Unofficial. This site is an experimental reformatting of data published by NHS England. It is not endorsed by NHS England. Always check the official Data Uses Register before relying on anything here.

The Renal Association

Named in the register only as a data controller, on agreements other organisations applied for.

The register writes this name in capitals: THE RENAL ASSOCIATION.

Sector
Charities and not-for-profits
Agreements naming it as data controller
6
In term in September 2026
5
Distinct datasets
9
Latest end date
12 August 2028

Sector set by hand: Named in the register only as a data controller, so it has no organisation type. A professional body and registered charity, now the UK Kidney Association. See data/organisation-sectors.json in the repository.

Named as a data controller

Agreements where The Renal Association is named as a data controller rather than the applicant. This is matched from the free-text controller field on each agreement, so a controller recorded under a different spelling of the name won't appear here.

Agreements where The Renal Association is a data controller
AgreementApplicantLatest termStatus
Linking the National Registry of Rare Kidney Diseases with Hospital Episode Statistics for Research (Consent) DARS-NIC-564296-L7V1M Renal Registry 13 August 2025 to 12 August 2028 In term
Linking the National Registry of Rare Kidney Diseases with Hospital Episode Statistics for Research (Consultee) DARS-NIC-787477-W3G5Z Renal Registry 13 August 2025 to 12 August 2028 In term
Linking the UK Renal Registry and Hospital Episode Statistics for research DARS-NIC-406158-Q2J0X Renal Registry 9 May 2025 to 8 May 2027 In term
PREgnancy-associated progression of chronic kidney DIsease: development of a Clinical predictive Tool (PREDICT):The National Registry of Rare Kidney Diseases (RaDaR), UK Renal Registry (UKRR), Hospital Episode Statistics(HES), and Maternity Services Data Set (MSDS) Linkage DARS-NIC-324170-J4P1J King's College Hospital NHS Foundation Trust 23 January 2026 to 26 April 2027 In term
The Renal Association, UK Renal Registry - audit application DARS-NIC-94250-L8W8T North Bristol NHS Trust 10 April 2025 to 31 March 2027 In term
Commissioning through Evaluation (CtE) Rituximab for Idiopathic Membranous Nephropathy (IMN) DARS-NIC-386376-Z1H5J Renal Registry 20 September 2021 to 19 September 2024 Expired

Datasets named in its agreements

Cite this page

NHS England (2026) Data Uses Register, September 2026 edition, agreements naming The Renal Association. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/organisations/the-renal-association/ (accessed [date]).

This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.