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A request to HOLD and NOT process the previously approved Pillar 2 testing data

Genome Research Limited · Research

In term In term in the September 2026 edition: the latest version runs to 19 February 2027.

Reference
DARS-NIC-411813-H0T2W
Current version
v3.6
Term of current version
20 February 2026 to 19 February 2027
Start date
2 November 2020
Data controller
Sole Data Controller
Commercial purposes
No
Sublicensing
No
Files released to date
0

Why the data was released

Objective for processing

Genome Research Limited (also known as the Wellcome Sanger Institute) is a wholly owned subsidiary of the Wellcome Trust, funded by them to carry out genome sequencing to advance understanding of the biology of humans and pathogens in order to improve human health.

Genome Research Limited is a charity focused on doing research for societal benefit, and the Covid surveillance project falls within that mission. They will therefore not be seeking to commercially benefit from the project. While Genome Research Limited's reputation may be enhanced by its participation, as a charity that does not translate into commercial benefits.

Genome Research Limited is working to fully understand the transmission and evolution of the virus which requires sequencing and analysing viral genomes at scale and speed. The number of samples calls for a rapid and robust increase in the UK’s pathogen genome sequencing capacity.

To provide this increased capacity to collect, sequence and analyse the whole genomes of virus samples in the UK, (COG-UK) is pooling the knowledge and expertise in genomics of the four UK Public Health Agencies, multiple regional University hubs, and large sequencing centres such as the Wellcome Sanger Institute.

By sequencing thousands of viral genomes from around the UK each week, Genome Research Limited will help public health authorities detect and respond faster to super-spreading events, and monitor for new mutations associated with resistance to vaccines once they are deployed. Because the utility of these sequences is directly tied to how fast they can be produced, it is important to have immediate access to the basic data fields needed to pick them for sequencing from the hundreds of thousands of tests conducted each week.

By linking the viral DNA sequences to a subset of the Pillar 2 data Genome Research Limited will enable Public Health agencies to be able highlight geographic hotspots of various strains of the coronavirus.

Processing activities

This DSA permits processing of the Data for the purpose of secure storage and back up.

This DSA does not permit any further processing.

Sanger will receive a data set from NHS England that contains a list of the positive COVID samples IDs and a subset of associated metadata. This will be de-identified by NHS England to an agreed level prior to it being received by Sanger. Sanger will download the dataset multiple times a day and apply algorithms to identify samples that are of interest and should be sequenced based upon a ranking system. A list of sample IDs will then be distributed to the required Sanger systems in order to enable the proposed use-cases.

The data will then be used to select a geographically representative set of samples (identified by the specimen ID) with sufficient viral material for sequencing each week. The sequences, dates and outer postcodes are linked and deposited in the MRC-CLIMB database and returned in reports to the Public Health Agencies.

Genome Research Ltd stores Data on the Cloud provided by Google UK Ltd.

Expected output

The viral sequences, sample dates and outer postcode are uploaded to the MRC-CLIMB database, which has separate agreements with the Public Health Agencies.

Wellcome Sanger Institute produces reports and a database which is available directly to the Public Health Agencies, and Test and Trace

Expected measurable benefits

The viral genome sequencing and analysis will help in the post-winter peak phase of the pandemic to maintain as much control as possible for as long as possible by:

1. Detecting superspreading events via their very different genomic footprint than diffuse community transmission. Genome Research Limited are already working with the four Public Health Agencies and intend to provide the data feed to Test & Trace so they can find these events fast, and respond, for example, via enhanced contract tracing.

2. Monitoring for instances where vaccines are not effective. Vaccines will create selective pressure on the virus to mutate and evade them. Detecting these changes as early as possible will empower decision making on which vaccines to deploy and when.

3. Providing support to rapid outbreak response to specific queries from Public Health Agencies where sequences are deemed essential and informative to the epidemic response.

Benefits reported so far

Not stated in the register.

Datasets on the current version

Legal basis for provision: Other-(Regulation 3 of the associated Health Service (Control of Patient Information) Regulations 2002) and Paragraph 8.3.2 of the CV19 directions.

Datasets approved under DARS-NIC-411813-H0T2W-v3.6
DatasetType of dataSensitivity FrequencyConfidential data
COVID-19 UK Non-hospital Antigen Testing Results (Pillar 2) Identifiable Sensitive Ongoing Statutory exemption to flow confidential data without consent

Files released

Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.

No files recorded as released under this agreement.

Version history

The register lists each renewal of this agreement as a separate row. This site has 4 versions.

DARS-NIC-411813-H0T2W-v3.6 20 February 2026 to 19 February 2027
Title
A request to HOLD and NOT process the previously approved Pillar 2 testing data
Commercial
No
Sublicensing
No
Datasets
1
Files released
0

Datasets: COVID-19 UK Non-hospital Antigen Testing Results (Pillar 2)

What changed from DARS-NIC-411813-H0T2W-v2.2

Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.

Fields changed from DARS-NIC-411813-H0T2W-v2.2
FieldWasBecame
TitleA request for Pillar 2 testing dataA request to HOLD and NOT process the previously approved Pillar 2 testing data
Applicant organisationWELLCOME SANGER INSTITUTEGENOME RESEARCH LIMITED
Start date2023-01-132026-02-20
End date2023-11-012027-02-19

Processing activities

As part of an agreement with Public Health England, Genome Research Limited receive the viral samples for sequencing and, under this agreement, will receive the relevant anonymised Pillar 2 testing data hourly. This DSA permits processing of the Data for the purpose of secure storage and back up. Sanger will receive a data set from NHS Digital that contains a list of the positive COVID samples IDs and a subset of associated metadata. This will be de-identified by NHS Digital to an agreed level prior to it being received by Sanger. Sanger will download the dataset multiple times a day and apply algorithms to identify samples that are of interest and should be sequenced based upon a ranking system. A list of sample IDs will then be distributed to the required Sanger systems in order to enable the proposed use-cases. This DSA does not permit any further processing. Sanger will receive a data set from NHS England that contains a list of the positive COVID samples IDs and a subset of associated metadata. This will be de-identified by NHS England to an agreed level prior to it being received by Sanger. Sanger will download the dataset multiple times a day and apply algorithms to identify samples that are of interest and should be sequenced based upon a ranking system. A list of sample IDs will then be distributed to the required Sanger systems in order to enable the proposed use-cases. [1 paragraph unchanged] Genome Research Ltd stores Data on the Cloud provided by Google UK Ltd.

Unchanged: Objective for processing, Expected output, Expected measurable benefits.

DARS-NIC-411813-H0T2W-v2.2 13 January 2023 to 1 November 2023
Title
A request for Pillar 2 testing data
Commercial
No
Sublicensing
No
Datasets
1
Files released
0

Datasets: COVID-19 UK Non-hospital Antigen Testing Results (Pillar 2)

What changed from DARS-NIC-411813-H0T2W-v1.2

Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.

Fields changed from DARS-NIC-411813-H0T2W-v1.2
FieldWasBecame
Start date2020-11-022023-01-13
COVID-19 UK Non-hospital Antigen Testing Results (Pillar 2): legal basisCV19: Regulation 3 (4) of the Health Service (Control of Patient Information) Regulations 2002Other-(Regulation 3 of the associated Health Service (Control of Patient Information) Regulations 2002) and Paragraph 8.3.2 of the CV19 directions.

Unchanged: Objective for processing, Processing activities, Expected output, Expected measurable benefits.

Objective for processing

Genome Research Limited (also known as the Wellcome Sanger Institute) is a wholly owned subsidiary of the Wellcome Trust, funded by them to carry out genome sequencing to advance understanding of the biology of humans and pathogens in order to improve human health.

Genome Research Limited is a charity focused on doing research for societal benefit, and the Covid surveillance project falls within that mission. They will therefore not be seeking to commercially benefit from the project. While Genome Research Limited's reputation may be enhanced by its participation, as a charity that does not translate into commercial benefits.

Genome Research Limited is working to fully understand the transmission and evolution of the virus which requires sequencing and analysing viral genomes at scale and speed. The number of samples calls for a rapid and robust increase in the UK’s pathogen genome sequencing capacity.

To provide this increased capacity to collect, sequence and analyse the whole genomes of virus samples in the UK, (COG-UK) is pooling the knowledge and expertise in genomics of the four UK Public Health Agencies, multiple regional University hubs, and large sequencing centres such as the Wellcome Sanger Institute.

By sequencing thousands of viral genomes from around the UK each week, Genome Research Limited will help public health authorities detect and respond faster to super-spreading events, and monitor for new mutations associated with resistance to vaccines once they are deployed. Because the utility of these sequences is directly tied to how fast they can be produced, it is important to have immediate access to the basic data fields needed to pick them for sequencing from the hundreds of thousands of tests conducted each week.

By linking the viral DNA sequences to a subset of the Pillar 2 data Genome Research Limited will enable Public Health agencies to be able highlight geographic hotspots of various strains of the coronavirus.

Expected output

The viral sequences, sample dates and outer postcode are uploaded to the MRC-CLIMB database, which has separate agreements with the Public Health Agencies.

Wellcome Sanger Institute produces reports and a database which is available directly to the Public Health Agencies, and Test and Trace

DARS-NIC-411813-H0T2W-v1.2 2 November 2020 to 1 November 2023
Title
A request for Pillar 2 testing data
Commercial
No
Sublicensing
No
Datasets
1
Files released
0

Datasets: COVID-19 UK Non-hospital Antigen Testing Results (Pillar 2)

What changed from DARS-NIC-411813-H0T2W-v0.7

Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.

Benefits reported

Stated in the previous version and removed here.

Yielded Benefits is not a requirement for new applications.

Unchanged: Objective for processing, Processing activities, Expected output, Expected measurable benefits.

Objective for processing

Genome Research Limited (also known as the Wellcome Sanger Institute) is a wholly owned subsidiary of the Wellcome Trust, funded by them to carry out genome sequencing to advance understanding of the biology of humans and pathogens in order to improve human health.

Genome Research Limited is a charity focused on doing research for societal benefit, and the Covid surveillance project falls within that mission. They will therefore not be seeking to commercially benefit from the project. While Genome Research Limited's reputation may be enhanced by its participation, as a charity that does not translate into commercial benefits.

Genome Research Limited is working to fully understand the transmission and evolution of the virus which requires sequencing and analysing viral genomes at scale and speed. The number of samples calls for a rapid and robust increase in the UK’s pathogen genome sequencing capacity.

To provide this increased capacity to collect, sequence and analyse the whole genomes of virus samples in the UK, (COG-UK) is pooling the knowledge and expertise in genomics of the four UK Public Health Agencies, multiple regional University hubs, and large sequencing centres such as the Wellcome Sanger Institute.

By sequencing thousands of viral genomes from around the UK each week, Genome Research Limited will help public health authorities detect and respond faster to super-spreading events, and monitor for new mutations associated with resistance to vaccines once they are deployed. Because the utility of these sequences is directly tied to how fast they can be produced, it is important to have immediate access to the basic data fields needed to pick them for sequencing from the hundreds of thousands of tests conducted each week.

By linking the viral DNA sequences to a subset of the Pillar 2 data Genome Research Limited will enable Public Health agencies to be able highlight geographic hotspots of various strains of the coronavirus.

Expected output

The viral sequences, sample dates and outer postcode are uploaded to the MRC-CLIMB database, which has separate agreements with the Public Health Agencies.

Wellcome Sanger Institute produces reports and a database which is available directly to the Public Health Agencies, and Test and Trace

DARS-NIC-411813-H0T2W-v0.7 2 November 2020 to 1 November 2023
Title
A request for Pillar 2 testing data
Commercial
No
Sublicensing
No
Datasets
1
Files released
0

Datasets: COVID-19 UK Non-hospital Antigen Testing Results (Pillar 2)

Objective for processing

Genome Research Limited (also known as the Wellcome Sanger Institute) is a wholly owned subsidiary of the Wellcome Trust, funded by them to carry out genome sequencing to advance understanding of the biology of humans and pathogens in order to improve human health.

Genome Research Limited is a charity focused on doing research for societal benefit, and the Covid surveillance project falls within that mission. They will therefore not be seeking to commercially benefit from the project. While Genome Research Limited's reputation may be enhanced by its participation, as a charity that does not translate into commercial benefits.

Genome Research Limited is working to fully understand the transmission and evolution of the virus which requires sequencing and analysing viral genomes at scale and speed. The number of samples calls for a rapid and robust increase in the UK’s pathogen genome sequencing capacity.

To provide this increased capacity to collect, sequence and analyse the whole genomes of virus samples in the UK, (COG-UK) is pooling the knowledge and expertise in genomics of the four UK Public Health Agencies, multiple regional University hubs, and large sequencing centres such as the Wellcome Sanger Institute.

By sequencing thousands of viral genomes from around the UK each week, Genome Research Limited will help public health authorities detect and respond faster to super-spreading events, and monitor for new mutations associated with resistance to vaccines once they are deployed. Because the utility of these sequences is directly tied to how fast they can be produced, it is important to have immediate access to the basic data fields needed to pick them for sequencing from the hundreds of thousands of tests conducted each week.

By linking the viral DNA sequences to a subset of the Pillar 2 data Genome Research Limited will enable Public Health agencies to be able highlight geographic hotspots of various strains of the coronavirus.

Expected output

The viral sequences, sample dates and outer postcode are uploaded to the MRC-CLIMB database, which has separate agreements with the Public Health Agencies.

Wellcome Sanger Institute produces reports and a database which is available directly to the Public Health Agencies, and Test and Trace

Benefits reported

Yielded Benefits is not a requirement for new applications.

Register history

When this agreement appeared in, or was edited in, each monthly edition of the register. Built by comparing every edition this site holds, the earliest of which is July 2021.

Cite this page

NHS England (2026) Data Uses Register, September 2026 edition, agreement DARS-NIC-411813-H0T2W, “A request to HOLD and NOT process the previously approved Pillar 2 testing data”. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/agreements/dars-nic-411813-h0t2w/ (accessed [date]).

This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.

Source: datausesregister_september2026.xlsx, September 2026 edition of the NHS England Data Uses Register. Search that workbook for DARS-NIC-411813-H0T2W to see the original rows.