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NDRS Linked DIDs

Agreements naming it
32
In term in September 2026
22
Organisations
22
Files released
60

Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.

How the register describes it

Recorded against the dataset on each agreement, and not always the same from one agreement to the next, so every value found is listed.

Type of data
  • Anonymised - ICO Code Compliant
  • Identifiable
Sensitivity
  • Non-Sensitive
  • Sensitive
Frequency of release
  • One-Off
  • Ongoing
Legal basis for provision
  • Health and Social Care Act 2012 - s261(2)(d)
  • Health and Social Care Act 2012 – s261(2)(a)
  • Health and Social Care Act 2012 – s261(2)(c)
  • National Health Service Act 2006 - s251 - 'Control of patient information'.

Organisations whose agreements name it (22)

Show the list, with the number of agreements for each

With an agreement in term in September 2026 (17)

With expired agreements only (5)

Agreements covering this dataset

Showing all 32 agreements.

Files: files of this dataset released under the agreement, across all its versions.

Agreements covering NDRS Linked DIDs
AgreementOrganisationTypeFilesLatest termStatusCommercial
NHS Galleri Clinical Trial Outcomes Data Request DARS-NIC-604847-S4B5L Grail Bio UK Ltd Commercial 9 24 October 2025 to 29 March 2030 In term Yes
Yorkshire Cancer Research Bowel Cancer Improvement Programme - PROMs DARS-NIC-682571-Q6Z6Y University of Leeds Academic 2 13 March 2026 to 12 March 2030 In term No
Study to investigate the accuracy with which breast cancer recurrence can be identified in women registered with invasive breast cancer using routinely collected data compared with recurrence information collected by the AZURE trial ( ODR1718_364 ) DARS-NIC-656816-Z3N6R University of Oxford Academic 0 10 July 2026 to 19 September 2029 In term No
Project to Help Improve Decision Aids for Predicting Outcomes in Early Breast Cancer: (ODR1718_390) DARS-NIC-656818-N1B5Q University of Oxford Academic 0 12 August 2026 to 30 June 2029 In term No
BROCADE: BReast cancer OutComes from Addenbrooke's data Evaluation DARS-NIC-628636-Y3B1N Addenbrookes Independent Sector Healthcare Provider 0 26 May 2026 to 25 May 2029 In term No
Inequalities in Cancer Survival (ODR_1516_050) DARS-NIC-656757-J8V9D London School of Hygiene and Tropical Medicine Research 1 17 April 2026 to 16 April 2029 In term No
SUMMIT Study: Cancer screening study with or without low-dose lung CT to validate a multi-cancer early detection test (Previously ODR1718_316) DARS-NIC-656813-F4H5W University College London (UCL) Academic 23 20 December 2022 to 19 December 2027 In term Yes
SYMPLIFY Study Clinical Trial Outcomes Data Request DARS-NIC-604851-W0M3S Grail Bio UK Ltd Commercial 9 14 October 2024 to 13 October 2027 In term Yes
National Cancer Audit Collaborating Centre (NATCAN) DARS-NIC-709865-W9X6H The Royal College of Surgeons of England Academic 0 7 November 2025 to 30 September 2027 In term No
BladderPath: Image Directed Redesign of Bladder Cancer Treatment Pathways DARS-NIC-664431-F3G8W University of Birmingham Academic 1 1 October 2024 to 30 September 2027 In term No
Mental Disorder and Cancer Care: a Data Linkage Study in South London II (ODR1516_358) DARS-NIC-659293-T1G7M South London and Maudsley NHS Foundation Trust NHS Trust 0 24 July 2026 to 10 September 2027 In term No
Braina CaVa: Care, variation, outcomes, and costs in patients with brain tumours in England. (ODR1819_236) DARS-NIC-656838-J7H7S Imperial College Healthcare NHS Trust NHS Trust 0 26 June 2024 to 25 June 2027 In term No
PREMO CNS; The PREsentation, Management and Outcomes of patients with CNS disease secondary to Breast Cancer in England (ODR2021_030) DARS-NIC-687052-V2Q0M University of Liverpool Academic 1 14 June 2026 to 13 June 2027 In term No
Establishing a UK Colorectal Cancer Intelligence Hub - The COloRECTal Cancer Data Repository (CORECT-R) (ODR2021_249) DARS-NIC-656885-M7T5X University of Oxford Academic 2 8 May 2026 to 7 May 2027 In term No
Determine mode of presentation, route to diagnosis, updated incidence, prevalence and survival of patients with Neuroendocrine Neoplasia, calculating total costs of care (ODR2021_020). DARS-NIC-656877-H3Z0P Hampshire Hospitals NHS Foundation Trust NHS Trust 1 1 May 2026 to 6 May 2027 In term No
Curated NCRAS data for the The National Genomics Research Library (ODR1617_131) DARS-NIC-656890-V4L0D Genomics England Research 0 11 April 2024 to 10 April 2027 In term Yes
Melanoma PREDICT Tool - Individualising prognostic stratification in melanoma ODR1920_246 DARS-NIC-681965-Y4H5P Cambridge University Hospitals NHS Foundation Trust NHS Trust 1 31 July 2026 to 22 February 2027 In term No
Identifying Cancer Recurrence within Patient Care Pathways across Linked National Clinical Datasets DARS-NIC-671672-G6R6W London School of Hygiene and Tropical Medicine Research 1 10 January 2025 to 9 January 2027 In term No
Un-CoV-er: Understanding the impact of SARS- CoV-2 infection in patients with blood cancer. (ODR1718__301) DARS-NIC-656811-F7T9C The Clatterbridge Cancer Centre NHS Foundation Trust NHS Trust 4 11 December 2023 to 10 December 2026 In term No
A retrospective observational study of treatment patterns, resource use and outcomes in patients with early-stage Non-Small Cell Lung Cancer (NSCLC) in England DARS-NIC-682583-Z3V2H Adelphi Real World Commercial 1 7 November 2025 to 6 November 2026 In term Yes
Epidemiology and treatment of HR+/HER2- breast cancer in England (ROTOR) DARS-NIC-700547-S2M9L Corevitas Consultancy 1 6 February 2026 to 26 October 2026 In term Yes
The socioeconomic inequalities in the diagnosis and treatment of colorectal and ovarian cancers in the England (ODR2021_179) DARS-NIC-656884-R1N3C University of Hull Academic 0 20 July 2026 to 5 September 2026 In term No
Hodgkin and Non-Hodgkin Lymphoma:Using routine data to identify recurrence, and variation in the use of radiotherapy ( ODR1920_011 ) DARS-NIC-656849-P9M6C University of Oxford Academic 1 23 May 2023 to 22 May 2026 Expired No
Patient characteristics, treatment patterns and healthcare resource utilization of newly diagnosed locally advanced head and neck squamous cell carcinoma: an observational retrospective cohort analysis of real-world data in England (ODR2021_255) DARS-NIC-656886-D8H1H Adelphi Group Limited Consultancy 0 26 April 2024 to 25 April 2026 Expired Yes
Patient characteristics, treatment patterns and healthcare resource utilization of newly diagnosed Triple Negative Breast Cancer Patients: an observational retrospective cohort analysis of real-world data in England (ODR2021_259) DARS-NIC-656887-Q7M1C Adelphi Group Limited Consultancy 0 24 April 2024 to 23 April 2026 Expired Yes
National Gastrointestinal Cancer Audit Programme (GICAP) (ODR1819_260) DARS-NIC-656842-S5V7V NHS England Agency/Public Body 1 20 December 2024 to 31 December 2025 Expired No
A retrospective observational study of patient characteristics, treatment patterns and healthcare resource utilisation for stage II melanoma in England DARS-NIC-655446-P9K9Q Adelphi Group Limited Consultancy 1 8 November 2023 to 7 November 2025 Expired Yes
Treatment Pathway of HR+/HER2- Metastatic Breast Cancer in England ( ODR2021_059 ) DARS-NIC-656880-K7V7P Health IQ Ltd Commercial 0 17 January 2024 to 16 January 2025 Expired Yes
A phase III, double blind, placebo controlled, randomised trial assessing the effects of aspirin on disease recurrence and survival after primary therapy in common non metastatic solid tumours ( ODR1718_261 ) DARS-NIC-656806-N9V7N University College London (UCL) Academic 0 15 January 2024 to 14 January 2025 Expired No
THE CREPE STUDY: Outcomes and treatment pathways for Castration Resistant Prostate Cancer in England: A Real-World Data Study (ODR1920_232) DARS-NIC-656866-V3H6X Health IQ Ltd Commercial 0 8 September 2023 to 7 September 2024 Expired No
Brain tumour diagnoses by hospital eye services: is there evidence of a Barker effect? ( ODR1920_288 ) DARS-NIC-656873-Q2C7L University of Bristol Academic 0 27 June 2023 to 26 June 2024 Expired No
National Audit of Breast Cancer in Older Patients ( ODR1617_169 ) DARS-NIC-656784-C7P5B Healthcare Quality Improvement Partnership (HQIP) Agency/Public Body 0 13 April 2023 to 12 October 2023 Expired No

Cite this page

NHS England (2026) Data Uses Register, September 2026 edition, agreements naming NDRS Linked DIDs. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/datasets/ndrs-linked-dids/ (accessed [date]).

This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.