated care systems and patient choice for specialist cancer treatments in the NHS: impact on access, equity and outcomes of care DARS-NIC-656815-R5X0N London School of Hygiene and Tropical Medicine Research 1 23 August 2024 to 22 August 2027 In term No
Investigating inequalities in utilisation of targeted therapies DARS-NIC-656847-K4L8H University of Newcastle upon Tyne Academic 1 15 August 2024 to 14 August 2027 In term No
Identifying Procedure Adjusted Quality Indicators For Upper Gastrointestinal Endoscopy From Multivariable Analysis Of Cohorts With Post Endoscopy Upper Gastrointestinal Cancer (POUGIC) In The National Endoscopy Database (NED) (ODR2021_163) DARS-NIC-656883-P3K5F Sandwell and West Birmingham Hospitals NHS Trust NHS Trust 0 12 June 2026 to 12 August 2027 In term No
Braina CaVa: Care, variation, outcomes, and costs in patients with brain tumours in England. (ODR1819_236) DARS-NIC-656838-J7H7S Imperial College Healthcare NHS Trust NHS Trust 0 26 June 2024 to 25 June 2027 In term No
PREMO CNS; The PREsentation, Management and Outcomes of patients with CNS disease secondary to Breast Cancer in England (ODR2021_030) DARS-NIC-687052-V2Q0M University of Liverpool Academic 1 14 June 2026 to 13 June 2027 In term No
Lynch Syndrome Research Registry Pilot Study DARS-NIC-682461-D0Z7H Imperial College London Academic 1 23 May 2025 to 22 May 2027 In term No
Establishing a UK Colorectal Cancer Intelligence Hub - The COloRECTal Cancer Data Repository (CORECT-R) (ODR2021_249) DARS-NIC-656885-M7T5X University of Oxford Academic 2 8 May 2026 to 7 May 2027 In term No
Determine mode of presentation, route to diagnosis, updated incidence, prevalence and survival of patients with Neuroendocrine Neoplasia, calculating total costs of care (ODR2021_020). DARS-NIC-656877-H3Z0P Hampshire Hospitals NHS Foundation Trust NHS Trust 1 1 May 2026 to 6 May 2027 In term No
Generations Study (ODR_2014_317B) DARS-NIC-656751-H5K0Y The Institute of Cancer Research Research 1 3 May 2024 to 2 May 2027 In term No
Melanoma PREDICT Tool - Individualising prognostic stratification in melanoma ODR1920_246 DARS-NIC-681965-Y4H5P Cambridge University Hospitals NHS Foundation Trust NHS Trust 1 31 July 2026 to 22 February 2027 In term No
A comparison of the effectiveness of different treatment regimens for pancreatic cancer using English cancer registry data DARS-NIC-656862-L4M7T University of Sheffield Academic 0 19 September 2025 to 4 February 2027 In term No
Identifying Cancer Recurrence within Patient Care Pathways across Linked National Clinical Datasets DARS-NIC-671672-G6R6W London School of Hygiene and Tropical Medicine Research 1 10 January 2025 to 9 January 2027 In term No
A population based study of genetic predisposition and gene-environment interactions in breast, ovarian and endometrial cancer (follow up of pre-2019 patients only) ( ODR1920_097 ) DARS-NIC-656857-F4D9R University of Cambridge Academic 0 8 March 2024 to 26 December 2026 In term No
Un-CoV-er: Understanding the impact of SARS- CoV-2 infection in patients with blood cancer. (ODR1718__301) DARS-NIC-656811-F7T9C The Clatterbridge Cancer Centre NHS Foundation Trust NHS Trust 4 11 December 2023 to 10 December 2026 In term No
A retrospective observational study of treatment patterns, resource use and outcomes in patients with early-stage Non-Small Cell Lung Cancer (NSCLC) in England DARS-NIC-682583-Z3V2H Adelphi Real World Commercial 2 7 November 2025 to 6 November 2026 In term Yes
Epidemiology and treatment of HR+/HER2- breast cancer in England (ROTOR) DARS-NIC-700547-S2M9L Corevitas Consultancy 1 6 February 2026 to 26 October 2026 In term Yes
MesobanK (ODR1516_410) DARS-NIC-656770-J1L3N Royal Papworth Hospital NHS Foundation Trust NHS Trust 0 11 October 2023 to 10 October 2026 In term No
End of Life Care for Infants, Children and Young People: a mixed methods evaluation of current practice in England DARS-NIC-682554-L6G6Q University of York Academic 2 17 July 2023 to 16 July 2026 Expired No
Hodgkin and Non-Hodgkin Lymphoma:Using routine data to identify recurrence, and variation in the use of radiotherapy ( ODR1920_011 ) DARS-NIC-656849-P9M6C University of Oxford Academic 1 23 May 2023 to 22 May 2026 Expired No
Accessing and using routine datasets for future cancer clinical trials – Prospective validation project using data from TACT2 DARS-NIC-656778-L3D2T The Institute of Cancer Research Research 0 16 May 2025 to 15 May 2026 Expired No
Accessing and using routine datasets for future cancer clinical trials – Prospective validation project using data from POETIC DARS-NIC-656779-D9Y3Z The Institute of Cancer Research Research 0 16 May 2025 to 15 May 2026 Expired No
Accessing and using routine datasets for future cancer clinical trials – Prospective validation project using data from IMPORT HIGH DARS-NIC-656780-B1W0Y The Institute of Cancer Research Research 0 16 May 2025 to 15 May 2026 Expired No
FAST-Forward: a randomised clinical trial testing a 1-week course of curative whole breast radiotherapy against a standard 3-week schedule in terms of local cancer control and late adverse effects in women with early breast cancer. DARS-NIC-656781-W4B0L The Institute of Cancer Research Research 0 16 May 2025 to 15 May 2026 Expired No
Patient characteristics, treatment patterns and healthcare resource utilization of newly diagnosed locally advanced head and neck squamous cell carcinoma: an observational retrospective cohort analysis of real-world data in England (ODR2021_255) DARS-NIC-656886-D8H1H Adelphi Group Limited Consultancy 0 26 April 2024 to 25 April 2026 Expired Yes
Patient characteristics, treatment patterns and healthcare resource utilization of newly diagnosed Triple Negative Breast Cancer Patients: an observational retrospective cohort analysis of real-world data in England (ODR2021_259) DARS-NIC-656887-Q7M1C Adelphi Group Limited Consultancy 0 24 April 2024 to 23 April 2026 Expired Yes
Using Large-scale Routine Data to Monitor and Improve Ethnic Inequalities in Cancer and Cardiovascular Disease (ODR1920_301) DARS-NIC-656874-T3L9D University College London (UCL) Academic 0 31 January 2025 to 8 February 2026 Expired No
Clinical and economic burden of graft versus host disease in allogeneic stem cell transplant recipients in England – A retrospective cohort study DARS-NIC-682048-S9P4H Certara UK Commercial 1 8 January 2024 to 21 December 2025 Expired Yes
A retrospective observational study of patient characteristics, treatment patterns and healthcare resource utilisation for stage II melanoma in England DARS-NIC-655446-P9K9Q Adelphi Group Limited Consultancy 1 8 November 2023 to 7 November 2025 Expired Yes
National Prostate Cancer Audit (ODR1920_024) DARS-NIC-656851-D6M5H Healthcare Quality Improvement Partnership (HQIP) Agency/Public Body 4 18 September 2024 to 30 September 2025 Expired No
The ROMIO Study. Randomised Oesophagectomy: Minimally Invasive or Open (ODR1718_315) DARS-NIC-595667-K4S9R University of Bristol Academic 1 12 September 2022 to 11 September 2025 Expired No
Tumours of the Central Nervous System: Incidence, Survival and Variation in Treatments (ODR1819_255) DARS-NIC-656841-D0P8Y University of Oxford Academic 1 7 August 2024 to 6 August 2025 Expired No
Life After Prostate Cancer Diagnosis DARS-NIC-656777-B0V8N University of Leeds Academic 0 5 July 2024 to 4 July 2025 Expired No
Retinoblastoma gene mutations and risk of secondary primary tumours (ODR1819_191) DARS-NIC-656834-N7Z3Q Barts Health NHS Trust NHS Trust 0 4 April 2024 to 3 April 2025 Expired No
Treatment Pathway of HR+/HER2- Metastatic Breast Cancer in England ( ODR2021_059 ) DARS-NIC-656880-K7V7P Health IQ Ltd Commercial 0 17 January 2024 to 16 January 2025 Expired Yes
A phase III, double blind, placebo controlled, randomised trial assessing the effects of aspirin on disease recurrence and survival after primary therapy in common non metastatic solid tumours ( ODR1718_261 ) DARS-NIC-656806-N9V7N University College London (UCL) Academic 0 15 January 2024 to 14 January 2025 Expired No
Life and Bladder Cancer (LABC): The Yorkshire Cancer Research Bladder Cancer Patient Reported Outcomes Survey (Cross-Sectional Evaluation) (ODR1920_114) DARS-NIC-656858-Y9D0P University of Leeds Academic 0 12 December 2023 to 11 December 2024 Expired No
THE CREPE STUDY: Outcomes and treatment pathways for Castration Resistant Prostate Cancer in England: A Real-World Data Study (ODR1920_232) DARS-NIC-656866-V3H6X Health IQ Ltd Commercial 0 8 September 2023 to 7 September 2024 Expired No
Brain tumour diagnoses by hospital eye services: is there evidence of a Barker effect? ( ODR1920_288 ) DARS-NIC-656873-Q2C7L University of Bristol Academic 0 27 June 2023 to 26 June 2024 Expired No
Demographics and survival outcomes of young colorectal cancer patients. Implications for population-based screening, awareness and management. (ODR1819_262) DARS-NIC-656843-D8M4Z University Hospitals Plymouth NHS Trust NHS Trust 0 13 April 2023 to 12 April 2024 Expired No
National Audit of Breast Cancer in Older Patients ( ODR1617_169 ) DARS-NIC-656784-C7P5B Healthcare Quality Improvement Partnership (HQIP) Agency/Public Body 0 13 April 2023 to 12 October 2023 Expired No

Cite this page

NHS England (2026) Data Uses Register, September 2026 edition, agreements naming NDRS Linked HES Outpatient. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/datasets/ndrs-linked-hes-outpatient/ (accessed [date]).

This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.