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Assuring Transformation

No longer in the register. This agreement was last published in the January 2023 edition and was not in the February 2023 edition. NHS Digital merged into NHS England on 1 February 2023, and agreements within the merged organisation moved to a separate internal register, so this agreement most likely moved rather than ended. This page shows what the register last said, and it is not counted in this site's figures.

NHS England (Quarry House) · Agency/Public Body

Listed under NHS England.

Reference
DARS-NIC-389823-P1P6B
Latest version
v9.5
Term of latest version
13 July 2022 to 12 July 2024
Start date
Before 1 April 2019
Data controller
Sole Data Controller
Commercial purposes
No
Sublicensing
Yes
Files released to date
0

Why the data was released

Objective for processing

The Department of Health published 'Transforming Care: A national response to Winterbourne View Hospital and the Concordat: Programme of Action' in December 2012. The review of services received indicated that failings were widespread within the operating organisation, but importantly, also evident across the wider care system. The Concordat and 63 actions detailed within the review seek to address poor and inappropriate care and achieve the best outcomes for people with a learning disability or autism, who may also have mental health needs or behaviour that challenges.

Assuring Transformation is an information standard incorporating a mandatory data collection that has been developed in response to Transforming Care: A national response to Winterbourne View Hospital and Winterbourne View Review: Concordat: A Programme of Action.

The NHS Long term plan continues the commitment to reduce the reliance on inpatient care for patients with a learning disability, autism or both.

This data collection informs NHS England and Improvement's (NHSE&I) monitoring of the progress in moving people with a learning disability from in-patient to community settings.

(a) Use monthly Assuring Transformation (AT) data to derive performance and quality indicators for Learning Disability services, in order to drive improvements in the services and to identify where good/poor practice is taking place. Analysis will be carried out by NHSE&I analysts (as data controller and data processor). The analysts will use the fully identifiable data set to produce useful analysis for NHSE&I managers and Learning Disabilities (LD) Programme staff. The analysis they produce will not include identifiable information.

(b) Use timely operational management information, to allow NHSE&I to monitor and manage delivery of Transforming Care improvements to care for people with a learning disability, behaviour that challenges or people on the autism spectrum. Unsuppressed small numbers are included in this data set to ensure that commissioners are carrying out their duties in relation to discharging people with a learning disability who are placed inappropriately in hospital. Each Clinical Commissioning Group (CCG) is likely to have small numbers in each category and it is important to be able to track if they have reduced their number from e.g. three to two, which unsuppressed numbers do not allow. The operational management report cannot be used for its intended purpose of monitoring commissioner CCG-level activity unless it is populated with unsuppressed data.

NHS Digital will be supplying operational management information reports to NHSE&I on a frequent weekly basis. NHSE&I will not be doing any processing, but will be using the reports as produced by NHS Digital to manage CCG performance.

(c) Use information to effectively plan and deliver transformational change, reducing the reliance on inpatient care for people with a learning disability, autism or both. Planning and delivery is carried out by Transforming Care Partnerships (TCPs)* - CCGs, specialised commissioners and local authorities working together to ensure appropriate and effective services are put in place for this vulnerable group of people. TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This will ensure people with learning disability, autism or both receive effective and appropriate care close to their homes.

To be able to plan and deliver these new services, TCPs need to have reliable detailed data about the people currently in hospital who originate from their CCGs / local authorities. This will allow them to put appropriate services in place for when patients leave hospital, and to ensure the appropriate provider capacity is available for those people that do still require hospital care.

No TCP would see another TCP's unsuppressed data.

The GDPR legal basis is as follows:

Article 6(1)(e): processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Article 9(2)(h): processing is necessary for the purposes of preventive or occupational medicine, for the assessment of the working capacity of the employee, medical diagnosis, the provision of health or social care or treatment or the management of health or social care systems and services on the basis of Union or Member State law or pursuant to contract with a health professional and subject to the conditions and safeguards referred to in paragraph.

Processing activities

Data will not be stored or processed by a third party. Identifiable data is stored in a secure folder with named access to only a small number of analysts. Data processing is only carried out by substantive employees of NHS England who have been appropriately trained in data protection and confidentiality (as required of all NHSE&I employees). Pseudonymised data is stored separately from the key and in secure folders with limited access to named individuals

Assuring Transformation data are collected by NHS Digital through the Clinical Audit Platform (CAP). Data on people with a learning disability, autism or both who are in specialised inpatient care with a mental health problem or behaviour that challenges are supplied by commissioners. The data are updated in real time by commissioners.

A fully identifiable data extract is provided by NHS Digital to NHSE&I each month.

NHS Digital also provide a weekly management information report to NHSE&I containing aggregate data. This data is pre-publication.

There will be no further flows of data.

(a) Monthly data will be analysed to produce aggregate level reports, to allow operational managers to work with challenged organisations to improve delivery and performance against key national indicators. Patient identifiable data will be stored securely and will only be accessible to a small number of named individuals in NHSE&I. Identifiers (i.e. NHS number, DOB and postcode data) will be removed and the data set pseudonymised so that it can be analysed by NHSE analysts. The key linking the pseudonymised data to the NHS number and other identifiable data will be stored securely and separately to the pseudonymised data files.

No other data linkage is currently performed on the data.

(b) NHS Digital supplies operational management information reports to NHSE&I on a weekly basis. NHSE&I will not carry out any processing, but ensures the operational MI reports are provided to the named operational managers, who use the reports generated as produced by NHS Digital to manage CCG performance.

(c) NHSE&I will supply data to TCPs to allow them to plan and deliver transformational change to services for people with a learning disability, autism or both. To allow them to effectively plan and deliver these services they need access to unsuppressed aggregate data (e.g. showing the number of patients originating from the TCP at each hospital site). The data supplied to each TCP will only include information for patients originating from that TCP and will not include NHS number, date of birth or home postcode.

NHS Midlands and Lancashire Commissioning Support Unit (CSU), who is carrying out additional processing regionally on behalf of the data controller, use Cloud based processing and therefore will use Microsoft Azure Cloud as a processing location. Microsoft UK provide Cloud Services for Midlands and Lancashire (CSU) and are therefore listed as a data processor. They supply support to the system, but do not access data. Therefore, any access to the data held under this agreement would be considered a breach of the agreement. This includes granting of access to the database[s] containing the data.

Lima Networks supply IT infrastructure and are therefore listed as a data processor. They supply support to the system, but do not access data. Therefore, any access to the data held under this agreement would be considered a breach of the agreement. This includes granting of access to the database[s] containing the data.

NHS Digital reminds all organisations party to this agreement of the need to comply with the Data Sharing Framework Contract requirements, including those regarding the use (and purposes of that use) by “Personnel” (as defined within the Data Sharing Framework Contract ie: employees, agents and contractors of the Data Recipient who may have access to that data).

Expected output

(a) Outputs are aggregated analyses, used for management of the Learning Disability and Autism programme. The monthly data and analysis allow the national team, regional leads and local operational managers to ensure commissioners are delivering national performance indicators, and to intervene when they are not.

b) The operational, pre-publication, aggregate Management Information weekly (MI) outputs will only be available within NHSE&I. No other organisations will have access to this data. This information will not be used or shared outside NHSE&I.

Analysis will not be published in journals or be used in relation to clinical trials, nor used for direct marketing. Performance dashboards and other analysis will be used internally and with commissioners once the Management Information has been published by NHS Digital. These will be in aggregated with small numbers suppressed only.

(c) Aggregate, unsuppressed reports will be provided (e.g. showing the numbers of patients at each provider site, the number of patients at each level of ward security and the numbers of patients in hospital split by length-of-stay groups). This data will be used to support patient care, plan services, monitor performance and other work enabling the programme to deliver on commitments for people with a learning disability and autistic people .

Sharing of small number unsuppressed data by NHSE&I to a limited number of types of NHS and Social Care Organisations is permitted where it is controlled by individual terms and conditions of use. The limited types of organisation are:-

- NHS providers and Provider Collaboratives (Foundation Trusts/FTs and independent providers)

- Department of Health and Social Care and their Arms Length Bodies

- Commissioners of NHS care (e.g. Clinical Commissioning Groups, public health commissioners within a Local Authority, Integrated Care Systems (ICSs), STPs)

- Care Quality Commission

- Organisational members of Transforming Care Partnerships (e.g. Local Authorities)

- Commissioning Support Units.

- other organisations as agreed by NHS Digital

Some examples of where small numbers may need to be shared are where; without small numbers the metrics are meaningless as they do not provide the necessary level of insight needed to drive improvements; suppression has had a huge impact on the accuracy of the metrics; metrics become obscured meaning the metrics are not useful in being able to make peer comparisons.

Some use cases include:

• Using information to plan and deliver effective transformational change, reducing the reliance on inpatient care for people with a learning disability, autism or both. Planning and delivery is carried out by ICSs or TCPs. ICSs/TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This ensures people with a learning disability, autism or both receive effective and appropriate care close to their homes. To be able to plan and deliver these services, TCPs have access to unsuppressed aggregate data about the people currently in hospital who originate from their CCGs / local authorities. This allows them to put appropriate services in place for when patients leave hospital, and to ensure the appropriate provider capacity is available for those people that do still require hospital care.

• Using monthly Assuring Transformation data/metrics to support regional meetings between NHSE&I and partner organisations with a focus on reviewing performance and driving improvement and where low level activity data is vital to make ͚ decisions about delivery of care activities/addressing unwarranted variations.

• Supporting meetings with providers of inpatient care to be able to effectively plan the safe discharge/transfer of patients.

• Ensuring patients receive Care (Education) and Treatment Reviews (C(E)TRs) in accordance with the timescales outlined in national guidance. CSUs are responsible for arranging C(E)TRs in some parts of the country, so sharing aggregate, unsuppressed information about how many patients are recorded on AT and eligible for C(E)TRs will help CSUs and NHSE&I to ensure all patients are accounted for. C(E)TRs are a key part of NHSE&I’s commitment to transforming services for people with a learning disability, autism or both.

Furthermore, a defined set of metrics where presentation of denominator and numerator information (with the small risk of being able to work back to a small number) is essential for peer and national benchmarking and reducing unwarranted variations. By including numerators and denominators ICSs/TCPs and commissioners can see the volume of their activity that each metric relates to. For example, if the admission rate for one TCP is particularly high, but the actual number of admissions is low over a year it might be less of a focus than a lower admission rate for a larger ICS/TCP where the number of admissions is high in a year.

Expected measurable benefits

(a) The data gives insight at organisational (provider/commissioner) level, providing operational managers with the evidence base through which to drive improvements in services and patient experience. Without this evidence base targeted work to improve services and patient experience cannot take place. The information will be used day-to-day, to reduce the reliance on inpatient care and to manage the safe discharge of current inpatients to the community. This will ensure that people with a learning disability and autistic people are only in hospital for as long is needed and not spending unnecessary time away from their homes and community. The data also enables performance management of commitments in the NHS Long Term Plan

Commissioners have developed trajectories to reduce inpatient numbers. The data enables performance management of these trajectories at a national, regional and local level as well as by patient group (e.g. young people, long stay patients). Performance against trajectories is monitored closely so that prompt action can be taken where performance deviates from trajectory.

A revised Care and Treatment Review (CTR) Policy took effect from 1 April 2017 changing the frequency and timescales expected of CTRs. CTRs are used by commissioners for people living in the community and in learning disability and mental health hospitals. They are helping to reduce the number of people going into these hospitals as well as to improve the quality of care people receive in hospital. Baselines for the new CTR standards were calculated using AT data and performance is being monitored against these standards on the quarterly basis using data from AT.

Analysis of the Assuring Transformation data is providing insight to inform decision making and strategy. For example, analysis of data on children and young people is informing the focus of the work of the Children and Young People’s Steering group on Transforming Care.

(b) Detailed and timely information is required by TCPs to plan and commission effectively. Transforming Care Partnerships (TCPs) use the data to effectively plan and commission appropriate services, and to reduce the reliance on inpatient care.

(c) TCP data packs* provide essential information that enables patients to be moved from inappropriate inpatient facilities to community care which is closer to home and more appropriate to each individual's needs, improving their quality of life. More effective commissioning of any required inpatient services will save the NHS money, reducing the need for spot-purchasing of care and lengthy block contracts with providers.

The data already received by NHSE&I has allowed them to carry out detailed analysis to support delivery of the Transforming Care programme, in particular the objective of reducing the reliance on inpatient care. NHSE&I has been able to monitor patients at commissioner level, and identify blockages which are preventing patients being discharged.

NHSE&I has also been able to carry out specific pieces of analysis, such as detailed work on the under 18 age group which has contributed to the reduction in the number of under 18 patients and a focus on children with autism.

NHSE&I has also undertaken focused analysis to support work to reduce inpatient admissions and readmissions (e.g. in identifying areas with higher rates of admissions/readmissions).

The AT data is also used to report on key indicators to measure programme performance against commitments outlined in the Long Term Plan.

New data now included in the collection will enable NHSE&I have improved oversight of quality of patent care (e.g. through new data on the use of restrictive interventions, commissioner oversight visits and key workers).

Benefits reported so far

Data is feeding into key indicators for the Long Term Plan and enabling senior managers and the programme to effectively monitor progress against commitments.

The data has provided operational managers with the evidence base through which to drive improvements in services and patient experience, to reduce the reliance on inpatient care and to manage the safe discharge of inpatients to the community.

Commissioners have been able to monitor progress against planned trajectories for reductions in inpatient numbers and take prompt action when performance has fallen below expectation.

AT data has been used as the baseline to monitor performance against the Care, Education and Treatment Review (CETR) Policy , helping to reduce the number of people going into hospitals as well as to improve the quality of care people receive in hospital.

Transforming Care Partnerships (TCPs) and ICSs have been able to use the data to effectively plan and commission appropriate services, and to reduce the reliance on inpatient care. More effective commissioning of any required inpatient services will save the NHS money, reducing the need for spot-purchasing of care and lengthy block contracts with providers.

NHSE&I has been able to monitor patients at commissioner level and identify blockages which are preventing patients being discharged.

AT data has also:

• Provided information on commissioner oversight visits and whether these are being undertaken within the timescales required. This has enabled NHSE&I to follow-up with commissioners where visits are not being undertaken with the frequency required.

• Given insight into why patients are being admitted to hospital for treatment and highlighted differences in reasons for admission between different groups of patients Yes

• Improved understanding of the extent to which patients are diagnosed with a learning disability or autism after admission to hospital

• Provided information the whether patients are on dynamic support register prior to admission and where additional work may be required to improve register coverage

• Information on preparation for discharge is enabling NHSE&I to work with commissioners to unblock barriers to discharge.

• Enables improved monitoring of compliance with C(E)TR standards

Datasets on the latest version

Legal basis for provision: Health and Social Care Act 2012 – s261(7); Health and Social Care Act 2012 - s261 - 'Other dissemination of information'

Datasets approved under DARS-NIC-389823-P1P6B-v9.5
DatasetType of dataSensitivity FrequencyConfidential data
Assuring Transformation (Identifiable) Identifiable Non-Sensitive Ongoing Section 251 NHS Act 2006
Assuring Transformation (Pseudo) Anonymised - ICO Code Compliant Non-Sensitive One-Off Section 251 NHS Act 2006

Files released

Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.

This agreement permits sublicensing: the applicant may pass data on to others. Anything passed on is not recorded in this register.

No files recorded as released under this agreement.

Version history

The register lists each renewal of this agreement as a separate row. This site has 5 versions — earlier versions existed before this site's records begin.

DARS-NIC-389823-P1P6B-v9.5 13 July 2022 to 12 July 2024
Title
Assuring Transformation
Commercial
No
Sublicensing
Yes
Datasets
2
Files released
0

Datasets: Assuring Transformation (Identifiable); Assuring Transformation (Pseudo)

What changed from DARS-NIC-389823-P1P6B-v8.3

Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.

Fields changed from DARS-NIC-389823-P1P6B-v8.3
FieldWasBecame
Start date2021-04-132022-07-13
End date2022-04-122024-07-12
Assuring Transformation (Pseudo): legal basisHealth and Social Care Act 2012 – s261(2)(b)(ii)Health and Social Care Act 2012 - s261 - 'Other dissemination of information'

Objective for processing

This amended agreement is to change the dissemination frequency for the Assuring Transformation Tabulation (Pseudo) - Operational Management Information data product from monthly to weekly. [3 paragraphs unchanged] This data collection informs NHS England's England and Improvement's (NHSE&I) monitoring of the progress in moving people with a learning disability from in-patient to community settings. (a) Use monthly Assuring Transformation (AT) data to derive performance and quality [16 words unchanged] where good/poor practice is taking place. Analysis will be carried out by NHS England NHSE&I analysts (as data controller and data processor). The analysts will use the fully identifiable data set to produce useful analysis for NHSE (NHS England) NHSE&I managers and Learning Disabilities (LD) Programme staff. The analysis they produce will not include identifiable information. (b) Use timely operational management information, to allow NHSE NHSE&I to monitor and manage delivery of Transforming Care improvements to care for [36 words unchanged] people with a learning disability who are placed inappropriately in hospital. Each CCG Clinical Commissioning Group (CCG) is likely to have small numbers in each category and it is [34 words unchanged] of monitoring commissioner CCG-level activity unless it is populated with unsuppressed data. NHS Digital will be supplying operational management information reports to NHSE NHSE&I on a frequent weekly basis. NHSE NHSE&I will not be doing any processing, but will be using the reports as produced by NHS Digital to manage CCG performance. [6 paragraphs unchanged]

Processing activities

Data will not be stored or processed by a third party. Identifiable [31 words unchanged] been appropriately trained in data protection and confidentiality (as required of all NHSE NHSE&I employees). Pseudonymised data is stored separately from the key and in secure folders with limited access to named individuals [1 paragraph unchanged] A fully identifiable data extract is provided by NHSD NHS Digital to NHSE NHSE&I each month. NHSD NHS Digital also provide a weekly management information report to NHSE NHSE&I containing aggregate data. This data is pre-publication. [1 paragraph unchanged] (a) Monthly data will be analysed to produce aggregate level reports, to [25 words unchanged] will only be accessible to a small number of named individuals in NHSE. NHSE&I. Identifiers (i.e. NHS number, DOB and postcode data) will be removed and [26 words unchanged] data will be stored securely and separately to the pseudonymised data files. [1 paragraph unchanged] (b) NHS Digital supplies operational management information reports to NHS England NHSE&I on a weekly basis. NHSE NHSE&I will not carry out any processing, but ensures the operational MI reports [9 words unchanged] the reports generated as produced by NHS Digital to manage CCG performance. (c) NHSE NHSE&I will supply data to TCPs to allow them to plan and deliver [60 words unchanged] and will not include NHS number, date of birth or home postcode. NHS Midlands and Lancashire CSU, Commissioning Support Unit (CSU), who is carrying out additional processing regionally on behalf of the data [13 words unchanged] a processing location. Microsoft UK provide Cloud Services for Midlands and Lancashire CSU (CSU) and are therefore listed as a data processor. They supply support to [24 words unchanged] agreement. This includes granting of access to the database[s] containing the data. [2 paragraphs unchanged]

Expected output

(a) Outputs are aggregated analyses, used for management of the Learning Disabilities Disability and Autism programme. The monthly data and analysis allow the national team, regional leads and local operational managers to ensure commissioners are delivering national performance indicators, and to intervene when they are not. b) The operational operational, pre-publication, aggregate Management Information weekly (MI) outputs will only be available to operational managers within NHSE. NHSE&I. No other organisations will have access to this data. This information will not be used or shared outside NHSE. [Note that this is a weekly output - section 9 of this template does not include 'weekly' as an option in the Frequency table] NHSE&I. [1 paragraph unchanged] (c) Aggregate, unsuppressed TCP- level reports will be provided (e.g. showing the numbers of patients at each [21 words unchanged] length-of-stay groups). This data will be used to support patient care, plan services services, monitor performance and identify services which will be decommissioned as services are transformed other work enabling the programme to deliver on commitments for people with a learning disability and bed numbers are reduced. autistic people . Sharing of small number unsuppressed data by NHSE NHSE&I to a limited number of types of NHS and Social Care Organisations [7 words unchanged] individual terms and conditions of use. The limited types of organisation are:- [2 paragraphs unchanged] - Commissioners of NHS care (e.g. Clinical Commissioning Groups, public health commissioners within a Local Authority, Integrated Care Systems, Systems (ICSs), STPs) - Care Quality Commission [2 paragraphs unchanged] Some examples of where small numbers may need to be shared are where; without small numbers the metrics are meaningless as they do n͛ot provide the necessary level of insight needed to drive improvements; suppression has had a huge impact on the accuracy of the metrics; metrics become obscured meaning the metrics are not useful in being able to make peer comparisons. - other organisations as agreed by NHS Digital Some examples of where small numbers may need to be shared are where; without small numbers the metrics are meaningless as they do not provide the necessary level of insight needed to drive improvements; suppression has had a huge impact on the accuracy of the metrics; metrics become obscured meaning the metrics are not useful in being able to make peer comparisons. [1 paragraph unchanged] • Using information to plan and deliver effective transformational change, reducing the [8 words unchanged] learning disability, autism or both. Planning and delivery is carried out by ICSs or TCPs. TCPs ICSs/TCPs are responsible for the delivery of the transformation of services, reducing the [84 words unchanged] capacity is available for those people that do still require hospital care. As NHSE/I moves to a more system-based approach Sustainability and Transformation Partnerships (STPs) / ICSs may also have a role to play in monitoring performance. Where this is the case, the STP/ICS would need the same access to AT data as the TCP. • Using monthly Assuring Transformation data/metrics to support regional meetings between NHSE NHSE&I and partner organisations with a focus on reviewing performance and driving improvement [7 words unchanged] vital to make ͚ decisions about delivery of care activities/addressing unwarranted variations. • Supporting meetings with providers of inpatient care to be able to effectively plan the safe discharge/transfer of patients. These discussions are currently hampered due to the NHS England’s inability to share its understanding of how many patients are in care at a particular hospital site or with a particular provider. • Ensuring patients receive Care (Education) and Treatment Reviews (C(E)TRs) in accordance [28 words unchanged] are recorded on AT and eligible for C(E)TRs will help CSUs and NHSE NHSE&I to ensure all patients are accounted for. C(E)TRs are a key part of NHSE’s NHSE&I’s commitment to transforming services for people with a learning disability, autism or both. a learning disability, autism or both. Furthermore, a defined set of metrics where presentation of denominator and numerator information (with the small risk of being able to work back to a small number) is essential for peer and national benchmarking and reducing unwarranted variations. By including numerators and denominators ICSs/TCPs and commissioners can see the volume of their activity that each metric relates to. For example, if the admission rate for one TCP is particularly high, but the actual number of admissions is low over a year it might be less of a focus than a lower admission rate for a larger ICS/TCP where the number of admissions is high in a year. Furthermore, a defined set of metrics where presentation of denominator and numerator information (with the small risk of being able to work back to a small number) is essential for peer and national benchmarking and reducing unwarranted variations. By including numerators and denominators TCPs and commissioners can see the volume of their activity that each metric relates to. For example, if the admission rate for one TCP is particularly high, but the actual number of admissions is low over a year it might be less of a focus than a lower admission rate for a larger TCP where the number of admissions is high in a year.

Expected measurable benefits

(a) The data gives insight at organisational (provider/commissioner) level, providing operational managers [50 words unchanged] inpatients to the community. This will ensure that people with a learning disability, autism or both disability and autistic people are only in hospital for as long is needed and not spending unnecessary time away from their homes and community. The data also enables performance management of commitments in the NHS Long Term Plan [5 paragraphs unchanged] The data already received by NHS England NHSE&I has allowed them to carry out detailed analysis to support delivery of the Transforming Care programme, in particular the objective of reducing the reliance on inpatient care. NHS England NHSE&I has been able to monitor patients at commissioner level, and identify blockages which are preventing patients being discharged. NHS England NHSE&I has also been able to carry out specific pieces of analysis, such as detailed work on the u-18 under 18 age group which has contributed to the reduction in the number of u-18 under 18 patients and a focus on children with autism. NHS England NHSE&I has also undertaken focused analysis to support work to reduce inpatient admissions and readmissions (e.g. in identifying areas with higher rates of admissions/readmissions). [1 paragraph unchanged] NHS England have committed to providing more detail on yielded benefits to the patient at time of renewal. New data now included in the collection will enable NHSE&I have improved oversight of quality of patent care (e.g. through new data on the use of restrictive interventions, commissioner oversight visits and key workers).

Benefits reported

[3 paragraphs unchanged] AT data has been used as the baseline to monitor performance against the new Care Care, Education and Treatment Review (CTR) (CETR) Policy which took effect from 1 April 2017, , helping to reduce the number of people going into these hospitals as well as to improve the quality of care people receive in hospital. Transforming Care Partnerships (TCPs) and ICSs have been able to use the data to effectively plan and commission [24 words unchanged] the need for spot-purchasing of care and lengthy block contracts with providers. NHS England NHSE&I has been able to monitor patients at commissioner level and identify blockages which are preventing patients being discharged. NHS England has also been able to carry out specific pieces of analysis, such as detailed work on the u-18 age group. AT data has also: • Provided information on commissioner oversight visits and whether these are being undertaken within the timescales required. This has enabled NHSE&I to follow-up with commissioners where visits are not being undertaken with the frequency required. • Given insight into why patients are being admitted to hospital for treatment and highlighted differences in reasons for admission between different groups of patients Yes • Improved understanding of the extent to which patients are diagnosed with a learning disability or autism after admission to hospital • Provided information the whether patients are on dynamic support register prior to admission and where additional work may be required to improve register coverage • Information on preparation for discharge is enabling NHSE&I to work with commissioners to unblock barriers to discharge. • Enables improved monitoring of compliance with C(E)TR standards

DARS-NIC-389823-P1P6B-v8.3 13 April 2021 to 12 April 2022
Title
Assuring Transformation
Commercial
No
Sublicensing
Yes
Datasets
2
Files released
0

Datasets: Assuring Transformation (Identifiable); Assuring Transformation (Pseudo)

What changed from DARS-NIC-389823-P1P6B-v7.2

Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.

Fields changed from DARS-NIC-389823-P1P6B-v7.2
FieldWasBecame
Start date2020-10-012021-04-13
End date2021-09-302022-04-12

Objective for processing

This amended agreement is to change the dissemination frequency for the Assuring Transformation Tabulation (Pseudo) - Operational Management Information data product from monthly to weekly. [13 paragraphs unchanged]

Processing activities

[11 paragraphs unchanged] NHS Digital reminds all organisations party to this agreement of the need to comply with the Data Sharing Framework Contract requirements, including those regarding the use (and purposes of that use) by “Personnel” (as defined within the Data Sharing Framework Contract ie: employees, agents and contractors of the Data Recipient who may have access to that data).

Unchanged: Expected output, Expected measurable benefits, Benefits reported.

Objective for processing

This amended agreement is to change the dissemination frequency for the Assuring Transformation Tabulation (Pseudo) - Operational Management Information data product from monthly to weekly.

The Department of Health published 'Transforming Care: A national response to Winterbourne View Hospital and the Concordat: Programme of Action' in December 2012. The review of services received indicated that failings were widespread within the operating organisation, but importantly, also evident across the wider care system. The Concordat and 63 actions detailed within the review seek to address poor and inappropriate care and achieve the best outcomes for people with a learning disability or autism, who may also have mental health needs or behaviour that challenges.

Assuring Transformation is an information standard incorporating a mandatory data collection that has been developed in response to Transforming Care: A national response to Winterbourne View Hospital and Winterbourne View Review: Concordat: A Programme of Action.

The NHS Long term plan continues the commitment to reduce the reliance on inpatient care for patients with a learning disability, autism or both.

This data collection informs NHS England's monitoring of the progress in moving people with a learning disability from in-patient to community settings.

(a) Use monthly Assuring Transformation (AT) data to derive performance and quality indicators for Learning Disability services, in order to drive improvements in the services and to identify where good/poor practice is taking place. Analysis will be carried out by NHS England analysts (as data controller and data processor). The analysts will use the fully identifiable data set to produce useful analysis for NHSE (NHS England) managers and Learning Disabilities (LD) Programme staff. The analysis they produce will not include identifiable information.

(b) Use timely operational management information, to allow NHSE to monitor and manage delivery of Transforming Care improvements to care for people with a learning disability, behaviour that challenges or people on the autism spectrum. Unsuppressed small numbers are included in this data set to ensure that commissioners are carrying out their duties in relation to discharging people with a learning disability who are placed inappropriately in hospital. Each CCG is likely to have small numbers in each category and it is important to be able to track if they have reduced their number from e.g. three to two, which unsuppressed numbers do not allow. The operational management report cannot be used for its intended purpose of monitoring commissioner CCG-level activity unless it is populated with unsuppressed data.

NHS Digital will be supplying operational management information reports to NHSE on a frequent weekly basis. NHSE will not be doing any processing, but will be using the reports as produced by NHS Digital to manage CCG performance.

(c) Use information to effectively plan and deliver transformational change, reducing the reliance on inpatient care for people with a learning disability, autism or both. Planning and delivery is carried out by Transforming Care Partnerships (TCPs)* - CCGs, specialised commissioners and local authorities working together to ensure appropriate and effective services are put in place for this vulnerable group of people. TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This will ensure people with learning disability, autism or both receive effective and appropriate care close to their homes.

To be able to plan and deliver these new services, TCPs need to have reliable detailed data about the people currently in hospital who originate from their CCGs / local authorities. This will allow them to put appropriate services in place for when patients leave hospital, and to ensure the appropriate provider capacity is available for those people that do still require hospital care.

No TCP would see another TCP's unsuppressed data.

The GDPR legal basis is as follows:

Article 6(1)(e): processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Article 9(2)(h): processing is necessary for the purposes of preventive or occupational medicine, for the assessment of the working capacity of the employee, medical diagnosis, the provision of health or social care or treatment or the management of health or social care systems and services on the basis of Union or Member State law or pursuant to contract with a health professional and subject to the conditions and safeguards referred to in paragraph.

Expected output

(a) Outputs are aggregated analyses, used for management of the Learning Disabilities programme. The monthly data and analysis allow local operational managers to ensure commissioners are delivering national performance indicators, and to intervene when they are not.

b) The operational Management Information (MI) outputs will only be available to operational managers within NHSE. No other organisations will have access to this data. This information will not be used or shared outside NHSE. [Note that this is a weekly output - section 9 of this template does not include 'weekly' as an option in the Frequency table]

Analysis will not be published in journals or be used in relation to clinical trials, nor used for direct marketing. Performance dashboards and other analysis will be used internally and with commissioners once the Management Information has been published by NHS Digital. These will be in aggregated with small numbers suppressed only.

(c) Aggregate, unsuppressed TCP- level reports will be provided (e.g. showing the numbers of patients at each provider site, the number of patients at each level of ward security and the numbers of patients in hospital split by length-of-stay groups). This data will be used to support patient care, plan services and identify services which will be decommissioned as services are transformed and bed numbers are reduced.

Sharing of small number unsuppressed data by NHSE to a limited number of types of NHS and Social Care Organisations is permitted where it is controlled by individual terms and conditions of use. The limited types of organisation are:-

- NHS providers and Provider Collaboratives (Foundation Trusts/FTs and independent providers)

- Department of Health and Social Care and their Arms Length Bodies

- Commissioners of NHS care (e.g. Clinical Commissioning Groups, public health commissioners within a Local Authority, Integrated Care Systems, STPs)

- Organisational members of Transforming Care Partnerships (e.g. Local Authorities)

- Commissioning Support Units.

Some examples of where small numbers may need to be shared are where; without small numbers the metrics are meaningless as they do n͛ot provide the necessary level of insight needed to drive improvements; suppression has had a huge impact on the accuracy of the metrics; metrics become obscured meaning the metrics are not useful in being able to make peer comparisons.

Some use cases include:

• Using information to plan and deliver effective transformational change, reducing the reliance on inpatient care for people with a learning disability, autism or both. Planning and delivery is carried out by TCPs. TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This ensures people with a learning disability, autism or both receive effective and appropriate care close to their homes. To be able to plan and deliver these services, TCPs have access to unsuppressed aggregate data about the people currently in hospital who originate from their CCGs / local authorities. This allows them to put appropriate services in place for when patients leave hospital, and to ensure the appropriate provider capacity is available for those people that do still require hospital care. As NHSE/I moves to a more system-based approach Sustainability and Transformation Partnerships (STPs) / ICSs may also have a role to play in monitoring performance. Where this is the case, the STP/ICS would need the same access to AT data as the TCP.

• Using monthly Assuring Transformation data/metrics to support regional meetings between NHSE and partner organisations with a focus on reviewing performance and driving improvement and where low level activity data is vital to make ͚ decisions about delivery of care activities/addressing unwarranted variations.

• Supporting meetings with providers of inpatient care to be able to effectively plan the safe discharge/transfer of patients. These discussions are currently hampered due to the NHS England’s inability to share its understanding of how many patients are in care at a particular hospital site or with a particular provider.

• Ensuring patients receive Care (Education) and Treatment Reviews (C(E)TRs) in accordance with the timescales outlined in national guidance. CSUs are responsible for arranging C(E)TRs in some parts of the country, so sharing aggregate, unsuppressed information about how many patients are recorded on AT and eligible for C(E)TRs will help CSUs and NHSE to ensure all patients are accounted for. C(E)TRs are a key part of NHSE’s commitment to transforming services for people with

a learning disability, autism or both.

Furthermore, a defined set of metrics where presentation of denominator and numerator information (with the small risk of being able to work back to a small number) is essential for peer and national benchmarking and reducing unwarranted variations. By including numerators and denominators TCPs and commissioners can see the volume of their activity that each metric relates to. For example, if the admission rate for one TCP is particularly high, but the actual number of admissions is low over a year it might be less of a focus than a lower admission rate for a larger TCP where the number of admissions is high in a year.

Benefits reported

Data is feeding into key indicators for the Long Term Plan and enabling senior managers and the programme to effectively monitor progress against commitments.

The data has provided operational managers with the evidence base through which to drive improvements in services and patient experience, to reduce the reliance on inpatient care and to manage the safe discharge of inpatients to the community.

Commissioners have been able to monitor progress against planned trajectories for reductions in inpatient numbers and take prompt action when performance has fallen below expectation.

AT data has been used as the baseline to monitor performance against the new Care and Treatment Review (CTR) Policy which took effect from 1 April 2017, helping to reduce the number of people going into these hospitals as well as to improve the quality of care people receive in hospital.

Transforming Care Partnerships (TCPs) have been able to use the data to effectively plan and commission appropriate services, and to reduce the reliance on inpatient care. More effective commissioning of any required inpatient services will save the NHS money, reducing the need for spot-purchasing of care and lengthy block contracts with providers.

NHS England has been able to monitor patients at commissioner level and identify blockages which are preventing patients being discharged. NHS England has also been able to carry out specific pieces of analysis, such as detailed work on the u-18 age group.

DARS-NIC-389823-P1P6B-v7.2 1 October 2020 to 30 September 2021
Title
Assuring Transformation
Commercial
No
Sublicensing
Yes
Datasets
2
Files released
0

Datasets: Assuring Transformation (Identifiable); Assuring Transformation (Pseudo)

What changed from DARS-NIC-389823-P1P6B-v6.18

Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.

Fields changed from DARS-NIC-389823-P1P6B-v6.18
FieldWasBecame
Start date2020-04-012020-10-01
End date2020-09-302021-09-30

Objective for processing

The Department of Health published 'Transforming Care: A national response to Winterbourne View Hospital and the Concordat: Programme of Action' in December 2012. The review of services received indicated that failings were widespread within the operating organisation, but importantly, also evident across the wider care system. The Concordat and 63 actions detailed within the review seek to address poor and inappropriate care and achieve the best outcomes for people with a learning disability or autism, who may also have mental health needs or behaviour that challenges. [1 paragraph unchanged] This data collection informs NHS England's monitoring of the progress in moving people with learning disabilities from in-patient to community settings. The NHS Long term plan continues the commitment to reduce the reliance on inpatient care for patients with a learning disability, autism or both. This data collection informs NHS England's monitoring of the progress in moving people with a learning disability from in-patient to community settings. [1 paragraph unchanged] (b) Use timely operational management information, to allow NHSE to monitor and manage delivery of Transforming Care improvements to care for inpatients people with a learning disability, behaviour which that challenges or an people on the autism spectrum disorder. spectrum. Unsuppressed small numbers are included in this data set to ensure that [69 words unchanged] of monitoring commissioner CCG-level activity unless it is populated with unsuppressed data. [1 paragraph unchanged] (c) Use information to effectively plan and deliver transformational change, reducing the reliance on inpatient care for people with a learning disability and/or autism. disability, autism or both. Planning and delivery is carried out by Transforming Care Partnerships (TCPs)* - [46 words unchanged] help people live in the community. This will ensure people with learning disability and/or disability, autism or both receive effective and appropriate care close to their homes. [5 paragraphs unchanged]

Processing activities

[1 paragraph unchanged] Assuring Transformation data are collected by NHS Digital through the Clinical Audit Platform (CAP). Data on inpatients people with a learning disability, autism or both who are in specialised inpatient care with a mental health problem or challenging behaviours behaviour that challenges are supplied by commissioners. The data are updated in real time by commissioners. [6 paragraphs unchanged] (c) NHSE will supply data to TCPs to allow them to plan and deliver transformational change to services for people with a learning disabilities and/or autism. disability, autism or both. To allow them to effectively plan and deliver these services they need [35 words unchanged] and will not include NHS number, date of birth or home postcode. NHS Midlands and Lancashire CSU, who is carrying out additional processing regionally on behalf of the date data controller, use Cloud based processing and therefore will use Microsoft Azure Cloud [50 words unchanged] agreement. This includes granting of access to the database[s] containing the data. [1 paragraph unchanged]

Expected output

[4 paragraphs unchanged] Sharing of small number unsuppressed data by NHSE to a limited number of types of NHS and Social Care Organisations is permitted where it is controlled by individual terms and conditions of use. The limited types of organisation are:- - NHS providers and Provider Collaboratives (Foundation Trusts/FTs and independent providers) - Department of Health and Social Care and their Arms Length Bodies - Commissioners of NHS care (e.g. Clinical Commissioning Groups, public health commissioners within a Local Authority, Integrated Care Systems, STPs) - Organisational members of Transforming Care Partnerships (e.g. Local Authorities) - Commissioning Support Units. Some examples of where small numbers may need to be shared are where; without small numbers the metrics are meaningless as they do n͛ot provide the necessary level of insight needed to drive improvements; suppression has had a huge impact on the accuracy of the metrics; metrics become obscured meaning the metrics are not useful in being able to make peer comparisons. Some use cases include: • Using information to plan and deliver effective transformational change, reducing the reliance on inpatient care for people with a learning disability, autism or both. Planning and delivery is carried out by TCPs. TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This ensures people with a learning disability, autism or both receive effective and appropriate care close to their homes. To be able to plan and deliver these services, TCPs have access to unsuppressed aggregate data about the people currently in hospital who originate from their CCGs / local authorities. This allows them to put appropriate services in place for when patients leave hospital, and to ensure the appropriate provider capacity is available for those people that do still require hospital care. As NHSE/I moves to a more system-based approach Sustainability and Transformation Partnerships (STPs) / ICSs may also have a role to play in monitoring performance. Where this is the case, the STP/ICS would need the same access to AT data as the TCP. • Using monthly Assuring Transformation data/metrics to support regional meetings between NHSE and partner organisations with a focus on reviewing performance and driving improvement and where low level activity data is vital to make ͚ decisions about delivery of care activities/addressing unwarranted variations. • Supporting meetings with providers of inpatient care to be able to effectively plan the safe discharge/transfer of patients. These discussions are currently hampered due to the NHS England’s inability to share its understanding of how many patients are in care at a particular hospital site or with a particular provider. • Ensuring patients receive Care (Education) and Treatment Reviews (C(E)TRs) in accordance with the timescales outlined in national guidance. CSUs are responsible for arranging C(E)TRs in some parts of the country, so sharing aggregate, unsuppressed information about how many patients are recorded on AT and eligible for C(E)TRs will help CSUs and NHSE to ensure all patients are accounted for. C(E)TRs are a key part of NHSE’s commitment to transforming services for people with a learning disability, autism or both. Furthermore, a defined set of metrics where presentation of denominator and numerator information (with the small risk of being able to work back to a small number) is essential for peer and national benchmarking and reducing unwarranted variations. By including numerators and denominators TCPs and commissioners can see the volume of their activity that each metric relates to. For example, if the admission rate for one TCP is particularly high, but the actual number of admissions is low over a year it might be less of a focus than a lower admission rate for a larger TCP where the number of admissions is high in a year.

Expected measurable benefits

(a) The data gives insight at organisational (provider/commissioner) level, providing operational managers [42 words unchanged] and to manage the safe discharge of current inpatients to the community. This will ensure that people with a learning disability, autism or both are only in hospital for as long is needed and not spending unnecessary time away from their homes and community. [9 paragraphs unchanged] NHS England have committed to providing more detail on yielded benefits to the patient at time of renewal.

Benefits reported

Data is feeding into key indicators for the Long Term Plan and enabling senior managers and the programme to effectively monitor oppress progress against commitments. [3 paragraphs unchanged] Transforming Care Partnerships (TCPs) have been able to sue use the data to effectively plan and commission appropriate services, and to reduce [19 words unchanged] the need for spot-purchasing of care and lengthy block contracts with providers. [1 paragraph unchanged]

Objective for processing

The Department of Health published 'Transforming Care: A national response to Winterbourne View Hospital and the Concordat: Programme of Action' in December 2012. The review of services received indicated that failings were widespread within the operating organisation, but importantly, also evident across the wider care system. The Concordat and 63 actions detailed within the review seek to address poor and inappropriate care and achieve the best outcomes for people with a learning disability or autism, who may also have mental health needs or behaviour that challenges.

Assuring Transformation is an information standard incorporating a mandatory data collection that has been developed in response to Transforming Care: A national response to Winterbourne View Hospital and Winterbourne View Review: Concordat: A Programme of Action.

The NHS Long term plan continues the commitment to reduce the reliance on inpatient care for patients with a learning disability, autism or both.

This data collection informs NHS England's monitoring of the progress in moving people with a learning disability from in-patient to community settings.

(a) Use monthly Assuring Transformation (AT) data to derive performance and quality indicators for Learning Disability services, in order to drive improvements in the services and to identify where good/poor practice is taking place. Analysis will be carried out by NHS England analysts (as data controller and data processor). The analysts will use the fully identifiable data set to produce useful analysis for NHSE (NHS England) managers and Learning Disabilities (LD) Programme staff. The analysis they produce will not include identifiable information.

(b) Use timely operational management information, to allow NHSE to monitor and manage delivery of Transforming Care improvements to care for people with a learning disability, behaviour that challenges or people on the autism spectrum. Unsuppressed small numbers are included in this data set to ensure that commissioners are carrying out their duties in relation to discharging people with a learning disability who are placed inappropriately in hospital. Each CCG is likely to have small numbers in each category and it is important to be able to track if they have reduced their number from e.g. three to two, which unsuppressed numbers do not allow. The operational management report cannot be used for its intended purpose of monitoring commissioner CCG-level activity unless it is populated with unsuppressed data.

NHS Digital will be supplying operational management information reports to NHSE on a frequent weekly basis. NHSE will not be doing any processing, but will be using the reports as produced by NHS Digital to manage CCG performance.

(c) Use information to effectively plan and deliver transformational change, reducing the reliance on inpatient care for people with a learning disability, autism or both. Planning and delivery is carried out by Transforming Care Partnerships (TCPs)* - CCGs, specialised commissioners and local authorities working together to ensure appropriate and effective services are put in place for this vulnerable group of people. TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This will ensure people with learning disability, autism or both receive effective and appropriate care close to their homes.

To be able to plan and deliver these new services, TCPs need to have reliable detailed data about the people currently in hospital who originate from their CCGs / local authorities. This will allow them to put appropriate services in place for when patients leave hospital, and to ensure the appropriate provider capacity is available for those people that do still require hospital care.

No TCP would see another TCP's unsuppressed data.

The GDPR legal basis is as follows:

Article 6(1)(e): processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Article 9(2)(h): processing is necessary for the purposes of preventive or occupational medicine, for the assessment of the working capacity of the employee, medical diagnosis, the provision of health or social care or treatment or the management of health or social care systems and services on the basis of Union or Member State law or pursuant to contract with a health professional and subject to the conditions and safeguards referred to in paragraph.

Expected output

(a) Outputs are aggregated analyses, used for management of the Learning Disabilities programme. The monthly data and analysis allow local operational managers to ensure commissioners are delivering national performance indicators, and to intervene when they are not.

b) The operational Management Information (MI) outputs will only be available to operational managers within NHSE. No other organisations will have access to this data. This information will not be used or shared outside NHSE. [Note that this is a weekly output - section 9 of this template does not include 'weekly' as an option in the Frequency table]

Analysis will not be published in journals or be used in relation to clinical trials, nor used for direct marketing. Performance dashboards and other analysis will be used internally and with commissioners once the Management Information has been published by NHS Digital. These will be in aggregated with small numbers suppressed only.

(c) Aggregate, unsuppressed TCP- level reports will be provided (e.g. showing the numbers of patients at each provider site, the number of patients at each level of ward security and the numbers of patients in hospital split by length-of-stay groups). This data will be used to support patient care, plan services and identify services which will be decommissioned as services are transformed and bed numbers are reduced.

Sharing of small number unsuppressed data by NHSE to a limited number of types of NHS and Social Care Organisations is permitted where it is controlled by individual terms and conditions of use. The limited types of organisation are:-

- NHS providers and Provider Collaboratives (Foundation Trusts/FTs and independent providers)

- Department of Health and Social Care and their Arms Length Bodies

- Commissioners of NHS care (e.g. Clinical Commissioning Groups, public health commissioners within a Local Authority, Integrated Care Systems, STPs)

- Organisational members of Transforming Care Partnerships (e.g. Local Authorities)

- Commissioning Support Units.

Some examples of where small numbers may need to be shared are where; without small numbers the metrics are meaningless as they do n͛ot provide the necessary level of insight needed to drive improvements; suppression has had a huge impact on the accuracy of the metrics; metrics become obscured meaning the metrics are not useful in being able to make peer comparisons.

Some use cases include:

• Using information to plan and deliver effective transformational change, reducing the reliance on inpatient care for people with a learning disability, autism or both. Planning and delivery is carried out by TCPs. TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This ensures people with a learning disability, autism or both receive effective and appropriate care close to their homes. To be able to plan and deliver these services, TCPs have access to unsuppressed aggregate data about the people currently in hospital who originate from their CCGs / local authorities. This allows them to put appropriate services in place for when patients leave hospital, and to ensure the appropriate provider capacity is available for those people that do still require hospital care. As NHSE/I moves to a more system-based approach Sustainability and Transformation Partnerships (STPs) / ICSs may also have a role to play in monitoring performance. Where this is the case, the STP/ICS would need the same access to AT data as the TCP.

• Using monthly Assuring Transformation data/metrics to support regional meetings between NHSE and partner organisations with a focus on reviewing performance and driving improvement and where low level activity data is vital to make ͚ decisions about delivery of care activities/addressing unwarranted variations.

• Supporting meetings with providers of inpatient care to be able to effectively plan the safe discharge/transfer of patients. These discussions are currently hampered due to the NHS England’s inability to share its understanding of how many patients are in care at a particular hospital site or with a particular provider.

• Ensuring patients receive Care (Education) and Treatment Reviews (C(E)TRs) in accordance with the timescales outlined in national guidance. CSUs are responsible for arranging C(E)TRs in some parts of the country, so sharing aggregate, unsuppressed information about how many patients are recorded on AT and eligible for C(E)TRs will help CSUs and NHSE to ensure all patients are accounted for. C(E)TRs are a key part of NHSE’s commitment to transforming services for people with

a learning disability, autism or both.

Furthermore, a defined set of metrics where presentation of denominator and numerator information (with the small risk of being able to work back to a small number) is essential for peer and national benchmarking and reducing unwarranted variations. By including numerators and denominators TCPs and commissioners can see the volume of their activity that each metric relates to. For example, if the admission rate for one TCP is particularly high, but the actual number of admissions is low over a year it might be less of a focus than a lower admission rate for a larger TCP where the number of admissions is high in a year.

Benefits reported

Data is feeding into key indicators for the Long Term Plan and enabling senior managers and the programme to effectively monitor progress against commitments.

The data has provided operational managers with the evidence base through which to drive improvements in services and patient experience, to reduce the reliance on inpatient care and to manage the safe discharge of inpatients to the community.

Commissioners have been able to monitor progress against planned trajectories for reductions in inpatient numbers and take prompt action when performance has fallen below expectation.

AT data has been used as the baseline to monitor performance against the new Care and Treatment Review (CTR) Policy which took effect from 1 April 2017, helping to reduce the number of people going into these hospitals as well as to improve the quality of care people receive in hospital.

Transforming Care Partnerships (TCPs) have been able to use the data to effectively plan and commission appropriate services, and to reduce the reliance on inpatient care. More effective commissioning of any required inpatient services will save the NHS money, reducing the need for spot-purchasing of care and lengthy block contracts with providers.

NHS England has been able to monitor patients at commissioner level and identify blockages which are preventing patients being discharged. NHS England has also been able to carry out specific pieces of analysis, such as detailed work on the u-18 age group.

DARS-NIC-389823-P1P6B-v6.18 1 April 2020 to 30 September 2020
Title
Assuring Transformation
Commercial
No
Sublicensing
Yes
Datasets
2
Files released
0

Datasets: Assuring Transformation (Identifiable); Assuring Transformation (Pseudo)

What changed from DARS-NIC-389823-P1P6B-v5.5

Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.

Fields changed from DARS-NIC-389823-P1P6B-v5.5
FieldWasBecame
Start date2019-04-012020-04-01
End date2020-03-312020-09-30

Objective for processing

(a) Use monthly and weekly Assuring Transformation (AT) data to derive performance and quality indicators for Learning Disability services, in order to drive improvements in the services and to identify where good/poor practice is taking place. Analysis will be carried out by NHS England analysts. The analysts will use the fully identifiable data set to produce useful analysis for operational managers and LD Programme staff. The analysis they produce will not include identifiable information. Assuring Transformation is an information standard incorporating a mandatory data collection that has been developed in response to Transforming Care: A national response to Winterbourne View Hospital and Winterbourne View Review: Concordat: A Programme of Action. (b) Use timely operational management information, to allow NHS England to monitor and manage delivery of Transforming Care improvements to care for inpatients with a learning disability, behaviour which challenges or an autism spectrum disorder. Unsuppressed small numbers are included in this data set to ensure that commissioners are carrying out their duties in relation to discharging people with a learning disability who are placed inappropriately in hospital. Each CCG is likely to have small numbers in each category and it is important to be able to track if they have reduced their number from e.g. three to two, which unsuppressed numbers do not allow. The operational management report cannot be used for its intended purpose of monitoring commissioner CCG-level activity unless it is populated with unsuppressed data. This data collection informs NHS England's monitoring of the progress in moving people with learning disabilities from in-patient to community settings. NHS Digital will be supplying operational management information reports to NHS England on a frequent weekly basis. NHS England will not be doing any processing, but will be using the reports as produced by NHS Digital to manage CCG performance. (a) Use monthly Assuring Transformation (AT) data to derive performance and quality indicators for Learning Disability services, in order to drive improvements in the services and to identify where good/poor practice is taking place. Analysis will be carried out by NHS England analysts (as data controller and data processor). The analysts will use the fully identifiable data set to produce useful analysis for NHSE (NHS England) managers and Learning Disabilities (LD) Programme staff. The analysis they produce will not include identifiable information. The new data fields in the AT data set give further insight into delivery of improvements, specifically the Care & Treatment Review process which is used to identify patients suitable for discharge and the barriers currently preventing discharge. Including the new AT fields in the extracts and reports sent to NHS England will facilitate targeted work to discharge patients who have been identified as ready to be discharged from inpatient care. (b) Use timely operational management information, to allow NHSE to monitor and manage delivery of Transforming Care improvements to care for inpatients with a learning disability, behaviour which challenges or an autism spectrum disorder. Unsuppressed small numbers are included in this data set to ensure that commissioners are carrying out their duties in relation to discharging people with a learning disability who are placed inappropriately in hospital. Each CCG is likely to have small numbers in each category and it is important to be able to track if they have reduced their number from e.g. three to two, which unsuppressed numbers do not allow. The operational management report cannot be used for its intended purpose of monitoring commissioner CCG-level activity unless it is populated with unsuppressed data. (c) Use information on the location of services and the number of patients using these services to effectively plan and deliver transformational change, reducing the reliance on inpatient care for people with learning disability and/or autism. Planning and delivery will be carried out by Transforming Care Partnerships (TCPs) - CCGs, specialised commissioners and local authorities working together to ensure appropriate and effective services are put in place for this vulnerable group of people. TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This will ensure people with learning disability and/or autism receive effective and appropriate care close to their homes. NHS Digital will be supplying operational management information reports to NHSE on a frequent weekly basis. NHSE will not be doing any processing, but will be using the reports as produced by NHS Digital to manage CCG performance. (c) Use information to effectively plan and deliver transformational change, reducing the reliance on inpatient care for people with learning disability and/or autism. Planning and delivery is carried out by Transforming Care Partnerships (TCPs)* - CCGs, specialised commissioners and local authorities working together to ensure appropriate and effective services are put in place for this vulnerable group of people. TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This will ensure people with learning disability and/or autism receive effective and appropriate care close to their homes. [2 paragraphs unchanged] The GDPR legal basis is as follows: Article 6(1)(e): processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller; Article 9(2)(h): processing is necessary for the purposes of preventive or occupational medicine, for the assessment of the working capacity of the employee, medical diagnosis, the provision of health or social care or treatment or the management of health or social care systems and services on the basis of Union or Member State law or pursuant to contract with a health professional and subject to the conditions and safeguards referred to in paragraph.

Processing activities

Data will not be stored, processed or in any other way accessed by a third party. Data is stored in the secure storage that was set up when NHS England managed this data collection themselves. Data will not be stored or processed by a third party. Identifiable data is stored in a secure folder with named access to only a small number of analysts. Data processing is only carried out by substantive employees of NHS England who have been appropriately trained in data protection and confidentiality (as required of all NHSE employees). Pseudonymised data is stored separately from the key and in secure folders with limited access to named individuals (a) Monthly data will be analysed to produce aggregate level reports, to allow operational managers to work with challenged organisations to improve delivery and performance against key national indicators. Patient level data will be accessible only to those named individuals that have been given access to the secure data storage, and will only be accessed in the safe haven environment set up for this purpose. Assuring Transformation data are collected by NHS Digital through the Clinical Audit Platform (CAP). Data on inpatients with a learning disability, autism or both who are in specialised inpatient care with a mental health problem or challenging behaviours are supplied by commissioners. The data are updated in real time by commissioners. (b) NHS Digital supplies operational management information reports to NHS England on a weekly basis. NHS England does not carry out any processing, but ensures the operational MI reports are provided to the named operational managers, who use the reports generated as produced by NHS Digital to manage CCG performance. A fully identifiable data extract is provided by NHSD to NHSE each month. (c) NHS England will supply data to TCPs to allow them to plan and deliver transformational change to services for people with learning disabilities and/or autism. To allow them to effectively plan and deliver these services they need access to unsuppressed data showing the number of patients originating from the TCP at each hospital site. The data supplied to each TCP will only include information for patients originating from that TCP, and will not include NHS number, date of birth or home postcode. NHSD also provide a weekly management information report to NHSE containing aggregate data. This data is pre-publication. There will be no further flows of data. (a) Monthly data will be analysed to produce aggregate level reports, to allow operational managers to work with challenged organisations to improve delivery and performance against key national indicators. Patient identifiable data will be stored securely and will only be accessible to a small number of named individuals in NHSE. Identifiers (i.e. NHS number, DOB and postcode data) will be removed and the data set pseudonymised so that it can be analysed by NHSE analysts. The key linking the pseudonymised data to the NHS number and other identifiable data will be stored securely and separately to the pseudonymised data files. No other data linkage is currently performed on the data. (b) NHS Digital supplies operational management information reports to NHS England on a weekly basis. NHSE will not carry out any processing, but ensures the operational MI reports are provided to the named operational managers, who use the reports generated as produced by NHS Digital to manage CCG performance. (c) NHSE will supply data to TCPs to allow them to plan and deliver transformational change to services for people with learning disabilities and/or autism. To allow them to effectively plan and deliver these services they need access to unsuppressed aggregate data (e.g. showing the number of patients originating from the TCP at each hospital site). The data supplied to each TCP will only include information for patients originating from that TCP and will not include NHS number, date of birth or home postcode. NHS Midlands and Lancashire CSU, who is carrying out additional processing regionally on behalf of the date controller, use Cloud based processing and therefore will use Microsoft Azure Cloud as a processing location. Microsoft UK provide Cloud Services for Midlands and Lancashire CSU and are therefore listed as a data processor. They supply support to the system, but do not access data. Therefore, any access to the data held under this agreement would be considered a breach of the agreement. This includes granting of access to the database[s] containing the data. Lima Networks supply IT infrastructure and are therefore listed as a data processor. They supply support to the system, but do not access data. Therefore, any access to the data held under this agreement would be considered a breach of the agreement. This includes granting of access to the database[s] containing the data.

Expected output

(a) Outputs are aggregated commissioner-level analysis, analyses, used for internal management purposes. of the Learning Disabilities programme. The monthly data and analysis allow local operational managers to ensure commissioners are delivering national performance indicators, and to intervene when they are not. (b) b) The operational MI Management Information (MI) outputs will only be available to operational managers within NHS England. NHSE. No other organisations will have access to this data. This information will not be used or shared outside NHS England. NHSE. [Note that this is a weekly output - section 9 of this template does not include 'weekly' as an option in the Frequency table] Analysis will not be published in journals or be used in relation [23 words unchanged] Information has been published by NHS Digital. These will be in aggregated form only. NHS Digitals’ guidance on suppression of with small numbers will be followed. suppressed only. (c) Aggregate, unsuppressed TCP-level TCP- level reports will be provided (e.g. showing the numbers of patients at each provider site, the number of [5 words unchanged] ward security and the numbers of patients in hospital split by length-of-stay groups. groups). This data will be used to support patient care, plan services and identify services which will be decommissioned as services are transformed and bed numbers are reduced.

Expected measurable benefits

(a) The data gives insight at organisational (provider/commissioner) level, providing operational managers with [41 words unchanged] and to manage the safe discharge of current inpatients to the community. [2 paragraphs unchanged] Detailed information is required by TCPs to plan and commission effectively. Transforming Care Partnerships (TCPs) use the data to effectively plan and commission appropriate services, and to reduce the reliance on inpatient care. TCP data packs provide essential information that enables patients to be moved from inappropriate inpatient facilities to community care which is closer to home and more appropriate to each individual's needs, improving their quality of life. More effective commissioning of any required inpatient services will save the NHS money, reducing the need for spot-purchasing of care and lengthy block contracts with providers. Analysis of the Assuring Transformation data is providing insight to inform decision making and strategy. For example, analysis of data on children and young people is informing the focus of the work of the Children and Young People’s Steering group on Transforming Care. The data already received by NHS England has allowed them to carry out detailed analysis to support delivery of the Transforming Care programme, in particular the objective of reducing the reliance on inpatient care. NHS England has been able to monitor patients at commissioner level, and identify blockages which are preventing patients being discharged. NHS England has also been able to carry out specific pieces of analysis, such as detailed work on the u-18 age group – this has contributed to the reduction in the number of u-18 patients. (b) Detailed and timely information is required by TCPs to plan and commission effectively. Transforming Care Partnerships (TCPs) use the data to effectively plan and commission appropriate services, and to reduce the reliance on inpatient care. NHS England is currently focusing additional effort on trying to reduce inpatient admissions and readmissions and using data from AT to facilitate this work (e.g. in identifying areas with higher rates of admissions/readmissions). (c) TCP data packs* provide essential information that enables patients to be moved from inappropriate inpatient facilities to community care which is closer to home and more appropriate to each individual's needs, improving their quality of life. More effective commissioning of any required inpatient services will save the NHS money, reducing the need for spot-purchasing of care and lengthy block contracts with providers. The data already received by NHS England has allowed them to carry out detailed analysis to support delivery of the Transforming Care programme, in particular the objective of reducing the reliance on inpatient care. NHS England has been able to monitor patients at commissioner level, and identify blockages which are preventing patients being discharged. NHS England has also been able to carry out specific pieces of analysis, such as detailed work on the u-18 age group which has contributed to the reduction in the number of u-18 patients and a focus on children with autism. NHS England has also undertaken focused analysis to support work to reduce inpatient admissions and readmissions (e.g. in identifying areas with higher rates of admissions/readmissions). The AT data is also used to report on key indicators to measure programme performance against commitments outlined in the Long Term Plan.

Benefits reported

Data is feeding into key indicators for the Long Term Plan and enabling senior managers and the programme to effectively monitor oppress against commitments. [4 paragraphs unchanged] NHS England has been able to monitor patients at commissioner level, level and identify blockages which are preventing patients being discharged. NHS England has [7 words unchanged] pieces of analysis, such as detailed work on the u-18 age group.

Objective for processing

Assuring Transformation is an information standard incorporating a mandatory data collection that has been developed in response to Transforming Care: A national response to Winterbourne View Hospital and Winterbourne View Review: Concordat: A Programme of Action.

This data collection informs NHS England's monitoring of the progress in moving people with learning disabilities from in-patient to community settings.

(a) Use monthly Assuring Transformation (AT) data to derive performance and quality indicators for Learning Disability services, in order to drive improvements in the services and to identify where good/poor practice is taking place. Analysis will be carried out by NHS England analysts (as data controller and data processor). The analysts will use the fully identifiable data set to produce useful analysis for NHSE (NHS England) managers and Learning Disabilities (LD) Programme staff. The analysis they produce will not include identifiable information.

(b) Use timely operational management information, to allow NHSE to monitor and manage delivery of Transforming Care improvements to care for inpatients with a learning disability, behaviour which challenges or an autism spectrum disorder. Unsuppressed small numbers are included in this data set to ensure that commissioners are carrying out their duties in relation to discharging people with a learning disability who are placed inappropriately in hospital. Each CCG is likely to have small numbers in each category and it is important to be able to track if they have reduced their number from e.g. three to two, which unsuppressed numbers do not allow. The operational management report cannot be used for its intended purpose of monitoring commissioner CCG-level activity unless it is populated with unsuppressed data.

NHS Digital will be supplying operational management information reports to NHSE on a frequent weekly basis. NHSE will not be doing any processing, but will be using the reports as produced by NHS Digital to manage CCG performance.

(c) Use information to effectively plan and deliver transformational change, reducing the reliance on inpatient care for people with learning disability and/or autism. Planning and delivery is carried out by Transforming Care Partnerships (TCPs)* - CCGs, specialised commissioners and local authorities working together to ensure appropriate and effective services are put in place for this vulnerable group of people. TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This will ensure people with learning disability and/or autism receive effective and appropriate care close to their homes.

To be able to plan and deliver these new services, TCPs need to have reliable detailed data about the people currently in hospital who originate from their CCGs / local authorities. This will allow them to put appropriate services in place for when patients leave hospital, and to ensure the appropriate provider capacity is available for those people that do still require hospital care.

No TCP would see another TCP's unsuppressed data.

The GDPR legal basis is as follows:

Article 6(1)(e): processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Article 9(2)(h): processing is necessary for the purposes of preventive or occupational medicine, for the assessment of the working capacity of the employee, medical diagnosis, the provision of health or social care or treatment or the management of health or social care systems and services on the basis of Union or Member State law or pursuant to contract with a health professional and subject to the conditions and safeguards referred to in paragraph.

Expected output

(a) Outputs are aggregated analyses, used for management of the Learning Disabilities programme. The monthly data and analysis allow local operational managers to ensure commissioners are delivering national performance indicators, and to intervene when they are not.

b) The operational Management Information (MI) outputs will only be available to operational managers within NHSE. No other organisations will have access to this data. This information will not be used or shared outside NHSE. [Note that this is a weekly output - section 9 of this template does not include 'weekly' as an option in the Frequency table]

Analysis will not be published in journals or be used in relation to clinical trials, nor used for direct marketing. Performance dashboards and other analysis will be used internally and with commissioners once the Management Information has been published by NHS Digital. These will be in aggregated with small numbers suppressed only.

(c) Aggregate, unsuppressed TCP- level reports will be provided (e.g. showing the numbers of patients at each provider site, the number of patients at each level of ward security and the numbers of patients in hospital split by length-of-stay groups). This data will be used to support patient care, plan services and identify services which will be decommissioned as services are transformed and bed numbers are reduced.

Benefits reported

Data is feeding into key indicators for the Long Term Plan and enabling senior managers and the programme to effectively monitor oppress against commitments.

The data has provided operational managers with the evidence base through which to drive improvements in services and patient experience, to reduce the reliance on inpatient care and to manage the safe discharge of inpatients to the community.

Commissioners have been able to monitor progress against planned trajectories for reductions in inpatient numbers and take prompt action when performance has fallen below expectation.

AT data has been used as the baseline to monitor performance against the new Care and Treatment Review (CTR) Policy which took effect from 1 April 2017, helping to reduce the number of people going into these hospitals as well as to improve the quality of care people receive in hospital.

Transforming Care Partnerships (TCPs) have been able to sue the data to effectively plan and commission appropriate services, and to reduce the reliance on inpatient care. More effective commissioning of any required inpatient services will save the NHS money, reducing the need for spot-purchasing of care and lengthy block contracts with providers.

NHS England has been able to monitor patients at commissioner level and identify blockages which are preventing patients being discharged. NHS England has also been able to carry out specific pieces of analysis, such as detailed work on the u-18 age group.

DARS-NIC-389823-P1P6B-v5.5 1 April 2019 to 31 March 2020
Title
Assuring Transformation
Commercial
No
Sublicensing
Yes
Datasets
2
Files released
0

Datasets: Assuring Transformation (Identifiable); Assuring Transformation (Pseudo)

Objective for processing

(a) Use monthly and weekly Assuring Transformation (AT) data to derive performance and quality indicators for Learning Disability services, in order to drive improvements in the services and to identify where good/poor practice is taking place. Analysis will be carried out by NHS England analysts. The analysts will use the fully identifiable data set to produce useful analysis for operational managers and LD Programme staff. The analysis they produce will not include identifiable information.

(b) Use timely operational management information, to allow NHS England to monitor and manage delivery of Transforming Care improvements to care for inpatients with a learning disability, behaviour which challenges or an autism spectrum disorder. Unsuppressed small numbers are included in this data set to ensure that commissioners are carrying out their duties in relation to discharging people with a learning disability who are placed inappropriately in hospital. Each CCG is likely to have small numbers in each category and it is important to be able to track if they have reduced their number from e.g. three to two, which unsuppressed numbers do not allow. The operational management report cannot be used for its intended purpose of monitoring commissioner CCG-level activity unless it is populated with unsuppressed data.

NHS Digital will be supplying operational management information reports to NHS England on a frequent weekly basis. NHS England will not be doing any processing, but will be using the reports as produced by NHS Digital to manage CCG performance.

The new data fields in the AT data set give further insight into delivery of improvements, specifically the Care & Treatment Review process which is used to identify patients suitable for discharge and the barriers currently preventing discharge. Including the new AT fields in the extracts and reports sent to NHS England will facilitate targeted work to discharge patients who have been identified as ready to be discharged from inpatient care.

(c) Use information on the location of services and the number of patients using these services to effectively plan and deliver transformational change, reducing the reliance on inpatient care for people with learning disability and/or autism. Planning and delivery will be carried out by Transforming Care Partnerships (TCPs) - CCGs, specialised commissioners and local authorities working together to ensure appropriate and effective services are put in place for this vulnerable group of people. TCPs are responsible for the delivery of the transformation of services, reducing the reliance on inpatient care and using local services to help people live in the community. This will ensure people with learning disability and/or autism receive effective and appropriate care close to their homes.

To be able to plan and deliver these new services, TCPs need to have reliable detailed data about the people currently in hospital who originate from their CCGs / local authorities. This will allow them to put appropriate services in place for when patients leave hospital, and to ensure the appropriate provider capacity is available for those people that do still require hospital care.

No TCP would see another TCP's unsuppressed data.

Expected output

(a) Outputs are aggregated commissioner-level analysis, used for internal management purposes. The monthly data and analysis allow local operational managers to ensure commissioners are delivering national performance indicators, and to intervene when they are not.

(b) The operational MI outputs will only be available to operational managers within NHS England. No other organisations will have access to this data. This information will not be used or shared outside NHS England. [Note that this is a weekly output - section 9 of this template does not include 'weekly' as an option in the Frequency table]

Analysis will not be published in journals or be used in relation to clinical trials, nor used for direct marketing. Performance dashboards and other analysis will be used internally and with commissioners once the Management Information has been published by NHS Digital. These will be in aggregated form only. NHS Digitals’ guidance on suppression of small numbers will be followed.

(c) Aggregate, unsuppressed TCP-level reports showing the numbers of patients at each provider site, the number of patients at each level of ward security and the numbers of patients in hospital split by length-of-stay groups. This will be used to plan services and identify services which will be decommissioned as services are transformed and bed numbers are reduced.

Benefits reported

The data has provided operational managers with the evidence base through which to drive improvements in services and patient experience, to reduce the reliance on inpatient care and to manage the safe discharge of inpatients to the community.

Commissioners have been able to monitor progress against planned trajectories for reductions in inpatient numbers and take prompt action when performance has fallen below expectation.

AT data has been used as the baseline to monitor performance against the new Care and Treatment Review (CTR) Policy which took effect from 1 April 2017, helping to reduce the number of people going into these hospitals as well as to improve the quality of care people receive in hospital.

Transforming Care Partnerships (TCPs) have been able to sue the data to effectively plan and commission appropriate services, and to reduce the reliance on inpatient care. More effective commissioning of any required inpatient services will save the NHS money, reducing the need for spot-purchasing of care and lengthy block contracts with providers.

NHS England has been able to monitor patients at commissioner level, and identify blockages which are preventing patients being discharged. NHS England has also been able to carry out specific pieces of analysis, such as detailed work on the u-18 age group.

Register history

When this agreement appeared in, or was edited in, each monthly edition of the register. Built by comparing every edition this site holds, the earliest of which is July 2021.

Cite this page

NHS England (2023) Data Uses Register, January 2023 edition, agreement DARS-NIC-389823-P1P6B, “Assuring Transformation”. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/agreements/dars-nic-389823-p1p6b/ (accessed [date]).

This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.

Source: datausesregister_september2026.xlsx, September 2026 edition of the NHS England Data Uses Register. Search that workbook for DARS-NIC-389823-P1P6B to see the original rows.