MR1162: British Breast Cancer Study - NCRN cohort
London School of Hygiene and Tropical Medicine · Research
Expired The latest version ended on 9 May 2025. The September 2026 register still lists the agreement, but its term has passed.
- Reference
- DARS-NIC-372684-X6Q3M
- Latest version
- v0.0
- Term of latest version
- 10 May 2010 to 9 May 2025
- Start date
- 10 May 2010
- Data controller
- Sole Data Controller
- Commercial purposes
- No
- Sublicensing
- No
- Files released to date
- 1
Why the data was released
Objective for processing
A national population based study of treatment effect and endocrine, genetic and cellular risk factors for contralateral primary cancer in women in Britain. Short title; British Breast Cancer study - (NCRN cohort)One of the aims of the genetic component of this study is the identification of low penetrate breast cancer susceptibility alleles. TO this end, several (lab-based) studies are already underway. Epidemiological studies, published data from association studies and our own, unpublished, results suggest that some alleles confer risks for a broad spectrum of cancers. We have now a large population-based cohort of about 25,000 breast cancer cases, both bilateral and unilateral cases. This cohort contains the largest collection of bilateral breast cancer cases in the world. It is thus ideal for carrying out association studies to identify breast cancer susceptibility genes and assess their value in risk prediction. For this, it is vital to ascertain cancer diagnoses and status.
Processing activities
Not stated in the register.
Expected output
Not stated in the register.
Expected measurable benefits
Not stated in the register.
Benefits reported so far
Yielded Benefits is not a requirement for new applications.
Datasets on the latest version
Legal basis for provision: Informed Patient consent to permit the receipt, processing and release of data by NHS Digital
| Dataset | Type of data | Sensitivity | Frequency | Confidential data |
|---|---|---|---|---|
| MRIS - Cause of Death Report | Identifiable | Sensitive | Ongoing | — |
| MRIS - Cohort Event Notification Report | Identifiable | Sensitive | Ongoing | — |
| MRIS - Flagging Current Status Report | Identifiable | Sensitive | Ongoing | — |
| MRIS - Members and Postings Report | Identifiable | Sensitive | Ongoing | — |
| MRIS - Personal Demographics Service | Identifiable | Sensitive | Ongoing | — |
| MRIS - Scottish NHS / Registration | Identifiable | Sensitive | Ongoing | — |
Files released
Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.
Patient opt-outs were applied to the one file released under this agreement. About opt-outs
Files released against version 0.0 of this agreement, summarised by dataset.
| Dataset | Files | First released | Last released | Opt-outs applied |
|---|---|---|---|---|
| MRIS - Scottish NHS / Registration | 1 | December 2016 | December 2016 | Yes |
Version history
The register lists each renewal of this agreement as a separate row. This site has 1 version.
DARS-NIC-372684-X6Q3M-v0.0 10 May 2010 to 9 May 2025
- Title
- MR1162: British Breast Cancer Study - NCRN cohort
- Commercial
- No
- Sublicensing
- No
- Datasets
- 6
- Files released
- 1
Datasets: MRIS - Cause of Death Report; MRIS - Cohort Event Notification Report; MRIS - Flagging Current Status Report; MRIS - Members and Postings Report; MRIS - Personal Demographics Service; MRIS - Scottish NHS / Registration
Register history
When this agreement appeared in, or was edited in, each monthly edition of the register. Built by comparing every edition this site holds, the earliest of which is July 2021.
-
July 2021 —
already listed in the earliest edition this site holds, so it may be older. 1 version: DARS-NIC-372684-X6Q3M-v0.0
Cite this page
NHS England (2026) Data Uses Register, September 2026 edition, agreement DARS-NIC-372684-X6Q3M, “MR1162: British Breast Cancer Study - NCRN cohort”. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/agreements/dars-nic-372684-x6q3m/ (accessed [date]).
This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.
Source: datausesregister_september2026.xlsx, September 2026 edition of the NHS England Data Uses Register. Search that workbook for DARS-NIC-372684-X6Q3M to see the original rows.