Economic Analyses of Health and Social Care -Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity;
University of York · Academic
Expired The latest version ended on 23 January 2024. The September 2026 register still lists the agreement, but its term has passed.
- Reference
- DARS-NIC-84254-J2G1Q
- Latest version
- v5.3
- Term of latest version
- 3 February 2023 to 23 January 2024
- Start date
- Before 1 January 2019
- Data controller
- Sole Data Controller
- Commercial purposes
- No
- Sublicensing
- No
- Files released to date
- 316
Why the data was released
Objective for processing
The Centre for Health Economics (CHE), based at University of York, requires access to pseudonymised data to support a number of projects conducted under the Policy Research Unit (PRU) in the Economics of Health and Social Care Systems. For each of the projects described below, CHE staff analyse pseudonymised, record level data from the below datasets:
• Hospital Episode Statistics (HES)
• Emergency Care Data (ECDS)
• Civil Registration (Deaths) Data
• Patient Reported Outcome Measures (PROMS)
• Mental Health Data Sets (Mental Health Minimum Data Set (MHMDS), Mental Health and Learning Disabilities Data Set (MHLDDS), Mental Health Services Data Set (MHSDS))
Following use of the NHS England data under any of the projects, only aggregated results with small numbers suppressed as per the HES Analysis guide will be published and disseminated to third parties.
The following projects are conducted by the Centre for Health Economics under the PRU:
Project 1 - Measurement of efficiency, effectiveness, and productivity in the delivery of health care system nationally, sub-nationally and among hospitals.
Project 2 - Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity.
Project 3 - Evaluation of the impacts of health care policy, organisation, finance and delivery of NHS services and quantification of differences in health care utilisation, expenditure, morbidity and mortality over time, across geographic regions, health providers, and among different patient groups.
Project 4 - Investigation of inequalities in access, outcomes, and costs of health services in England.
Project 5 - Evaluation of the interface between the different sectors of the health care system, including the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long term care, social care and secondary care utilisation.
Most of these projects are funded, at least in part, by the National Institute for Health Research (NIHR), via a major programme of work funded as a Policy Research Unit (PRU) in the Economics of Health and Social Care Systems (http://eshcru.ac.uk/). This programme was re-awarded for a further five years starting from January 2019. The aim of the PRU is to inform and guide policy-making in the health and social care sectors by undertaking high quality, robust and policy-relevant research, based on the discipline of economics, thereby helping to improve the health and well-being of the population, reflecting distributional concerns and population diversity. A detailed work programme for the next phase of programme funding is developed in advance in collaboration with both a Department of Health and Social Care (DHSC) Stakeholder Group and the PRU’s Advisory Group, meetings being held with each Group every six months.
ESHCRU II is one of 15 PRUs and is a collaboration between the Centre for Health Economics (CHE) at the University of York and the Care Policy and Evaluation Centre (CPEC) at the London School of Economics and Political Science (LSE). The ESHCRU II team works with a Patient and Public Involvement (PPI) panel and with 6 PPI Advisory Group members who participate in programme advisory group and workstream advisory group meetings. PPI Advisory Group members have provided insightful contributions at meetings and are invaluable to the discussions with the research team. They have suggested new datasets, identified patient-level factors affecting recovery from surgery, encouraged the team to examine impacts by ethnicity and deprivation and to consider whether and how patient perspectives and outcomes could be incorporated into payment systems. The PPI panel has reviewed the ESHCRU II website (https://eshcru.com/). Six PPI panel members submitted detailed reviews. In response to the feedback received, the layout, language and content were refined to appeal to a broad audience. Wider benefits of the PPI Panel include identifying an individual with relevant experience for a separate York proposal on health inequalities and putting the Department of Health and Social Care (DHSC) in contact with two Panel members to speak at a networking/engagement event for the NIHR call Artificial Intelligence for Multiple Long-Term Conditions (AIM) (https://www.nihr.ac.uk/documents/nihr-artificial-intelligence-for-multiple-long-term-conditions-aim-clusters-call-research-specification-finalised/24646).
When it comes to individual projects in the PRU, either the University of York or the LSE take the lead. The LSE have a separate Data Sharing Agreement with NHS England (DARS-NIC-354497-V2J9P). The LSE has no involvement in the research projects carried out by CHE, and LSE will not have any access to NHS England data that the University of York holds for ESHCRU. Similarly, if LSE leads a project that requires NHS England data access, LSE will be responsible for all aspects related to the data, without any sharing of that responsibility with the University of York and without the University of York having any access to or involvement in their use of NHS England data. If an ESHCRU project is led by the University of York and requires the researchers to access NHS England datasets, the University of York will be solely responsible for determining the purposes and means of the processing of personal data.
The University of York is the sole Data Controller who also processes the NHS England data held under this Agreement to be processed for the purposes outlined in this section. The University of York is solely responsible for the data provided under this Agreement and for all decision-making related to the data, its analysis, and any outputs. The NIHR / DHSC / NHS England are funders of the University of York's research and as such are not directly involved nor responsible for decision-making related to the data, their analysis, and outputs.
The University of York was founded "for the advancement of learning and knowledge by teaching and research", as established by the University of York Charter. The University of York is a public authority under the Freedom of Information Act 2000. The University's Strategy 2030 builds on the founding principles of the Charter, with the overriding aim to be a university 'for public good'.
In line with the University of York's charter which states that the University of York advance learning and knowledge by teaching and research, the University of York (CHE) has considered the legal basis for processing data under General Data Protection Regulation (GDPR) in respect of the projects covered in this agreement. CHE processes data under the following legal bases:
Article 6(1)(e) of the GDPR (lawfulness of processing): processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller
Article 9(2)(j) of the GDPR (Processing of special categories of personal data): processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes
The processing of personal data, including special category data, is necessary to carry out research that serves the public interest, to inform policy and practice with the goal of improving health and well-being.
The research undertaken using NHS England data informs health and care policy and practice by identifying the effectiveness, efficiency, distribution, and quality of a wide range of services provided to the population. It produces insights that allow the maximisation of health gain from limited healthcare budgets, along with information on how health and health care is/can be distributed equally to meet the health needs of varying demographics. NHS England data provides a view of health care utilisation for CHE to understand how effective delivery of care is distributed both nationally and locally, contributing to the delivery of new healthcare policy aimed at improving the quality of care.
Approximately 20% of funding is reserved for the PRU to respond to short-term responsive requests for research. This process ensures that the work programme can be shaped to reflect enduring and emerging policy concerns. For some projects, CHE have been able to secure additional funding, enabling the University to extend or deepen the analyses of the research topic. NIHR also funds other projects, as mentioned below.
The University of York process both the pseudo-consultant code and the underlying clear text consultant code. Some research projects will analyse variation in case-mix adjusted hospital inpatient activity and their related outcomes at the consultant level. For these projects, it is necessary to assign activity to consultants but it is not necessary to identify who they are. The pseudo-consultant code is therefore sufficient for these projects. Other research projects, such as the European Training Network “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Sklodowska-Curie Innovative Training Network, will need access to the underlying clear text consultant code field to link to it other publicly available data on consultants, such as the General Medical Council (GMC) medical register (https://www.gmc-uk.org/registration-and-licensing/the-medical-register). The GMC medical register provides details on, for example, the type of registration held by a doctor and the date at which they completed their primary medical qualification. This linkage is achieved through the clear text consultant code field, which corresponds to doctors’ GMC numbers. The pseudo-consultant code is insufficient for these projects. The underlying clear text consultant code and the pseudo-consultant code will be stored as two separate files and stored in two separate folders. The files can be linked to the HES Admitted Patient Care (APC) dataset through the epikey variable. Access to these files will be managed on a researcher and project-by-project basis. In this way, the University of York will ensure that no researcher has access to both data fields at the same time for the same project, thereby eliminating the risk of re-identification.
The University will not publish any information at identifiable consultant level under any of the work projects described in this agreement.
All of the work involves analysing the data in different ways. For example, an analysis under project 1 may focus on particular specialities, comparison of productivity across hospitals, or may be a broader assessment of national productivity. Many of the statistical methods to be employed require longitudinal data to investigate how changes in patient outcomes (including morbidity, mortality, emergency re-admissions, length of stay, admissions for conditions that could be managed in primary care, inpatient admission rates after Accident & Emergency (A&E) attendance) are related to changes in policy (including payment policies and incentives), changes in market configurations, changes in organisational structure, and changes in patient characteristics. Pseudonymised patient level information is required to allow for the influence of past utilisation, for demographic factors, for socio-economic factors (e.g. deprivation) linked to the small area in which patients live, and patient distance from hospitals, social care providers, and general practices. It is also essential in investigating the equity implications of policies, market structure, and organisational arrangements. The Principal Investigators and Project Leads are responsible for determining what analyses will be undertaken and what data will be used for each analysis in support of the objectives agreed with the funding organisations.
Different data dissemination frequencies are required under different projects. Under DARS-NIC-84254-J2G1Q-v3, the University of York requested the addition of monthly data disseminations under certain projects, due to the coronavirus pandemic precipitating the DHSC's need for more timely evidence to inform recovery from the initial crisis. Under DARS-NIC-84254-J2G1Q-v4, the University of York have revised the monthly disseminations to quarterly disseminations.
CHE confirms that the data under this Agreement would only be used for the five projects listed, and any additional project (whether as part of the DHSC programme or otherwise) would require a separate approval. Equally individuals working on each project will only be permitted to access the data relating to that project, as identified within this Agreement. Access is granted for each project only to the named individuals associated with that project under authorised user names. Such access is password controlled (with a password reset required on a regular refresh).
The controls enable a single copy of the data to be held, reducing security risk associated with multiple copies being provided per project.
Project 1 - Measurement of efficiency, effectiveness and productivity in the delivery of health care system nationally, sub-nationally and among hospitals;
The purpose of this project is to produce information for the Department of Health and Social Care (DHSC) and Secretary of State for Health on efficiency, effectiveness and productivity. In the current economic climate it is particularly important that changes in efficiency and productivity can be identified and monitored. This helps ensure accountability to the public for how the annual NHS budget is spent and to identify opportunities for better use of resources devoted to the NHS. This project provides numerical answers and context for, among others, House of Commons Health Committee, the Public Accounts Committee, Public Expenditure Inquiries, and DHSC submissions in support of annual Spending Reviews. The work also contributes to the measurement of productivity of the health service in the national accounts, compiled by the Office of National Statistics.
Funders:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
• NHS Productivity (National Assessment Project) (Ref NIHR 200687).
This project will use only the following data supplied under this Agreement: HES APC 1998/99-2021/22 A&E 2007/08 - 2020/21; Critical Care 2011/12 – 2021/22; Outpatient 2011/12-2021/22; Patient Reported Outcome Measures (PROMs) 2009/10 –2021/22; Civil Registration (Mortality) data 1998/99 - 2021/22; Emergency Care Dataset (ECDS) 2017/18 – 2021/22; Mental Health Services Data Set 2016/17 - 2020/21
Project 1 will only process data provided through Annual dissemination for the datasets listed above.
Data has been assessed and minimised to only utilise the required data from that disseminated under this Agreement for this project and cannot be minimised further.
The University of York will estimate survival models that relate the timing of death (based on the exact date of death) for individual patients to the relevant unit of assessment (provider, region) after adjusting for relevant case-mix differences across the populations under study.
Most of the work undertaken under this project involves measurement of productivity over time, hence the need to hold the data from 1998/99. It is also necessary to construct aggregated measures of NHS output and quality based on what has happened to each individual patient in whatever setting care has been delivered, hence the need for patient-level information. The project also requires use of the sensitive PROMs data as measures of the quality of health care.
Project 2 - Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity;
The purpose of this project is to produce information for National and local decision makers, such as the Department of Health and Social Care (DHSC), commissioning bodies and Local Authorities (LAs), to assist decisions regarding the provision of services that offer the greatest value for money according to the benefits achieved. Delivering appropriate, high quality, health care services to patients, in the most cost-effective way, are important priorities in any health care system. Advancing these priorities requires the analyses of such things as variations in practice and of the relationship between patient outcomes and hospital and consultant workload; which dimensions of performance are most important to patients; and the extent to which financial incentives motivate best practice. Ultimately this project informs the assessment of the most efficient and cost-effective way of delivering a particular service. This helps ensure accountability to the public for how the annual NHS budget is spent and helps to identify opportunities for better use of resources devoted to the NHS. The project is designed to develop a more systematic evidence base that will allow policy-makers, providers and commissioners to develop policies to achieve efficiency targets and outcome-based commissioning, publish information on performance in formats that are most useful for the intended stakeholders, and to redeploy resources to produce more efficient mixes of services both within and across the health and social care sectors.
Funders:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
• NIHR Applied Research Collaboration Yorkshire and Humber ARC (Ref NIHR 200166)
• NHS England (Ref R1790901) Economic evaluation of the Fragility Hip Fracture Best Practice Tariff.
• NIHR Health Services and Delivery Research (HS&DR) Programme (Ref DRF-2016-09-097): Doctoral Research Fellowship - "Providers' response on the Pay for Performance incentives".
• European Commission, European Training Network. “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Skłodowska-Curie Innovative Training Networks.
The work for all these funders will require the sensitive PROMs data to measure patient outcomes.
The project will use only the following data: HES APC 1989/90 – 2021/22 Sensitive field: Consultant Code; HES Outpatient 2002/03 – 2021/22; PROMs 2009/10 – 2021/22; Civil Registration (Deaths) 1998/99 - 2021/22.
Project 2 will utilise both Annual and Quarterly disseminations of the datasets indicated above.
Project 3 - Evaluation of the impacts of health care policy, organisation, finance and delivery of NHS services and quantification of differences in health care utilisation, expenditure, morbidity and mortality over time, across geographic regions, health providers, and among different patient groups.
The purpose of this project is to produce evidence to inform NHS England and the Department of Health and Social Care’s decisions on resource allocation, funding models, and the design and direction of future policy regarding the health, mental health, and social care sectors, with CHE’s advice and analyses being regularly sought to feed into White papers and specific government reviews.
This project includes understanding which types of budgeting, organisation, structure and contracting arrangements for health, incl. mental health, and social care services best achieves strategic goals. It also includes evaluations of payment policies (including financial incentive schemes) and changes to the organisation of services (e.g. co-location of general practitioners alongside emergency departments, mergers of providers, vertical integration of providers, care pathways) that seek to encourage good quality, cost-effective care and/or facilitate access to timely care. The main aims are to: analyse the potential for use of different organisational structures and payment mechanisms in health and social care to improve overall performance; analyse the impact that different payment policies and service configurations can have on prices, outputs, quality and outcomes; explore how the best payment systems and service configurations could be implemented in practice; and establish the effect of innovative organisational forms on costs and quality of care.
Funders:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
• NIHR Health Services & Delivery Research (HS&DR) 10/1011/22 and NIHR HS&DR 13/54/40: Relationships between quality of primary care and secondary care outcomes for people with mental illness.
• Wellcome Trust [ref: 105624] through the Centre for Chronic Diseases and Disorders (C2D2) at the University of York: Finance and organisation of mental health services.
• Health Foundation [ref: 57151] Efficiency, cost and quality of mental healthcare provision.
• NIHR HS&DR (Ref DRF/2014-07-055): Doctoral Research Fellowship - Measuring & explaining variations in general practice performance.
• NIHR HS&DR (Ref 15/145/06): General Practitioners and Emergency Departments (GPED): Efficient Models of Care.
The project will use only the following data: HES APC 1998/99 – 2021/22; A&E 2007/08 – 2020/21; Outpatient 2002/03 – 2021/22; PROMs 2009/10 – 2021/22; Emergency Care Dataset 2017/18 – 2021/22; MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17-2020/21; Civil Registration (Deaths) 1998/99-2021/22; HES APC Sensitive Psychiatric Fields: Detention category (DETNCAT), Legal group of patient (psychiatric) (LEGALGPC), Legal status classification (LEGLSTAT).
Project 3 will utilise both Annual and Quarterly disseminations of the datasets listed above.
The work for several funders will require the use of the PROMs data to measure morbidity over time.
This project will also require use of MHMDS/MHLDS/MHSDS data linked to HES data in order to carry out analyses into the economics around mental health and mental health care provision. CHE is requesting sensitive MHMDS/MHLDS/MHSDS fields and sensitive HES psychiatric fields (Legal group of patient, Legal status classification, and Detention category). These relate to the legal category / legal status of the patient which is an important indicator of patient severity. CHE will need these sensitive data items to accurately control for the impact of detention on resource use and utilisation. CHE needs to check data consistency between HES and the MHMDS/MHLDS/MHSDS and therefore requires sensitive data on legal status in both datasets.
Project 4 - Investigation of inequalities in access, outcomes and costs of health services in England.
The purpose of this project is to produce information that NHS England and commissioning bodies will use to address the NHS’ duty under the Health and Social Care Act 2012 to consider reducing health inequalities, and that Public Health England, Local Authorities and a variety of other public and third sector organisations will use to inform decision making and quality assurance around health and social care and wider public policies with impacts on health. CHE has developed new methods of local health equity monitoring for health care quality assurance, which NHS England adopted in 2016. In collaboration with colleagues at the Department of Health Sciences, University of York, and analysts at NHS England, CHE will refine and use these methods and related measures to monitor the progress of national and local NHS organisations in reducing inequalities in healthcare access and outcomes, to gain insight into the determinants of inequalities and which local areas show sustained improvements and deteriorations in health inequality and why, and to evaluate the equity impacts of local new models of care and other health policies. The work will also assist the ONS to conduct distributional analyses of NHS spending for use in constructing statistics about in-kind social transfers.
The work for the Department of Health and Social Care will investigate why providers respond differently to policy incentives and quantify the associated impact on inequalities in care quality and/or access, including how these change over time.
Funders:
• NIHR Training Co-ordinating Centre (TCC) (Ref SRF-2013-06-015) Health equity impacts: evaluating the impacts of organisations and interventions on social inequalities in health.
• Wellcome Trust. ‘Re-Engineering Health Policy Research for Fairer Decisions and Better Health’.
• Department of Health to the Policy Research Unit in the Economics of Health and Social Care Systems
The project will use only the following data: HES APC 1989/90 – 2021/22; A&E 2007/08 – 2020/21; Outpatient 2002/03 – 2021/22; Critical Care 2011/12 – 2021/22; PROMs 2009/10 – 2021/22; Civil Registration (Deaths) 1998/99-2021/22; Emergency Care Dataset 2017/18 – 2021/22.
Project 4 will utilise both Annual and Quarterly disseminations of the datasets listed above.
The work requires the use of sensitive PROMs data to measure patient outcomes in secondary care.
The following is a separately funded piece of research work which fits within the scope of project 4 (DARS-NIC-84254-J2G1Q-v3):
Funder:
• NIHR Policy Research Programme (grant number PR-X06-1014-22005), Partnership for Responsive Policy Analysis and Research (PREPARE), a collaboration between the University of York and the King's Fund.
Though PREPARE is a collaboration between the University of York and the King’s Fund, the King’s Fund has no involvement in this research project. The research request was considered by the co-leads in the University of York and the King’s Fund who agreed that the University of York would carry out the research. The lead within the University of York has been solely responsible for all decisions on how this research will be carried out including all decisions in respect of what data processing is required.
Description of additional use of data:
This area of the project will explore the links between child health and child poverty, in particular the NHS hospital utilisation of children born into deprivation (using the indices of deprivation (ID) as a proxy for poverty) in comparison with children who are not born in deprived areas. The study will also explore whether any difference in hospital utilisation over the early life course has changed over time. To do this the project will create a birth cohort of children born in NHS hospitals in England in specific financial year (2000, 2005, 2010, 2015, 2018), and track their use of NHS services (inpatient, outpatient and A&E) over their life course (up to age 18 for those born in 2000). The analysts will then test whether the age-sex adjusted differential use of hospital services across children born into rich and poor neighbourhoods has changed over time.
The work will use the following data:
HES APC 2000/01 – 2020/21; HES A&E 2007/08 - 2018/19; HES OP 2002/03 – 2020/21; Emergency Care Dataset 2017/18 – 2020/21.
The work will utilise both Annual and Monthly disseminations of the datasets listed above.
Linkages:
There is a need to link the HES APC data to Index of Multiple Deprivation (IMD) via the child’s Lower Super Output Area (LSOA) of residence. An older version of the IMD (2004) is already included in HES but the study will have to link to subsequent versions of the ID.
This Agreement permits the use of the data for this research but does not permit the use of the data for other research projects funded by PREPARE. Use of the data for any other projects funded by PREPARE would require a formal amendment to this Data Sharing Agreement.
Update 2021 - The following is a separately funded piece of research work which fits within the scope of project 4:
Funder:
NIHR Policy Research Programme (grant number NIHR200417), Evidence to support efficient and effective reduction of health inequality. The duration of the project is: 1st June 2019 to 31st May 2022.
Description of additional use of data:
This project will investigate the extent to which the introduction of the Best Practice Tariff (BPT) for fragility hip fracture in English NHS hospitals in April 2010, and subsequent changes to the tariff design, have affected health inequalities in this patient population.
In previous work conducted under this Data Sharing Agreement (DSA) and funded by NHS England (see Project 2: NHS England (Ref R1790901) Economic evaluation of the Fragility Hip Fracture Best Practice Tariff), CHE researchers quantified how the introduction of the BPT changed care delivery on eight incentivised process quality standards, and linked these changes to long-term health outcomes and healthcare resource use via decision-analytical modelling techniques. However, this study did not test whether the benefits and opportunity costs of the BPT are equally distributed across socioeconomic groups, and, consequently, how the BPT introduction affected health inequalities across the population of England. This new study will build on the earlier research, using data from the National Hip Fracture Database (NHFD) linked to HES via a bridging file, and will examine whether the BPT introduction and subsequent amendments to its design had different effects on incentivised clinical behaviours across socioeconomic groups. The University of York have a DSA with the NHFD (ref: FFFAP/DSA/2020/004), and a separate DSA with NHS England (DARS-NIC-50329-G1L1P) which details the bridging file to be produced, enabling linkage of the HES data held under DARS-NIC-84254-J2G1Q and the NHFD data held under FFFAP/DSA/2020/004. All DSAs will be amended to include the above specified use of the data.
The work will use the following data:
HES APC, Outpatient, A&E/ECDS, Civil Registration (Deaths) Secondary Care Cut: 2011/12 - 2019/20 (period of bridge file: 01 April 2011 to 31st March 2020)
Linkages:
There is a need to link the HES data to data from the National Hip Fracture Database (NHFD; part of the Falls and Fragility Fracture Audit Programme). Access to NHFD is granted under an existing DSA with the Royal College of Physicians (FFFAP/DSA/2020/004). DARS-NIC-50329-G1L1P-v4 is the DSA between the University of York and NHS England under which NHS England will create a bespoke bridging file to enable the University of York to securely link NHFD data to HES data. ***
Project 5 - Evaluation of the interface between the different sectors of the health care system, including the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long term care, social care and secondary care utilisation.
It has long been understood that health and social care services frequently provide treatment and care for the same individuals, so ensuring that these are ‘joined up’ or well co-ordinated has been an important and long-standing policy objective. In practice, however, both the services and approaches to monitoring these have developed separately, with potential implications for the efficiency and effectiveness of both health and social care. The purpose of this project is to produce evidence that will be used by the Department of Health and Social Care and commissioners to inform discharge arrangements and the design of integrated care arrangements and to identify opportunities for substitution of different types of health and social care services. CHE has also developed an online web tool to inform patients about their likely outcome of surgery to impact on shared decision making in primary care in York. The online web tool informs patients about their likely outcome of hip and knee surgery and groin hernia repair. This online tool uses PROMs data to present for each user of the tool information on health outcomes experienced by other patients that have similar pre-operative characteristics. The intention of this tool is for it to be used in primary care to facilitate shared decision making between general practitioners and patients (https://www.york.ac.uk/che/patient-outcome-tool/).
Funder:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems
The project will use only the following data: HES APC 1989/90– 2021/22; A&E 2007/08 – 2020/21; Emergency Care Dataset 2017/18 – 2021/22; MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17 - 2020/21; Outpatient 2002/03 – 2021/22; Critical Care 2011/12 – 2021/22, PROMs 2009/10 – 2021/22; Civil Registration (Deaths) 1998/99-2021/22.
Project 5 will utilise both Annual and Quarterly disseminations of the datasets listed above.
This project requires the sensitive PROMs data to measure patient outcomes in secondary care.
Processing activities
Whilst the nature of detailed analysis in relation to each project varies, the broad context of processing is consistent. The following processing activities apply to all of the projects listed above.
Data storage: Data will only be stored on the University of York Data Safe Haven and backup locations (onsite at University of York, and offsite at Amazon Web Services). Amazon Web Services supply Cloud Services for the University of York and are therefore listed as a data processor. They supply support to the system, but do not access data. Therefore, any access to the data held under this agreement would be considered a breach of the agreement. This includes granting of access to the database[s] containing the data.
Under this Agreement, the data will only be processed by University of York staff, registered degree students and associates all of whom are either individuals who:
i) are substantively employed researchers working under contract on behalf of the University of York; or
ii) have associate status with the University of York for the purpose and duration of a specific project or task within a project and work under an honorary contract.
Data will not be accessed or processed by any other third party not mentioned in this agreement. Access is granted for each project only to the named individuals associated with that project under authorised user names. Such access is controlled and recorded by the CHE Data Governance Group, following the strict processes of CHE and the Data Safe Haven (DSH).
The DSH is operated under an ISO 27001 certified Information Security Management System. The DSH equipment is located within a secure physical environment, and managed by the DSH Management Team, who are employees of the University of York. All equipment is located within a secure data-centre rack, meaning access to data is heavily restricted to a small number of people, and any physical access is monitored. Data is also encrypted at rest (i.e. when saved to disk) and also 'on-the-wire' (i.e. when it travels across the network). Access is undertaken remotely via University owned devices using the Citrix Workspace app, which provides the secure connection into the DSH, and Two-factor authentication is enabled. Off-campus access to the DSH requires individuals to use a secure Virtual Private Network (VPN) connection. All data processing and storage takes place in the locations listed under this agreement. Individuals are aware of their responsibilities to maintain data security, and only process and store pseudonymised record-level data within the Data Safe Haven. A record of all extractions is stored indefinitely for audit purposes, with a time stamped copy of the file(s), and is viewable by the DSH Administrators and the Environment Owners. The Environment Owners are individuals in CHE who are responsible for overseeing all DSH requests, and monitoring extractions. A size limit on extractions imposes restrictions on what can be downloaded. At each extraction, users are reminded of the terms of the user agreement and asked to confirm the files are suitable for export.
Guidance on confidentiality and data protection is provided to staff from University of York Information Security and Data Protection policies, CHE policies, CHE induction, as well as through University mandatory online training (Information Security Awareness and Data Protection - GDPR). Completion of the training, every 12 months, is a requirement for access to the DSH. Users of the DSH must sign a user agreement, confirming they are aware of the applicable policies (University of York and Data Safe Haven) and their personal responsibilities towards maintaining the security of the DSH and the information stored within it. Once signed, a DSH User Agreement applies to all projects and data within the DSH.
All staff, registered degree students and associates granted access to data held by CHE for research purposes are required to sign a Non-Disclosure Confidentiality Data Processing Agreement, confirming that they will read, act and adhere to CHE and University of York policies, in addition to the applicable Data Sharing Agreement and the Data Sharing Framework Contract.
Data analyses: CHE will use standard local analytical software which is not accessed via the cloud to analyse the data, derive descriptive statistics and apply multiple regression models to explore the relationships between variables.
Data linkage: CHE will run the data through the Healthcare Resource Group (HRG) grouper and attach Reference Cost data using HRG codes and will link HES APC with MHMDS/MHLDS/MHSDS using the bridging file. The data will then be linked:
• to aggregated census and other geographical data using the LSOA (Lower Super Outputs Area) variables;
• to Quality and Outcomes Framework and the Attribution Data Set using General Practice (GP) codes; and
• to accounts and organisational-level data using provider codes.
Data processing: Analyses of the HES/ECDS and MHMDS/MHLDS/MHSDS data will involve estimation of statistical and econometric models using common statistical software packages. The analyses will take account of
1) patient demographic and socio-economic information such as age, gender, ethnicity, carer support, deprivation measures;
2) patient diagnostic information such as diagnoses (co-morbidities), Charlson score (10-year survival in patients suffering from multiple comorbidities), psychiatric history, HRG or Payments by Results (PbR) care cluster;
3) treatment information such as admission type, specialty of provider, use of the Mental Health Act, community and inpatient services received by patients;
4) quality and outcomes such as PROMs, 30-day survival, Health of the Nation Outcome Scales (HoNOS) scores (measure of the health and social functioning of people with severe mental illness), waiting times, readmissions, and social outcomes such as employment and accommodation status;
5) service level factors such as number of contacts with staff, and delayed discharge.
For all projects the data will be used to undertake both cross-sectional and longitudinal analyses, allowing analyses of within-year variations and of changes over time.
For data from the Mental Health (MHSDS, MHLDDS, MHMDS) data sets, and any Mental Health data linked to HES/ECDS or SUS, the following disclosure control rules must be applied:
• National-level figures only may be presented unrounded, without small number suppression
• Suppress all numbers between 0 and 5
• Round all other numbers to the nearest 5
• Percentages can be calculated based on unrounded values, but need to be rounded to the nearest integer in any outputs
• In addition for Learning Disability data in Mental Health (MHSDS, MHLDDS, MHMDS), the England-level data also must apply the suppression of all numbers between 0 and 5, and rounding of other numbers to the nearest 5.
All outputs will contain only data that is aggregated with small numbers suppressed in line with the HES Analysis Guide.
PROMs data is only available for non-commercial purposes, such as academic research, or in connection with delivering services to the NHS.
There will be no data linkage undertaken with NHS England data provided under this Agreement that is not already noted in the Agreement.
All organisations party to this Agreement must comply with the Data Sharing Framework Contract requirements, including those regarding the use (and purposes of that use) by “Personnel” (as defined within the Data Sharing Framework Contract i.e.: employees, agents and contractors of the Data Recipient who may have access to that data).
Expected output
The outputs from all of the projects are intended to include:
• Reports and slide decks to funding bodies;
• peer reviewed papers in academic journals;
• lay summaries such as newsletters and blogs;
• conference and seminar presentations to a variety of audiences, such as academic, policy, professional and public audiences.
The aim is to produce reports containing aggregate results that show trends over time, differences across providers, commissioners, geographical areas and by patient subgroups and patient characteristics. The results are intended to contain estimated correlations showing associations between patient outcomes and patient characteristics, hospital, institutional, geographic and environmental factors. Statistical results are intended to be presented in interactive spreadsheets or “Dashboards” (e.g. similar to http://health-inequalities.blogspot.co.uk/ which uses Quality Outcomes Framework (QOF) data and only contains aggregated data which can be interrogated), tables and maps of aggregate statistics summarising patient characteristics
All outputs will contain only data that are aggregated with small numbers suppressed in line with the HES Analysis Guide.
The dissemination and communication strategy will vary between projects and will have been previously agreed with the funders. It would normally include the oral presentations; interim and final reports; and published reports and journal articles. Examples are provided below:
Oral presentations / knowledge exchange
• Presentation of interim and emerging findings to the various project study advisory groups and/or steering committees. Members - who typically include policy makers, clinicians, academics and public contributors - provide feedback and advice.
• Interactive workshops with policy analysts from DHSC and NHSE/I to discuss emerging findings and ensure policy relevance
• Presentations to commissioning bodies, NHS trusts, and PPI groups
• Open lectures and invited talks at Universities/Research Centres both in the UK and abroad
• Oral or poster presentations at national and international conferences, such as Health Economists’ Study Group, International Health Economics Association (iHEA), and European Health Economics Association (EuHEA). Delegates may include international organisations such as The World Bank, Organisation for Economic Co-operation and Development (OECD) and World Health Organisation (WHO), alongside members of the international academic community.
• End of project workshops or conferences to present research findings to key stakeholders and policy makers
Unpublished reports
• Draft reports with preliminary findings to advisory groups
• Interim reports for funders and policy analysts
• Draft final reports for funders. These are usually peer reviewed externally by academics and internally by policy analysts
Publications
• Published reports containing full, detailed findings, with an accompanying lay summary to make key messages more accessible.
• Press releases to accompany the publications of reports (full or short), via the University of York Press Office as well as through the CHE website and social media platforms, as well as funders own Press Release Offices and social media platforms;
• Peer reviewed scientific papers in academic and policy journals
• Short articles in CHE annual reports and CHE newsletters
Target dates for outputs
The outputs from each project will be delivered in accordance with CHE’s funding contracts, which run to different timelines with various milestones for each. Below are examples of key milestones and timelines for some of the projects undertaken.
Project 1 - The primary output from this ongoing project is the production each year of an annual update to national NHS productivity figures that incorporates the most recent financial year of data. Under this project, CHE has demonstrated that NHS productivity growth is meeting the requirements of the Five Year Forward View and outpaces that of the economy as a whole. CHE’s figures are widely used to inform policy discourse, with the DHSC relying on the information for internal monitoring purposes and for external reporting and response purposes, such as to inform annual Spending Reviews. Under this project, CHE also provides data about the quality of NHS care to the Office of National Statistics that are used in the construction of the national accounts.
In addition to the annual update of national figures, CHE also undertakes analyses of variation in hospital productivity and produces short reports, memorandum or slide decks for the DHSC to address specific questions about NHS productivity. CHE presents the work regularly to various audiences, including politicians, policy makers, academics, health professions and the general public through seminars, conference presentations and media appearances.
Project 3 – Policy makers need timely evidence on the impact of health care policies. These policies concern both the supply side of health care - the organisation, finance and delivery of services - and the demand side, such as utilisation, morbidity and mortality. Under this project, analyses may investigate variations over time and/or across geographic regions, providers, or patient groups. Empirical research frequently relies on analyses of HES. Outputs include open access reports and scientific papers in academic journals. Interim and final reports are submitted to funders as part of our contractual requirements. Emerging findings are presented and discussed at regular advisory and stakeholder group meetings, as well as at invited seminars and workshops.
Project 4 - NIHR Policy Research Programme (grant number NIHR200417), Evidence to support efficient and effective reduction of health inequality - planned outputs include: scientific report to the funder (target date 31/05/2022); two article in scientific journals (target date 01/03/2023); in addition, we plan to disseminate the findings from the work through lay summaries such as newsletters and blogs, and conference and seminar presentations to academic, policy, professional and public audiences.
Project 5 – The focus of this project is the evaluation of the interface between the different sectors of the health care system, such as the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long-term care, social care and secondary care utilisation. Published outputs from this project include open access reports and scientific papers in academic journals. Interim and final reports to funders will be provided in line with contractual requirements. Emerging findings will be presented at conferences, advisory and stakeholder group meetings, or at DHSC workshops or seminars. This ongoing engagement helps ensure the work remains policy relevant. An example is a departmental working paper examining the effects of changes in social care funding on health care utilisation (Pace et al. Understanding the interdependencies between health and social care resources and arrangements. CHE Research Paper, December 2020). Early findings from this work were shared with NHSE (May 2018), discussed with DHSC (March 2019), with further analyses undertaken in response to their questions about the impact of the Better Care Fund. The report was revised following written comments from the Department (May 2019), and published in the Health Economics journal (Liu et al 2020, https://doi.org/10.1002/hec.4175).
The DSA includes as funders the European Commission, European Training Network. “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Skłodowska-Curie Innovative Training Networks, which funds two PhD research projects. The outputs for this specific project is the compilation and publication of a doctorate thesis and related research articles to be published in international research journal. Both PhD students have now completed their PhD thesis, however access to the data is still required to finalise outputs and respond to peer review.
Expected measurable benefits
The benefits are to be delivered on an ongoing basis in accordance with CHE’s funding agreements, and accessible from CHE’s website: http://www.york.ac.uk/che/. For all of the above projects, various funders have commissioned the work as evidenced by letters supplied. The expected benefits include:
Project 1
The Department of Health uses CHE’s work on of efficiency, effectiveness and productivity to provide numerical answers and context for, among others, Parliamentary Health Committees, the Public Accounts Committee and Public Expenditure Inquiries. By detailing the amount and quality of care secured from NHS resources this work provides evidence about what the NHS is doing with the budget it receives and can help to identify opportunities for better use of funding. This has the potential to support public accountability and transparency, and help ensure that the NHS receives the budget it needs to meet health care demands and makes best use of taxpayers’ money.
Strong productivity growth for the economy as a whole is important because it increases tax revenues and helps improve wages and living standards. The Office of National Statistics draws heavily on CHE’s work in producing the national accounts, having adopted CHE’s methodological approach to measuring the contribution made by the NHS to national Gross Domestic Product (GDP) and, in assessing this contribution, by accounting for quality of NHS care using measures that CHE constructs from the data supplied by NHS England. Given that much government policy is designed to influence GDP, accurate measurement is essential to ensuring that policy is correctly focused and the government is properly held to account for its policies. CHE disseminates the work through various media to inform the public about NHS productivity. Helping to ensure that the public is fully informed of this fact could help to bolster support for the NHS, thereby making it more likely that the government provides the NHS with the funding required to meet the health care needs of the population.
Project 2
CHE’s projects evaluating the performance of health care providers are expected to provide evidence to inform national and regional (Yorkshire and Humber – Y&H) policy-makers and providers about the scope and focus of performance improvement and outcome measures, tariff design, and patient choice. The project is anticipated to assist decisions regarding the provision of services that offer the greatest value for money according to the benefits achieved. In due course this is hoped to translate to a more efficient allocation of health care resources, through appropriate budget spend. Where resources are allocated, according to the maximum benefits achieved, with a particular target condition, health benefits ensue. In addition, by working with local decisions makers, to promote the use of evidence based medicine and prospective evaluation, this is expected to increase the potential for future decisions to be grounded on economic principles and consideration of the tradeoffs between choices made. In the short term, the work conducted to inform the North Yorkshire & Humberside (NYH) Major Trauma Network meeting is anticipated to help establish an appropriate, affordable, major trauma rehabilitation service in Y&H. This is hoped to translate to patients benefits associated with appropriate rehabilitation, as well as gains to the health service, in terms of reduced length of stay. It is anticipated that the work looking at the care hubs implemented in Y&H will similarly be used to support commission/de-commissioning decisions regarding the future use of such services.
Project 3
CHE’s evaluations of the impacts of health care policy, organisation, finance and delivery of NHS services are used to inform resource allocation arrangements and the design and direction of future policy regarding the health and social care sectors with CHE’s advice and analyses being sought to feed into White papers and specific government reviews. The main benefits from the projects are anticipated to be to make better informed policy choices on issues related to: the design of payment systems, including financial incentives; the viability of small hospitals, and the implications from closing them e.g. in terms of restricted patient choices; the case for and against further expansion of private sector providers within the NHS; the usefulness of competition policies to improve access to hospitals (in the form of reduced waiting times); the likely impact of the introduction of the waiting times standards in mental health services, and supporting policymakers (e.g. NHS England and NHS Improvement) to improve the finance, organisation and quality of mental healthcare provision for the benefit of service users.
Project 4
CHE’s projects investigating inequalities in healthcare access and outcomes are helping the NHS address its Public Sector duty under the Health and Social Care Act 2012 to reduce health inequalities. Identifying which providers respond differently to incentive payments, resulting good practice being adopted to varying extents, can lead to inequalities in access to care, and/or the quality of care. The work will investigate the nature and extent of these inequalities, and help understand the reasons for different adoption behaviours. This can help DHSC to better target incentives, and to anticipate which providers may need additional support to reduce inequalities.
The methods were adopted by NHS England in August 2016 to create indicators of inequality in potentially avoidable emergency hospitalisation as part of the commissioning bodies Improvement and Assessment Framework https://www.york.ac.uk/che/research/equity/monitoring/. During 2017, CHE worked with the NHS England equality and health inequalities team to disseminate these and other equity indicators to local decision makers within the NHS, e.g. via RightCare information packs, and help clinical commissioning bodies use them to address the NHS duty. https://www.england.nhs.uk/publication/challenging-health-inequalities-support-for-ccgs/
As part of the public and stakeholder engagement work for this project, the study have developed various visualization tools and public-facing dissemination materials, which are collected together at this website: http://www.york.ac.uk/che/research/equity/monitoring/
Expected benefits for amendment to project 4 2020:
Child poverty is associated with a wide range of negative health impacts. Current projections suggest that child poverty rates will rise over the next few years, and this may have knock-on effects on use of health services which should be incorporated into government decision making. This project intends to inform developing policy on welfare reform and inequalities in healthcare access and outcomes, helping the NHS address its Public Sector duty under the Health and Social Care Act 2012 to reduce health inequalities
Expected benefits for amendment to project 4 2021:
The results of this research are intended to provide new information to commissioners about the health inequality impact of existing policies. This study aims to provide decision-makers in the English NHS with information on the population health and health inequality impacts of new pay-for-performance models such as the fragility hip fracture best-practice tariff. This information is intended to inform future designs of pay-for-performance arrangements in the English NHS, which are expected to improve population health and/or reduce inequalities.
Project 5
A core performance target for the English NHS is that at least 95% of patients attending Accident and Emergency (A&E) departments should be transferred, admitted or discharged within four hours. This target has been breached with increasing frequency in recent years. CHE’s work on the analysis of factors driving A&E waits has shown that clinical staffing levels are an important explanation but that the problem is complex and multifactorial. Minor Injury Units, introduced to help tackle target breaches, appear effective. The work provides confirmatory evidence that delayed transfers of care have spill over effects on the duration of attendance at A&E, underscoring the need to adopt a whole-system approach. DHSC could use this information to tackle interface issues between health and social care, and to inform workforce planning so that staff-patient ratios are kept at safe levels.
The benefits around requesting Civil Registration Deaths (Secondary Care Cut) data: survival (or its counterpart reduced mortality) is one of the outcome measures more widely used to assess the quality of care provided in the English NHS. Detailed data on the date of death allow the University of York to perform a more sensitive assessment of difference in mortality risk across units of assessment than otherwise possible. Inpatient mortality (based on discharge information present in HES Admitted Patient Care) only provides the researcher with insights on the number of patients that die within a hospital setting. Differences in discharge management across units of assessment introduce bias in any comparison. Indicators of death at a specific point in time (e.g. at 30 days after admission) do not provide details on the timing of events and are thus less precise than assessments based on actual date of death.
Benefits reported so far
The Centre for Health Economics has a long-established track record in the delivery of policy research that utilises HES data, as recognized by the award of the Queens Anniversary Prize in 2007. Examples of recent publications arising from the above projects that have employed the HES data can be found at the links below:
https://eshcru.com/publications/
http://www.york.ac.uk/che/publications/in-house/ https://www.york.ac.uk/che/publications/all/
Project 1 - The NHS spends over £120 billion a year and the budget provided for the NHS is influenced by the evidence on how well the money is spent. The annual estimates of productivity that we produce for the Department of Health and Social Care are a key part of their negotiations with the Treasury about the size of the budget and the research is cited in exchanges with ministers and government committees that scrutinise NHS spending. In particular, the quality adjustment method devised by York is important in ensuring that productivity is not under-stated which may have a negative impact on the size of budget settlements and hence lead to lower investment in the NHS. The most recent update to the NHS productivity measure (https://www.york.ac.uk/media/che/documents/papers/researchpapers/CHERP171_NHS_productivity_update2017_18.pdf) shows a steady positive increase and that NHS productivity has increased substantially faster than the overall economy.
The methods developed by the York research team have also caught interests of Governments and health ministries in other parts of the world (eg Japan, Italy, Malaysia, Sweden), which have resulted in a number of workshop and collaborative work.
The primary output from this ongoing project is the production each year of an annual update to national NHS productivity figures that incorporates the most recent financial year of data. In 2017, the annual update was produced for the DHSC and, as in other years, was used by them externally and internally in monitoring, informing policy debate, the annual spending review and negotiations on budget setting. Under this project, CHE also provided data about the quality of NHS care to the Office of National Statistics that are used each year in the construction of the national accounts. In 2017, additional analyses on hospital level productivity were produced for the DHSC, examining the factors underlying variation in productivity, which assists the DHSC in exploring how to get the best value from NHS resources.
Project 2 - Examples of outputs produced from this project include journal articles on the determinants of health care expenditure. For example, an article by Howdon and Rice (Health care expenditures, age, proximity to death and morbidity: Implications for an ageing population, 2017, https://doi.org/10.1016/j.jhealeco.2017.11.001) investigates the implications of an ageing population on health care expenditure, showing that the latter is primarily determined by proximity to death, rather than age. Chalkley et al. (Elective hospital admissions: secondary data analysis and modelling with an emphasis on policies to moderate growth, 2017, https://doi.org/10.3310/hsdr05070) investigating growth in elective hospital admissions in England find that these are mainly due to increases in both demand for and supply of hospital care, with health system reforms and ageing population less important.
This project has produced a range of evidence that allows the DHSC and other organisations to understand and plan expenditure on different aspects of NHS care, to account for changes in activity and also to understand aspects of quality of care, First, it has investigated the drivers of health care expenditure, disentangling the influence of age, morbidity and proximity to death on the level of expenditure. This has important implications for the DHSC in terms of planning and for the design of the resource allocation formulae used to distribute the healthcare budget, Second, it has explored several aspects of activity in the secondary care sector, for instance, policies for moderating growth in elective admissions and how the provision of specialist rehabilitation services affect the duration and costs of hospital care. It has also looked at the use of patient valuation of the care they receive as a way of measuring the quality of hospital care. Third, it has investigated in-hospital mortality trends over time. These insights allow policy makers to appreciate the costs and the benefits of NHS provision and to plan for more effective and efficient care.
Project 3 - Outputs from this project include journal articles on payment systems, providing evidence on intended and unintended impacts for policy makers designing new approaches to paying for care. For example, one study examined the effects of two incentive schemes in primary care that aimed to tackle underdiagnosis in dementia, with HES data used to control for a parallel hospital scheme. The schemes were effective in increasing dementia diagnoses (Mason, et al 2018, Investigating the impact of primary care payments on underdiagnosis in dementia: a difference-in-differences analysis, IJGP. https://doi.org/10.1002/gps.4897). However, patient satisfaction was lower in practices that achieved higher rates of dementia diagnoses (Liu, et al 2019, Incentive schemes to increase dementia diagnoses in primary care in England: a retrospective cohort study of unintended consequences. BJGP https://doi.org/10.3399/bjgp19X701513).
The research in this project has evaluated whether the way in which the NHS is organised can affect the costs and outcomes of services to help inform policy decisions. In 2017, the research has produced evidence on a number of issues in mental health, including the relationship between costs and quality and socio-economic inequalities in access to care. Other examples include the production of evidence on the impact of the electronic booking system on referrals and non-attendances and the investigation of reasons for delayed discharges from hospital, both of which are important in terms of planning future organisation of care.
Project 4 - Access to health services in England is generally lower for disadvantaged groups. This is a key policy concern because in the NHS access is ideally based on need. One study that used HES data to investigate inequalities in access to health services in England is by Moscelli, et al 2017 (Socioeconomic Inequality of Access to Healthcare: Does Choice Explain the Gradient? JHE https://doi.org/10.1016/j.jhealeco.2017.06.005). The authors investigated the extent of waiting time inequalities for elective coronary revascularisation procedures by socioeconomic status within hospitals. Using sophisticated statistical techniques, they showed that patients from the most deprived areas waited around one-third longer than the least deprived groups. Inequalities were not primarily due to differences across patients in exercising patient choice of hospital or procedure, suggesting that waiting lists may require more proactive and robust management.
This project has continued to investigate inequities in access, costs and outcomes and in 2017, further evidence relating to access, avoidable emergency hospital admissions and in-hospital mortality has been produced. This has added to knowledge of how to improve health and healthcare for vulnerable populations.
Project 5 – An example of an output from this project examined drivers of long waits in Emergency departments (EDs). EDs are seen as a ‘barometer’ of the NHS, acting as a safety net when other services are unavailable. Delays in receiving urgent treatment are a major policy concern, and may be due to factors within the hospital or to external factors such as the availability of social care. An analysis of HES A&E data identified factors driving long waits, but also highlighted much unexplained variation across providers. At the time of publication, the policy on tackling long waits was under review and the four-hour wait target operational during the study has now been dropped. However, the finding that bed occupancy levels and the age profile of attendees are independently associated with long waits remains relevant. Policy interest is evidenced by two invitations from NHS England to discuss findings (July 2017, Jan 2020). The work was presented at academic conferences (HESG (Aberdeen) 2017, International Health Congress (Oxford) 2018) and published in the CHE newsletter (March 2020) and an academic journal (Gaughan et al. Why are there long waits at English emergency departments? EJHE 21, 209–218 (2020). https://doi.org/10.1007/s10198-019-01121-7).
In 2017, previous research on patient-assessed outcomes was extended (by working with Vale of York commissioning body) to generate a web tool to support discussions between patients and their GPs about whether to undergo planned surgery. CHE developed the online tool, aftermysurgery.org.uk to inform patients about their likely outcome of hip and knee surgery and groin hernia repair. This online tool uses PROMs data to present for each user of the tool information on health outcomes experienced by other patients that have similar pre-operative characteristics. The intention of this tool is for it to be used in primary care to facilitate shared decision making between general practitioners and patients.
Other strands of the research have established that incentive payments made to GPs to increase the numbers of individuals diagnosed with dementia have been effective, but that there may have been unintended consequences in terms of adversely affecting patients’ experience of care and access to care.
Datasets on the latest version
Legal basis for provision: Health and Social Care Act 2012 – s261(2)(a)
| Dataset | Type of data | Sensitivity | Frequency | Confidential data |
|---|---|---|---|---|
| Civil Registrations of Death - Secondary Care Cut | Anonymised - ICO Code Compliant | Sensitive | One-Off | Does not include the flow of confidential data |
| Emergency Care Data Set (ECDS) | Anonymised - ICO Code Compliant | Non-Sensitive | Ongoing | Does not include the flow of confidential data |
| HES-ID to MPS-ID HES Accident and Emergency | Anonymised - ICO Code Compliant | Non-Sensitive | One-Off | Does not include the flow of confidential data |
| HES-ID to MPS-ID HES Admitted Patient Care | Anonymised - ICO Code Compliant | Non-Sensitive | One-Off | Does not include the flow of confidential data |
| HES-ID to MPS-ID HES Outpatients | Anonymised - ICO Code Compliant | Non-Sensitive | One-Off | Does not include the flow of confidential data |
| HES:Civil Registration (Deaths) bridge | Anonymised - ICO Code Compliant | Non-Sensitive | Ongoing | Does not include the flow of confidential data |
| Hospital Episode Statistics Accident and Emergency (HES A and E) | Anonymised - ICO Code Compliant | Non-Sensitive | Ongoing | Does not include the flow of confidential data |
| Hospital Episode Statistics Admitted Patient Care (HES APC) | Anonymised - ICO Code Compliant | Sensitive | Ongoing | Does not include the flow of confidential data |
| Hospital Episode Statistics Critical Care (HES Critical Care) | Anonymised - ICO Code Compliant | Non-Sensitive | Ongoing | Does not include the flow of confidential data |
| Hospital Episode Statistics Outpatients (HES OP) | Anonymised - ICO Code Compliant | Non-Sensitive | Ongoing | Does not include the flow of confidential data |
| Mental Health and Learning Disabilities Data Set (MHLDDS) | Anonymised - ICO Code Compliant | Sensitive | Ongoing | Does not include the flow of confidential data |
| Mental Health Minimum Data Set (MHMDS) | Anonymised - ICO Code Compliant | Sensitive | Ongoing | Does not include the flow of confidential data |
| Mental Health Services Data Set (MHSDS) | Anonymised - ICO Code Compliant | Sensitive | One-Off | Does not include the flow of confidential data |
| Patient Reported Outcome Measures (Linkable to HES) | Anonymised - ICO Code Compliant | Non-Sensitive | Ongoing | Does not include the flow of confidential data |
Files released
Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.
Patient opt-outs were not applied to any of the 316 files released under this agreement, across every version. About opt-outs
No files recorded as released under the latest version. 316 were released under earlier versions, shown in the version history.
Version history
The register lists each renewal of this agreement as a separate row. This site has 4 versions — earlier versions existed before this site's records begin.
DARS-NIC-84254-J2G1Q-v5.3 3 February 2023 to 23 January 2024
- Title
- Economic Analyses of Health and Social Care -Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity;
- Commercial
- No
- Sublicensing
- No
- Datasets
- 14
- Files released
- 0
Datasets: Civil Registrations of Death - Secondary Care Cut; Emergency Care Data Set (ECDS); HES-ID to MPS-ID HES Accident and Emergency; HES-ID to MPS-ID HES Admitted Patient Care; HES-ID to MPS-ID HES Outpatients; HES:Civil Registration (Deaths) bridge; Hospital Episode Statistics Accident and Emergency (HES A and E); Hospital Episode Statistics Admitted Patient Care (HES APC); Hospital Episode Statistics Critical Care (HES Critical Care); Hospital Episode Statistics Outpatients (HES OP); Mental Health and Learning Disabilities Data Set (MHLDDS); Mental Health Minimum Data Set (MHMDS); Mental Health Services Data Set (MHSDS); Patient Reported Outcome Measures (Linkable to HES)
What changed from DARS-NIC-84254-J2G1Q-v4.5
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2023-02-03 | |
| End date | 2024-01-23 | |
| Civil Registrations of Death - Secondary Care Cut: legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| Emergency Care Data Set (ECDS): legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| HES-ID to MPS-ID HES Accident and Emergency: legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| HES-ID to MPS-ID HES Admitted Patient Care: legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| HES-ID to MPS-ID HES Outpatients: legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| HES:Civil Registration (Deaths) bridge: legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| Hospital Episode Statistics Accident and Emergency (HES A and E): legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| Hospital Episode Statistics Admitted Patient Care (HES APC): legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| Hospital Episode Statistics Critical Care (HES Critical Care): legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| Hospital Episode Statistics Outpatients (HES OP): legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| Mental Health Minimum Data Set (MHMDS): legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| Mental Health Services Data Set (MHSDS): legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| Mental Health and Learning Disabilities Data Set (MHLDDS): legal basis | Health and Social Care Act 2012 – s261(2)(a) | |
| Patient Reported Outcome Measures (Linkable to HES): legal basis | Health and Social Care Act 2012 – s261(2)(a) |
Objective for processing
[6 paragraphs unchanged]
Following use of the NHS
Digital
England
data under any of the projects, only aggregated results with small numbers suppressed as per the HES Analysis guide will be published and disseminated to third parties.
[8 paragraphs unchanged]
When it comes to individual projects in the PRU, either the University
[6 words unchanged]
the lead. The LSE have a separate Data Sharing Agreement with NHS
Digital
England
(DARS-NIC-354497-V2J9P). The LSE has no involvement in the research projects carried out by CHE, and LSE will not have any access to NHS
Digital
England
data that the University of York holds for ESHCRU. Similarly, if LSE leads a project that requires NHS
Digital
England
data access, LSE will be responsible for all aspects related to the
[17 words unchanged]
York having any access to or involvement in their use of NHS
Digital
England
data. If an ESHCRU project is led by the University of York and requires the researchers to access NHS
Digital
England
datasets, the University of York will be solely responsible for determining the purposes and means of the processing of personal data.
The University of York is the sole Data Controller who also processes the NHS
Digital
England
data held under this Agreement to be processed for the purposes outlined
[52 words unchanged]
nor responsible for decision-making related to the data, their analysis, and outputs.
[5 paragraphs unchanged]
The research undertaken using NHS
Digital
England
data informs health and care policy and practice by identifying the effectiveness,
[38 words unchanged]
be distributed equally to meet the health needs of varying demographics. NHS
Digital
England
data provides a view of health care utilisation for CHE to understand
[14 words unchanged]
delivery of new healthcare policy aimed at improving the quality of care.
[64 paragraphs unchanged]
*** NEW FOR VERSION 4
Update 2021
- The following is a separately funded piece of research work which fits within the scope of project 4:
[4 paragraphs unchanged]
In previous work conducted under this Data Sharing Agreement (DSA) and funded
[143 words unchanged]
DSA with the NHFD (ref: FFFAP/DSA/2020/004), and a separate DSA with NHS
Digital
England
(DARS-NIC-50329-G1L1P) which details the bridging file to be produced, enabling linkage of
[15 words unchanged]
will be amended to include the above specified use of the data.
[3 paragraphs unchanged]
There is a need to link the HES data to data from
[30 words unchanged]
(FFFAP/DSA/2020/004). DARS-NIC-50329-G1L1P-v4 is the DSA between the University of York and NHS
Digital
England
under which NHS
Digital
England
will create a bespoke bridging file to enable the University of York to securely link NHFD data to HES data. ***
[1 paragraph unchanged]
It has long been understood that health and social care services frequently
[119 words unchanged]
surgery to impact on shared decision making in primary care in York.
The online web tool informs patients about their likely outcome of hip and knee surgery and groin hernia repair. This online tool uses PROMs data to present for each user of the tool information on health outcomes experienced by other patients that have similar pre-operative characteristics. The intention of this tool is for it to be used in primary care to facilitate shared decision making between general practitioners and patients (https://www.york.ac.uk/che/patient-outcome-tool/).
[5 paragraphs unchanged]
Processing activities
[29 paragraphs unchanged]
There will be no data linkage undertaken with NHS
Digital
England
data provided under this Agreement that is not already noted in the Agreement.
[1 paragraph unchanged]
Expected output
[29 paragraphs unchanged]
*** NEW TO VERSION 4 -
Project 4 - NIHR Policy Research Programme (grant number NIHR200417), Evidence to
[47 words unchanged]
and conference and seminar presentations to academic, policy, professional and public audiences.
***
[2 paragraphs unchanged]
Expected measurable benefits
[3 paragraphs unchanged]
Strong productivity growth for the economy as a whole is important because
[56 words unchanged]
care using measures that CHE constructs from the data supplied by NHS
Digital.
England.
Given that much government policy is designed to influence GDP, accurate measurement
[66 words unchanged]
the funding required to meet the health care needs of the population.
[8 paragraphs unchanged]
Expected benefits for amendment to project 4
2020 (DARS-NIC-84254-J2G1Q-v3):
2020:
[1 paragraph unchanged]
***NEW TO VERSION 4 -
Expected benefits for amendment to project 4 2021:
The results of this research are intended to provide new information to
[54 words unchanged]
English NHS, which are expected to improve population health and/or reduce inequalities.
***
[3 paragraphs unchanged]
Unchanged: Benefits reported.
DARS-NIC-84254-J2G1Q-v4.5 24 January 2022 to 23 January 2023
- Title
- Economic Analyses of Health and Social Care -Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity;
- Commercial
- No
- Sublicensing
- No
- Datasets
- 14
- Files released
- 68
Datasets: Civil Registrations of Death - Secondary Care Cut; Emergency Care Data Set (ECDS); HES-ID to MPS-ID HES Accident and Emergency; HES-ID to MPS-ID HES Admitted Patient Care; HES-ID to MPS-ID HES Outpatients; HES:Civil Registration (Deaths) bridge; Hospital Episode Statistics Accident and Emergency (HES A and E); Hospital Episode Statistics Admitted Patient Care (HES APC); Hospital Episode Statistics Critical Care (HES Critical Care); Hospital Episode Statistics Outpatients (HES OP); Mental Health and Learning Disabilities Data Set (MHLDDS); Mental Health Minimum Data Set (MHMDS); Mental Health Services Data Set (MHSDS); Patient Reported Outcome Measures (Linkable to HES)
What changed from DARS-NIC-84254-J2G1Q-v3.9
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2022-01-24 | |
| End date | 2023-01-23 | |
| HES-ID to MPS-ID HES Accident and Emergency: legal basis | Not stated |
Objective for processing
The Centre for Health Economics (CHE), based at University of York, requires
[30 words unchanged]
projects described below, CHE staff analyse pseudonymised, record level data from the
various datasets including:
below datasets:
[2 paragraphs unchanged]
• Civil Registration
(Deaths)
Data
[1 paragraph unchanged]
Following use of the data under any of the projects, only aggregated results with small numbers suppressed will be published and disseminated.
• Mental Health Data Sets (Mental Health Minimum Data Set (MHMDS), Mental Health and Learning Disabilities Data Set (MHLDDS), Mental Health Services Data Set (MHSDS))
The following projects are conducted by the Centre for Health Economics under PRU:
Following use of the NHS Digital data under any of the projects, only aggregated results with small numbers suppressed as per the HES Analysis guide will be published and disseminated to third parties.
The following projects are conducted by the Centre for Health Economics under the PRU:
[6 paragraphs unchanged]
The University of York is the sole Data Controller for data held under this Agreement to be processed for the purposes outlined in this section.
ESHCRU II is one of 15 PRUs and is a collaboration between the Centre for Health Economics (CHE) at the University of York and the Care Policy and Evaluation Centre (CPEC) at the London School of Economics and Political Science (LSE). The ESHCRU II team works with a Patient and Public Involvement (PPI) panel and with 6 PPI Advisory Group members who participate in programme advisory group and workstream advisory group meetings. PPI Advisory Group members have provided insightful contributions at meetings and are invaluable to the discussions with the research team. They have suggested new datasets, identified patient-level factors affecting recovery from surgery, encouraged the team to examine impacts by ethnicity and deprivation and to consider whether and how patient perspectives and outcomes could be incorporated into payment systems. The PPI panel has reviewed the ESHCRU II website (https://eshcru.com/). Six PPI panel members submitted detailed reviews. In response to the feedback received, the layout, language and content were refined to appeal to a broad audience. Wider benefits of the PPI Panel include identifying an individual with relevant experience for a separate York proposal on health inequalities and putting the Department of Health and Social Care (DHSC) in contact with two Panel members to speak at a networking/engagement event for the NIHR call Artificial Intelligence for Multiple Long-Term Conditions (AIM) (https://www.nihr.ac.uk/documents/nihr-artificial-intelligence-for-multiple-long-term-conditions-aim-clusters-call-research-specification-finalised/24646).
The University of York (CHE) has considered the legal basis for processing data under General Data Protection Regulation (GDPR) in respect of the projects covered in this agreement. CHE processes data under the following legal bases:
When it comes to individual projects in the PRU, either the University of York or the LSE take the lead. The LSE have a separate Data Sharing Agreement with NHS Digital (DARS-NIC-354497-V2J9P). The LSE has no involvement in the research projects carried out by CHE, and LSE will not have any access to NHS Digital data that the University of York holds for ESHCRU. Similarly, if LSE leads a project that requires NHS Digital data access, LSE will be responsible for all aspects related to the data, without any sharing of that responsibility with the University of York and without the University of York having any access to or involvement in their use of NHS Digital data. If an ESHCRU project is led by the University of York and requires the researchers to access NHS Digital datasets, the University of York will be solely responsible for determining the purposes and means of the processing of personal data.
Article 6(1) of the GDPR (lawfulness of processing), the reference in point (e) to processing necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller.
The University of York is the sole Data Controller who also processes the NHS Digital data held under this Agreement to be processed for the purposes outlined in this section. The University of York is solely responsible for the data provided under this Agreement and for all decision-making related to the data, its analysis, and any outputs. The NIHR / DHSC / NHS England are funders of the University of York's research and as such are not directly involved nor responsible for decision-making related to the data, their analysis, and outputs.
Article 9(2)(j)
The University of York was founded "for the advancement of learning and knowledge by teaching and research", as established by the University of York Charter. The University of York is a public authority under the Freedom of Information Act 2000. The University's Strategy 2030 builds on the founding principles of the Charter, with the overriding aim to be a university 'for public good'.
(processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject)
In line with the University of York's charter which states that the University of York advance learning and knowledge by teaching and research, the University of York (CHE) has considered the legal basis for processing data under General Data Protection Regulation (GDPR) in respect of the projects covered in this agreement. CHE processes data under the following legal bases:
Article 6(1)(e) of the GDPR (lawfulness of processing): processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller
Article 9(2)(j) of the GDPR (Processing of special categories of personal data): processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes
The processing of personal data, including special category data, is necessary to carry out research that serves the public interest, to inform policy and practice with the goal of improving health and well-being.
[2 paragraphs unchanged]
The University of York process both the pseudo-consultant code
(not sensitive)
and the underlying clear text consultant
code (sensitive) to minimise the amount of sensitive data used by researchers across different projects.
code.
Some research projects will analyse variation in case-mix adjusted hospital inpatient activity
[54 words unchanged]
Horizon 2020 Marie Sklodowska-Curie Innovative Training Network, will need access to the
sensitive
underlying clear text
consultant code field to link to it other publicly available data on
[53 words unchanged]
doctors’ GMC numbers. The pseudo-consultant code is insufficient for these projects. The
sensitive
underlying clear text
consultant code and the
non-sensitive
pseudo-consultant code will be stored as two separate files and stored in two separate folders. The files can be linked to the HES
APD
Admitted Patient Care (APC)
dataset through the epikey variable. Access to these files will be managed
[25 words unchanged]
the same time for the same project, thereby eliminating the risk of
back-engineering.
re-identification.
[1 paragraph unchanged]
The University holds a variety of NHS Digital Mental Health data sets, comprising of historic versions and newer replacements.
All of the work involves analysing the data in different ways. For example, an analysis under project 1 may focus on particular specialities, comparison of productivity across hospitals, or may be a broader assessment of national productivity. Many of the statistical methods to be employed require longitudinal data to investigate how changes in patient outcomes (including morbidity, mortality, emergency re-admissions, length of stay, admissions for conditions that could be managed in primary care, inpatient admission rates after Accident & Emergency (A&E) attendance) are related to changes in policy (including payment policies and incentives), changes in market configurations, changes in organisational structure, and changes in patient characteristics. Pseudonymised patient level information is required to allow for the influence of past utilisation, for demographic factors, for socio-economic factors (e.g. deprivation) linked to the small area in which patients live, and patient distance from hospitals, social care providers, and general practices. It is also essential in investigating the equity implications of policies, market structure, and organisational arrangements. The Principal Investigators and Project Leads are responsible for determining what analyses will be undertaken and what data will be used for each analysis in support of the objectives agreed with the funding organisations.
All of the work involves analysing the data in different ways. For example, an analysis under project 1 may focus on particular specialities, comparison of productivity across hospitals, or may be a broader assessment of national productivity. Many of the statistical methods to be employed require longitudinal data to investigate how changes in patient outcomes (including morbidity, mortality, emergency re-admissions, length of stay, admissions for conditions that could be managed in primary care, inpatient admission rates after A&E attendance) are related to changes in policy (including payment policies and incentives), changes in market configurations, changes in organisational structure, and changes in patient characteristics. Pseudonymised patient level information is required to allow for the influence of past utilisation, for demographic factors, for socio-economic factors (e.g. deprivation) linked to the small area in which patients live, and patient distance from hospitals, social care providers, and general practices. It is also essential in investigating the equity implications of policies, market structure, and organisational arrangements. The Principal Investigators and Project Leads are responsible for determining what analyses will be undertaken and what data will be used for each analysis in support of the objectives agreed with the funding organisations.
Different data dissemination frequencies are required under different projects. Under DARS-NIC-84254-J2G1Q-v3, the University of York requested the addition of monthly data disseminations under certain projects, due to the coronavirus pandemic precipitating the DHSC's need for more timely evidence to inform recovery from the initial crisis. Under DARS-NIC-84254-J2G1Q-v4, the University of York have revised the monthly disseminations to quarterly disseminations.
[1 paragraph unchanged]
The controls enable a single copy of the data to be held, reducing security risk associated with multiple copies being provided per project.
This model is aligned with similar arrangements for other sizeable research institutions.
[2 paragraphs unchanged]
Funder:
Funders:
[1 paragraph unchanged]
This project will use only the following data supplied under this Agreement: HES APC 1998/99-2020/21 A&E 2007/08 - 2017/18; Critical Care 2011/12 – 2020/21; Outpatient 2011/12-2020/21; PROMs 2009/10 –2020/21; Civil Registration (Mortality) data 1998/99 - 2020/21; Emergency Care Dataset (ECDS) 2017/18 – 2020/21;
• NHS Productivity (National Assessment Project) (Ref NIHR 200687).
This project will use only the following data supplied under this Agreement: HES APC 1998/99-2021/22 A&E 2007/08 - 2020/21; Critical Care 2011/12 – 2021/22; Outpatient 2011/12-2021/22; Patient Reported Outcome Measures (PROMs) 2009/10 –2021/22; Civil Registration (Mortality) data 1998/99 - 2021/22; Emergency Care Dataset (ECDS) 2017/18 – 2021/22; Mental Health Services Data Set 2016/17 - 2020/21
[5 paragraphs unchanged]
The purpose of this project is to produce information for National and local decision makers, such as the Department of Health and Social Care (DHSC),
Clinical Commissioning Groups (CCGs)
commissioning bodies
and Local Authorities (LAs), to assist decisions regarding the provision of services
[176 words unchanged]
of services both within and across the health and social care sectors.
[2 paragraphs unchanged]
•
National Institute for Health
NIHR Applied
Research
(NIHR)
Collaboration
for Leadership in Applied Health Research and Care
Yorkshire and Humber
(CLAHRC YH)
ARC
(Ref NIHR
CLARHC YH II 14653)
200166)
[1 paragraph unchanged]
• NIHR
HS&DR
Health Services and Delivery Research (HS&DR) Programme
(Ref DRF-2016-09-097): Doctoral Research Fellowship - "Providers' response on the Pay for Performance incentives".
[2 paragraphs unchanged]
The project will use only the following data: HES APC 1989/90 –
2020/21
2021/22
Sensitive field: Consultant Code; HES Outpatient 2002/03 –
2020/21;
2021/22;
PROMs 2009/10 –
2020/21;
2021/22;
Civil Registration (Deaths) 1998/99 -
2020/21.
2021/22.
Project 2 will utilise both Annual and
Monthly
Quarterly
disseminations of the datasets indicated above.
[5 paragraphs unchanged]
• NIHR
HS&DR
Health Services & Delivery Research (HS&DR)
10/1011/22 and NIHR HS&DR 13/54/40: Relationships between quality of primary care and secondary care outcomes for people with mental illness.
[4 paragraphs unchanged]
The project will use only the following data: HES APC 1998/99 –
2020/21;
2021/22;
A&E 2007/08 –
2017/18;
2020/21;
Outpatient 2002/03 –
2020/21;
2021/22;
PROMs 2009/10 –
2020/21;
2021/22;
Emergency Care Dataset 2017/18 –
2020/21;
2021/22;
MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17-2020/21; Civil Registration (Deaths)
1998/99-2020/21;
1998/99-2021/22;
HES APC Sensitive Psychiatric Fields: Detention category (DETNCAT), Legal group of patient (psychiatric) (LEGALGPC), Legal status classification (LEGLSTAT).
Project 3 will utilise both Annual and
Monthly
Quarterly
disseminations of the datasets listed above.
[3 paragraphs unchanged]
The purpose of this project is to produce information that NHS England and
Clinical Commissioning Groups
commissioning bodies
will use to address the NHS’ duty under the Health and Social
[163 words unchanged]
of NHS spending for use in constructing statistics about in-kind social transfers.
[2 paragraphs unchanged]
• NIHR
TCC
Training Co-ordinating Centre (TCC)
(Ref SRF-2013-06-015) Health equity impacts: evaluating the impacts of organisations and interventions on social inequalities in health.
[2 paragraphs unchanged]
The project will use only the following data: HES APC 1989/90 –
2020/21;
2021/22;
A&E 2007/08 –
2017/18;
2020/21;
Outpatient 2002/03 –
2020/21;
2021/22;
Critical Care 2011/12 –
2020/21;
2021/22;
PROMs 2009/10 –
2020/21;
2021/22;
Civil Registration (Deaths)
1998/99-2020/21;
1998/99-2021/22;
Emergency Care Dataset 2017/18 –
2020/21.
2021/22.
Project 4 will utilise both Annual and
Monthly
Quarterly
disseminations of the datasets listed above.
[1 paragraph unchanged]
The following is a separately funded piece of research work which fits within the scope of project
4:
4 (DARS-NIC-84254-J2G1Q-v3):
[11 paragraphs unchanged]
*** NEW FOR VERSION 4 - The following is a separately funded piece of research work which fits within the scope of project 4:
Funder:
NIHR Policy Research Programme (grant number NIHR200417), Evidence to support efficient and effective reduction of health inequality. The duration of the project is: 1st June 2019 to 31st May 2022.
Description of additional use of data:
This project will investigate the extent to which the introduction of the Best Practice Tariff (BPT) for fragility hip fracture in English NHS hospitals in April 2010, and subsequent changes to the tariff design, have affected health inequalities in this patient population.
In previous work conducted under this Data Sharing Agreement (DSA) and funded by NHS England (see Project 2: NHS England (Ref R1790901) Economic evaluation of the Fragility Hip Fracture Best Practice Tariff), CHE researchers quantified how the introduction of the BPT changed care delivery on eight incentivised process quality standards, and linked these changes to long-term health outcomes and healthcare resource use via decision-analytical modelling techniques. However, this study did not test whether the benefits and opportunity costs of the BPT are equally distributed across socioeconomic groups, and, consequently, how the BPT introduction affected health inequalities across the population of England. This new study will build on the earlier research, using data from the National Hip Fracture Database (NHFD) linked to HES via a bridging file, and will examine whether the BPT introduction and subsequent amendments to its design had different effects on incentivised clinical behaviours across socioeconomic groups. The University of York have a DSA with the NHFD (ref: FFFAP/DSA/2020/004), and a separate DSA with NHS Digital (DARS-NIC-50329-G1L1P) which details the bridging file to be produced, enabling linkage of the HES data held under DARS-NIC-84254-J2G1Q and the NHFD data held under FFFAP/DSA/2020/004. All DSAs will be amended to include the above specified use of the data.
The work will use the following data:
HES APC, Outpatient, A&E/ECDS, Civil Registration (Deaths) Secondary Care Cut: 2011/12 - 2019/20 (period of bridge file: 01 April 2011 to 31st March 2020)
Linkages:
There is a need to link the HES data to data from the National Hip Fracture Database (NHFD; part of the Falls and Fragility Fracture Audit Programme). Access to NHFD is granted under an existing DSA with the Royal College of Physicians (FFFAP/DSA/2020/004). DARS-NIC-50329-G1L1P-v4 is the DSA between the University of York and NHS Digital under which NHS Digital will create a bespoke bridging file to enable the University of York to securely link NHFD data to HES data. ***
[3 paragraphs unchanged]
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems
CHE Lead: Anne Mason
The project will use only the following data: HES APC 1989/90–
2020/21;
2021/22;
A&E 2007/08 –
2017/18;
2020/21;
Emergency Care Dataset 2017/18 –
2020/21;
2021/22;
MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17 -
2017/18;
2020/21;
Outpatient 2002/03 –
2020/21;
2021/22;
Critical Care 2011/12 –
2020/21,
2021/22,
PROMs 2009/10 –
2020/21;
2021/22;
Civil Registration (Deaths)
1998/99-2020/21.
1998/99-2021/22.
Project 5 will utilise both Annual and
Monthly
Quarterly
disseminations of the datasets listed above.
[1 paragraph unchanged]
Processing activities
[1 paragraph unchanged]
Data storage: Data will only be stored on the CHE data analysis server and the backup server and will only be accessible to individuals who are substantively employed by the University of York. Access to data is restricted to specific individuals according to role and project. Access to sensitive data is also restricted to only those individuals working within projects that are authorised to use sensitive data.
Data storage: Data will only be stored on the University of York Data Safe Haven and backup locations (onsite at University of York, and offsite at Amazon Web Services). Amazon Web Services supply Cloud Services for the University of York and are therefore listed as a data processor. They supply support to the system, but do not access data. Therefore, any access to the data held under this agreement would be considered a breach of the agreement. This includes granting of access to the database[s] containing the data.
Data analyses: CHE will use standard local software (e.g. STATA, SAS, R) which is not accessed via the cloud to analyse the data, derive descriptive statistics and apply multiple regression models to explore the relationships between variables.
Under this Agreement, the data will only be processed by University of York staff, registered degree students and associates all of whom are either individuals who:
i) are substantively employed researchers working under contract on behalf of the University of York; or
ii) have associate status with the University of York for the purpose and duration of a specific project or task within a project and work under an honorary contract.
Data will not be accessed or processed by any other third party not mentioned in this agreement. Access is granted for each project only to the named individuals associated with that project under authorised user names. Such access is controlled and recorded by the CHE Data Governance Group, following the strict processes of CHE and the Data Safe Haven (DSH).
The DSH is operated under an ISO 27001 certified Information Security Management System. The DSH equipment is located within a secure physical environment, and managed by the DSH Management Team, who are employees of the University of York. All equipment is located within a secure data-centre rack, meaning access to data is heavily restricted to a small number of people, and any physical access is monitored. Data is also encrypted at rest (i.e. when saved to disk) and also 'on-the-wire' (i.e. when it travels across the network). Access is undertaken remotely via University owned devices using the Citrix Workspace app, which provides the secure connection into the DSH, and Two-factor authentication is enabled. Off-campus access to the DSH requires individuals to use a secure Virtual Private Network (VPN) connection. All data processing and storage takes place in the locations listed under this agreement. Individuals are aware of their responsibilities to maintain data security, and only process and store pseudonymised record-level data within the Data Safe Haven. A record of all extractions is stored indefinitely for audit purposes, with a time stamped copy of the file(s), and is viewable by the DSH Administrators and the Environment Owners. The Environment Owners are individuals in CHE who are responsible for overseeing all DSH requests, and monitoring extractions. A size limit on extractions imposes restrictions on what can be downloaded. At each extraction, users are reminded of the terms of the user agreement and asked to confirm the files are suitable for export.
Guidance on confidentiality and data protection is provided to staff from University of York Information Security and Data Protection policies, CHE policies, CHE induction, as well as through University mandatory online training (Information Security Awareness and Data Protection - GDPR). Completion of the training, every 12 months, is a requirement for access to the DSH. Users of the DSH must sign a user agreement, confirming they are aware of the applicable policies (University of York and Data Safe Haven) and their personal responsibilities towards maintaining the security of the DSH and the information stored within it. Once signed, a DSH User Agreement applies to all projects and data within the DSH.
All staff, registered degree students and associates granted access to data held by CHE for research purposes are required to sign a Non-Disclosure Confidentiality Data Processing Agreement, confirming that they will read, act and adhere to CHE and University of York policies, in addition to the applicable Data Sharing Agreement and the Data Sharing Framework Contract.
Data analyses: CHE will use standard local analytical software which is not accessed via the cloud to analyse the data, derive descriptive statistics and apply multiple regression models to explore the relationships between variables.
[2 paragraphs unchanged]
• to Quality and Outcomes Framework and the Attribution Data Set using
GP
General Practice (GP)
codes; and
[1 paragraph unchanged]
No data will be linked to record level patient data.
Data processing: Analyses of the HES/ECDS and MHMDS/MHLDS/MHSDS data will involve estimation of statistical and econometric models using common statistical software packages. The analyses will take account of
Data processing: Analyses of the HES and MHMDS/MHLDS/MHSDS data will involve estimation of statistical and econometric models using software including Stata, SAS and R. The analyses will take account of
[1 paragraph unchanged]
2) patient diagnostic information such as diagnoses (co-morbidities), Charlson
score,
score (10-year survival in patients suffering from multiple comorbidities),
psychiatric history, HRG or Payments by Results (PbR) care cluster;
[1 paragraph unchanged]
4) quality and outcomes such as PROMs, 30-day survival, Health of the Nation Outcome Scales (HoNOS)
scores,
scores (measure of the health and social functioning of people with severe mental illness),
waiting times, readmissions, and social outcomes such as employment and accommodation status;
[2 paragraphs unchanged]
For data from the Mental Health (MHSDS, MHLDDS, MHMDS) data sets, and any Mental Health data linked to
HES
HES/ECDS
or SUS, the following disclosure control rules must be applied:
[5 paragraphs unchanged]
All outputs will contain only data that is aggregated with small numbers suppressed in line with the HES Analysis
Guide
Guide.
[2 paragraphs unchanged]
Data will only be accessed and processed by substantive employees of University of York.
[1 paragraph unchanged]
Expected output
The Centre for Health Economics has a long-established track record in the delivery of policy research that utilises HES data, as recognized by the award of the Queens Anniversary Prize in 2007. Examples of recent publications arising from the above projects that have employed the HES data can be found at the links below:
The outputs from all of the projects are intended to include:
https://eshcru.com/publications/
http://www.york.ac.uk/che/publications/in-house/ https://www.york.ac.uk/che/publications/all/
The outputs from all of the projects will include
[4 paragraphs unchanged]
Reports will be produced
The aim is to produce reports
containing aggregate results that show trends over time, differences across providers, commissioners, geographical areas and by patient subgroups and patient characteristics. The results
will
are intended to
contain estimated correlations showing associations between patient outcomes and patient characteristics, hospital, institutional, geographic and environmental factors. Statistical results
will
are intended to
be presented in interactive spreadsheets or “Dashboards” (e.g. similar to http://health-inequalities.blogspot.co.uk/ which uses
QOF
Quality Outcomes Framework (QOF)
data and only contains aggregated data which can be interrogated), tables and maps of aggregate statistics summarising patient characteristics
[3 paragraphs unchanged]
• Presentation of interim and emerging findings to
the various project
study advisory groups and/or steering committees. Members - who typically include policy makers, clinicians, academics and public contributors - provide feedback and advice.
[1 paragraph unchanged]
• Presentations to
CCGs,
commissioning bodies,
NHS trusts, and PPI groups
[1 paragraph unchanged]
• Oral or poster presentations at national and international conferences, such as Health Economists’ Study Group,
iHEA,
International Health Economics Association (iHEA),
and
EuHEA.
European Health Economics Association (EuHEA).
Delegates may include international organisations such as The World Bank,
OECD
Organisation for Economic Co-operation
and
WHO,
Development (OECD) and World Health Organisation (WHO),
alongside members of the international academic community.
[14 paragraphs unchanged]
Project 3 – Policy makers need timely evidence on the impact of
[91 words unchanged]
and stakeholder group meetings, as well as at invited seminars and workshops.
Examples of forthcoming outputs include
- Siciliani et al. Paying for health benefits using PROMs data, CHE Research Paper: November 2020
*** NEW TO VERSION 4 - Project 4 - NIHR Policy Research Programme (grant number NIHR200417), Evidence to support efficient and effective reduction of health inequality - planned outputs include: scientific report to the funder (target date 31/05/2022); two article in scientific journals (target date 01/03/2023); in addition, we plan to disseminate the findings from the work through lay summaries such as newsletters and blogs, and conference and seminar presentations to academic, policy, professional and public audiences. ***
- Gutacker et al, Evaluating the intended and unintended consequences of best practice tariffs on patient health outcomes and provider behaviour. Report to DHSC. October 2020.
Project 5 – The focus of this project is the evaluation of the interface between the different sectors of the health care system, such as the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long-term care, social care and secondary care utilisation. Published outputs from this project include open access reports and scientific papers in academic journals. Interim and final reports to funders will be provided in line with contractual requirements. Emerging findings will be presented at conferences, advisory and stakeholder group meetings, or at DHSC workshops or seminars. This ongoing engagement helps ensure the work remains policy relevant. An example is a departmental working paper examining the effects of changes in social care funding on health care utilisation (Pace et al. Understanding the interdependencies between health and social care resources and arrangements. CHE Research Paper, December 2020). Early findings from this work were shared with NHSE (May 2018), discussed with DHSC (March 2019), with further analyses undertaken in response to their questions about the impact of the Better Care Fund. The report was revised following written comments from the Department (May 2019), and published in the Health Economics journal (Liu et al 2020, https://doi.org/10.1002/hec.4175).
- Rice et al, Characterising end-of-life hospital expenditure. Oral presentation to the DHSC Oversight Group (steering committee) October 2020.
The DSA includes as funders the European Commission, European Training Network. “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Skłodowska-Curie Innovative Training Networks, which funds two PhD research projects. The outputs for this specific project is the compilation and publication of a doctorate thesis and related research articles to be published in international research journal. Both PhD students have now completed their PhD thesis, however access to the data is still required to finalise outputs and respond to peer review.
Project 5 – The focus of this project is the evaluation of the interface between the different sectors of the health care system, such as the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long-term care, social care and secondary care utilisation. Published outputs from this project include open access reports and scientific papers in academic journals. Interim and final reports to funders will be provided in line with contractual requirements. Emerging findings will be presented at conferences, advisory and stakeholder group meetings, or at DHSC workshops or seminars. This ongoing engagement helps ensure the work remains policy relevant. An example is a departmental working paper examining the effects of changes in social care funding on health care utilisation (Pace et al. Understanding the interdependencies between health and social care resources and arrangements. CHE Research Paper, December 2020). Early findings from this work were shared with NHSE (May 2018), discussed with DHSC (March 2019), with further analyses undertaken in response to their questions about the impact of the Better Care Fund. The report was revised following written comments from the Department (May 2019), and is currently under review with a health economics journal.
Targets dates and deliverables met
Project 1: The NHS spends over £120 billion a year and the budget provided for the NHS is influenced by the evidence on how well the money is spent. The annual estimates of productivity that we produce for the Department of Health and Social Care are a key part of their negotiations with the Treasury about the size of the budget and the research is cited in exchanges with ministers and government committees that scrutinise NHS spending. In particular, the quality adjustment method devised by York is important in ensuring that productivity is not under-stated which may have a negative impact on the size of budget settlements and hence lead to lower investment in the NHS. The most recent update to the NHS productivity measure https://www.york.ac.uk/media/che/documents/papers/researchpapers/CHERP171_NHS_productivity_update2017_18.pdf) shows a steady positive increase and that NHS productivity has increased substantially faster than the overall economy.
The methods developed by the York research team have also caught interests of Governments and health ministries in other parts of the world (eg Japan, Italy, Malaysia, Sweden), which have resulted in a number of workshop and collaborative work.
Project 2: Examples of outputs produced from this project include journal articles on the determinants of health care expenditure. For example, an article by Howdon and Rice (Health care expenditures, age, proximity to death and morbidity: Implications for an ageing population, 2017, https://doi.org/10.1016/j.jhealeco.2017.11.001) investigates the implications of an ageing population on health care expenditure, showing that the latter is primarily determined by proximity to death, rather than age. Chalkley et al. (Elective hospital admissions: secondary data analysis and modelling with an emphasis on policies to moderate growth, 2017, https://doi.org/10.3310/hsdr05070) investigating growth in elective hospital admissions in England find that these are mainly due to increases in both demand for and supply of hospital care, with health system reforms and ageing population less important.
Project 3: Outputs from this project include journal articles on payment systems, providing evidence on intended and unintended impacts for policy makers designing new approaches to paying for care. For example, one study examined the effects of two incentive schemes in primary care that aimed to tackle underdiagnosis in dementia, with HES data used to control for a parallel hospital scheme. The schemes were effective in increasing dementia diagnoses (Mason, et al 2018, Investigating the impact of primary care payments on underdiagnosis in dementia: a difference-in-differences analysis, IJGP. https://doi.org/10.1002/gps.4897). However, patient satisfaction was lower in practices that achieved higher rates of dementia diagnoses (Liu, et al 2019, Incentive schemes to increase dementia diagnoses in primary care in England: a retrospective cohort study of unintended consequences. BJGP https://doi.org/10.3399/bjgp19X701513).
Project 4: Access to health services in England is generally lower for disadvantaged groups. This is a key policy concern because in the NHS access is ideally based on need. One study that used HES data to investigate inequalities in access to health services in England is by Moscelli, et al 2017 (Socioeconomic Inequality of Access to Healthcare: Does Choice Explain the Gradient? JHE https://doi.org/10.1016/j.jhealeco.2017.06.005). The authors investigated the extent of waiting time inequalities for elective coronary revascularisation procedures by socioeconomic status within hospitals. Using sophisticated statistical techniques, they showed that patients from the most deprived areas waited around one-third longer than the least deprived groups. Inequalities were not primarily due to differences across patients in exercising patient choice of hospital or procedure, suggesting that waiting lists may require more proactive and robust management.
Project 5: An example of an output from this project examined drivers of long waits in Emergency departments (EDs). EDs are seen as a ‘barometer’ of the NHS, acting as a safety net when other services are unavailable. Delays in receiving urgent treatment are a major policy concern, and may be due to factors within the hospital or to external factors such as the availability of social care. An analysis of HES A&E data identified factors driving long waits, but also highlighted much unexplained variation across providers. At the time of publication, the policy on tackling long waits was under review and the four-hour wait target operational during the study has now been dropped. However, the finding that bed occupancy levels and the age profile of attendees are independently associated with long waits remains relevant. Policy interest is evidenced by two invitations from NHS England to discuss findings (July 2017, Jan 2020). The work was presented at academic conferences (HESG (Aberdeen) 2017, International Health Congress (Oxford) 2018) and published in the CHE newsletter (March 2020) and an academic journal (Gaughan et al. Why are there long waits at English emergency departments? EJHE 21, 209–218 (2020). https://doi.org/10.1007/s10198-019-01121-7).
The DSA includes as funders the European Commission, European Training Network. “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Skłodowska-Curie Innovative Training Networks, which funds two PhD research projects. The outputs for this specific project is the compilation and publication of a doctorate thesis and related research articles to be published in international research journal. Both PhD research projects are nearing completion by the end of 2020, but with access to NHS Digital data required to prepare research articles and respond to potential comments/revision requests from journal reviewers.
Expected measurable benefits
[2 paragraphs unchanged]
The Department of Health uses CHE’s work on of efficiency, effectiveness and
[37 words unchanged]
about what the NHS is doing with the budget it receives and
helps
can help to
identify opportunities for better use of funding. This
supports
has the potential to support
public accountability and transparency, and
helps
help
ensure that the NHS receives the budget it needs to meet health care demands and makes best use of taxpayers’ money.
Strong productivity growth for the economy as a whole is important because
[102 words unchanged]
disseminates the work through various media to inform the public about NHS
productivity ensuring
productivity. Helping to ensure
that the public is fully informed of this fact
helps
could help to
bolster support for the NHS, thereby making it more likely that the
[5 words unchanged]
the funding required to meet the health care needs of the population.
[1 paragraph unchanged]
CHE’s projects evaluating the performance of health care providers
are expected to
provide evidence to inform national and regional (Yorkshire and Humber – Y&H)
[9 words unchanged]
performance improvement and outcome measures, tariff design, and patient choice. The project
will
is anticipated to
assist decisions regarding the provision of services that offer the greatest value for money according to the benefits achieved. In due course this
will
is hoped to
translate to a more efficient allocation of health care resources, through appropriate
[28 words unchanged]
to promote the use of evidence based medicine and prospective evaluation, this
will
is expected to
increase the potential for future decisions to be grounded on economic principles
[6 words unchanged]
choices made. In the short term, the work conducted to inform the
NYH
North Yorkshire & Humberside (NYH)
Major Trauma Network meeting
will
is anticipated to
help
to
establish an appropriate, affordable, major trauma rehabilitation service in Y&H. This
will
is hoped to
translate to patients benefits associated with appropriate rehabilitation, as well as gains
[12 words unchanged]
is anticipated that the work looking at the care hubs implemented in
Y&H,
Y&H
will similarly be used to support commission/de-commissioning decisions regarding the future use of such services.
[1 paragraph unchanged]
CHE’s evaluations of the impacts of health care policy, organisation, finance and
[36 words unchanged]
White papers and specific government reviews. The main benefits from the projects
will
are anticipated to
be to make better informed policy choices on issues related to: the
[85 words unchanged]
and quality of mental healthcare provision for the benefit of service users.
[2 paragraphs unchanged]
The methods were adopted by NHS England in August 2016 to create indicators of inequality in potentially avoidable emergency hospitalisation as part of the
CCG
commissioning bodies
Improvement and Assessment Framework https://www.york.ac.uk/che/research/equity/monitoring/. During 2017, CHE worked with the NHS
[17 words unchanged]
within the NHS, e.g. via RightCare information packs, and help clinical commissioning
groups
bodies
use them to address the NHS duty. https://www.england.nhs.uk/publication/challenging-health-inequalities-support-for-ccgs/
[1 paragraph unchanged]
Expected benefits for amendment to project 4
2020:
2020 (DARS-NIC-84254-J2G1Q-v3):
Child poverty is associated with a wide range of negative health impacts.
[23 words unchanged]
health services which should be incorporated into government decision making. This project
will
intends to
inform developing policy on welfare reform and inequalities in healthcare access and
[9 words unchanged]
under the Health and Social Care Act 2012 to reduce health inequalities
***NEW TO VERSION 4 - Expected benefits for amendment to project 4 2021:
The results of this research are intended to provide new information to commissioners about the health inequality impact of existing policies. This study aims to provide decision-makers in the English NHS with information on the population health and health inequality impacts of new pay-for-performance models such as the fragility hip fracture best-practice tariff. This information is intended to inform future designs of pay-for-performance arrangements in the English NHS, which are expected to improve population health and/or reduce inequalities. ***
[1 paragraph unchanged]
A core performance target for the English NHS is that at least
[86 words unchanged]
attendance at A&E, underscoring the need to adopt a whole-system approach. DHSC
can
could
use this information to tackle interface issues between health and social care, and to inform workforce planning so that staff-patient ratios are kept at safe levels.
The benefits around requesting Civil Registration Deaths (Secondary Care Cut) data: survival
(or its counterpart reduced mortality)
is
one of
the
primary measure of health outcomes, and thus
outcome measures more widely used to assess the
quality of
care,
care provided
in the English NHS. Detailed data on the date of death allow
[15 words unchanged]
across units of assessment than otherwise possible. Inpatient mortality (based on discharge
information) is an imperfect measure
information present in HES Admitted Patient Care) only provides the researcher with insights on the number
of
quality of care because it is censored at discharge.
patients that die within a hospital setting.
Differences in discharge management across units of assessment introduce bias in any comparison. Indicators of
survival/death
death
at a specific point in time (e.g. at 30 days after admission)
[10 words unchanged]
are thus less precise than assessments based on actual date of death.
Benefits reported
Project 1 - The primary output from this ongoing project is the production each year of an annual update to national NHS productivity figures that incorporates the most recent financial year of data. In 2017, the annual update was produced for the DHSC and, as in other years, was used by them externally and internally in monitoring, informing policy debate, the annual spending review and negotiations on budget setting. Under this project, CHE also provided data about the quality of NHS care to the Office of National Statistics that are used each year in the construction of the national accounts. In 2017, additional analyses on hospital level productivity were produced for the DHSC, examining the factors underlying variation in productivity, which assists the DHSC in exploring how to get the best value from NHS resources.
The Centre for Health Economics has a long-established track record in the delivery of policy research that utilises HES data, as recognized by the award of the Queens Anniversary Prize in 2007. Examples of recent publications arising from the above projects that have employed the HES data can be found at the links below:
Project 2 - This project has produced a range of evidence that allows the DHSC and other organisations to understand and plan expenditure on different aspects of NHS care, to account for changes in activity and also to understand aspects of quality of care, First, it has investigated the drivers of health care expenditure, disentangling the influence of age, morbidity and proximity to death on the level of expenditure. This has important implications for the DHSC in terms of planning and for the design of the resource allocation formulae used to distribute the healthcare budget, Second, it has explored several aspects of activity in the secondary care sector, for instance, policies for moderating growth in elective admissions and how the provision of specialist rehabilitation services affect the duration and costs of hospital care. It has also looked at the use of patient valuation of the care they receive as a way of measuring the quality of hospital care. Third, it has investigated in-hospital mortality trends over time. These insights allow policy makers to appreciate the costs and the benefits of NHS provision and to plan for more effective and efficient care.
https://eshcru.com/publications/
Project 3 - The research in this project has evaluated whether the way in which the NHS is organised can affect the costs and outcomes of services to help inform policy decisions. In 2017, the research has produced evidence on a number of issues in mental health, including the relationship between costs and quality and socio-economic inequalities in access to care. Other examples include the production of evidence on the impact of the electronic booking system on referrals and non-attendances and the investigation of reasons for delayed discharges from hospital, both of which are important in terms of planning future organisation of care.
http://www.york.ac.uk/che/publications/in-house/ https://www.york.ac.uk/che/publications/all/
Project 4 - This project has continued to investigate inequities in access, costs and outcomes and in 2017, further evidence relating to access, avoidable emergency hospital admissions and in-hospital mortality has been produced. This has added to knowledge of how to improve health and healthcare for vulnerable populations.
Project 1 - The NHS spends over £120 billion a year and the budget provided for the NHS is influenced by the evidence on how well the money is spent. The annual estimates of productivity that we produce for the Department of Health and Social Care are a key part of their negotiations with the Treasury about the size of the budget and the research is cited in exchanges with ministers and government committees that scrutinise NHS spending. In particular, the quality adjustment method devised by York is important in ensuring that productivity is not under-stated which may have a negative impact on the size of budget settlements and hence lead to lower investment in the NHS. The most recent update to the NHS productivity measure (https://www.york.ac.uk/media/che/documents/papers/researchpapers/CHERP171_NHS_productivity_update2017_18.pdf) shows a steady positive increase and that NHS productivity has increased substantially faster than the overall economy.
Project 5 – In 2017, previous research on patient-assessed outcomes was extended (by working with Vale of York CCG) to generate a web tool to support discussions between patients and their GPs about whether to undergo planned surgery. The on-line tool, aftermysugery.org.uk can be used by patients and their GPs, who input basic demographic data and fill in a pre-operative health status questionnaire. The webtool then returns a predicted post-operative health status, together with national comparator data, displayed in various visual formats. This information is designed to a) help patients decide whether they feel the expected health improvement is sufficiently high to make having the operation worthwhile, b) inform patients about the likelihood of a negative outcome, and c) provide information about which hospitals secure better outcomes for their patients.
The methods developed by the York research team have also caught interests of Governments and health ministries in other parts of the world (eg Japan, Italy, Malaysia, Sweden), which have resulted in a number of workshop and collaborative work.
Other strands of the research have established that incentive payments made to GPs to increase the numbers of individuals diagnosed with dementia have been effective, but that there may have been unintended consequences on patient experience and access.
The primary output from this ongoing project is the production each year of an annual update to national NHS productivity figures that incorporates the most recent financial year of data. In 2017, the annual update was produced for the DHSC and, as in other years, was used by them externally and internally in monitoring, informing policy debate, the annual spending review and negotiations on budget setting. Under this project, CHE also provided data about the quality of NHS care to the Office of National Statistics that are used each year in the construction of the national accounts. In 2017, additional analyses on hospital level productivity were produced for the DHSC, examining the factors underlying variation in productivity, which assists the DHSC in exploring how to get the best value from NHS resources.
Project 2 - Examples of outputs produced from this project include journal articles on the determinants of health care expenditure. For example, an article by Howdon and Rice (Health care expenditures, age, proximity to death and morbidity: Implications for an ageing population, 2017, https://doi.org/10.1016/j.jhealeco.2017.11.001) investigates the implications of an ageing population on health care expenditure, showing that the latter is primarily determined by proximity to death, rather than age. Chalkley et al. (Elective hospital admissions: secondary data analysis and modelling with an emphasis on policies to moderate growth, 2017, https://doi.org/10.3310/hsdr05070) investigating growth in elective hospital admissions in England find that these are mainly due to increases in both demand for and supply of hospital care, with health system reforms and ageing population less important.
This project has produced a range of evidence that allows the DHSC and other organisations to understand and plan expenditure on different aspects of NHS care, to account for changes in activity and also to understand aspects of quality of care, First, it has investigated the drivers of health care expenditure, disentangling the influence of age, morbidity and proximity to death on the level of expenditure. This has important implications for the DHSC in terms of planning and for the design of the resource allocation formulae used to distribute the healthcare budget, Second, it has explored several aspects of activity in the secondary care sector, for instance, policies for moderating growth in elective admissions and how the provision of specialist rehabilitation services affect the duration and costs of hospital care. It has also looked at the use of patient valuation of the care they receive as a way of measuring the quality of hospital care. Third, it has investigated in-hospital mortality trends over time. These insights allow policy makers to appreciate the costs and the benefits of NHS provision and to plan for more effective and efficient care.
Project 3 - Outputs from this project include journal articles on payment systems, providing evidence on intended and unintended impacts for policy makers designing new approaches to paying for care. For example, one study examined the effects of two incentive schemes in primary care that aimed to tackle underdiagnosis in dementia, with HES data used to control for a parallel hospital scheme. The schemes were effective in increasing dementia diagnoses (Mason, et al 2018, Investigating the impact of primary care payments on underdiagnosis in dementia: a difference-in-differences analysis, IJGP. https://doi.org/10.1002/gps.4897). However, patient satisfaction was lower in practices that achieved higher rates of dementia diagnoses (Liu, et al 2019, Incentive schemes to increase dementia diagnoses in primary care in England: a retrospective cohort study of unintended consequences. BJGP https://doi.org/10.3399/bjgp19X701513).
The research in this project has evaluated whether the way in which the NHS is organised can affect the costs and outcomes of services to help inform policy decisions. In 2017, the research has produced evidence on a number of issues in mental health, including the relationship between costs and quality and socio-economic inequalities in access to care. Other examples include the production of evidence on the impact of the electronic booking system on referrals and non-attendances and the investigation of reasons for delayed discharges from hospital, both of which are important in terms of planning future organisation of care.
Project 4 - Access to health services in England is generally lower for disadvantaged groups. This is a key policy concern because in the NHS access is ideally based on need. One study that used HES data to investigate inequalities in access to health services in England is by Moscelli, et al 2017 (Socioeconomic Inequality of Access to Healthcare: Does Choice Explain the Gradient? JHE https://doi.org/10.1016/j.jhealeco.2017.06.005). The authors investigated the extent of waiting time inequalities for elective coronary revascularisation procedures by socioeconomic status within hospitals. Using sophisticated statistical techniques, they showed that patients from the most deprived areas waited around one-third longer than the least deprived groups. Inequalities were not primarily due to differences across patients in exercising patient choice of hospital or procedure, suggesting that waiting lists may require more proactive and robust management.
This project has continued to investigate inequities in access, costs and outcomes and in 2017, further evidence relating to access, avoidable emergency hospital admissions and in-hospital mortality has been produced. This has added to knowledge of how to improve health and healthcare for vulnerable populations.
Project 5 – An example of an output from this project examined drivers of long waits in Emergency departments (EDs). EDs are seen as a ‘barometer’ of the NHS, acting as a safety net when other services are unavailable. Delays in receiving urgent treatment are a major policy concern, and may be due to factors within the hospital or to external factors such as the availability of social care. An analysis of HES A&E data identified factors driving long waits, but also highlighted much unexplained variation across providers. At the time of publication, the policy on tackling long waits was under review and the four-hour wait target operational during the study has now been dropped. However, the finding that bed occupancy levels and the age profile of attendees are independently associated with long waits remains relevant. Policy interest is evidenced by two invitations from NHS England to discuss findings (July 2017, Jan 2020). The work was presented at academic conferences (HESG (Aberdeen) 2017, International Health Congress (Oxford) 2018) and published in the CHE newsletter (March 2020) and an academic journal (Gaughan et al. Why are there long waits at English emergency departments? EJHE 21, 209–218 (2020). https://doi.org/10.1007/s10198-019-01121-7).
In 2017, previous research on patient-assessed outcomes was extended (by working with Vale of York commissioning body) to generate a web tool to support discussions between patients and their GPs about whether to undergo planned surgery. CHE developed the online tool, aftermysurgery.org.uk to inform patients about their likely outcome of hip and knee surgery and groin hernia repair. This online tool uses PROMs data to present for each user of the tool information on health outcomes experienced by other patients that have similar pre-operative characteristics. The intention of this tool is for it to be used in primary care to facilitate shared decision making between general practitioners and patients.
Other strands of the research have established that incentive payments made to GPs to increase the numbers of individuals diagnosed with dementia have been effective, but that there may have been unintended consequences in terms of adversely affecting patients’ experience of care and access to care.
Objective for processing
The Centre for Health Economics (CHE), based at University of York, requires access to pseudonymised data to support a number of projects conducted under the Policy Research Unit (PRU) in the Economics of Health and Social Care Systems. For each of the projects described below, CHE staff analyse pseudonymised, record level data from the below datasets:
• Hospital Episode Statistics (HES)
• Emergency Care Data (ECDS)
• Civil Registration (Deaths) Data
• Patient Reported Outcome Measures (PROMS)
• Mental Health Data Sets (Mental Health Minimum Data Set (MHMDS), Mental Health and Learning Disabilities Data Set (MHLDDS), Mental Health Services Data Set (MHSDS))
Following use of the NHS Digital data under any of the projects, only aggregated results with small numbers suppressed as per the HES Analysis guide will be published and disseminated to third parties.
The following projects are conducted by the Centre for Health Economics under the PRU:
Project 1 - Measurement of efficiency, effectiveness, and productivity in the delivery of health care system nationally, sub-nationally and among hospitals.
Project 2 - Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity.
Project 3 - Evaluation of the impacts of health care policy, organisation, finance and delivery of NHS services and quantification of differences in health care utilisation, expenditure, morbidity and mortality over time, across geographic regions, health providers, and among different patient groups.
Project 4 - Investigation of inequalities in access, outcomes, and costs of health services in England.
Project 5 - Evaluation of the interface between the different sectors of the health care system, including the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long term care, social care and secondary care utilisation.
Most of these projects are funded, at least in part, by the National Institute for Health Research (NIHR), via a major programme of work funded as a Policy Research Unit (PRU) in the Economics of Health and Social Care Systems (http://eshcru.ac.uk/). This programme was re-awarded for a further five years starting from January 2019. The aim of the PRU is to inform and guide policy-making in the health and social care sectors by undertaking high quality, robust and policy-relevant research, based on the discipline of economics, thereby helping to improve the health and well-being of the population, reflecting distributional concerns and population diversity. A detailed work programme for the next phase of programme funding is developed in advance in collaboration with both a Department of Health and Social Care (DHSC) Stakeholder Group and the PRU’s Advisory Group, meetings being held with each Group every six months.
ESHCRU II is one of 15 PRUs and is a collaboration between the Centre for Health Economics (CHE) at the University of York and the Care Policy and Evaluation Centre (CPEC) at the London School of Economics and Political Science (LSE). The ESHCRU II team works with a Patient and Public Involvement (PPI) panel and with 6 PPI Advisory Group members who participate in programme advisory group and workstream advisory group meetings. PPI Advisory Group members have provided insightful contributions at meetings and are invaluable to the discussions with the research team. They have suggested new datasets, identified patient-level factors affecting recovery from surgery, encouraged the team to examine impacts by ethnicity and deprivation and to consider whether and how patient perspectives and outcomes could be incorporated into payment systems. The PPI panel has reviewed the ESHCRU II website (https://eshcru.com/). Six PPI panel members submitted detailed reviews. In response to the feedback received, the layout, language and content were refined to appeal to a broad audience. Wider benefits of the PPI Panel include identifying an individual with relevant experience for a separate York proposal on health inequalities and putting the Department of Health and Social Care (DHSC) in contact with two Panel members to speak at a networking/engagement event for the NIHR call Artificial Intelligence for Multiple Long-Term Conditions (AIM) (https://www.nihr.ac.uk/documents/nihr-artificial-intelligence-for-multiple-long-term-conditions-aim-clusters-call-research-specification-finalised/24646).
When it comes to individual projects in the PRU, either the University of York or the LSE take the lead. The LSE have a separate Data Sharing Agreement with NHS Digital (DARS-NIC-354497-V2J9P). The LSE has no involvement in the research projects carried out by CHE, and LSE will not have any access to NHS Digital data that the University of York holds for ESHCRU. Similarly, if LSE leads a project that requires NHS Digital data access, LSE will be responsible for all aspects related to the data, without any sharing of that responsibility with the University of York and without the University of York having any access to or involvement in their use of NHS Digital data. If an ESHCRU project is led by the University of York and requires the researchers to access NHS Digital datasets, the University of York will be solely responsible for determining the purposes and means of the processing of personal data.
The University of York is the sole Data Controller who also processes the NHS Digital data held under this Agreement to be processed for the purposes outlined in this section. The University of York is solely responsible for the data provided under this Agreement and for all decision-making related to the data, its analysis, and any outputs. The NIHR / DHSC / NHS England are funders of the University of York's research and as such are not directly involved nor responsible for decision-making related to the data, their analysis, and outputs.
The University of York was founded "for the advancement of learning and knowledge by teaching and research", as established by the University of York Charter. The University of York is a public authority under the Freedom of Information Act 2000. The University's Strategy 2030 builds on the founding principles of the Charter, with the overriding aim to be a university 'for public good'.
In line with the University of York's charter which states that the University of York advance learning and knowledge by teaching and research, the University of York (CHE) has considered the legal basis for processing data under General Data Protection Regulation (GDPR) in respect of the projects covered in this agreement. CHE processes data under the following legal bases:
Article 6(1)(e) of the GDPR (lawfulness of processing): processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller
Article 9(2)(j) of the GDPR (Processing of special categories of personal data): processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes
The processing of personal data, including special category data, is necessary to carry out research that serves the public interest, to inform policy and practice with the goal of improving health and well-being.
The research undertaken using NHS Digital data informs health and care policy and practice by identifying the effectiveness, efficiency, distribution, and quality of a wide range of services provided to the population. It produces insights that allow the maximisation of health gain from limited healthcare budgets, along with information on how health and health care is/can be distributed equally to meet the health needs of varying demographics. NHS Digital data provides a view of health care utilisation for CHE to understand how effective delivery of care is distributed both nationally and locally, contributing to the delivery of new healthcare policy aimed at improving the quality of care.
Approximately 20% of funding is reserved for the PRU to respond to short-term responsive requests for research. This process ensures that the work programme can be shaped to reflect enduring and emerging policy concerns. For some projects, CHE have been able to secure additional funding, enabling the University to extend or deepen the analyses of the research topic. NIHR also funds other projects, as mentioned below.
The University of York process both the pseudo-consultant code and the underlying clear text consultant code. Some research projects will analyse variation in case-mix adjusted hospital inpatient activity and their related outcomes at the consultant level. For these projects, it is necessary to assign activity to consultants but it is not necessary to identify who they are. The pseudo-consultant code is therefore sufficient for these projects. Other research projects, such as the European Training Network “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Sklodowska-Curie Innovative Training Network, will need access to the underlying clear text consultant code field to link to it other publicly available data on consultants, such as the General Medical Council (GMC) medical register (https://www.gmc-uk.org/registration-and-licensing/the-medical-register). The GMC medical register provides details on, for example, the type of registration held by a doctor and the date at which they completed their primary medical qualification. This linkage is achieved through the clear text consultant code field, which corresponds to doctors’ GMC numbers. The pseudo-consultant code is insufficient for these projects. The underlying clear text consultant code and the pseudo-consultant code will be stored as two separate files and stored in two separate folders. The files can be linked to the HES Admitted Patient Care (APC) dataset through the epikey variable. Access to these files will be managed on a researcher and project-by-project basis. In this way, the University of York will ensure that no researcher has access to both data fields at the same time for the same project, thereby eliminating the risk of re-identification.
The University will not publish any information at identifiable consultant level under any of the work projects described in this agreement.
All of the work involves analysing the data in different ways. For example, an analysis under project 1 may focus on particular specialities, comparison of productivity across hospitals, or may be a broader assessment of national productivity. Many of the statistical methods to be employed require longitudinal data to investigate how changes in patient outcomes (including morbidity, mortality, emergency re-admissions, length of stay, admissions for conditions that could be managed in primary care, inpatient admission rates after Accident & Emergency (A&E) attendance) are related to changes in policy (including payment policies and incentives), changes in market configurations, changes in organisational structure, and changes in patient characteristics. Pseudonymised patient level information is required to allow for the influence of past utilisation, for demographic factors, for socio-economic factors (e.g. deprivation) linked to the small area in which patients live, and patient distance from hospitals, social care providers, and general practices. It is also essential in investigating the equity implications of policies, market structure, and organisational arrangements. The Principal Investigators and Project Leads are responsible for determining what analyses will be undertaken and what data will be used for each analysis in support of the objectives agreed with the funding organisations.
Different data dissemination frequencies are required under different projects. Under DARS-NIC-84254-J2G1Q-v3, the University of York requested the addition of monthly data disseminations under certain projects, due to the coronavirus pandemic precipitating the DHSC's need for more timely evidence to inform recovery from the initial crisis. Under DARS-NIC-84254-J2G1Q-v4, the University of York have revised the monthly disseminations to quarterly disseminations.
CHE confirms that the data under this Agreement would only be used for the five projects listed, and any additional project (whether as part of the DHSC programme or otherwise) would require a separate approval. Equally individuals working on each project will only be permitted to access the data relating to that project, as identified within this Agreement. Access is granted for each project only to the named individuals associated with that project under authorised user names. Such access is password controlled (with a password reset required on a regular refresh).
The controls enable a single copy of the data to be held, reducing security risk associated with multiple copies being provided per project.
Project 1 - Measurement of efficiency, effectiveness and productivity in the delivery of health care system nationally, sub-nationally and among hospitals;
The purpose of this project is to produce information for the Department of Health and Social Care (DHSC) and Secretary of State for Health on efficiency, effectiveness and productivity. In the current economic climate it is particularly important that changes in efficiency and productivity can be identified and monitored. This helps ensure accountability to the public for how the annual NHS budget is spent and to identify opportunities for better use of resources devoted to the NHS. This project provides numerical answers and context for, among others, House of Commons Health Committee, the Public Accounts Committee, Public Expenditure Inquiries, and DHSC submissions in support of annual Spending Reviews. The work also contributes to the measurement of productivity of the health service in the national accounts, compiled by the Office of National Statistics.
Funders:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
• NHS Productivity (National Assessment Project) (Ref NIHR 200687).
This project will use only the following data supplied under this Agreement: HES APC 1998/99-2021/22 A&E 2007/08 - 2020/21; Critical Care 2011/12 – 2021/22; Outpatient 2011/12-2021/22; Patient Reported Outcome Measures (PROMs) 2009/10 –2021/22; Civil Registration (Mortality) data 1998/99 - 2021/22; Emergency Care Dataset (ECDS) 2017/18 – 2021/22; Mental Health Services Data Set 2016/17 - 2020/21
Project 1 will only process data provided through Annual dissemination for the datasets listed above.
Data has been assessed and minimised to only utilise the required data from that disseminated under this Agreement for this project and cannot be minimised further.
The University of York will estimate survival models that relate the timing of death (based on the exact date of death) for individual patients to the relevant unit of assessment (provider, region) after adjusting for relevant case-mix differences across the populations under study.
Most of the work undertaken under this project involves measurement of productivity over time, hence the need to hold the data from 1998/99. It is also necessary to construct aggregated measures of NHS output and quality based on what has happened to each individual patient in whatever setting care has been delivered, hence the need for patient-level information. The project also requires use of the sensitive PROMs data as measures of the quality of health care.
Project 2 - Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity;
The purpose of this project is to produce information for National and local decision makers, such as the Department of Health and Social Care (DHSC), commissioning bodies and Local Authorities (LAs), to assist decisions regarding the provision of services that offer the greatest value for money according to the benefits achieved. Delivering appropriate, high quality, health care services to patients, in the most cost-effective way, are important priorities in any health care system. Advancing these priorities requires the analyses of such things as variations in practice and of the relationship between patient outcomes and hospital and consultant workload; which dimensions of performance are most important to patients; and the extent to which financial incentives motivate best practice. Ultimately this project informs the assessment of the most efficient and cost-effective way of delivering a particular service. This helps ensure accountability to the public for how the annual NHS budget is spent and helps to identify opportunities for better use of resources devoted to the NHS. The project is designed to develop a more systematic evidence base that will allow policy-makers, providers and commissioners to develop policies to achieve efficiency targets and outcome-based commissioning, publish information on performance in formats that are most useful for the intended stakeholders, and to redeploy resources to produce more efficient mixes of services both within and across the health and social care sectors.
Funders:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
• NIHR Applied Research Collaboration Yorkshire and Humber ARC (Ref NIHR 200166)
• NHS England (Ref R1790901) Economic evaluation of the Fragility Hip Fracture Best Practice Tariff.
• NIHR Health Services and Delivery Research (HS&DR) Programme (Ref DRF-2016-09-097): Doctoral Research Fellowship - "Providers' response on the Pay for Performance incentives".
• European Commission, European Training Network. “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Skłodowska-Curie Innovative Training Networks.
The work for all these funders will require the sensitive PROMs data to measure patient outcomes.
The project will use only the following data: HES APC 1989/90 – 2021/22 Sensitive field: Consultant Code; HES Outpatient 2002/03 – 2021/22; PROMs 2009/10 – 2021/22; Civil Registration (Deaths) 1998/99 - 2021/22.
Project 2 will utilise both Annual and Quarterly disseminations of the datasets indicated above.
Project 3 - Evaluation of the impacts of health care policy, organisation, finance and delivery of NHS services and quantification of differences in health care utilisation, expenditure, morbidity and mortality over time, across geographic regions, health providers, and among different patient groups.
The purpose of this project is to produce evidence to inform NHS England and the Department of Health and Social Care’s decisions on resource allocation, funding models, and the design and direction of future policy regarding the health, mental health, and social care sectors, with CHE’s advice and analyses being regularly sought to feed into White papers and specific government reviews.
This project includes understanding which types of budgeting, organisation, structure and contracting arrangements for health, incl. mental health, and social care services best achieves strategic goals. It also includes evaluations of payment policies (including financial incentive schemes) and changes to the organisation of services (e.g. co-location of general practitioners alongside emergency departments, mergers of providers, vertical integration of providers, care pathways) that seek to encourage good quality, cost-effective care and/or facilitate access to timely care. The main aims are to: analyse the potential for use of different organisational structures and payment mechanisms in health and social care to improve overall performance; analyse the impact that different payment policies and service configurations can have on prices, outputs, quality and outcomes; explore how the best payment systems and service configurations could be implemented in practice; and establish the effect of innovative organisational forms on costs and quality of care.
Funders:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
• NIHR Health Services & Delivery Research (HS&DR) 10/1011/22 and NIHR HS&DR 13/54/40: Relationships between quality of primary care and secondary care outcomes for people with mental illness.
• Wellcome Trust [ref: 105624] through the Centre for Chronic Diseases and Disorders (C2D2) at the University of York: Finance and organisation of mental health services.
• Health Foundation [ref: 57151] Efficiency, cost and quality of mental healthcare provision.
• NIHR HS&DR (Ref DRF/2014-07-055): Doctoral Research Fellowship - Measuring & explaining variations in general practice performance.
• NIHR HS&DR (Ref 15/145/06): General Practitioners and Emergency Departments (GPED): Efficient Models of Care.
The project will use only the following data: HES APC 1998/99 – 2021/22; A&E 2007/08 – 2020/21; Outpatient 2002/03 – 2021/22; PROMs 2009/10 – 2021/22; Emergency Care Dataset 2017/18 – 2021/22; MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17-2020/21; Civil Registration (Deaths) 1998/99-2021/22; HES APC Sensitive Psychiatric Fields: Detention category (DETNCAT), Legal group of patient (psychiatric) (LEGALGPC), Legal status classification (LEGLSTAT).
Project 3 will utilise both Annual and Quarterly disseminations of the datasets listed above.
The work for several funders will require the use of the PROMs data to measure morbidity over time.
This project will also require use of MHMDS/MHLDS/MHSDS data linked to HES data in order to carry out analyses into the economics around mental health and mental health care provision. CHE is requesting sensitive MHMDS/MHLDS/MHSDS fields and sensitive HES psychiatric fields (Legal group of patient, Legal status classification, and Detention category). These relate to the legal category / legal status of the patient which is an important indicator of patient severity. CHE will need these sensitive data items to accurately control for the impact of detention on resource use and utilisation. CHE needs to check data consistency between HES and the MHMDS/MHLDS/MHSDS and therefore requires sensitive data on legal status in both datasets.
Project 4 - Investigation of inequalities in access, outcomes and costs of health services in England.
The purpose of this project is to produce information that NHS England and commissioning bodies will use to address the NHS’ duty under the Health and Social Care Act 2012 to consider reducing health inequalities, and that Public Health England, Local Authorities and a variety of other public and third sector organisations will use to inform decision making and quality assurance around health and social care and wider public policies with impacts on health. CHE has developed new methods of local health equity monitoring for health care quality assurance, which NHS England adopted in 2016. In collaboration with colleagues at the Department of Health Sciences, University of York, and analysts at NHS England, CHE will refine and use these methods and related measures to monitor the progress of national and local NHS organisations in reducing inequalities in healthcare access and outcomes, to gain insight into the determinants of inequalities and which local areas show sustained improvements and deteriorations in health inequality and why, and to evaluate the equity impacts of local new models of care and other health policies. The work will also assist the ONS to conduct distributional analyses of NHS spending for use in constructing statistics about in-kind social transfers.
The work for the Department of Health and Social Care will investigate why providers respond differently to policy incentives and quantify the associated impact on inequalities in care quality and/or access, including how these change over time.
Funders:
• NIHR Training Co-ordinating Centre (TCC) (Ref SRF-2013-06-015) Health equity impacts: evaluating the impacts of organisations and interventions on social inequalities in health.
• Wellcome Trust. ‘Re-Engineering Health Policy Research for Fairer Decisions and Better Health’.
• Department of Health to the Policy Research Unit in the Economics of Health and Social Care Systems
The project will use only the following data: HES APC 1989/90 – 2021/22; A&E 2007/08 – 2020/21; Outpatient 2002/03 – 2021/22; Critical Care 2011/12 – 2021/22; PROMs 2009/10 – 2021/22; Civil Registration (Deaths) 1998/99-2021/22; Emergency Care Dataset 2017/18 – 2021/22.
Project 4 will utilise both Annual and Quarterly disseminations of the datasets listed above.
The work requires the use of sensitive PROMs data to measure patient outcomes in secondary care.
The following is a separately funded piece of research work which fits within the scope of project 4 (DARS-NIC-84254-J2G1Q-v3):
Funder:
• NIHR Policy Research Programme (grant number PR-X06-1014-22005), Partnership for Responsive Policy Analysis and Research (PREPARE), a collaboration between the University of York and the King's Fund.
Though PREPARE is a collaboration between the University of York and the King’s Fund, the King’s Fund has no involvement in this research project. The research request was considered by the co-leads in the University of York and the King’s Fund who agreed that the University of York would carry out the research. The lead within the University of York has been solely responsible for all decisions on how this research will be carried out including all decisions in respect of what data processing is required.
Description of additional use of data:
This area of the project will explore the links between child health and child poverty, in particular the NHS hospital utilisation of children born into deprivation (using the indices of deprivation (ID) as a proxy for poverty) in comparison with children who are not born in deprived areas. The study will also explore whether any difference in hospital utilisation over the early life course has changed over time. To do this the project will create a birth cohort of children born in NHS hospitals in England in specific financial year (2000, 2005, 2010, 2015, 2018), and track their use of NHS services (inpatient, outpatient and A&E) over their life course (up to age 18 for those born in 2000). The analysts will then test whether the age-sex adjusted differential use of hospital services across children born into rich and poor neighbourhoods has changed over time.
The work will use the following data:
HES APC 2000/01 – 2020/21; HES A&E 2007/08 - 2018/19; HES OP 2002/03 – 2020/21; Emergency Care Dataset 2017/18 – 2020/21.
The work will utilise both Annual and Monthly disseminations of the datasets listed above.
Linkages:
There is a need to link the HES APC data to Index of Multiple Deprivation (IMD) via the child’s Lower Super Output Area (LSOA) of residence. An older version of the IMD (2004) is already included in HES but the study will have to link to subsequent versions of the ID.
This Agreement permits the use of the data for this research but does not permit the use of the data for other research projects funded by PREPARE. Use of the data for any other projects funded by PREPARE would require a formal amendment to this Data Sharing Agreement.
*** NEW FOR VERSION 4 - The following is a separately funded piece of research work which fits within the scope of project 4:
Funder:
NIHR Policy Research Programme (grant number NIHR200417), Evidence to support efficient and effective reduction of health inequality. The duration of the project is: 1st June 2019 to 31st May 2022.
Description of additional use of data:
This project will investigate the extent to which the introduction of the Best Practice Tariff (BPT) for fragility hip fracture in English NHS hospitals in April 2010, and subsequent changes to the tariff design, have affected health inequalities in this patient population.
In previous work conducted under this Data Sharing Agreement (DSA) and funded by NHS England (see Project 2: NHS England (Ref R1790901) Economic evaluation of the Fragility Hip Fracture Best Practice Tariff), CHE researchers quantified how the introduction of the BPT changed care delivery on eight incentivised process quality standards, and linked these changes to long-term health outcomes and healthcare resource use via decision-analytical modelling techniques. However, this study did not test whether the benefits and opportunity costs of the BPT are equally distributed across socioeconomic groups, and, consequently, how the BPT introduction affected health inequalities across the population of England. This new study will build on the earlier research, using data from the National Hip Fracture Database (NHFD) linked to HES via a bridging file, and will examine whether the BPT introduction and subsequent amendments to its design had different effects on incentivised clinical behaviours across socioeconomic groups. The University of York have a DSA with the NHFD (ref: FFFAP/DSA/2020/004), and a separate DSA with NHS Digital (DARS-NIC-50329-G1L1P) which details the bridging file to be produced, enabling linkage of the HES data held under DARS-NIC-84254-J2G1Q and the NHFD data held under FFFAP/DSA/2020/004. All DSAs will be amended to include the above specified use of the data.
The work will use the following data:
HES APC, Outpatient, A&E/ECDS, Civil Registration (Deaths) Secondary Care Cut: 2011/12 - 2019/20 (period of bridge file: 01 April 2011 to 31st March 2020)
Linkages:
There is a need to link the HES data to data from the National Hip Fracture Database (NHFD; part of the Falls and Fragility Fracture Audit Programme). Access to NHFD is granted under an existing DSA with the Royal College of Physicians (FFFAP/DSA/2020/004). DARS-NIC-50329-G1L1P-v4 is the DSA between the University of York and NHS Digital under which NHS Digital will create a bespoke bridging file to enable the University of York to securely link NHFD data to HES data. ***
Project 5 - Evaluation of the interface between the different sectors of the health care system, including the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long term care, social care and secondary care utilisation.
It has long been understood that health and social care services frequently provide treatment and care for the same individuals, so ensuring that these are ‘joined up’ or well co-ordinated has been an important and long-standing policy objective. In practice, however, both the services and approaches to monitoring these have developed separately, with potential implications for the efficiency and effectiveness of both health and social care. The purpose of this project is to produce evidence that will be used by the Department of Health and Social Care and commissioners to inform discharge arrangements and the design of integrated care arrangements and to identify opportunities for substitution of different types of health and social care services. CHE has also developed an online web tool to inform patients about their likely outcome of surgery to impact on shared decision making in primary care in York.
Funder:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems
The project will use only the following data: HES APC 1989/90– 2021/22; A&E 2007/08 – 2020/21; Emergency Care Dataset 2017/18 – 2021/22; MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17 - 2020/21; Outpatient 2002/03 – 2021/22; Critical Care 2011/12 – 2021/22, PROMs 2009/10 – 2021/22; Civil Registration (Deaths) 1998/99-2021/22.
Project 5 will utilise both Annual and Quarterly disseminations of the datasets listed above.
This project requires the sensitive PROMs data to measure patient outcomes in secondary care.
Expected output
The outputs from all of the projects are intended to include:
• Reports and slide decks to funding bodies;
• peer reviewed papers in academic journals;
• lay summaries such as newsletters and blogs;
• conference and seminar presentations to a variety of audiences, such as academic, policy, professional and public audiences.
The aim is to produce reports containing aggregate results that show trends over time, differences across providers, commissioners, geographical areas and by patient subgroups and patient characteristics. The results are intended to contain estimated correlations showing associations between patient outcomes and patient characteristics, hospital, institutional, geographic and environmental factors. Statistical results are intended to be presented in interactive spreadsheets or “Dashboards” (e.g. similar to http://health-inequalities.blogspot.co.uk/ which uses Quality Outcomes Framework (QOF) data and only contains aggregated data which can be interrogated), tables and maps of aggregate statistics summarising patient characteristics
All outputs will contain only data that are aggregated with small numbers suppressed in line with the HES Analysis Guide.
The dissemination and communication strategy will vary between projects and will have been previously agreed with the funders. It would normally include the oral presentations; interim and final reports; and published reports and journal articles. Examples are provided below:
Oral presentations / knowledge exchange
• Presentation of interim and emerging findings to the various project study advisory groups and/or steering committees. Members - who typically include policy makers, clinicians, academics and public contributors - provide feedback and advice.
• Interactive workshops with policy analysts from DHSC and NHSE/I to discuss emerging findings and ensure policy relevance
• Presentations to commissioning bodies, NHS trusts, and PPI groups
• Open lectures and invited talks at Universities/Research Centres both in the UK and abroad
• Oral or poster presentations at national and international conferences, such as Health Economists’ Study Group, International Health Economics Association (iHEA), and European Health Economics Association (EuHEA). Delegates may include international organisations such as The World Bank, Organisation for Economic Co-operation and Development (OECD) and World Health Organisation (WHO), alongside members of the international academic community.
• End of project workshops or conferences to present research findings to key stakeholders and policy makers
Unpublished reports
• Draft reports with preliminary findings to advisory groups
• Interim reports for funders and policy analysts
• Draft final reports for funders. These are usually peer reviewed externally by academics and internally by policy analysts
Publications
• Published reports containing full, detailed findings, with an accompanying lay summary to make key messages more accessible.
• Press releases to accompany the publications of reports (full or short), via the University of York Press Office as well as through the CHE website and social media platforms, as well as funders own Press Release Offices and social media platforms;
• Peer reviewed scientific papers in academic and policy journals
• Short articles in CHE annual reports and CHE newsletters
Target dates for outputs
The outputs from each project will be delivered in accordance with CHE’s funding contracts, which run to different timelines with various milestones for each. Below are examples of key milestones and timelines for some of the projects undertaken.
Project 1 - The primary output from this ongoing project is the production each year of an annual update to national NHS productivity figures that incorporates the most recent financial year of data. Under this project, CHE has demonstrated that NHS productivity growth is meeting the requirements of the Five Year Forward View and outpaces that of the economy as a whole. CHE’s figures are widely used to inform policy discourse, with the DHSC relying on the information for internal monitoring purposes and for external reporting and response purposes, such as to inform annual Spending Reviews. Under this project, CHE also provides data about the quality of NHS care to the Office of National Statistics that are used in the construction of the national accounts.
In addition to the annual update of national figures, CHE also undertakes analyses of variation in hospital productivity and produces short reports, memorandum or slide decks for the DHSC to address specific questions about NHS productivity. CHE presents the work regularly to various audiences, including politicians, policy makers, academics, health professions and the general public through seminars, conference presentations and media appearances.
Project 3 – Policy makers need timely evidence on the impact of health care policies. These policies concern both the supply side of health care - the organisation, finance and delivery of services - and the demand side, such as utilisation, morbidity and mortality. Under this project, analyses may investigate variations over time and/or across geographic regions, providers, or patient groups. Empirical research frequently relies on analyses of HES. Outputs include open access reports and scientific papers in academic journals. Interim and final reports are submitted to funders as part of our contractual requirements. Emerging findings are presented and discussed at regular advisory and stakeholder group meetings, as well as at invited seminars and workshops.
*** NEW TO VERSION 4 - Project 4 - NIHR Policy Research Programme (grant number NIHR200417), Evidence to support efficient and effective reduction of health inequality - planned outputs include: scientific report to the funder (target date 31/05/2022); two article in scientific journals (target date 01/03/2023); in addition, we plan to disseminate the findings from the work through lay summaries such as newsletters and blogs, and conference and seminar presentations to academic, policy, professional and public audiences. ***
Project 5 – The focus of this project is the evaluation of the interface between the different sectors of the health care system, such as the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long-term care, social care and secondary care utilisation. Published outputs from this project include open access reports and scientific papers in academic journals. Interim and final reports to funders will be provided in line with contractual requirements. Emerging findings will be presented at conferences, advisory and stakeholder group meetings, or at DHSC workshops or seminars. This ongoing engagement helps ensure the work remains policy relevant. An example is a departmental working paper examining the effects of changes in social care funding on health care utilisation (Pace et al. Understanding the interdependencies between health and social care resources and arrangements. CHE Research Paper, December 2020). Early findings from this work were shared with NHSE (May 2018), discussed with DHSC (March 2019), with further analyses undertaken in response to their questions about the impact of the Better Care Fund. The report was revised following written comments from the Department (May 2019), and published in the Health Economics journal (Liu et al 2020, https://doi.org/10.1002/hec.4175).
The DSA includes as funders the European Commission, European Training Network. “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Skłodowska-Curie Innovative Training Networks, which funds two PhD research projects. The outputs for this specific project is the compilation and publication of a doctorate thesis and related research articles to be published in international research journal. Both PhD students have now completed their PhD thesis, however access to the data is still required to finalise outputs and respond to peer review.
Benefits reported
The Centre for Health Economics has a long-established track record in the delivery of policy research that utilises HES data, as recognized by the award of the Queens Anniversary Prize in 2007. Examples of recent publications arising from the above projects that have employed the HES data can be found at the links below:
https://eshcru.com/publications/
http://www.york.ac.uk/che/publications/in-house/ https://www.york.ac.uk/che/publications/all/
Project 1 - The NHS spends over £120 billion a year and the budget provided for the NHS is influenced by the evidence on how well the money is spent. The annual estimates of productivity that we produce for the Department of Health and Social Care are a key part of their negotiations with the Treasury about the size of the budget and the research is cited in exchanges with ministers and government committees that scrutinise NHS spending. In particular, the quality adjustment method devised by York is important in ensuring that productivity is not under-stated which may have a negative impact on the size of budget settlements and hence lead to lower investment in the NHS. The most recent update to the NHS productivity measure (https://www.york.ac.uk/media/che/documents/papers/researchpapers/CHERP171_NHS_productivity_update2017_18.pdf) shows a steady positive increase and that NHS productivity has increased substantially faster than the overall economy.
The methods developed by the York research team have also caught interests of Governments and health ministries in other parts of the world (eg Japan, Italy, Malaysia, Sweden), which have resulted in a number of workshop and collaborative work.
The primary output from this ongoing project is the production each year of an annual update to national NHS productivity figures that incorporates the most recent financial year of data. In 2017, the annual update was produced for the DHSC and, as in other years, was used by them externally and internally in monitoring, informing policy debate, the annual spending review and negotiations on budget setting. Under this project, CHE also provided data about the quality of NHS care to the Office of National Statistics that are used each year in the construction of the national accounts. In 2017, additional analyses on hospital level productivity were produced for the DHSC, examining the factors underlying variation in productivity, which assists the DHSC in exploring how to get the best value from NHS resources.
Project 2 - Examples of outputs produced from this project include journal articles on the determinants of health care expenditure. For example, an article by Howdon and Rice (Health care expenditures, age, proximity to death and morbidity: Implications for an ageing population, 2017, https://doi.org/10.1016/j.jhealeco.2017.11.001) investigates the implications of an ageing population on health care expenditure, showing that the latter is primarily determined by proximity to death, rather than age. Chalkley et al. (Elective hospital admissions: secondary data analysis and modelling with an emphasis on policies to moderate growth, 2017, https://doi.org/10.3310/hsdr05070) investigating growth in elective hospital admissions in England find that these are mainly due to increases in both demand for and supply of hospital care, with health system reforms and ageing population less important.
This project has produced a range of evidence that allows the DHSC and other organisations to understand and plan expenditure on different aspects of NHS care, to account for changes in activity and also to understand aspects of quality of care, First, it has investigated the drivers of health care expenditure, disentangling the influence of age, morbidity and proximity to death on the level of expenditure. This has important implications for the DHSC in terms of planning and for the design of the resource allocation formulae used to distribute the healthcare budget, Second, it has explored several aspects of activity in the secondary care sector, for instance, policies for moderating growth in elective admissions and how the provision of specialist rehabilitation services affect the duration and costs of hospital care. It has also looked at the use of patient valuation of the care they receive as a way of measuring the quality of hospital care. Third, it has investigated in-hospital mortality trends over time. These insights allow policy makers to appreciate the costs and the benefits of NHS provision and to plan for more effective and efficient care.
Project 3 - Outputs from this project include journal articles on payment systems, providing evidence on intended and unintended impacts for policy makers designing new approaches to paying for care. For example, one study examined the effects of two incentive schemes in primary care that aimed to tackle underdiagnosis in dementia, with HES data used to control for a parallel hospital scheme. The schemes were effective in increasing dementia diagnoses (Mason, et al 2018, Investigating the impact of primary care payments on underdiagnosis in dementia: a difference-in-differences analysis, IJGP. https://doi.org/10.1002/gps.4897). However, patient satisfaction was lower in practices that achieved higher rates of dementia diagnoses (Liu, et al 2019, Incentive schemes to increase dementia diagnoses in primary care in England: a retrospective cohort study of unintended consequences. BJGP https://doi.org/10.3399/bjgp19X701513).
The research in this project has evaluated whether the way in which the NHS is organised can affect the costs and outcomes of services to help inform policy decisions. In 2017, the research has produced evidence on a number of issues in mental health, including the relationship between costs and quality and socio-economic inequalities in access to care. Other examples include the production of evidence on the impact of the electronic booking system on referrals and non-attendances and the investigation of reasons for delayed discharges from hospital, both of which are important in terms of planning future organisation of care.
Project 4 - Access to health services in England is generally lower for disadvantaged groups. This is a key policy concern because in the NHS access is ideally based on need. One study that used HES data to investigate inequalities in access to health services in England is by Moscelli, et al 2017 (Socioeconomic Inequality of Access to Healthcare: Does Choice Explain the Gradient? JHE https://doi.org/10.1016/j.jhealeco.2017.06.005). The authors investigated the extent of waiting time inequalities for elective coronary revascularisation procedures by socioeconomic status within hospitals. Using sophisticated statistical techniques, they showed that patients from the most deprived areas waited around one-third longer than the least deprived groups. Inequalities were not primarily due to differences across patients in exercising patient choice of hospital or procedure, suggesting that waiting lists may require more proactive and robust management.
This project has continued to investigate inequities in access, costs and outcomes and in 2017, further evidence relating to access, avoidable emergency hospital admissions and in-hospital mortality has been produced. This has added to knowledge of how to improve health and healthcare for vulnerable populations.
Project 5 – An example of an output from this project examined drivers of long waits in Emergency departments (EDs). EDs are seen as a ‘barometer’ of the NHS, acting as a safety net when other services are unavailable. Delays in receiving urgent treatment are a major policy concern, and may be due to factors within the hospital or to external factors such as the availability of social care. An analysis of HES A&E data identified factors driving long waits, but also highlighted much unexplained variation across providers. At the time of publication, the policy on tackling long waits was under review and the four-hour wait target operational during the study has now been dropped. However, the finding that bed occupancy levels and the age profile of attendees are independently associated with long waits remains relevant. Policy interest is evidenced by two invitations from NHS England to discuss findings (July 2017, Jan 2020). The work was presented at academic conferences (HESG (Aberdeen) 2017, International Health Congress (Oxford) 2018) and published in the CHE newsletter (March 2020) and an academic journal (Gaughan et al. Why are there long waits at English emergency departments? EJHE 21, 209–218 (2020). https://doi.org/10.1007/s10198-019-01121-7).
In 2017, previous research on patient-assessed outcomes was extended (by working with Vale of York commissioning body) to generate a web tool to support discussions between patients and their GPs about whether to undergo planned surgery. CHE developed the online tool, aftermysurgery.org.uk to inform patients about their likely outcome of hip and knee surgery and groin hernia repair. This online tool uses PROMs data to present for each user of the tool information on health outcomes experienced by other patients that have similar pre-operative characteristics. The intention of this tool is for it to be used in primary care to facilitate shared decision making between general practitioners and patients.
Other strands of the research have established that incentive payments made to GPs to increase the numbers of individuals diagnosed with dementia have been effective, but that there may have been unintended consequences in terms of adversely affecting patients’ experience of care and access to care.
DARS-NIC-84254-J2G1Q-v3.9 11 November 2020 to 31 December 2021
- Title
- Economic Analyses of Health and Social Care -Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity;
- Commercial
- No
- Sublicensing
- No
- Datasets
- 14
- Files released
- 126
Datasets: Civil Registrations of Death - Secondary Care Cut; Emergency Care Data Set (ECDS); HES-ID to MPS-ID HES Accident and Emergency; HES-ID to MPS-ID HES Admitted Patient Care; HES-ID to MPS-ID HES Outpatients; HES:Civil Registration (Deaths) bridge; Hospital Episode Statistics Accident and Emergency (HES A and E); Hospital Episode Statistics Admitted Patient Care (HES APC); Hospital Episode Statistics Critical Care (HES Critical Care); Hospital Episode Statistics Outpatients (HES OP); Mental Health and Learning Disabilities Data Set (MHLDDS); Mental Health Minimum Data Set (MHMDS); Mental Health Services Data Set (MHSDS); Patient Reported Outcome Measures (Linkable to HES)
What changed from DARS-NIC-84254-J2G1Q-v2.13
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2020-11-11 | |
| Civil Registrations of Death - Secondary Care Cut: legal basis | Health and Social Care Act 2012 - s261 - 'Other dissemination of information' | |
| HES:Civil Registration (Deaths) bridge: legal basis | Health and Social Care Act 2012 - s261 - 'Other dissemination of information' | |
| Hospital Episode Statistics Accident and Emergency (HES A and E): legal basis | Health and Social Care Act 2012 - s261 - 'Other dissemination of information' | |
| Hospital Episode Statistics Admitted Patient Care (HES APC): legal basis | Health and Social Care Act 2012 - s261 - 'Other dissemination of information' | |
| Hospital Episode Statistics Critical Care (HES Critical Care): legal basis | Health and Social Care Act 2012 - s261 - 'Other dissemination of information' | |
| Hospital Episode Statistics Outpatients (HES OP): legal basis | Health and Social Care Act 2012 - s261 - 'Other dissemination of information' | |
| Mental Health Minimum Data Set (MHMDS): legal basis | Health and Social Care Act 2012 - s261 - 'Other dissemination of information' | |
| Mental Health Services Data Set (MHSDS): legal basis | Health and Social Care Act 2012 - s261 - 'Other dissemination of information' | |
| Mental Health and Learning Disabilities Data Set (MHLDDS): legal basis | Health and Social Care Act 2012 - s261 - 'Other dissemination of information' | |
| Patient Reported Outcome Measures (Linkable to HES): legal basis | Health and Social Care Act 2012 - s261 - 'Other dissemination of information' |
Datasets: + Emergency Care Data Set (ECDS); + HES-ID to MPS-ID HES Accident and Emergency; + HES-ID to MPS-ID HES Admitted Patient Care; + HES-ID to MPS-ID HES Outpatients
Objective for processing
The Centre for Health Economics (CHE), based at University of
York is requesting
York, requires access to pseudonymised
data
for
to support a number of projects conducted under
the
following projects involving economic analyses
Policy Research Unit (PRU) in the Economics
of
health
Health
and
social care. Please note that for
Social Care Systems. For
each of the
following
projects
described below,
CHE staff
will
analyse
individual
pseudonymised, record
level data from the various
datasets. Only aggregated results will be published and disseminated.
datasets including:
Most of these projects are funded, at least in part, by the National Institute for Health Research (NIHR), via a major programme of work funded as a Policy Research Unit (PRU) in the Economics of Health and Social Care Systems (http://eshcru.ac.uk/). This programme was re-awarded for a further five years starting from January 2019. The aim of the PRU is to inform and guide policy-making in the health and social care sectors by undertaking high quality, robust and policy-relevant research, based on the discipline of economics, thereby helping to improve the health and well-being of the population, reflecting distributional concerns and population diversity. A detailed work programme for the next phase of programme funding is developed in advance in collaboration with both a DHSC Stakeholder Group and the PRU’s Advisory Group, meetings being held with each Group every six months. Approximately 20% of funding is reserved for the PRU to respond to short-term responsive requests for research. This process ensures that the work programme can be shaped to reflect enduring and emerging policy concerns. For some projects, CHE have been able to secure additional funding, enabling the University to extend or deepen the analyses of the research topic. NIHR also funds other projects, as mentioned below.
• Hospital Episode Statistics (HES)
The University of York request both the pseudo-consultant code (not sensitive) and the underlying clear text consultant code (sensitive) to minimise the amount of sensitive data used by researchers across different projects. Some research projects will analyse variation in case-mix adjusted hospital inpatient activity and their related outcomes at the consultant level. For these projects, it is necessary to assign activity to consultants but it is not necessary to identify who they are. The pseudo-consultant code is therefore sufficient for these projects. Other research projects, such as the European Training Network “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Sklodowska-Curie Innovative Training Network, will need access to the sensitive consultant code field to link to it other publicly available data on consultants, such as the General Medical Council (GMC) medical register (https://www.gmc-uk.org/registration-and-licensing/the-medical-register). The GMC medical register provides details on, for example, the type of registration held by a doctor and the date at which they completed their primary medical qualification. This linkage is achieved through the clear text consultant code field, which corresponds to doctors’ GMC numbers. The pseudo-consultant code is insufficient for these projects. The sensitive consultant code and the non-sensitive pseudo-consultant code will be stored as two separate files and stored in two separate folders. The files can be linked to the HES APD dataset through the epikey variable. Access to these files will be managed on a researcher and project-by-project basis. In this way, the University of York will ensure that no researcher has access to both data fields at the same time for the same project, thereby eliminating the risk of back-engineering.
• Emergency Care Data (ECDS)
The university hold a variety of NHS Digital Mental Health data sets, comprising of historic versions and newer replacements.
• Civil Registration Data
• Patient Reported Outcome Measures (PROMS)
Following use of the data under any of the projects, only aggregated results with small numbers suppressed will be published and disseminated.
The following projects are conducted by the Centre for Health Economics under PRU:
Project 1 - Measurement of efficiency, effectiveness, and productivity in the delivery of health care system nationally, sub-nationally and among hospitals.
Project 2 - Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity.
Project 3 - Evaluation of the impacts of health care policy, organisation, finance and delivery of NHS services and quantification of differences in health care utilisation, expenditure, morbidity and mortality over time, across geographic regions, health providers, and among different patient groups.
Project 4 - Investigation of inequalities in access, outcomes, and costs of health services in England.
Project 5 - Evaluation of the interface between the different sectors of the health care system, including the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long term care, social care and secondary care utilisation.
Most of these projects are funded, at least in part, by the National Institute for Health Research (NIHR), via a major programme of work funded as a Policy Research Unit (PRU) in the Economics of Health and Social Care Systems (http://eshcru.ac.uk/). This programme was re-awarded for a further five years starting from January 2019. The aim of the PRU is to inform and guide policy-making in the health and social care sectors by undertaking high quality, robust and policy-relevant research, based on the discipline of economics, thereby helping to improve the health and well-being of the population, reflecting distributional concerns and population diversity. A detailed work programme for the next phase of programme funding is developed in advance in collaboration with both a Department of Health and Social Care (DHSC) Stakeholder Group and the PRU’s Advisory Group, meetings being held with each Group every six months.
The University of York is the sole Data Controller for data held under this Agreement to be processed for the purposes outlined in this section.
The University of York (CHE) has considered the legal basis for processing data under General Data Protection Regulation (GDPR) in respect of the projects covered in this agreement. CHE processes data under the following legal bases:
Article 6(1) of the GDPR (lawfulness of processing), the reference in point (e) to processing necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller.
Article 9(2)(j)
(processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject)
The research undertaken using NHS Digital data informs health and care policy and practice by identifying the effectiveness, efficiency, distribution, and quality of a wide range of services provided to the population. It produces insights that allow the maximisation of health gain from limited healthcare budgets, along with information on how health and health care is/can be distributed equally to meet the health needs of varying demographics. NHS Digital data provides a view of health care utilisation for CHE to understand how effective delivery of care is distributed both nationally and locally, contributing to the delivery of new healthcare policy aimed at improving the quality of care.
Approximately 20% of funding is reserved for the PRU to respond to short-term responsive requests for research. This process ensures that the work programme can be shaped to reflect enduring and emerging policy concerns. For some projects, CHE have been able to secure additional funding, enabling the University to extend or deepen the analyses of the research topic. NIHR also funds other projects, as mentioned below.
The University of York process both the pseudo-consultant code (not sensitive) and the underlying clear text consultant code (sensitive) to minimise the amount of sensitive data used by researchers across different projects. Some research projects will analyse variation in case-mix adjusted hospital inpatient activity and their related outcomes at the consultant level. For these projects, it is necessary to assign activity to consultants but it is not necessary to identify who they are. The pseudo-consultant code is therefore sufficient for these projects. Other research projects, such as the European Training Network “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Sklodowska-Curie Innovative Training Network, will need access to the sensitive consultant code field to link to it other publicly available data on consultants, such as the General Medical Council (GMC) medical register (https://www.gmc-uk.org/registration-and-licensing/the-medical-register). The GMC medical register provides details on, for example, the type of registration held by a doctor and the date at which they completed their primary medical qualification. This linkage is achieved through the clear text consultant code field, which corresponds to doctors’ GMC numbers. The pseudo-consultant code is insufficient for these projects. The sensitive consultant code and the non-sensitive pseudo-consultant code will be stored as two separate files and stored in two separate folders. The files can be linked to the HES APD dataset through the epikey variable. Access to these files will be managed on a researcher and project-by-project basis. In this way, the University of York will ensure that no researcher has access to both data fields at the same time for the same project, thereby eliminating the risk of back-engineering.
The University will not publish any information at identifiable consultant level under any of the work projects described in this agreement.
The University holds a variety of NHS Digital Mental Health data sets, comprising of historic versions and newer replacements.
[1 paragraph unchanged]
CHE confirms that the data under this
application
Agreement
would only be used for the five projects listed, and any additional
[25 words unchanged]
to access the data relating to that project, as identified within this
application.
Agreement.
Access is granted for each project only to the named individuals associated
[9 words unchanged]
is password controlled (with a password reset required on a regular refresh).
[5 paragraphs unchanged]
This project will use only the following
data:
data supplied under this Agreement:
HES APC
1998/99-2017/18;
1998/99-2020/21
A&E 2007/08 - 2017/18; Critical Care 2011/12 –
2017/18;
2020/21;
Outpatient
2011/12-2017/18;
2011/12-2020/21;
PROMs 2009/10
–2020/21; Civil Registration (Mortality) data 1998/99 - 2020/21; Emergency Care Dataset (ECDS) 2017/18
–
2017/18;
2020/21;
The Civil Registration (Moratlity) data from 1998/99-2017/18 are needed to:
Project 1 will only process data provided through Annual dissemination for the datasets listed above.
measure and compare the quality of care between healthcare providers, other healthcare organisation, regions and other geographical areas, where quality is defined as risk of mortality following treatment. The University of York will relate this variation to individual health policies or economic incentives to study the behaviour of healthcare providers and/or purchasers of care. The University of York will also relate this variation to socio-economic characteristics of the population served by public healthcare services to study inequalities in the quality of care received.
Data has been assessed and minimised to only utilise the required data from that disseminated under this Agreement for this project and cannot be minimised further.
[11 paragraphs unchanged]
The project will use only the following data: HES APC 1989/90
- 2017/18,
– 2020/21
Sensitive field: Consultant Code; HES Outpatient 2002/03
- 2017/18;
– 2020/21;
PROMs 2009/10 –
2017/18;
2020/21;
Civil Registration (Deaths)
1998/99-2017/18.
1998/99 - 2020/21.
Project 2 will utilise both Annual and Monthly disseminations of the datasets indicated above.
[10 paragraphs unchanged]
The project will use only the following data: HES APC 1998/99 –
2017/18;
2020/21;
A&E 2007/08 – 2017/18; Outpatient 2002/03 –
2017/18;
2020/21;
PROMs 2009/10 –
2017/18;
2020/21; Emergency Care Dataset 2017/18 – 2020/21;
MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS
2016/17-2017/18;
2016/17-2020/21;
Civil Registration (Deaths)
1998/99-2017/18;
1998/99-2020/21;
HES APC Sensitive Psychiatric Fields: Detention category (DETNCAT), Legal group of patient (psychiatric) (LEGALGPC), Legal status classification (LEGLSTAT).
Project 3 will utilise both Annual and Monthly disseminations of the datasets listed above.
[9 paragraphs unchanged]
The project will use only the following data: HES APC 1989/90 –
2017/18;
2020/21;
A&E 2007/08 – 2017/18; Outpatient 2002/03 –
2017/18;
2020/21;
Critical Care 2011/12 –
2017/18;
2020/21;
PROMs 2009/10 –
2017/18;
2020/21;
Civil Registration (Deaths)
1998/99-2017/18.
1998/99-2020/21; Emergency Care Dataset 2017/18 – 2020/21.
Project 4 will utilise both Annual and Monthly disseminations of the datasets listed above.
[1 paragraph unchanged]
The following is a separately funded piece of research work which fits within the scope of project 4:
Funder:
• NIHR Policy Research Programme (grant number PR-X06-1014-22005), Partnership for Responsive Policy Analysis and Research (PREPARE), a collaboration between the University of York and the King's Fund.
Though PREPARE is a collaboration between the University of York and the King’s Fund, the King’s Fund has no involvement in this research project. The research request was considered by the co-leads in the University of York and the King’s Fund who agreed that the University of York would carry out the research. The lead within the University of York has been solely responsible for all decisions on how this research will be carried out including all decisions in respect of what data processing is required.
Description of additional use of data:
This area of the project will explore the links between child health and child poverty, in particular the NHS hospital utilisation of children born into deprivation (using the indices of deprivation (ID) as a proxy for poverty) in comparison with children who are not born in deprived areas. The study will also explore whether any difference in hospital utilisation over the early life course has changed over time. To do this the project will create a birth cohort of children born in NHS hospitals in England in specific financial year (2000, 2005, 2010, 2015, 2018), and track their use of NHS services (inpatient, outpatient and A&E) over their life course (up to age 18 for those born in 2000). The analysts will then test whether the age-sex adjusted differential use of hospital services across children born into rich and poor neighbourhoods has changed over time.
The work will use the following data:
HES APC 2000/01 – 2020/21; HES A&E 2007/08 - 2018/19; HES OP 2002/03 – 2020/21; Emergency Care Dataset 2017/18 – 2020/21.
The work will utilise both Annual and Monthly disseminations of the datasets listed above.
Linkages:
There is a need to link the HES APC data to Index of Multiple Deprivation (IMD) via the child’s Lower Super Output Area (LSOA) of residence. An older version of the IMD (2004) is already included in HES but the study will have to link to subsequent versions of the ID.
This Agreement permits the use of the data for this research but does not permit the use of the data for other research projects funded by PREPARE. Use of the data for any other projects funded by PREPARE would require a formal amendment to this Data Sharing Agreement.
[4 paragraphs unchanged]
The project will use only the following data: HES APC 1989/90–
2017/18;
2020/21;
A&E 2007/08 – 2017/18;
Emergency Care Dataset 2017/18 – 2020/21;
MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17 - 2017/18; Outpatient 2002/03 –
2017/18;
2020/21;
Critical Care 2011/12 –
2017/18,
2020/21,
PROMs 2009/10 –
2017/18;
2020/21;
Civil Registration (Deaths)
1998/99-2017/18.
1998/99-2020/21.
Project 5 will utilise both Annual and Monthly disseminations of the datasets listed above.
[1 paragraph unchanged]
Processing activities
[2 paragraphs unchanged]
The processing and one of the storage locations is currently the ADACX Server, ARRC Building A/RC/00, University of York, York, YO10 5DD, England, however, we will be moving during the DSA to a new processing location at the Data Safe Haven - IT Services, University of York, YO10 5DD, England.
[1 paragraph unchanged]
Data linkage: CHE will run the data through the
HRG
Healthcare Resource Group (HRG)
grouper and attach Reference Cost data using HRG codes and will link HES APC with MHMDS/MHLDS/MHSDS using the bridging file. The data will then be linked:
[6 paragraphs unchanged]
2) patient diagnostic information such as diagnoses (co-morbidities), Charlson score, psychiatric history, HRG or
PbR
Payments by Results (PbR)
care cluster;
[1 paragraph unchanged]
4) quality and outcomes such as PROMs, 30-day survival,
HoNOS
Health of the Nation Outcome Scales (HoNOS)
scores, waiting times, readmissions, and social outcomes such as employment and accommodation status;
[12 paragraphs unchanged]
All organisations party to this
agreement
Agreement
must comply with the Data Sharing Framework Contract requirements, including those regarding
[5 words unchanged]
that use) by “Personnel” (as defined within the Data Sharing Framework Contract
ie:
i.e.:
employees, agents and contractors of the Data Recipient who may have access to that data).
Expected output
The outputs from all of the projects will include peer reviewed papers in academic journals, reports for funders, lay summaries such as newsletters and blogs, and conference and seminar presentations to academic, policy, professional and public audiences.
The Centre for Health Economics has a long-established track record in
the
delivery of policy research that utilises HES data, as recognized by the
[14 words unchanged]
the above projects that have employed the HES data can be found
here http://eshcru.ac.uk/publications/index.htm and http://www.york.ac.uk/che/publications/in-house/.
at the links below:
Reports will be produced containing aggregate results that show trends over time, differences across providers, commissioners, geographical areas and by patient subgroups and patient characteristics. The results will contain estimated correlations showing associations between patient outcomes and patient characteristics, hospital, institutional, geographic and environmental factors. Statistical results will be presented in interactive spreadsheets or “Dashboards” (e.g. similar to http://health-inequalities.blogspot.co.uk/ which uses QOF data and only contains aggregated data which can be interrogated), tables and maps of aggregate statistics summarising patient characteristics.
https://eshcru.com/publications/
Publications produced in 2017 by project are listed below.
http://www.york.ac.uk/che/publications/in-house/ https://www.york.ac.uk/che/publications/all/
Project 1:
The outputs from all of the projects will include
Aragón M.J., Castelli A., Gaughan J., Hospital Trusts productivity in the English NHS: Uncovering possible drivers of productivity variations, PLoS ONE 12(8): e0182253, 2017, https://doi.org/10.1371/journal.pone.0182253
• Reports and slide decks to funding bodies;
Bojke, C, Castelli, A, Grasic, K, Howdon, DDH, Street, AD & Rodriguez Santana, IDLN 2017 'Productivity of the English NHS: 2014/15 Update' CHE Research Paper, no. 146, Centre for Health Economics, University of York, York, UK, pp. 1-81.
• peer reviewed papers in academic journals;
Project 2:
• lay summaries such as newsletters and blogs;
Duarte, A. I., Bojke, C., Cayton, W., Salawu, A., Case, B., Bojke, L. & Richardson, G. A. (2017) Impact of specialist rehabilitation services on hospital length of stay and associated costs, The European Journal of Health Economics https://doi.org/10.1007/s10198-017-0952-0French E, McCauley J, Aragon J, Bakx P,
• conference and seminar presentations to a variety of audiences, such as academic, policy, professional and public audiences.
Chalkley M, Chen S, Christensen BJ, Huang H, Cote-Sergent A, De Nardi M, Echevin D, Fan E, Geoffard G, Gastaldi-Menager C, Gortz M, Ibuka Y, Izumida N, Jones JB, Kallestrup-Lamb M, Karisson M, Klein T, de Lagasnerie G, Michaud P, O’Donnell O, Ohtsu Y, Rice N, Skinner J, van Doorslaer E, Ziebarth NR, Kelly E. End-of-Life Medical Spending in Last Twelve Months of Life is Lower Than Previously Reported. Health Affairs 2017;36(7):1211-1217.
Reports will be produced containing aggregate results that show trends over time, differences across providers, commissioners, geographical areas and by patient subgroups and patient characteristics. The results will contain estimated correlations showing associations between patient outcomes and patient characteristics, hospital, institutional, geographic and environmental factors. Statistical results will be presented in interactive spreadsheets or “Dashboards” (e.g. similar to http://health-inequalities.blogspot.co.uk/ which uses QOF data and only contains aggregated data which can be interrogated), tables and maps of aggregate statistics summarising patient characteristics
Howdon D, Rice N. Health care expenditures, age, proximity to death and morbidity: implications for an ageing population. Journal of Health Economics, In press (accepted 31 October 2017).
All outputs will contain only data that are aggregated with small numbers suppressed in line with the HES Analysis Guide.
Chalkley M, McCormick B, Anderson R, Aragon MJ, Nessa N, Nicodemo C, et al. Elective hospital admissions: secondary data analysis and modelling with an emphasis on policies to moderate growth. Health Serv Deliv Res 2017;5(7), https://www.journalslibrary.nihr.ac.uk/hsdr/hsdr05070/#/abstract, 2017.
The dissemination and communication strategy will vary between projects and will have been previously agreed with the funders. It would normally include the oral presentations; interim and final reports; and published reports and journal articles. Examples are provided below:
(accepted for publication) Aragon MJ, Chalkley M, How do time trends in in-hospital mortality compare? A retrospective study of England and Scotland over 17 years using administrative data, BMJ Open
Oral presentations / knowledge exchange
Patton, T., Gutacker, N. & Shah, K. 2016. Putting the P back into PROMs - using patient valuations of EQ-5D health states to improve hospital performance comparisons. Health and Quality of Life Outcomes, 15(Suppl 1):185.
• Presentation of interim and emerging findings to study advisory groups and/or steering committees. Members - who typically include policy makers, clinicians, academics and public contributors - provide feedback and advice.
Project 3:
• Interactive workshops with policy analysts from DHSC and NHSE/I to discuss emerging findings and ensure policy relevance
Reichert, A. & Jacobs, R. (2017) Socioeconomic inequalities in duration of untreated psychosis: Evidence from administrative data in England, Psychological Medicine, doi: https://doi.org/10.1017/S0033291717002197.
• Presentations to CCGs, NHS trusts, and PPI groups
Moran, V. & Jacobs, R. (2017) Investigating the relationship between costs and outcomes for English mental health providers: A bi-variate multi-level regression analysis, The European Journal of Health Economics, doi: 10.1007/s10198-017-0915-5.
• Open lectures and invited talks at Universities/Research Centres both in the UK and abroad
Moran, V. & Jacobs, R. (2017) Costs and performance of English mental health providers, The Journal of Mental Health Policy and Economics, 20: 83-94.
• Oral or poster presentations at national and international conferences, such as Health Economists’ Study Group, iHEA, and EuHEA. Delegates may include international organisations such as The World Bank, OECD and WHO, alongside members of the international academic community.
Longo, F., Siciliani, L., Gravelle, H., Santos, R. Do hospitals respond to rivals’ quality and efficiency? A spatial panel econometric analysis. Health Economics. 2017; 26(S2) 38-62. DOI:10.1002/hec.356. See also CHE Research Paper 144
• End of project workshops or conferences to present research findings to key stakeholders and policy makers
Dusheiko, M., Gravelle, H. Choosing and booking – and attending? Impact of an electronic booking system on outpatient referrals and non-attendances. Health Economics. DOI:10.1002/hec.3552. 2017.
Unpublished reports
Gaughan, J., Gravelle, H., Santos, R., Siciliani, L. Long term care provision, hospital length of stay and discharge destination for hip fracture and stroke patients. International Journal of Health Economics and Management. 2017. DOI 10.1007/s10754-017-9214-z
• Draft reports with preliminary findings to advisory groups
Gaughan, J., Gravelle, H., Siciliani, L. Delayed discharges and hospital type: evidence from the English NHS. Fiscal Studies. 2017; 38, 5, 495-519. See also CHE Research Paper 133.
• Interim reports for funders and policy analysts
Moscelli, G., Gravelle, H., Siciliani, L. The effect of hospital ownership on quality of care: evidence from England. CHE Research Paper 145.
• Draft final reports for funders. These are usually peer reviewed externally by academics and internally by policy analysts
Project 4:
Publications
Cookson, R, Mondor, L, Asaria, M, Kringos, DS, Klazinga, NS & Wodchis, WP 2017, 'Primary care and health inequality: Difference-in-difference study comparing England and Ontario' PloS One, 12(11), e0188560. https://doi.org/10.1371/journal.pone.0188560
• Published reports containing full, detailed findings, with an accompanying lay summary to make key messages more accessible.
Moscelli, G., Siciliani, L., Gutacker, N., & Cookson, R. (2017). Socioeconomic inequality of access to healthcare: Does choice explain the gradient? Journal of Health Economics. doi: https://doi.org/10.1016/j.jhealeco.2017.06.005
• Press releases to accompany the publications of reports (full or short), via the University of York Press Office as well as through the CHE website and social media platforms, as well as funders own Press Release Offices and social media platforms;
Barratt, H., M. Asaria, J. Sheringham, P. Stone, R. Raine and R. Cookson (2017). "Dying in hospital: socioeconomic inequality trends in England." Journal of Health Services Research & Policy: 1-6 10.1177/1355819616686807
• Peer reviewed scientific papers in academic and policy journals
Sheringham, J., Asaria, M., Barratt, H., Raine, R., & Cookson, R. (2017). Are some areas more equal than others? Socioeconomic inequality in potentially avoidable emergency hospital admissions within English local authority areas. Journal of Health Services Research & Policy. Vol. 22(2) 83–90. http://journals.sagepub.com/doi/abs/10.1177/1355819616679198
• Short articles in CHE annual reports and CHE newsletters
Project 5:
Target dates for outputs
Gutacker N, Street AD. Multidimensional Performance Assessment of Public Sector Organisations Using Dominance Criteria. Health Economics,2017. doi: 10.1002/hec.3554.
The outputs from each project will be delivered in accordance with CHE’s funding contracts, which run to different timelines with various milestones for each. Below are examples of key milestones and timelines for some of the projects undertaken.
Gutacker, N. & Street, A. 2017. Use of large-scale HRQoL datasets to generate individualised predictions and inform patients about the likely benefit of surgery, Quality of Life Research, 26(9): 2497-2505.
The outputs from each project will be delivered in accordance with CHE’s funding agreements, which run to different timelines with various milestones for each. The key milestones and timelines for each project are:
[1 paragraph unchanged]
In addition to the annual update of national figures, CHE also undertakes analyses of variation in hospital productivity and produces short
reports
reports, memorandum
or
memorandum
slide decks
for the DHSC to address specific questions about NHS productivity. CHE presents
[12 words unchanged]
professions and the general public through seminars, conference presentations and media appearances.
Project 2 - This project will produce a range of outputs, including reports to support policy decisions and peer reviewed publications. Where appropriate, analysis will also be disseminated to national and local decision makers at formal and informal meetings, including strategic commissioning groups.
Project 3 – Policy makers need timely evidence on the impact of health care policies. These policies concern both the supply side of health care - the organisation, finance and delivery of services - and the demand side, such as utilisation, morbidity and mortality. Under this project, analyses may investigate variations over time and/or across geographic regions, providers, or patient groups. Empirical research frequently relies on analyses of HES. Outputs include open access reports and scientific papers in academic journals. Interim and final reports are submitted to funders as part of our contractual requirements. Emerging findings are presented and discussed at regular advisory and stakeholder group meetings, as well as at invited seminars and workshops. Examples of forthcoming outputs include
In 2018/19 CHE will submit the results of the commissioning care hubs research to a peer reviewed journal.
- Siciliani et al. Paying for health benefits using PROMs data, CHE Research Paper: November 2020
Project 3 - During 2018/19, CHE will produce several papers on mental health funding and mental health waiting times; papers on quality of small hospitals, effects on patients of hospital closure, competition and quality in general practice, the effect of competition on hospital waiting times, and waiting time inequalities across and within hospitals.
- Gutacker et al, Evaluating the intended and unintended consequences of best practice tariffs on patient health outcomes and provider behaviour. Report to DHSC. October 2020.
Project 4 - During 2018/19, CHE expect to carry out extensive analyses with a report, co authored with NHS England Equality and Health Inequalities Team, on ‘Why some areas do better than others at reducing health inequalities’, to come out later in the year and further outputs to follow in 2019. Preparatory work for the Wellcome Trust project will be conducted for quasi-experimental evaluations of policy impacts on health equity, with published outputs not expected until 2019.
- Rice et al, Characterising end-of-life hospital expenditure. Oral presentation to the DHSC Oversight Group (steering committee) October 2020.
Project 5 - By early 2019, CHE will publish journal articles and working papers, and produce a number of final project reports for the DHSC.
Project 5 – The focus of this project is the evaluation of the interface between the different sectors of the health care system, such as the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long-term care, social care and secondary care utilisation. Published outputs from this project include open access reports and scientific papers in academic journals. Interim and final reports to funders will be provided in line with contractual requirements. Emerging findings will be presented at conferences, advisory and stakeholder group meetings, or at DHSC workshops or seminars. This ongoing engagement helps ensure the work remains policy relevant. An example is a departmental working paper examining the effects of changes in social care funding on health care utilisation (Pace et al. Understanding the interdependencies between health and social care resources and arrangements. CHE Research Paper, December 2020). Early findings from this work were shared with NHSE (May 2018), discussed with DHSC (March 2019), with further analyses undertaken in response to their questions about the impact of the Better Care Fund. The report was revised following written comments from the Department (May 2019), and is currently under review with a health economics journal.
Further updates on outputs are set out below;
Targets dates and deliverables met
Project 1:
Project 1: The NHS spends over £120 billion a year and the budget provided for the NHS is influenced by the evidence on how well the money is spent. The annual estimates of productivity that we produce for the Department of Health and Social Care are a key part of their negotiations with the Treasury about the size of the budget and the research is cited in exchanges with ministers and government committees that scrutinise NHS spending. In particular, the quality adjustment method devised by York is important in ensuring that productivity is not under-stated which may have a negative impact on the size of budget settlements and hence lead to lower investment in the NHS. The most recent update to the NHS productivity measure https://www.york.ac.uk/media/che/documents/papers/researchpapers/CHERP171_NHS_productivity_update2017_18.pdf) shows a steady positive increase and that NHS productivity has increased substantially faster than the overall economy.
Aragón M.J., Castelli A., Gaughan J., Hospital Trusts productivity in the English NHS: Uncovering possible drivers of productivity variations, PLoS ONE 12(8): e0182253, 2017, https://doi.org/10.1371/journal.pone.0182253
The methods developed by the York research team have also caught interests of Governments and health ministries in other parts of the world (eg Japan, Italy, Malaysia, Sweden), which have resulted in a number of workshop and collaborative work.
Bojke, C, Castelli, A, Grasic, K, Howdon, DDH, Street, AD & Rodriguez Santana, IDLN 2017 'Productivity of the English NHS: 2014/15 Update' CHE Research Paper, no. 146, Centre for Health Economics, University of York, York, UK, pp. 1-81.
Project 2: Examples of outputs produced from this project include journal articles on the determinants of health care expenditure. For example, an article by Howdon and Rice (Health care expenditures, age, proximity to death and morbidity: Implications for an ageing population, 2017, https://doi.org/10.1016/j.jhealeco.2017.11.001) investigates the implications of an ageing population on health care expenditure, showing that the latter is primarily determined by proximity to death, rather than age. Chalkley et al. (Elective hospital admissions: secondary data analysis and modelling with an emphasis on policies to moderate growth, 2017, https://doi.org/10.3310/hsdr05070) investigating growth in elective hospital admissions in England find that these are mainly due to increases in both demand for and supply of hospital care, with health system reforms and ageing population less important.
Project 2:
Project 3: Outputs from this project include journal articles on payment systems, providing evidence on intended and unintended impacts for policy makers designing new approaches to paying for care. For example, one study examined the effects of two incentive schemes in primary care that aimed to tackle underdiagnosis in dementia, with HES data used to control for a parallel hospital scheme. The schemes were effective in increasing dementia diagnoses (Mason, et al 2018, Investigating the impact of primary care payments on underdiagnosis in dementia: a difference-in-differences analysis, IJGP. https://doi.org/10.1002/gps.4897). However, patient satisfaction was lower in practices that achieved higher rates of dementia diagnoses (Liu, et al 2019, Incentive schemes to increase dementia diagnoses in primary care in England: a retrospective cohort study of unintended consequences. BJGP https://doi.org/10.3399/bjgp19X701513).
Duarte, A. I., Bojke, C., Cayton, W., Salawu, A., Case, B., Bojke, L. & Richardson, G. A. (2017) Impact of specialist rehabilitation services on hospital length of stay and associated costs, The European Journal of Health Economics https://doi.org/10.1007/s10198-017-0952-0French E, McCauley J, Aragon J, Bakx P,
Project 4: Access to health services in England is generally lower for disadvantaged groups. This is a key policy concern because in the NHS access is ideally based on need. One study that used HES data to investigate inequalities in access to health services in England is by Moscelli, et al 2017 (Socioeconomic Inequality of Access to Healthcare: Does Choice Explain the Gradient? JHE https://doi.org/10.1016/j.jhealeco.2017.06.005). The authors investigated the extent of waiting time inequalities for elective coronary revascularisation procedures by socioeconomic status within hospitals. Using sophisticated statistical techniques, they showed that patients from the most deprived areas waited around one-third longer than the least deprived groups. Inequalities were not primarily due to differences across patients in exercising patient choice of hospital or procedure, suggesting that waiting lists may require more proactive and robust management.
Chalkley M, Chen S, Christensen BJ, Huang H, Cote-Sergent A, De Nardi M, Echevin D, Fan E, Geoffard G, Gastaldi-Menager C, Gortz M, Ibuka Y, Izumida N, Jones JB, Kallestrup-Lamb M, Karisson M, Klein T, de Lagasnerie G, Michaud P, O’Donnell O, Ohtsu Y, Rice N, Skinner J, van Doorslaer E, Ziebarth NR, Kelly E. End-of-Life Medical Spending in Last Twelve Months of Life is Lower Than Previously Reported. Health Affairs 2017;36(7):1211-1217.
Project 5: An example of an output from this project examined drivers of long waits in Emergency departments (EDs). EDs are seen as a ‘barometer’ of the NHS, acting as a safety net when other services are unavailable. Delays in receiving urgent treatment are a major policy concern, and may be due to factors within the hospital or to external factors such as the availability of social care. An analysis of HES A&E data identified factors driving long waits, but also highlighted much unexplained variation across providers. At the time of publication, the policy on tackling long waits was under review and the four-hour wait target operational during the study has now been dropped. However, the finding that bed occupancy levels and the age profile of attendees are independently associated with long waits remains relevant. Policy interest is evidenced by two invitations from NHS England to discuss findings (July 2017, Jan 2020). The work was presented at academic conferences (HESG (Aberdeen) 2017, International Health Congress (Oxford) 2018) and published in the CHE newsletter (March 2020) and an academic journal (Gaughan et al. Why are there long waits at English emergency departments? EJHE 21, 209–218 (2020). https://doi.org/10.1007/s10198-019-01121-7).
Howdon D, Rice N. Health care expenditures, age, proximity to death and morbidity: implications for an ageing population. Journal of Health Economics, In press (accepted 31 October 2017).
The DSA includes as funders the European Commission, European Training Network. “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Skłodowska-Curie Innovative Training Networks, which funds two PhD research projects. The outputs for this specific project is the compilation and publication of a doctorate thesis and related research articles to be published in international research journal. Both PhD research projects are nearing completion by the end of 2020, but with access to NHS Digital data required to prepare research articles and respond to potential comments/revision requests from journal reviewers.
Chalkley M, McCormick B, Anderson R, Aragon MJ, Nessa N, Nicodemo C, et al. Elective hospital admissions: secondary data analysis and modelling with an emphasis on policies to moderate growth. Health Serv Deliv Res 2017;5(7), https://www.journalslibrary.nihr.ac.uk/hsdr/hsdr05070/#/abstract, 2017.
(accepted for publication) Aragon MJ, Chalkley M, How do time trends in in-hospital mortality compare? A retrospective study of England and Scotland over 17 years using administrative data, BMJ Open
Patton, T., Gutacker, N. & Shah, K. 2016. Putting the P back into PROMs - using patient valuations of EQ-5D health states to improve hospital performance comparisons. Health and Quality of Life Outcomes, 15(Suppl 1):185.
Project 3:
Reichert, A. & Jacobs, R. (2017) Socioeconomic inequalities in duration of untreated psychosis: Evidence from administrative data in England, Psychological Medicine, doi: https://doi.org/10.1017/S0033291717002197.
Moran, V. & Jacobs, R. (2017) Investigating the relationship between costs and outcomes for English mental health providers: A bi-variate multi-level regression analysis, The European Journal of Health Economics, doi: 10.1007/s10198-017-0915-5.
Moran, V. & Jacobs, R. (2017) Costs and performance of English mental health providers, The Journal of Mental Health Policy and Economics, 20: 83-94.
Longo, F., Siciliani, L., Gravelle, H., Santos, R. Do hospitals respond to rivals’ quality and efficiency? A spatial panel econometric analysis. Health Economics. 2017; 26(S2) 38-62. DOI:10.1002/hec.356. See also CHE Research Paper 144
Dusheiko, M., Gravelle, H. Choosing and booking – and attending? Impact of an electronic booking system on outpatient referrals and non-attendances. Health Economics. DOI:10.1002/hec.3552. 2017.
Gaughan, J., Gravelle, H., Santos, R., Siciliani, L. Long term care provision, hospital length of stay and discharge destination for hip fracture and stroke patients. International Journal of Health Economics and Management. 2017. DOI 10.1007/s10754-017-9214-z
Gaughan, J., Gravelle, H., Siciliani, L. Delayed discharges and hospital type: evidence from the English NHS. Fiscal Studies. 2017; 38, 5, 495-519. See also CHE Research Paper 133.
Moscelli, G., Gravelle, H., Siciliani, L. The effect of hospital ownership on quality of care: evidence from England. CHE Research Paper 145.
Project 4:
Cookson, R, Mondor, L, Asaria, M, Kringos, DS, Klazinga, NS & Wodchis, WP 2017, 'Primary care and health inequality: Difference-in-difference study comparing England and Ontario' PloS One, 12(11), e0188560. https://doi.org/10.1371/journal.pone.0188560
Moscelli, G., Siciliani, L., Gutacker, N., & Cookson, R. (2017). Socioeconomic inequality of access to healthcare: Does choice explain the gradient? Journal of Health Economics. doi: https://doi.org/10.1016/j.jhealeco.2017.06.005
Barratt, H., M. Asaria, J. Sheringham, P. Stone, R. Raine and R. Cookson (2017). "Dying in hospital: socioeconomic inequality trends in England." Journal of Health Services Research & Policy: 1-6 10.1177/1355819616686807
Sheringham, J., Asaria, M., Barratt, H., Raine, R., & Cookson, R. (2017). Are some areas more equal than others? Socioeconomic inequality in potentially avoidable emergency hospital admissions within English local authority areas. Journal of Health Services Research & Policy. Vol. 22(2) 83–90. http://journals.sagepub.com/doi/abs/10.1177/1355819616679198
Project 5:
Gutacker N, Street AD. Multidimensional Performance Assessment of Public Sector Organisations Using Dominance Criteria. Health Economics,2017. doi: 10.1002/hec.3554.
Gutacker, N. & Street, A. 2017. Use of large-scale HRQoL datasets to generate individualised predictions and inform patients about the likely benefit of surgery, Quality of Life Research, 26(9): 2497-2505.
Presentations given in 2017 by project:
Project 1
Presentation: Thinking about Selection and Productivity, DREAMS Workshop, University of York, December 2017 by Castelli A.
Project 2
Presentation: The role of EQ-5D value sets based on patient preferences in the context of hospital choice in the national PROM programme in England. 34rd EuroQol Group Scientific Plenary, Barcelona, Germany, Sep 2017.
Presentation: Putting the P back in PROMs. PROMs Research Conference, Oxford, UK, July 2017.
Project 3
Presentation: Quality in primary care: is it possible to identify peer effects among English GP practices? (work with Hugh Gravelle and Nigel Rice), Health Economics seminar series, Manchester, 22nd May 2017; Second Spatial Econometrics Advanced Institute Alumni Reunion, Rome, 26th May 2017 and Centre of Expertise Healthwise, Faculty of Economics and Business, Groningen, 1st June 2017.
Project 5
Presentation: Gaughan, J, Grasic, K, Gutacker, N, Siciliani, L, & Street, AD. The effects of Best Practice Tariffs on the provision of elective and emergency day cases. Health Economists' Study Group, Birmingham. 4-6 January 2017.
Presentation: Liu, D, Kasteridis, P, Goddard, M, Jacobs, R, Wittenberg, R, & Mason, A. Mind the gap! The impact of incentives to reduce underdiagnosis in people with dementia. Health Economists' Study Group, Birmingham. 4-6 January 2017.
Presentation: Moscelli, G, Jacobs, R, Gutacker, N, Mason, A, Aragon, MJ, Chalkley, M & Boehnke, J. Clustering of mental health patients for payment: does the hospital matter? Evidence from English mental health providers. International Health Policy Conference. LSE, London, 16-19 February 2017.
Presentation: Gaughan J, Kasteridis P, Mason A, Street A. Waits in A&E Departments of the English NHS. Health Economists' Study Group, Aberdeen, 28-30 June 2017.
Expected measurable benefits
[12 paragraphs unchanged]
Expected benefits for amendment to project 4 2020:
Child poverty is associated with a wide range of negative health impacts. Current projections suggest that child poverty rates will rise over the next few years, and this may have knock-on effects on use of health services which should be incorporated into government decision making. This project will inform developing policy on welfare reform and inequalities in healthcare access and outcomes, helping the NHS address its Public Sector duty under the Health and Social Care Act 2012 to reduce health inequalities
[1 paragraph unchanged]
A core performance target for the English NHS is that at least
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effective. The work provides confirmatory evidence that delayed transfers of care have
spillover
spill over
effects on the duration of attendance at A&E, underscoring the need to
[20 words unchanged]
inform workforce planning so that staff-patient ratios are kept at safe levels.
[1 paragraph unchanged]
Unchanged: Benefits reported.
Objective for processing
The Centre for Health Economics (CHE), based at University of York, requires access to pseudonymised data to support a number of projects conducted under the Policy Research Unit (PRU) in the Economics of Health and Social Care Systems. For each of the projects described below, CHE staff analyse pseudonymised, record level data from the various datasets including:
• Hospital Episode Statistics (HES)
• Emergency Care Data (ECDS)
• Civil Registration Data
• Patient Reported Outcome Measures (PROMS)
Following use of the data under any of the projects, only aggregated results with small numbers suppressed will be published and disseminated.
The following projects are conducted by the Centre for Health Economics under PRU:
Project 1 - Measurement of efficiency, effectiveness, and productivity in the delivery of health care system nationally, sub-nationally and among hospitals.
Project 2 - Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity.
Project 3 - Evaluation of the impacts of health care policy, organisation, finance and delivery of NHS services and quantification of differences in health care utilisation, expenditure, morbidity and mortality over time, across geographic regions, health providers, and among different patient groups.
Project 4 - Investigation of inequalities in access, outcomes, and costs of health services in England.
Project 5 - Evaluation of the interface between the different sectors of the health care system, including the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long term care, social care and secondary care utilisation.
Most of these projects are funded, at least in part, by the National Institute for Health Research (NIHR), via a major programme of work funded as a Policy Research Unit (PRU) in the Economics of Health and Social Care Systems (http://eshcru.ac.uk/). This programme was re-awarded for a further five years starting from January 2019. The aim of the PRU is to inform and guide policy-making in the health and social care sectors by undertaking high quality, robust and policy-relevant research, based on the discipline of economics, thereby helping to improve the health and well-being of the population, reflecting distributional concerns and population diversity. A detailed work programme for the next phase of programme funding is developed in advance in collaboration with both a Department of Health and Social Care (DHSC) Stakeholder Group and the PRU’s Advisory Group, meetings being held with each Group every six months.
The University of York is the sole Data Controller for data held under this Agreement to be processed for the purposes outlined in this section.
The University of York (CHE) has considered the legal basis for processing data under General Data Protection Regulation (GDPR) in respect of the projects covered in this agreement. CHE processes data under the following legal bases:
Article 6(1) of the GDPR (lawfulness of processing), the reference in point (e) to processing necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller.
Article 9(2)(j)
(processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject)
The research undertaken using NHS Digital data informs health and care policy and practice by identifying the effectiveness, efficiency, distribution, and quality of a wide range of services provided to the population. It produces insights that allow the maximisation of health gain from limited healthcare budgets, along with information on how health and health care is/can be distributed equally to meet the health needs of varying demographics. NHS Digital data provides a view of health care utilisation for CHE to understand how effective delivery of care is distributed both nationally and locally, contributing to the delivery of new healthcare policy aimed at improving the quality of care.
Approximately 20% of funding is reserved for the PRU to respond to short-term responsive requests for research. This process ensures that the work programme can be shaped to reflect enduring and emerging policy concerns. For some projects, CHE have been able to secure additional funding, enabling the University to extend or deepen the analyses of the research topic. NIHR also funds other projects, as mentioned below.
The University of York process both the pseudo-consultant code (not sensitive) and the underlying clear text consultant code (sensitive) to minimise the amount of sensitive data used by researchers across different projects. Some research projects will analyse variation in case-mix adjusted hospital inpatient activity and their related outcomes at the consultant level. For these projects, it is necessary to assign activity to consultants but it is not necessary to identify who they are. The pseudo-consultant code is therefore sufficient for these projects. Other research projects, such as the European Training Network “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Sklodowska-Curie Innovative Training Network, will need access to the sensitive consultant code field to link to it other publicly available data on consultants, such as the General Medical Council (GMC) medical register (https://www.gmc-uk.org/registration-and-licensing/the-medical-register). The GMC medical register provides details on, for example, the type of registration held by a doctor and the date at which they completed their primary medical qualification. This linkage is achieved through the clear text consultant code field, which corresponds to doctors’ GMC numbers. The pseudo-consultant code is insufficient for these projects. The sensitive consultant code and the non-sensitive pseudo-consultant code will be stored as two separate files and stored in two separate folders. The files can be linked to the HES APD dataset through the epikey variable. Access to these files will be managed on a researcher and project-by-project basis. In this way, the University of York will ensure that no researcher has access to both data fields at the same time for the same project, thereby eliminating the risk of back-engineering.
The University will not publish any information at identifiable consultant level under any of the work projects described in this agreement.
The University holds a variety of NHS Digital Mental Health data sets, comprising of historic versions and newer replacements.
All of the work involves analysing the data in different ways. For example, an analysis under project 1 may focus on particular specialities, comparison of productivity across hospitals, or may be a broader assessment of national productivity. Many of the statistical methods to be employed require longitudinal data to investigate how changes in patient outcomes (including morbidity, mortality, emergency re-admissions, length of stay, admissions for conditions that could be managed in primary care, inpatient admission rates after A&E attendance) are related to changes in policy (including payment policies and incentives), changes in market configurations, changes in organisational structure, and changes in patient characteristics. Pseudonymised patient level information is required to allow for the influence of past utilisation, for demographic factors, for socio-economic factors (e.g. deprivation) linked to the small area in which patients live, and patient distance from hospitals, social care providers, and general practices. It is also essential in investigating the equity implications of policies, market structure, and organisational arrangements. The Principal Investigators and Project Leads are responsible for determining what analyses will be undertaken and what data will be used for each analysis in support of the objectives agreed with the funding organisations.
CHE confirms that the data under this Agreement would only be used for the five projects listed, and any additional project (whether as part of the DHSC programme or otherwise) would require a separate approval. Equally individuals working on each project will only be permitted to access the data relating to that project, as identified within this Agreement. Access is granted for each project only to the named individuals associated with that project under authorised user names. Such access is password controlled (with a password reset required on a regular refresh).
The controls enable a single copy of the data to be held, reducing security risk associated with multiple copies being provided per project. This model is aligned with similar arrangements for other sizeable research institutions.
Project 1 - Measurement of efficiency, effectiveness and productivity in the delivery of health care system nationally, sub-nationally and among hospitals;
The purpose of this project is to produce information for the Department of Health and Social Care (DHSC) and Secretary of State for Health on efficiency, effectiveness and productivity. In the current economic climate it is particularly important that changes in efficiency and productivity can be identified and monitored. This helps ensure accountability to the public for how the annual NHS budget is spent and to identify opportunities for better use of resources devoted to the NHS. This project provides numerical answers and context for, among others, House of Commons Health Committee, the Public Accounts Committee, Public Expenditure Inquiries, and DHSC submissions in support of annual Spending Reviews. The work also contributes to the measurement of productivity of the health service in the national accounts, compiled by the Office of National Statistics.
Funder:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
This project will use only the following data supplied under this Agreement: HES APC 1998/99-2020/21 A&E 2007/08 - 2017/18; Critical Care 2011/12 – 2020/21; Outpatient 2011/12-2020/21; PROMs 2009/10 –2020/21; Civil Registration (Mortality) data 1998/99 - 2020/21; Emergency Care Dataset (ECDS) 2017/18 – 2020/21;
Project 1 will only process data provided through Annual dissemination for the datasets listed above.
Data has been assessed and minimised to only utilise the required data from that disseminated under this Agreement for this project and cannot be minimised further.
The University of York will estimate survival models that relate the timing of death (based on the exact date of death) for individual patients to the relevant unit of assessment (provider, region) after adjusting for relevant case-mix differences across the populations under study.
Most of the work undertaken under this project involves measurement of productivity over time, hence the need to hold the data from 1998/99. It is also necessary to construct aggregated measures of NHS output and quality based on what has happened to each individual patient in whatever setting care has been delivered, hence the need for patient-level information. The project also requires use of the sensitive PROMs data as measures of the quality of health care.
Project 2 - Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity;
The purpose of this project is to produce information for National and local decision makers, such as the Department of Health and Social Care (DHSC), Clinical Commissioning Groups (CCGs) and Local Authorities (LAs), to assist decisions regarding the provision of services that offer the greatest value for money according to the benefits achieved. Delivering appropriate, high quality, health care services to patients, in the most cost-effective way, are important priorities in any health care system. Advancing these priorities requires the analyses of such things as variations in practice and of the relationship between patient outcomes and hospital and consultant workload; which dimensions of performance are most important to patients; and the extent to which financial incentives motivate best practice. Ultimately this project informs the assessment of the most efficient and cost-effective way of delivering a particular service. This helps ensure accountability to the public for how the annual NHS budget is spent and helps to identify opportunities for better use of resources devoted to the NHS. The project is designed to develop a more systematic evidence base that will allow policy-makers, providers and commissioners to develop policies to achieve efficiency targets and outcome-based commissioning, publish information on performance in formats that are most useful for the intended stakeholders, and to redeploy resources to produce more efficient mixes of services both within and across the health and social care sectors.
Funders:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
• National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care Yorkshire and Humber (CLAHRC YH) (Ref NIHR CLARHC YH II 14653)
• NHS England (Ref R1790901) Economic evaluation of the Fragility Hip Fracture Best Practice Tariff.
• NIHR HS&DR (Ref DRF-2016-09-097): Doctoral Research Fellowship - "Providers' response on the Pay for Performance incentives".
• European Commission, European Training Network. “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Skłodowska-Curie Innovative Training Networks.
The work for all these funders will require the sensitive PROMs data to measure patient outcomes.
The project will use only the following data: HES APC 1989/90 – 2020/21 Sensitive field: Consultant Code; HES Outpatient 2002/03 – 2020/21; PROMs 2009/10 – 2020/21; Civil Registration (Deaths) 1998/99 - 2020/21.
Project 2 will utilise both Annual and Monthly disseminations of the datasets indicated above.
Project 3 - Evaluation of the impacts of health care policy, organisation, finance and delivery of NHS services and quantification of differences in health care utilisation, expenditure, morbidity and mortality over time, across geographic regions, health providers, and among different patient groups.
The purpose of this project is to produce evidence to inform NHS England and the Department of Health and Social Care’s decisions on resource allocation, funding models, and the design and direction of future policy regarding the health, mental health, and social care sectors, with CHE’s advice and analyses being regularly sought to feed into White papers and specific government reviews.
This project includes understanding which types of budgeting, organisation, structure and contracting arrangements for health, incl. mental health, and social care services best achieves strategic goals. It also includes evaluations of payment policies (including financial incentive schemes) and changes to the organisation of services (e.g. co-location of general practitioners alongside emergency departments, mergers of providers, vertical integration of providers, care pathways) that seek to encourage good quality, cost-effective care and/or facilitate access to timely care. The main aims are to: analyse the potential for use of different organisational structures and payment mechanisms in health and social care to improve overall performance; analyse the impact that different payment policies and service configurations can have on prices, outputs, quality and outcomes; explore how the best payment systems and service configurations could be implemented in practice; and establish the effect of innovative organisational forms on costs and quality of care.
Funders:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
• NIHR HS&DR 10/1011/22 and NIHR HS&DR 13/54/40: Relationships between quality of primary care and secondary care outcomes for people with mental illness.
• Wellcome Trust [ref: 105624] through the Centre for Chronic Diseases and Disorders (C2D2) at the University of York: Finance and organisation of mental health services.
• Health Foundation [ref: 57151] Efficiency, cost and quality of mental healthcare provision.
• NIHR HS&DR (Ref DRF/2014-07-055): Doctoral Research Fellowship - Measuring & explaining variations in general practice performance.
• NIHR HS&DR (Ref 15/145/06): General Practitioners and Emergency Departments (GPED): Efficient Models of Care.
The project will use only the following data: HES APC 1998/99 – 2020/21; A&E 2007/08 – 2017/18; Outpatient 2002/03 – 2020/21; PROMs 2009/10 – 2020/21; Emergency Care Dataset 2017/18 – 2020/21; MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17-2020/21; Civil Registration (Deaths) 1998/99-2020/21; HES APC Sensitive Psychiatric Fields: Detention category (DETNCAT), Legal group of patient (psychiatric) (LEGALGPC), Legal status classification (LEGLSTAT).
Project 3 will utilise both Annual and Monthly disseminations of the datasets listed above.
The work for several funders will require the use of the PROMs data to measure morbidity over time.
This project will also require use of MHMDS/MHLDS/MHSDS data linked to HES data in order to carry out analyses into the economics around mental health and mental health care provision. CHE is requesting sensitive MHMDS/MHLDS/MHSDS fields and sensitive HES psychiatric fields (Legal group of patient, Legal status classification, and Detention category). These relate to the legal category / legal status of the patient which is an important indicator of patient severity. CHE will need these sensitive data items to accurately control for the impact of detention on resource use and utilisation. CHE needs to check data consistency between HES and the MHMDS/MHLDS/MHSDS and therefore requires sensitive data on legal status in both datasets.
Project 4 - Investigation of inequalities in access, outcomes and costs of health services in England.
The purpose of this project is to produce information that NHS England and Clinical Commissioning Groups will use to address the NHS’ duty under the Health and Social Care Act 2012 to consider reducing health inequalities, and that Public Health England, Local Authorities and a variety of other public and third sector organisations will use to inform decision making and quality assurance around health and social care and wider public policies with impacts on health. CHE has developed new methods of local health equity monitoring for health care quality assurance, which NHS England adopted in 2016. In collaboration with colleagues at the Department of Health Sciences, University of York, and analysts at NHS England, CHE will refine and use these methods and related measures to monitor the progress of national and local NHS organisations in reducing inequalities in healthcare access and outcomes, to gain insight into the determinants of inequalities and which local areas show sustained improvements and deteriorations in health inequality and why, and to evaluate the equity impacts of local new models of care and other health policies. The work will also assist the ONS to conduct distributional analyses of NHS spending for use in constructing statistics about in-kind social transfers.
The work for the Department of Health and Social Care will investigate why providers respond differently to policy incentives and quantify the associated impact on inequalities in care quality and/or access, including how these change over time.
Funders:
• NIHR TCC (Ref SRF-2013-06-015) Health equity impacts: evaluating the impacts of organisations and interventions on social inequalities in health.
• Wellcome Trust. ‘Re-Engineering Health Policy Research for Fairer Decisions and Better Health’.
• Department of Health to the Policy Research Unit in the Economics of Health and Social Care Systems
The project will use only the following data: HES APC 1989/90 – 2020/21; A&E 2007/08 – 2017/18; Outpatient 2002/03 – 2020/21; Critical Care 2011/12 – 2020/21; PROMs 2009/10 – 2020/21; Civil Registration (Deaths) 1998/99-2020/21; Emergency Care Dataset 2017/18 – 2020/21.
Project 4 will utilise both Annual and Monthly disseminations of the datasets listed above.
The work requires the use of sensitive PROMs data to measure patient outcomes in secondary care.
The following is a separately funded piece of research work which fits within the scope of project 4:
Funder:
• NIHR Policy Research Programme (grant number PR-X06-1014-22005), Partnership for Responsive Policy Analysis and Research (PREPARE), a collaboration between the University of York and the King's Fund.
Though PREPARE is a collaboration between the University of York and the King’s Fund, the King’s Fund has no involvement in this research project. The research request was considered by the co-leads in the University of York and the King’s Fund who agreed that the University of York would carry out the research. The lead within the University of York has been solely responsible for all decisions on how this research will be carried out including all decisions in respect of what data processing is required.
Description of additional use of data:
This area of the project will explore the links between child health and child poverty, in particular the NHS hospital utilisation of children born into deprivation (using the indices of deprivation (ID) as a proxy for poverty) in comparison with children who are not born in deprived areas. The study will also explore whether any difference in hospital utilisation over the early life course has changed over time. To do this the project will create a birth cohort of children born in NHS hospitals in England in specific financial year (2000, 2005, 2010, 2015, 2018), and track their use of NHS services (inpatient, outpatient and A&E) over their life course (up to age 18 for those born in 2000). The analysts will then test whether the age-sex adjusted differential use of hospital services across children born into rich and poor neighbourhoods has changed over time.
The work will use the following data:
HES APC 2000/01 – 2020/21; HES A&E 2007/08 - 2018/19; HES OP 2002/03 – 2020/21; Emergency Care Dataset 2017/18 – 2020/21.
The work will utilise both Annual and Monthly disseminations of the datasets listed above.
Linkages:
There is a need to link the HES APC data to Index of Multiple Deprivation (IMD) via the child’s Lower Super Output Area (LSOA) of residence. An older version of the IMD (2004) is already included in HES but the study will have to link to subsequent versions of the ID.
This Agreement permits the use of the data for this research but does not permit the use of the data for other research projects funded by PREPARE. Use of the data for any other projects funded by PREPARE would require a formal amendment to this Data Sharing Agreement.
Project 5 - Evaluation of the interface between the different sectors of the health care system, including the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long term care, social care and secondary care utilisation.
It has long been understood that health and social care services frequently provide treatment and care for the same individuals, so ensuring that these are ‘joined up’ or well co-ordinated has been an important and long-standing policy objective. In practice, however, both the services and approaches to monitoring these have developed separately, with potential implications for the efficiency and effectiveness of both health and social care. The purpose of this project is to produce evidence that will be used by the Department of Health and Social Care and commissioners to inform discharge arrangements and the design of integrated care arrangements and to identify opportunities for substitution of different types of health and social care services. CHE has also developed an online web tool to inform patients about their likely outcome of surgery to impact on shared decision making in primary care in York.
Funder:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems CHE Lead: Anne Mason
The project will use only the following data: HES APC 1989/90– 2020/21; A&E 2007/08 – 2017/18; Emergency Care Dataset 2017/18 – 2020/21; MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17 - 2017/18; Outpatient 2002/03 – 2020/21; Critical Care 2011/12 – 2020/21, PROMs 2009/10 – 2020/21; Civil Registration (Deaths) 1998/99-2020/21.
Project 5 will utilise both Annual and Monthly disseminations of the datasets listed above.
This project requires the sensitive PROMs data to measure patient outcomes in secondary care.
Expected output
The Centre for Health Economics has a long-established track record in the delivery of policy research that utilises HES data, as recognized by the award of the Queens Anniversary Prize in 2007. Examples of recent publications arising from the above projects that have employed the HES data can be found at the links below:
https://eshcru.com/publications/
http://www.york.ac.uk/che/publications/in-house/ https://www.york.ac.uk/che/publications/all/
The outputs from all of the projects will include
• Reports and slide decks to funding bodies;
• peer reviewed papers in academic journals;
• lay summaries such as newsletters and blogs;
• conference and seminar presentations to a variety of audiences, such as academic, policy, professional and public audiences.
Reports will be produced containing aggregate results that show trends over time, differences across providers, commissioners, geographical areas and by patient subgroups and patient characteristics. The results will contain estimated correlations showing associations between patient outcomes and patient characteristics, hospital, institutional, geographic and environmental factors. Statistical results will be presented in interactive spreadsheets or “Dashboards” (e.g. similar to http://health-inequalities.blogspot.co.uk/ which uses QOF data and only contains aggregated data which can be interrogated), tables and maps of aggregate statistics summarising patient characteristics
All outputs will contain only data that are aggregated with small numbers suppressed in line with the HES Analysis Guide.
The dissemination and communication strategy will vary between projects and will have been previously agreed with the funders. It would normally include the oral presentations; interim and final reports; and published reports and journal articles. Examples are provided below:
Oral presentations / knowledge exchange
• Presentation of interim and emerging findings to study advisory groups and/or steering committees. Members - who typically include policy makers, clinicians, academics and public contributors - provide feedback and advice.
• Interactive workshops with policy analysts from DHSC and NHSE/I to discuss emerging findings and ensure policy relevance
• Presentations to CCGs, NHS trusts, and PPI groups
• Open lectures and invited talks at Universities/Research Centres both in the UK and abroad
• Oral or poster presentations at national and international conferences, such as Health Economists’ Study Group, iHEA, and EuHEA. Delegates may include international organisations such as The World Bank, OECD and WHO, alongside members of the international academic community.
• End of project workshops or conferences to present research findings to key stakeholders and policy makers
Unpublished reports
• Draft reports with preliminary findings to advisory groups
• Interim reports for funders and policy analysts
• Draft final reports for funders. These are usually peer reviewed externally by academics and internally by policy analysts
Publications
• Published reports containing full, detailed findings, with an accompanying lay summary to make key messages more accessible.
• Press releases to accompany the publications of reports (full or short), via the University of York Press Office as well as through the CHE website and social media platforms, as well as funders own Press Release Offices and social media platforms;
• Peer reviewed scientific papers in academic and policy journals
• Short articles in CHE annual reports and CHE newsletters
Target dates for outputs
The outputs from each project will be delivered in accordance with CHE’s funding contracts, which run to different timelines with various milestones for each. Below are examples of key milestones and timelines for some of the projects undertaken.
Project 1 - The primary output from this ongoing project is the production each year of an annual update to national NHS productivity figures that incorporates the most recent financial year of data. Under this project, CHE has demonstrated that NHS productivity growth is meeting the requirements of the Five Year Forward View and outpaces that of the economy as a whole. CHE’s figures are widely used to inform policy discourse, with the DHSC relying on the information for internal monitoring purposes and for external reporting and response purposes, such as to inform annual Spending Reviews. Under this project, CHE also provides data about the quality of NHS care to the Office of National Statistics that are used in the construction of the national accounts.
In addition to the annual update of national figures, CHE also undertakes analyses of variation in hospital productivity and produces short reports, memorandum or slide decks for the DHSC to address specific questions about NHS productivity. CHE presents the work regularly to various audiences, including politicians, policy makers, academics, health professions and the general public through seminars, conference presentations and media appearances.
Project 3 – Policy makers need timely evidence on the impact of health care policies. These policies concern both the supply side of health care - the organisation, finance and delivery of services - and the demand side, such as utilisation, morbidity and mortality. Under this project, analyses may investigate variations over time and/or across geographic regions, providers, or patient groups. Empirical research frequently relies on analyses of HES. Outputs include open access reports and scientific papers in academic journals. Interim and final reports are submitted to funders as part of our contractual requirements. Emerging findings are presented and discussed at regular advisory and stakeholder group meetings, as well as at invited seminars and workshops. Examples of forthcoming outputs include
- Siciliani et al. Paying for health benefits using PROMs data, CHE Research Paper: November 2020
- Gutacker et al, Evaluating the intended and unintended consequences of best practice tariffs on patient health outcomes and provider behaviour. Report to DHSC. October 2020.
- Rice et al, Characterising end-of-life hospital expenditure. Oral presentation to the DHSC Oversight Group (steering committee) October 2020.
Project 5 – The focus of this project is the evaluation of the interface between the different sectors of the health care system, such as the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long-term care, social care and secondary care utilisation. Published outputs from this project include open access reports and scientific papers in academic journals. Interim and final reports to funders will be provided in line with contractual requirements. Emerging findings will be presented at conferences, advisory and stakeholder group meetings, or at DHSC workshops or seminars. This ongoing engagement helps ensure the work remains policy relevant. An example is a departmental working paper examining the effects of changes in social care funding on health care utilisation (Pace et al. Understanding the interdependencies between health and social care resources and arrangements. CHE Research Paper, December 2020). Early findings from this work were shared with NHSE (May 2018), discussed with DHSC (March 2019), with further analyses undertaken in response to their questions about the impact of the Better Care Fund. The report was revised following written comments from the Department (May 2019), and is currently under review with a health economics journal.
Targets dates and deliverables met
Project 1: The NHS spends over £120 billion a year and the budget provided for the NHS is influenced by the evidence on how well the money is spent. The annual estimates of productivity that we produce for the Department of Health and Social Care are a key part of their negotiations with the Treasury about the size of the budget and the research is cited in exchanges with ministers and government committees that scrutinise NHS spending. In particular, the quality adjustment method devised by York is important in ensuring that productivity is not under-stated which may have a negative impact on the size of budget settlements and hence lead to lower investment in the NHS. The most recent update to the NHS productivity measure https://www.york.ac.uk/media/che/documents/papers/researchpapers/CHERP171_NHS_productivity_update2017_18.pdf) shows a steady positive increase and that NHS productivity has increased substantially faster than the overall economy.
The methods developed by the York research team have also caught interests of Governments and health ministries in other parts of the world (eg Japan, Italy, Malaysia, Sweden), which have resulted in a number of workshop and collaborative work.
Project 2: Examples of outputs produced from this project include journal articles on the determinants of health care expenditure. For example, an article by Howdon and Rice (Health care expenditures, age, proximity to death and morbidity: Implications for an ageing population, 2017, https://doi.org/10.1016/j.jhealeco.2017.11.001) investigates the implications of an ageing population on health care expenditure, showing that the latter is primarily determined by proximity to death, rather than age. Chalkley et al. (Elective hospital admissions: secondary data analysis and modelling with an emphasis on policies to moderate growth, 2017, https://doi.org/10.3310/hsdr05070) investigating growth in elective hospital admissions in England find that these are mainly due to increases in both demand for and supply of hospital care, with health system reforms and ageing population less important.
Project 3: Outputs from this project include journal articles on payment systems, providing evidence on intended and unintended impacts for policy makers designing new approaches to paying for care. For example, one study examined the effects of two incentive schemes in primary care that aimed to tackle underdiagnosis in dementia, with HES data used to control for a parallel hospital scheme. The schemes were effective in increasing dementia diagnoses (Mason, et al 2018, Investigating the impact of primary care payments on underdiagnosis in dementia: a difference-in-differences analysis, IJGP. https://doi.org/10.1002/gps.4897). However, patient satisfaction was lower in practices that achieved higher rates of dementia diagnoses (Liu, et al 2019, Incentive schemes to increase dementia diagnoses in primary care in England: a retrospective cohort study of unintended consequences. BJGP https://doi.org/10.3399/bjgp19X701513).
Project 4: Access to health services in England is generally lower for disadvantaged groups. This is a key policy concern because in the NHS access is ideally based on need. One study that used HES data to investigate inequalities in access to health services in England is by Moscelli, et al 2017 (Socioeconomic Inequality of Access to Healthcare: Does Choice Explain the Gradient? JHE https://doi.org/10.1016/j.jhealeco.2017.06.005). The authors investigated the extent of waiting time inequalities for elective coronary revascularisation procedures by socioeconomic status within hospitals. Using sophisticated statistical techniques, they showed that patients from the most deprived areas waited around one-third longer than the least deprived groups. Inequalities were not primarily due to differences across patients in exercising patient choice of hospital or procedure, suggesting that waiting lists may require more proactive and robust management.
Project 5: An example of an output from this project examined drivers of long waits in Emergency departments (EDs). EDs are seen as a ‘barometer’ of the NHS, acting as a safety net when other services are unavailable. Delays in receiving urgent treatment are a major policy concern, and may be due to factors within the hospital or to external factors such as the availability of social care. An analysis of HES A&E data identified factors driving long waits, but also highlighted much unexplained variation across providers. At the time of publication, the policy on tackling long waits was under review and the four-hour wait target operational during the study has now been dropped. However, the finding that bed occupancy levels and the age profile of attendees are independently associated with long waits remains relevant. Policy interest is evidenced by two invitations from NHS England to discuss findings (July 2017, Jan 2020). The work was presented at academic conferences (HESG (Aberdeen) 2017, International Health Congress (Oxford) 2018) and published in the CHE newsletter (March 2020) and an academic journal (Gaughan et al. Why are there long waits at English emergency departments? EJHE 21, 209–218 (2020). https://doi.org/10.1007/s10198-019-01121-7).
The DSA includes as funders the European Commission, European Training Network. “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Skłodowska-Curie Innovative Training Networks, which funds two PhD research projects. The outputs for this specific project is the compilation and publication of a doctorate thesis and related research articles to be published in international research journal. Both PhD research projects are nearing completion by the end of 2020, but with access to NHS Digital data required to prepare research articles and respond to potential comments/revision requests from journal reviewers.
Benefits reported
Project 1 - The primary output from this ongoing project is the production each year of an annual update to national NHS productivity figures that incorporates the most recent financial year of data. In 2017, the annual update was produced for the DHSC and, as in other years, was used by them externally and internally in monitoring, informing policy debate, the annual spending review and negotiations on budget setting. Under this project, CHE also provided data about the quality of NHS care to the Office of National Statistics that are used each year in the construction of the national accounts. In 2017, additional analyses on hospital level productivity were produced for the DHSC, examining the factors underlying variation in productivity, which assists the DHSC in exploring how to get the best value from NHS resources.
Project 2 - This project has produced a range of evidence that allows the DHSC and other organisations to understand and plan expenditure on different aspects of NHS care, to account for changes in activity and also to understand aspects of quality of care, First, it has investigated the drivers of health care expenditure, disentangling the influence of age, morbidity and proximity to death on the level of expenditure. This has important implications for the DHSC in terms of planning and for the design of the resource allocation formulae used to distribute the healthcare budget, Second, it has explored several aspects of activity in the secondary care sector, for instance, policies for moderating growth in elective admissions and how the provision of specialist rehabilitation services affect the duration and costs of hospital care. It has also looked at the use of patient valuation of the care they receive as a way of measuring the quality of hospital care. Third, it has investigated in-hospital mortality trends over time. These insights allow policy makers to appreciate the costs and the benefits of NHS provision and to plan for more effective and efficient care.
Project 3 - The research in this project has evaluated whether the way in which the NHS is organised can affect the costs and outcomes of services to help inform policy decisions. In 2017, the research has produced evidence on a number of issues in mental health, including the relationship between costs and quality and socio-economic inequalities in access to care. Other examples include the production of evidence on the impact of the electronic booking system on referrals and non-attendances and the investigation of reasons for delayed discharges from hospital, both of which are important in terms of planning future organisation of care.
Project 4 - This project has continued to investigate inequities in access, costs and outcomes and in 2017, further evidence relating to access, avoidable emergency hospital admissions and in-hospital mortality has been produced. This has added to knowledge of how to improve health and healthcare for vulnerable populations.
Project 5 – In 2017, previous research on patient-assessed outcomes was extended (by working with Vale of York CCG) to generate a web tool to support discussions between patients and their GPs about whether to undergo planned surgery. The on-line tool, aftermysugery.org.uk can be used by patients and their GPs, who input basic demographic data and fill in a pre-operative health status questionnaire. The webtool then returns a predicted post-operative health status, together with national comparator data, displayed in various visual formats. This information is designed to a) help patients decide whether they feel the expected health improvement is sufficiently high to make having the operation worthwhile, b) inform patients about the likelihood of a negative outcome, and c) provide information about which hospitals secure better outcomes for their patients.
Other strands of the research have established that incentive payments made to GPs to increase the numbers of individuals diagnosed with dementia have been effective, but that there may have been unintended consequences on patient experience and access.
DARS-NIC-84254-J2G1Q-v2.13 1 January 2019 to 31 December 2021
- Title
- Economic Analyses of Health and Social Care -Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity;
- Commercial
- No
- Sublicensing
- No
- Datasets
- 10
- Files released
- 122
Datasets: Civil Registrations of Death - Secondary Care Cut; HES:Civil Registration (Deaths) bridge; Hospital Episode Statistics Accident and Emergency (HES A and E); Hospital Episode Statistics Admitted Patient Care (HES APC); Hospital Episode Statistics Critical Care (HES Critical Care); Hospital Episode Statistics Outpatients (HES OP); Mental Health and Learning Disabilities Data Set (MHLDDS); Mental Health Minimum Data Set (MHMDS); Mental Health Services Data Set (MHSDS); Patient Reported Outcome Measures (Linkable to HES)
Objective for processing
The Centre for Health Economics (CHE), based at University of York is requesting data for the following projects involving economic analyses of health and social care. Please note that for each of the following projects CHE staff will analyse individual level data from the various datasets. Only aggregated results will be published and disseminated.
Most of these projects are funded, at least in part, by the National Institute for Health Research (NIHR), via a major programme of work funded as a Policy Research Unit (PRU) in the Economics of Health and Social Care Systems (http://eshcru.ac.uk/). This programme was re-awarded for a further five years starting from January 2019. The aim of the PRU is to inform and guide policy-making in the health and social care sectors by undertaking high quality, robust and policy-relevant research, based on the discipline of economics, thereby helping to improve the health and well-being of the population, reflecting distributional concerns and population diversity. A detailed work programme for the next phase of programme funding is developed in advance in collaboration with both a DHSC Stakeholder Group and the PRU’s Advisory Group, meetings being held with each Group every six months. Approximately 20% of funding is reserved for the PRU to respond to short-term responsive requests for research. This process ensures that the work programme can be shaped to reflect enduring and emerging policy concerns. For some projects, CHE have been able to secure additional funding, enabling the University to extend or deepen the analyses of the research topic. NIHR also funds other projects, as mentioned below.
The University of York request both the pseudo-consultant code (not sensitive) and the underlying clear text consultant code (sensitive) to minimise the amount of sensitive data used by researchers across different projects. Some research projects will analyse variation in case-mix adjusted hospital inpatient activity and their related outcomes at the consultant level. For these projects, it is necessary to assign activity to consultants but it is not necessary to identify who they are. The pseudo-consultant code is therefore sufficient for these projects. Other research projects, such as the European Training Network “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Sklodowska-Curie Innovative Training Network, will need access to the sensitive consultant code field to link to it other publicly available data on consultants, such as the General Medical Council (GMC) medical register (https://www.gmc-uk.org/registration-and-licensing/the-medical-register). The GMC medical register provides details on, for example, the type of registration held by a doctor and the date at which they completed their primary medical qualification. This linkage is achieved through the clear text consultant code field, which corresponds to doctors’ GMC numbers. The pseudo-consultant code is insufficient for these projects. The sensitive consultant code and the non-sensitive pseudo-consultant code will be stored as two separate files and stored in two separate folders. The files can be linked to the HES APD dataset through the epikey variable. Access to these files will be managed on a researcher and project-by-project basis. In this way, the University of York will ensure that no researcher has access to both data fields at the same time for the same project, thereby eliminating the risk of back-engineering.
The university hold a variety of NHS Digital Mental Health data sets, comprising of historic versions and newer replacements.
All of the work involves analysing the data in different ways. For example, an analysis under project 1 may focus on particular specialities, comparison of productivity across hospitals, or may be a broader assessment of national productivity. Many of the statistical methods to be employed require longitudinal data to investigate how changes in patient outcomes (including morbidity, mortality, emergency re-admissions, length of stay, admissions for conditions that could be managed in primary care, inpatient admission rates after A&E attendance) are related to changes in policy (including payment policies and incentives), changes in market configurations, changes in organisational structure, and changes in patient characteristics. Pseudonymised patient level information is required to allow for the influence of past utilisation, for demographic factors, for socio-economic factors (e.g. deprivation) linked to the small area in which patients live, and patient distance from hospitals, social care providers, and general practices. It is also essential in investigating the equity implications of policies, market structure, and organisational arrangements. The Principal Investigators and Project Leads are responsible for determining what analyses will be undertaken and what data will be used for each analysis in support of the objectives agreed with the funding organisations.
CHE confirms that the data under this application would only be used for the five projects listed, and any additional project (whether as part of the DHSC programme or otherwise) would require a separate approval. Equally individuals working on each project will only be permitted to access the data relating to that project, as identified within this application. Access is granted for each project only to the named individuals associated with that project under authorised user names. Such access is password controlled (with a password reset required on a regular refresh).
The controls enable a single copy of the data to be held, reducing security risk associated with multiple copies being provided per project. This model is aligned with similar arrangements for other sizeable research institutions.
Project 1 - Measurement of efficiency, effectiveness and productivity in the delivery of health care system nationally, sub-nationally and among hospitals;
The purpose of this project is to produce information for the Department of Health and Social Care (DHSC) and Secretary of State for Health on efficiency, effectiveness and productivity. In the current economic climate it is particularly important that changes in efficiency and productivity can be identified and monitored. This helps ensure accountability to the public for how the annual NHS budget is spent and to identify opportunities for better use of resources devoted to the NHS. This project provides numerical answers and context for, among others, House of Commons Health Committee, the Public Accounts Committee, Public Expenditure Inquiries, and DHSC submissions in support of annual Spending Reviews. The work also contributes to the measurement of productivity of the health service in the national accounts, compiled by the Office of National Statistics.
Funder:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
This project will use only the following data: HES APC 1998/99-2017/18; A&E 2007/08 - 2017/18; Critical Care 2011/12 – 2017/18; Outpatient 2011/12-2017/18; PROMs 2009/10 – 2017/18;
The Civil Registration (Moratlity) data from 1998/99-2017/18 are needed to:
measure and compare the quality of care between healthcare providers, other healthcare organisation, regions and other geographical areas, where quality is defined as risk of mortality following treatment. The University of York will relate this variation to individual health policies or economic incentives to study the behaviour of healthcare providers and/or purchasers of care. The University of York will also relate this variation to socio-economic characteristics of the population served by public healthcare services to study inequalities in the quality of care received.
The University of York will estimate survival models that relate the timing of death (based on the exact date of death) for individual patients to the relevant unit of assessment (provider, region) after adjusting for relevant case-mix differences across the populations under study.
Most of the work undertaken under this project involves measurement of productivity over time, hence the need to hold the data from 1998/99. It is also necessary to construct aggregated measures of NHS output and quality based on what has happened to each individual patient in whatever setting care has been delivered, hence the need for patient-level information. The project also requires use of the sensitive PROMs data as measures of the quality of health care.
Project 2 - Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity;
The purpose of this project is to produce information for National and local decision makers, such as the Department of Health and Social Care (DHSC), Clinical Commissioning Groups (CCGs) and Local Authorities (LAs), to assist decisions regarding the provision of services that offer the greatest value for money according to the benefits achieved. Delivering appropriate, high quality, health care services to patients, in the most cost-effective way, are important priorities in any health care system. Advancing these priorities requires the analyses of such things as variations in practice and of the relationship between patient outcomes and hospital and consultant workload; which dimensions of performance are most important to patients; and the extent to which financial incentives motivate best practice. Ultimately this project informs the assessment of the most efficient and cost-effective way of delivering a particular service. This helps ensure accountability to the public for how the annual NHS budget is spent and helps to identify opportunities for better use of resources devoted to the NHS. The project is designed to develop a more systematic evidence base that will allow policy-makers, providers and commissioners to develop policies to achieve efficiency targets and outcome-based commissioning, publish information on performance in formats that are most useful for the intended stakeholders, and to redeploy resources to produce more efficient mixes of services both within and across the health and social care sectors.
Funders:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
• National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care Yorkshire and Humber (CLAHRC YH) (Ref NIHR CLARHC YH II 14653)
• NHS England (Ref R1790901) Economic evaluation of the Fragility Hip Fracture Best Practice Tariff.
• NIHR HS&DR (Ref DRF-2016-09-097): Doctoral Research Fellowship - "Providers' response on the Pay for Performance incentives".
• European Commission, European Training Network. “Improving Quality of Care in Europe (IQCE)”, Horizon 2020 Marie Skłodowska-Curie Innovative Training Networks.
The work for all these funders will require the sensitive PROMs data to measure patient outcomes.
The project will use only the following data: HES APC 1989/90 - 2017/18, Sensitive field: Consultant Code; HES Outpatient 2002/03 - 2017/18; PROMs 2009/10 – 2017/18; Civil Registration (Deaths) 1998/99-2017/18.
Project 3 - Evaluation of the impacts of health care policy, organisation, finance and delivery of NHS services and quantification of differences in health care utilisation, expenditure, morbidity and mortality over time, across geographic regions, health providers, and among different patient groups.
The purpose of this project is to produce evidence to inform NHS England and the Department of Health and Social Care’s decisions on resource allocation, funding models, and the design and direction of future policy regarding the health, mental health, and social care sectors, with CHE’s advice and analyses being regularly sought to feed into White papers and specific government reviews.
This project includes understanding which types of budgeting, organisation, structure and contracting arrangements for health, incl. mental health, and social care services best achieves strategic goals. It also includes evaluations of payment policies (including financial incentive schemes) and changes to the organisation of services (e.g. co-location of general practitioners alongside emergency departments, mergers of providers, vertical integration of providers, care pathways) that seek to encourage good quality, cost-effective care and/or facilitate access to timely care. The main aims are to: analyse the potential for use of different organisational structures and payment mechanisms in health and social care to improve overall performance; analyse the impact that different payment policies and service configurations can have on prices, outputs, quality and outcomes; explore how the best payment systems and service configurations could be implemented in practice; and establish the effect of innovative organisational forms on costs and quality of care.
Funders:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems.
• NIHR HS&DR 10/1011/22 and NIHR HS&DR 13/54/40: Relationships between quality of primary care and secondary care outcomes for people with mental illness.
• Wellcome Trust [ref: 105624] through the Centre for Chronic Diseases and Disorders (C2D2) at the University of York: Finance and organisation of mental health services.
• Health Foundation [ref: 57151] Efficiency, cost and quality of mental healthcare provision.
• NIHR HS&DR (Ref DRF/2014-07-055): Doctoral Research Fellowship - Measuring & explaining variations in general practice performance.
• NIHR HS&DR (Ref 15/145/06): General Practitioners and Emergency Departments (GPED): Efficient Models of Care.
The project will use only the following data: HES APC 1998/99 – 2017/18; A&E 2007/08 – 2017/18; Outpatient 2002/03 – 2017/18; PROMs 2009/10 – 2017/18; MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17-2017/18; Civil Registration (Deaths) 1998/99-2017/18; HES APC Sensitive Psychiatric Fields: Detention category (DETNCAT), Legal group of patient (psychiatric) (LEGALGPC), Legal status classification (LEGLSTAT).
The work for several funders will require the use of the PROMs data to measure morbidity over time.
This project will also require use of MHMDS/MHLDS/MHSDS data linked to HES data in order to carry out analyses into the economics around mental health and mental health care provision. CHE is requesting sensitive MHMDS/MHLDS/MHSDS fields and sensitive HES psychiatric fields (Legal group of patient, Legal status classification, and Detention category). These relate to the legal category / legal status of the patient which is an important indicator of patient severity. CHE will need these sensitive data items to accurately control for the impact of detention on resource use and utilisation. CHE needs to check data consistency between HES and the MHMDS/MHLDS/MHSDS and therefore requires sensitive data on legal status in both datasets.
Project 4 - Investigation of inequalities in access, outcomes and costs of health services in England.
The purpose of this project is to produce information that NHS England and Clinical Commissioning Groups will use to address the NHS’ duty under the Health and Social Care Act 2012 to consider reducing health inequalities, and that Public Health England, Local Authorities and a variety of other public and third sector organisations will use to inform decision making and quality assurance around health and social care and wider public policies with impacts on health. CHE has developed new methods of local health equity monitoring for health care quality assurance, which NHS England adopted in 2016. In collaboration with colleagues at the Department of Health Sciences, University of York, and analysts at NHS England, CHE will refine and use these methods and related measures to monitor the progress of national and local NHS organisations in reducing inequalities in healthcare access and outcomes, to gain insight into the determinants of inequalities and which local areas show sustained improvements and deteriorations in health inequality and why, and to evaluate the equity impacts of local new models of care and other health policies. The work will also assist the ONS to conduct distributional analyses of NHS spending for use in constructing statistics about in-kind social transfers.
The work for the Department of Health and Social Care will investigate why providers respond differently to policy incentives and quantify the associated impact on inequalities in care quality and/or access, including how these change over time.
Funders:
• NIHR TCC (Ref SRF-2013-06-015) Health equity impacts: evaluating the impacts of organisations and interventions on social inequalities in health.
• Wellcome Trust. ‘Re-Engineering Health Policy Research for Fairer Decisions and Better Health’.
• Department of Health to the Policy Research Unit in the Economics of Health and Social Care Systems
The project will use only the following data: HES APC 1989/90 – 2017/18; A&E 2007/08 – 2017/18; Outpatient 2002/03 – 2017/18; Critical Care 2011/12 – 2017/18; PROMs 2009/10 – 2017/18; Civil Registration (Deaths) 1998/99-2017/18.
The work requires the use of sensitive PROMs data to measure patient outcomes in secondary care.
Project 5 - Evaluation of the interface between the different sectors of the health care system, including the effects of quality and access of primary care on patient use and outcomes in secondary care; and the relationship between long term care, social care and secondary care utilisation.
It has long been understood that health and social care services frequently provide treatment and care for the same individuals, so ensuring that these are ‘joined up’ or well co-ordinated has been an important and long-standing policy objective. In practice, however, both the services and approaches to monitoring these have developed separately, with potential implications for the efficiency and effectiveness of both health and social care. The purpose of this project is to produce evidence that will be used by the Department of Health and Social Care and commissioners to inform discharge arrangements and the design of integrated care arrangements and to identify opportunities for substitution of different types of health and social care services. CHE has also developed an online web tool to inform patients about their likely outcome of surgery to impact on shared decision making in primary care in York.
Funder:
• Department of Health and Social Care to the Policy Research Unit in the Economics of Health and Social Care Systems CHE Lead: Anne Mason
The project will use only the following data: HES APC 1989/90– 2017/18; A&E 2007/08 – 2017/18; MHMDS 2011/12 – 2013/14; MHLDS 2014/15 – 2015/16; MHSDS 2016/17 - 2017/18; Outpatient 2002/03 – 2017/18; Critical Care 2011/12 – 2017/18, PROMs 2009/10 – 2017/18; Civil Registration (Deaths) 1998/99-2017/18.
This project requires the sensitive PROMs data to measure patient outcomes in secondary care.
Expected output
The outputs from all of the projects will include peer reviewed papers in academic journals, reports for funders, lay summaries such as newsletters and blogs, and conference and seminar presentations to academic, policy, professional and public audiences. The Centre for Health Economics has a long-established track record in delivery of policy research that utilises HES data, as recognized by the award of the Queens Anniversary Prize in 2007. Examples of recent publications arising from the above projects that have employed the HES data can be found here http://eshcru.ac.uk/publications/index.htm and http://www.york.ac.uk/che/publications/in-house/.
Reports will be produced containing aggregate results that show trends over time, differences across providers, commissioners, geographical areas and by patient subgroups and patient characteristics. The results will contain estimated correlations showing associations between patient outcomes and patient characteristics, hospital, institutional, geographic and environmental factors. Statistical results will be presented in interactive spreadsheets or “Dashboards” (e.g. similar to http://health-inequalities.blogspot.co.uk/ which uses QOF data and only contains aggregated data which can be interrogated), tables and maps of aggregate statistics summarising patient characteristics.
Publications produced in 2017 by project are listed below.
Project 1:
Aragón M.J., Castelli A., Gaughan J., Hospital Trusts productivity in the English NHS: Uncovering possible drivers of productivity variations, PLoS ONE 12(8): e0182253, 2017, https://doi.org/10.1371/journal.pone.0182253
Bojke, C, Castelli, A, Grasic, K, Howdon, DDH, Street, AD & Rodriguez Santana, IDLN 2017 'Productivity of the English NHS: 2014/15 Update' CHE Research Paper, no. 146, Centre for Health Economics, University of York, York, UK, pp. 1-81.
Project 2:
Duarte, A. I., Bojke, C., Cayton, W., Salawu, A., Case, B., Bojke, L. & Richardson, G. A. (2017) Impact of specialist rehabilitation services on hospital length of stay and associated costs, The European Journal of Health Economics https://doi.org/10.1007/s10198-017-0952-0French E, McCauley J, Aragon J, Bakx P,
Chalkley M, Chen S, Christensen BJ, Huang H, Cote-Sergent A, De Nardi M, Echevin D, Fan E, Geoffard G, Gastaldi-Menager C, Gortz M, Ibuka Y, Izumida N, Jones JB, Kallestrup-Lamb M, Karisson M, Klein T, de Lagasnerie G, Michaud P, O’Donnell O, Ohtsu Y, Rice N, Skinner J, van Doorslaer E, Ziebarth NR, Kelly E. End-of-Life Medical Spending in Last Twelve Months of Life is Lower Than Previously Reported. Health Affairs 2017;36(7):1211-1217.
Howdon D, Rice N. Health care expenditures, age, proximity to death and morbidity: implications for an ageing population. Journal of Health Economics, In press (accepted 31 October 2017).
Chalkley M, McCormick B, Anderson R, Aragon MJ, Nessa N, Nicodemo C, et al. Elective hospital admissions: secondary data analysis and modelling with an emphasis on policies to moderate growth. Health Serv Deliv Res 2017;5(7), https://www.journalslibrary.nihr.ac.uk/hsdr/hsdr05070/#/abstract, 2017.
(accepted for publication) Aragon MJ, Chalkley M, How do time trends in in-hospital mortality compare? A retrospective study of England and Scotland over 17 years using administrative data, BMJ Open
Patton, T., Gutacker, N. & Shah, K. 2016. Putting the P back into PROMs - using patient valuations of EQ-5D health states to improve hospital performance comparisons. Health and Quality of Life Outcomes, 15(Suppl 1):185.
Project 3:
Reichert, A. & Jacobs, R. (2017) Socioeconomic inequalities in duration of untreated psychosis: Evidence from administrative data in England, Psychological Medicine, doi: https://doi.org/10.1017/S0033291717002197.
Moran, V. & Jacobs, R. (2017) Investigating the relationship between costs and outcomes for English mental health providers: A bi-variate multi-level regression analysis, The European Journal of Health Economics, doi: 10.1007/s10198-017-0915-5.
Moran, V. & Jacobs, R. (2017) Costs and performance of English mental health providers, The Journal of Mental Health Policy and Economics, 20: 83-94.
Longo, F., Siciliani, L., Gravelle, H., Santos, R. Do hospitals respond to rivals’ quality and efficiency? A spatial panel econometric analysis. Health Economics. 2017; 26(S2) 38-62. DOI:10.1002/hec.356. See also CHE Research Paper 144
Dusheiko, M., Gravelle, H. Choosing and booking – and attending? Impact of an electronic booking system on outpatient referrals and non-attendances. Health Economics. DOI:10.1002/hec.3552. 2017.
Gaughan, J., Gravelle, H., Santos, R., Siciliani, L. Long term care provision, hospital length of stay and discharge destination for hip fracture and stroke patients. International Journal of Health Economics and Management. 2017. DOI 10.1007/s10754-017-9214-z
Gaughan, J., Gravelle, H., Siciliani, L. Delayed discharges and hospital type: evidence from the English NHS. Fiscal Studies. 2017; 38, 5, 495-519. See also CHE Research Paper 133.
Moscelli, G., Gravelle, H., Siciliani, L. The effect of hospital ownership on quality of care: evidence from England. CHE Research Paper 145.
Project 4:
Cookson, R, Mondor, L, Asaria, M, Kringos, DS, Klazinga, NS & Wodchis, WP 2017, 'Primary care and health inequality: Difference-in-difference study comparing England and Ontario' PloS One, 12(11), e0188560. https://doi.org/10.1371/journal.pone.0188560
Moscelli, G., Siciliani, L., Gutacker, N., & Cookson, R. (2017). Socioeconomic inequality of access to healthcare: Does choice explain the gradient? Journal of Health Economics. doi: https://doi.org/10.1016/j.jhealeco.2017.06.005
Barratt, H., M. Asaria, J. Sheringham, P. Stone, R. Raine and R. Cookson (2017). "Dying in hospital: socioeconomic inequality trends in England." Journal of Health Services Research & Policy: 1-6 10.1177/1355819616686807
Sheringham, J., Asaria, M., Barratt, H., Raine, R., & Cookson, R. (2017). Are some areas more equal than others? Socioeconomic inequality in potentially avoidable emergency hospital admissions within English local authority areas. Journal of Health Services Research & Policy. Vol. 22(2) 83–90. http://journals.sagepub.com/doi/abs/10.1177/1355819616679198
Project 5:
Gutacker N, Street AD. Multidimensional Performance Assessment of Public Sector Organisations Using Dominance Criteria. Health Economics,2017. doi: 10.1002/hec.3554.
Gutacker, N. & Street, A. 2017. Use of large-scale HRQoL datasets to generate individualised predictions and inform patients about the likely benefit of surgery, Quality of Life Research, 26(9): 2497-2505.
The outputs from each project will be delivered in accordance with CHE’s funding agreements, which run to different timelines with various milestones for each. The key milestones and timelines for each project are:
Project 1 - The primary output from this ongoing project is the production each year of an annual update to national NHS productivity figures that incorporates the most recent financial year of data. Under this project, CHE has demonstrated that NHS productivity growth is meeting the requirements of the Five Year Forward View and outpaces that of the economy as a whole. CHE’s figures are widely used to inform policy discourse, with the DHSC relying on the information for internal monitoring purposes and for external reporting and response purposes, such as to inform annual Spending Reviews. Under this project, CHE also provides data about the quality of NHS care to the Office of National Statistics that are used in the construction of the national accounts.
In addition to the annual update of national figures, CHE also undertakes analyses of variation in hospital productivity and produces short reports or memorandum for the DHSC to address specific questions about NHS productivity. CHE presents the work regularly to various audiences, including politicians, policy makers, academics, health professions and the general public through seminars, conference presentations and media appearances.
Project 2 - This project will produce a range of outputs, including reports to support policy decisions and peer reviewed publications. Where appropriate, analysis will also be disseminated to national and local decision makers at formal and informal meetings, including strategic commissioning groups.
In 2018/19 CHE will submit the results of the commissioning care hubs research to a peer reviewed journal.
Project 3 - During 2018/19, CHE will produce several papers on mental health funding and mental health waiting times; papers on quality of small hospitals, effects on patients of hospital closure, competition and quality in general practice, the effect of competition on hospital waiting times, and waiting time inequalities across and within hospitals.
Project 4 - During 2018/19, CHE expect to carry out extensive analyses with a report, co authored with NHS England Equality and Health Inequalities Team, on ‘Why some areas do better than others at reducing health inequalities’, to come out later in the year and further outputs to follow in 2019. Preparatory work for the Wellcome Trust project will be conducted for quasi-experimental evaluations of policy impacts on health equity, with published outputs not expected until 2019.
Project 5 - By early 2019, CHE will publish journal articles and working papers, and produce a number of final project reports for the DHSC.
Further updates on outputs are set out below;
Project 1:
Aragón M.J., Castelli A., Gaughan J., Hospital Trusts productivity in the English NHS: Uncovering possible drivers of productivity variations, PLoS ONE 12(8): e0182253, 2017, https://doi.org/10.1371/journal.pone.0182253
Bojke, C, Castelli, A, Grasic, K, Howdon, DDH, Street, AD & Rodriguez Santana, IDLN 2017 'Productivity of the English NHS: 2014/15 Update' CHE Research Paper, no. 146, Centre for Health Economics, University of York, York, UK, pp. 1-81.
Project 2:
Duarte, A. I., Bojke, C., Cayton, W., Salawu, A., Case, B., Bojke, L. & Richardson, G. A. (2017) Impact of specialist rehabilitation services on hospital length of stay and associated costs, The European Journal of Health Economics https://doi.org/10.1007/s10198-017-0952-0French E, McCauley J, Aragon J, Bakx P,
Chalkley M, Chen S, Christensen BJ, Huang H, Cote-Sergent A, De Nardi M, Echevin D, Fan E, Geoffard G, Gastaldi-Menager C, Gortz M, Ibuka Y, Izumida N, Jones JB, Kallestrup-Lamb M, Karisson M, Klein T, de Lagasnerie G, Michaud P, O’Donnell O, Ohtsu Y, Rice N, Skinner J, van Doorslaer E, Ziebarth NR, Kelly E. End-of-Life Medical Spending in Last Twelve Months of Life is Lower Than Previously Reported. Health Affairs 2017;36(7):1211-1217.
Howdon D, Rice N. Health care expenditures, age, proximity to death and morbidity: implications for an ageing population. Journal of Health Economics, In press (accepted 31 October 2017).
Chalkley M, McCormick B, Anderson R, Aragon MJ, Nessa N, Nicodemo C, et al. Elective hospital admissions: secondary data analysis and modelling with an emphasis on policies to moderate growth. Health Serv Deliv Res 2017;5(7), https://www.journalslibrary.nihr.ac.uk/hsdr/hsdr05070/#/abstract, 2017.
(accepted for publication) Aragon MJ, Chalkley M, How do time trends in in-hospital mortality compare? A retrospective study of England and Scotland over 17 years using administrative data, BMJ Open
Patton, T., Gutacker, N. & Shah, K. 2016. Putting the P back into PROMs - using patient valuations of EQ-5D health states to improve hospital performance comparisons. Health and Quality of Life Outcomes, 15(Suppl 1):185.
Project 3:
Reichert, A. & Jacobs, R. (2017) Socioeconomic inequalities in duration of untreated psychosis: Evidence from administrative data in England, Psychological Medicine, doi: https://doi.org/10.1017/S0033291717002197.
Moran, V. & Jacobs, R. (2017) Investigating the relationship between costs and outcomes for English mental health providers: A bi-variate multi-level regression analysis, The European Journal of Health Economics, doi: 10.1007/s10198-017-0915-5.
Moran, V. & Jacobs, R. (2017) Costs and performance of English mental health providers, The Journal of Mental Health Policy and Economics, 20: 83-94.
Longo, F., Siciliani, L., Gravelle, H., Santos, R. Do hospitals respond to rivals’ quality and efficiency? A spatial panel econometric analysis. Health Economics. 2017; 26(S2) 38-62. DOI:10.1002/hec.356. See also CHE Research Paper 144
Dusheiko, M., Gravelle, H. Choosing and booking – and attending? Impact of an electronic booking system on outpatient referrals and non-attendances. Health Economics. DOI:10.1002/hec.3552. 2017.
Gaughan, J., Gravelle, H., Santos, R., Siciliani, L. Long term care provision, hospital length of stay and discharge destination for hip fracture and stroke patients. International Journal of Health Economics and Management. 2017. DOI 10.1007/s10754-017-9214-z
Gaughan, J., Gravelle, H., Siciliani, L. Delayed discharges and hospital type: evidence from the English NHS. Fiscal Studies. 2017; 38, 5, 495-519. See also CHE Research Paper 133.
Moscelli, G., Gravelle, H., Siciliani, L. The effect of hospital ownership on quality of care: evidence from England. CHE Research Paper 145.
Project 4:
Cookson, R, Mondor, L, Asaria, M, Kringos, DS, Klazinga, NS & Wodchis, WP 2017, 'Primary care and health inequality: Difference-in-difference study comparing England and Ontario' PloS One, 12(11), e0188560. https://doi.org/10.1371/journal.pone.0188560
Moscelli, G., Siciliani, L., Gutacker, N., & Cookson, R. (2017). Socioeconomic inequality of access to healthcare: Does choice explain the gradient? Journal of Health Economics. doi: https://doi.org/10.1016/j.jhealeco.2017.06.005
Barratt, H., M. Asaria, J. Sheringham, P. Stone, R. Raine and R. Cookson (2017). "Dying in hospital: socioeconomic inequality trends in England." Journal of Health Services Research & Policy: 1-6 10.1177/1355819616686807
Sheringham, J., Asaria, M., Barratt, H., Raine, R., & Cookson, R. (2017). Are some areas more equal than others? Socioeconomic inequality in potentially avoidable emergency hospital admissions within English local authority areas. Journal of Health Services Research & Policy. Vol. 22(2) 83–90. http://journals.sagepub.com/doi/abs/10.1177/1355819616679198
Project 5:
Gutacker N, Street AD. Multidimensional Performance Assessment of Public Sector Organisations Using Dominance Criteria. Health Economics,2017. doi: 10.1002/hec.3554.
Gutacker, N. & Street, A. 2017. Use of large-scale HRQoL datasets to generate individualised predictions and inform patients about the likely benefit of surgery, Quality of Life Research, 26(9): 2497-2505.
Presentations given in 2017 by project:
Project 1
Presentation: Thinking about Selection and Productivity, DREAMS Workshop, University of York, December 2017 by Castelli A.
Project 2
Presentation: The role of EQ-5D value sets based on patient preferences in the context of hospital choice in the national PROM programme in England. 34rd EuroQol Group Scientific Plenary, Barcelona, Germany, Sep 2017.
Presentation: Putting the P back in PROMs. PROMs Research Conference, Oxford, UK, July 2017.
Project 3
Presentation: Quality in primary care: is it possible to identify peer effects among English GP practices? (work with Hugh Gravelle and Nigel Rice), Health Economics seminar series, Manchester, 22nd May 2017; Second Spatial Econometrics Advanced Institute Alumni Reunion, Rome, 26th May 2017 and Centre of Expertise Healthwise, Faculty of Economics and Business, Groningen, 1st June 2017.
Project 5
Presentation: Gaughan, J, Grasic, K, Gutacker, N, Siciliani, L, & Street, AD. The effects of Best Practice Tariffs on the provision of elective and emergency day cases. Health Economists' Study Group, Birmingham. 4-6 January 2017.
Presentation: Liu, D, Kasteridis, P, Goddard, M, Jacobs, R, Wittenberg, R, & Mason, A. Mind the gap! The impact of incentives to reduce underdiagnosis in people with dementia. Health Economists' Study Group, Birmingham. 4-6 January 2017.
Presentation: Moscelli, G, Jacobs, R, Gutacker, N, Mason, A, Aragon, MJ, Chalkley, M & Boehnke, J. Clustering of mental health patients for payment: does the hospital matter? Evidence from English mental health providers. International Health Policy Conference. LSE, London, 16-19 February 2017.
Presentation: Gaughan J, Kasteridis P, Mason A, Street A. Waits in A&E Departments of the English NHS. Health Economists' Study Group, Aberdeen, 28-30 June 2017.
Benefits reported
Project 1 - The primary output from this ongoing project is the production each year of an annual update to national NHS productivity figures that incorporates the most recent financial year of data. In 2017, the annual update was produced for the DHSC and, as in other years, was used by them externally and internally in monitoring, informing policy debate, the annual spending review and negotiations on budget setting. Under this project, CHE also provided data about the quality of NHS care to the Office of National Statistics that are used each year in the construction of the national accounts. In 2017, additional analyses on hospital level productivity were produced for the DHSC, examining the factors underlying variation in productivity, which assists the DHSC in exploring how to get the best value from NHS resources.
Project 2 - This project has produced a range of evidence that allows the DHSC and other organisations to understand and plan expenditure on different aspects of NHS care, to account for changes in activity and also to understand aspects of quality of care, First, it has investigated the drivers of health care expenditure, disentangling the influence of age, morbidity and proximity to death on the level of expenditure. This has important implications for the DHSC in terms of planning and for the design of the resource allocation formulae used to distribute the healthcare budget, Second, it has explored several aspects of activity in the secondary care sector, for instance, policies for moderating growth in elective admissions and how the provision of specialist rehabilitation services affect the duration and costs of hospital care. It has also looked at the use of patient valuation of the care they receive as a way of measuring the quality of hospital care. Third, it has investigated in-hospital mortality trends over time. These insights allow policy makers to appreciate the costs and the benefits of NHS provision and to plan for more effective and efficient care.
Project 3 - The research in this project has evaluated whether the way in which the NHS is organised can affect the costs and outcomes of services to help inform policy decisions. In 2017, the research has produced evidence on a number of issues in mental health, including the relationship between costs and quality and socio-economic inequalities in access to care. Other examples include the production of evidence on the impact of the electronic booking system on referrals and non-attendances and the investigation of reasons for delayed discharges from hospital, both of which are important in terms of planning future organisation of care.
Project 4 - This project has continued to investigate inequities in access, costs and outcomes and in 2017, further evidence relating to access, avoidable emergency hospital admissions and in-hospital mortality has been produced. This has added to knowledge of how to improve health and healthcare for vulnerable populations.
Project 5 – In 2017, previous research on patient-assessed outcomes was extended (by working with Vale of York CCG) to generate a web tool to support discussions between patients and their GPs about whether to undergo planned surgery. The on-line tool, aftermysugery.org.uk can be used by patients and their GPs, who input basic demographic data and fill in a pre-operative health status questionnaire. The webtool then returns a predicted post-operative health status, together with national comparator data, displayed in various visual formats. This information is designed to a) help patients decide whether they feel the expected health improvement is sufficiently high to make having the operation worthwhile, b) inform patients about the likelihood of a negative outcome, and c) provide information about which hospitals secure better outcomes for their patients.
Other strands of the research have established that incentive payments made to GPs to increase the numbers of individuals diagnosed with dementia have been effective, but that there may have been unintended consequences on patient experience and access.
Register history
When this agreement appeared in, or was edited in, each monthly edition of the register. Built by comparing every edition this site holds, the earliest of which is July 2021.
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July 2021 —
already listed in the earliest edition this site holds, so it may be older. 2 versions: DARS-NIC-84254-J2G1Q-v2.13, DARS-NIC-84254-J2G1Q-v3.9
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October 2021
Amended DARS-NIC-84254-J2G1Q-v3.9
- Datasets: + HES-ID to MPS-ID HES Accident and Emergency; + HES-ID to MPS-ID HES Admitted Patient Care; + HES-ID to MPS-ID HES Outpatients
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March 2022
1 version added: DARS-NIC-84254-J2G1Q-v4.5
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April 2022
Amended DARS-NIC-84254-J2G1Q-v4.5
- Datasets: + HES-ID to MPS-ID HES Accident and Emergency
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December 2022
Register-wide edit DARS-NIC-84254-J2G1Q-v2.13 — Datasets: legal basis: “
s261(1) and” taken out. Made to 639 agreements in this edition, so it is reported once, on the changes page, and not counted as an amendment of this agreement. -
January 2023
1 no longer listed: DARS-NIC-84254-J2G1Q-v4.5
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February 2023
1 version added: DARS-NIC-84254-J2G1Q-v4.5
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March 2023
1 version added: DARS-NIC-84254-J2G1Q-v5.3
"Amended in place" means NHS England changed the record without issuing a new version number. The register publishes no changelog for those edits; this site infers them by comparing editions. An edit is attributed to the edition it first appears in, not to the date it was made.
Cite this page
NHS England (2026) Data Uses Register, September 2026 edition, agreement DARS-NIC-84254-J2G1Q, “Economic Analyses of Health and Social Care -Evaluation of differences in the performance of health care providers in terms of the amount and cost of provision and in patient outcomes including mortality and self-reported morbidity;”. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/agreements/dars-nic-84254-j2g1q/ (accessed [date]).
This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.
Source: datausesregister_september2026.xlsx, September 2026 edition of the NHS England Data Uses Register. Search that workbook for DARS-NIC-84254-J2G1Q to see the original rows.