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NDRS Somatic Molecular Dataset

Agreements naming it
16
In term in September 2026
15
Organisations
11
Files released
53

Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.

How the register describes it

Recorded against the dataset on each agreement, and not always the same from one agreement to the next, so every value found is listed.

Type of data
  • Anonymised - ICO Code Compliant
  • Identifiable
Sensitivity
  • Non-Sensitive
  • Sensitive
Frequency of release
  • One-Off
  • Ongoing
Legal basis for provision
  • Consent (Reasonable Expectation)
  • Health and Social Care Act 2012 - s261(5)(a)
  • Health and Social Care Act 2012 - s261(5)(d)
  • Health and Social Care Act 2012 – s261(2)(a)
  • Health and Social Care Act 2012 – s261(2)(c)
  • Health and Social Care Act 2012 – s261(7)
  • National Health Service Act 2006 - s251 - 'Control of patient information'.

Organisations whose agreements name it (11)

Show the list, with the number of agreements for each

With an agreement in term in September 2026 (10)

With expired agreements only (1)

Agreements covering this dataset

Showing all 16 agreements.

Files: files of this dataset released under the agreement, across all its versions.

Agreements covering NDRS Somatic Molecular Dataset
AgreementOrganisationTypeFilesLatest termStatusCommercial
The Roy Castle Lung Cancer Research Programme, Liverpool Lung Project - University of Liverpool DARS-NIC-147982-J7KGV University of Liverpool Academic 3 22 January 2026 to 4 May 2029 In term Yes
MyMelanoma database DARS-NIC-737123-P6P6G University of Oxford Academic 0 27 March 2026 to 26 March 2029 In term No
A retrospective observational study to evaluate demographic/clinical characteristics, treatments, patterns of therapy, and outcomes of patients with advanced non-small cell lung cancer (aNSCLC) in England DARS-NIC-748004-M6G9X Evidera Ltd Research 1 8 September 2025 to 7 September 2028 In term Yes
UK Biobank: A long-term prospective health research study DARS-NIC-08472-V9S6K UK Biobank Charity 1 25 July 2025 to 24 July 2028 In term Yes
SUMMIT Study: Cancer screening study with or without low-dose lung CT to validate a multi-cancer early detection test (Previously ODR1718_316) DARS-NIC-656813-F4H5W University College London (UCL) Academic 23 20 December 2022 to 19 December 2027 In term Yes
National Cancer Audit Collaborating Centre (NATCAN) DARS-NIC-709865-W9X6H The Royal College of Surgeons of England Academic 4 7 November 2025 to 30 September 2027 In term No
OLIVE: Improving the early detection of lung cancer in never-smokers DARS-NIC-740806-W2F6Q University College London (UCL) Academic 2 13 March 2026 to 12 September 2027 In term No
Characteristics, Treatment Patterns and Outcomes of patients with Refractory Metastatic Colorectal Cancer DARS-NIC-749150-S0M7G Evidera Ltd Research 1 8 September 2025 to 7 September 2027 In term Yes
Investigating inequalities in utilisation of targeted therapies DARS-NIC-656847-K4L8H University of Newcastle upon Tyne Academic 1 15 August 2024 to 14 August 2027 In term No
CONCORD Programme (ODR1617_033) DARS-NIC-659283-N1S1H London School of Hygiene and Tropical Medicine Research 0 20 May 2024 to 19 May 2027 In term No
Establishing a UK Colorectal Cancer Intelligence Hub - The COloRECTal Cancer Data Repository (CORECT-R) (ODR2021_249) DARS-NIC-656885-M7T5X University of Oxford Academic 3 8 May 2026 to 7 May 2027 In term No
Melanoma PREDICT Tool - Individualising prognostic stratification in melanoma ODR1920_246 DARS-NIC-681965-Y4H5P Cambridge University Hospitals NHS Foundation Trust NHS Trust 1 31 July 2026 to 22 February 2027 In term No
Identifying Cancer Recurrence within Patient Care Pathways across Linked National Clinical Datasets DARS-NIC-671672-G6R6W London School of Hygiene and Tropical Medicine Research 1 10 January 2025 to 9 January 2027 In term No
Our Future Health Outcomes TRE Data Linkage Application with Sublicensing DARS-NIC-411795-X5N2V Our Future Health Charity 10 30 July 2025 to 28 November 2026 In term Yes
Investigating the utility of machine learning methods to predict prognosis and guide treatment decisions for people with lung cancer (Lung-ORACLE) DARS-NIC-678273-F2S0V University College London (UCL) Academic 1 26 September 2025 to 20 October 2026 In term No
National Gastrointestinal Cancer Audit Programme (GICAP) (ODR1819_260) DARS-NIC-656842-S5V7V NHS England Agency/Public Body 1 20 December 2024 to 31 December 2025 Expired No

Cite this page

NHS England (2026) Data Uses Register, September 2026 edition, agreements naming NDRS Somatic Molecular Dataset. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/datasets/ndrs-somatic-molecular-dataset/ (accessed [date]).

This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.