Provision of data via PDS to ONS
Office for National Statistics (ONS) · Agency/Public Body
In term In term in the September 2026 edition: the latest version runs to 7 August 2027.
- Reference
- DARS-NIC-20951-D2K6S
- Current version
- v15.2
- Term of current version
- 7 August 2026 to 7 August 2027
- Start date
- Before 1 July 2019
- Data controller
- Sole Data Controller
- Commercial purposes
- No
- Sublicensing
- Yes
- Files released to date
- 0
Why the data was released
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes, as agreed with NHS England:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act (SRSA) 2007 the Statistics Board (UK Statistics Authority) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics (ONS) as the Executive Office of The Board carries out this function. Within ONS, the Health, Population and Methods Group are responsible for providing key data on the population of the United Kingdom and are comprised of a number of divisions that undertake demographic analysis in, for example, migration, fertility, mortality, life expectancy, ageing and families. These analyses are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to, from time to time, collect and publish any statistical information relating to the number and condition of the population in the interval between one census and another and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the SRSA 2007.
ONS rely on the following lawful bases under the General Data Protection Regulation for processing personal data including special categories of personal data:
• GDPR Article 6(1)(e) The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
• GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom's National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business and enable better decisions to be made. Using administrative data such as Personal Demographics Service (PDS) allows ONS to produce statistics which are more granular and timely at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census and population statistics – more detailed justifications are outlined in greater depth below. Proportionality is considered by business areas who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address, and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out under this Agreement will be requested and processed.
Amazon Web Services provide IT hosting services to ONS and will store the data as contracted by ONS as a processor.
Google Cloud Platform Analytical Platform (GCP AP) is a cloud-based Trusted Research Environment (TRE) where analysts process data for the purposes listed in this Agreement.
Google UK Limited provide IT hosting services to ONS and will store the data as contracted by ONS as a processor.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by employees of ONS or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigorous disclosure controls and access restrictions, thus ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading 'Data Environment'.
Population Statistics
NHS England previously supplied CHRIS data and Patient Register (NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. PDS stocks are also to be used in place of the now defunct PR data to produce small area population estimates at Lower Layer Super Output Area (LSOA), Middle Layer Super Output Area (MSOA), Output Area (OA), ward, Clinical Commissioning Group (CCG), parliamentary constituencies, and National Park levels. With the loss of the NHAIS posting information, the PDS will be used to produce estimates of internal migration - therefore more detailed address information is required from weekly PDS updates so that the address data can be run through ONS’ Address Index Matching System (AIMS). The PDS will also help ONS to understand how migrants interact with services.
Internal migration estimates are national statistics and are a key component in population estimates, projections and national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, for estimating the local authority distribution of international migrants component of change mid-year estimates and small area population estimates within England and Wales and for estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students and data from HMRC and DWP.
Census and Data Collection Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
• Population and housing estimates: counts of the population by age and sex, and the number of housing units.
• Population structures: households, families and household relationships.
• Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. The Census also provides a precise estimate of the UK population. Any statistics produced that relate to the general population are understood by comparing against this estimate. Mortality rates, household income, disease prevalence, employment rates, vaccination rates and more all rely on an accurate population estimate. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended to the Board of the UK Statistics Authority that the future provision of population statistics and the next census should be through:
"An online census of all households and communal establishments in England and Wales in 2021 recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses."
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
'Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA's plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.' - Government's response to the National Statistician's recommendation, 18 July 2014.
The Census and Data Collection Transformation Programme (CDCTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether, in ONS' view, the Government's ambition can be realised. To that end, ONS has committed to publishing an annual assessment of progress towards the Government's ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. Since 2015 ONS has produced annual Admin Based Population Estimates (ABPEs), formerly known as Statistical Population Datasets (SPDs), based on linking multiple administrative datasets (including NHS Patient Registration (PR) Data, Department for Work and Pensions (DWP)/Her Majesty’s Revenue and Customs (HMRC), Customer Information System data and higher education data).
No one dataset in its' own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual's interactions with this system. This 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics by helping to address issues relating to definitional differences between administrative data and population definitions and time lags.
To enable ONS’s Administrative Based Census Project, including placing administrative data at the core of migration statistics, using ‘activity’ and characteristics data from PDS ONS’s Administrative Based Census Project (ABC) is assessing whether the Government’s ambition that ‘censuses after 2021 be conducted using other sources of data’ can be realised. ONS aims to replicate the type of information collected through a census by using administrative data already held by government, supplemented by surveys. This can then be compared with the data collected by the 2021 census itself. This will allow ONS to determine whether this alternative approach can meet users’ needs. As part of this work ONS will be producing a non-disclosive, de-identified Administrative Based Census (ABC) dataset for research use. This will be a heavily derived data product containing only the age, sex and Lower Layer Super Output Area (LSOA) for records included within the ABC. This ABC output dataset will be produced through amalgamating multiple administrative data sources (including NHS Personal Demographics Service, Hospital Episode Statistics, Emergency Care Dataset plus a multitude of data from other sources) to generate a de-identified record for every usual resident in England and Wales and help estimate the population at a local level. This de-identified, non-disclosive ONS product (the ABC) will be made available for approved / accredited research use within ONS operated Trusted Research Environments (TREs).
There is no common identifier that can be used to link individuals' records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, full name, addresses and postcodes) to link the datasets and establish the aforementioned ABPEs. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data was needed to support the 2021 Census and continues to be needed to provide evidence for the annual assessment of progress towards the Government's ambition beyond 2021, whilst also ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other administrative data sources, however no clinical data is being requested. Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce ABPEs and allow analyses to meet the 2023 recommendation of the future of the Census.
Census 2021 Quality Assurance
ONS conducted the Census for England and Wales on 21st March 2021, which is one of the most important and highest profile National Statistical productions. The Census will provide a decennial picture of the size and state of the population and will feed directly into funding and service provision policies. Although the Census is mandatory, not everyone is captured. Data collected in the Census can be compared with data from the PDS to ensure it is reliable and will allow ONS to gather data needed to inform work around the Census. This will help ONS to quality assure Census returns and prepare outputs.
International Migration
The Centre for International Migration is leading on work to transform international migration statistics through the development of administrative data-based migration estimates (ABMEs) that will better meet user needs for timely and accurate statistics on this topic area. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee's report and government response.
The PDS data forms an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved international migration estimates at local level. Improved statistics, at a more granular level, may enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data hopes to allow the centre to:
• Compare signs of the arrival, activity and departures of international migrants by linking PDS to other public sector datasets.
• Use knowledge and information from PDS to inform ABMEs and modelled estimates of international migration.
• Provide analysis and research into how international migrants interact with the health system and the impact of international migration on the health sector, including via linkage to other public sector datasets.
ONS use PR/PDS data to carry out population level analysis. PDS data includes address and date of birth variables which can be used as analytical variables for population groups for example. This may facilitate the creation of location-based variables or flags for analysis. By using the PDS data to assign 'location-based variables' ONS can ensure population indicators collected in other linked data sources such as the Census are updated to reflect the most recent living situation of the population of interest. For example, between the 10-yearly census information on the size and condition of the population living in deprived areas, information on small geographic locations or communal establishments (such as care homes) are not readily available. PDS data can be used to identify and quantify the size of these populations. The PDS data can also be used alongside other data sources such as Provider Information Returns data held by the Care Quality Commission to identify and better understand the characteristics of the population receiving social care.
To note, ONS analysts do not actually scrutinize individual rows of data, rather they run models on large scale datasets with millions of rows, and then scrutinize the outputs and aggregate results. Once aggregated ONS analysts will never try to identify or re-identify individuals.
Survey Sampling Purposes
ONS require the use of administrative data to improve sampling frames for survey collections. The PDS data will be used to increase sample sizes, improve representativeness and ensure survey response rates remain high enough to produce statistics and analysis with actionable insights. Examples of surveys that will be enhanced through the use of PDS data include but are not limited to:
Health Insight Survey
The Health Insight Survey is an online questionnaire designed to give patients the opportunity to offer regular feedback about their experiences of the NHS to ensure the NHS can offer the best possible service. The survey asks people about their experiences of accessing care at their local GP practice and experience of other NHS services in England.
Participants consist of people who took part in the Coronavirus (COVID-19) Infection Survey (CIS) and agreed to be approached about other ethically approved research studies. To improve the representativeness of the sample, demographic and geographic data available in PDS will be used to identify and invite new participants to complete the survey.
Children’s Crime Survey
The current Children’s Crime Survey for England and Wales (CCSEW) is a face-to-face survey of children aged 10 to 15 years. One child is invited to take part in households where an individual aged 16 years or over has taken part in the adult Crime Survey for England and Wales (CSEW). It is one of few continuous, nationally representative surveys of children and provides important information on the prevalence and nature of crime and other harmful experiences among children.
Unfortunately, the ability to achieve the key outcome has been severely restricted in recent years by declining response rates to face-to-face interviews. In response to evolving user needs and changes in respondent behaviour following the COVID-19 pandemic, there has been a need for us to review how the CCSEW operates to ensure we can continue to produce timely and quality statistics which meet the needs of users. The CCSEW is therefore being redesigned to transform it to an online mode of data collection, and decouple it from the CSEW through sampling children directly from administrative data sources.
Safety During Childhood Survey
The Safety During Childhood Survey has been designed as two surveys – one which is conducted in school and one conducted online. The online component is for people aged 16 to 25. This is an essential part of filling the evidence gap for child abuse. It ensures we can develop a prevalence estimate for 12-17 year olds (and not just those up to age 16 in school). It also allows us to produce estimates for young adult (18-25) who are close to childhood age but with a perspective of what happened to them that may well be different to under 18s. In order to target our online sample, we need a sampling frame which contains date of birth.
Processing activities
Data Environment
Data security for storage and linkage of the data will be provided within an assured ONS data analysis environment that includes the following elements of security control:
• Need To Access applied through user account access and management. Access to the data is restricted to individuals granted access on the basis of a justified need to access the data
• Controlled ingest and export of data into/out of the Data Access Platform (DAP) environment
• Controlled account access using unique credentials based on job role
• Logged and monitored access of user activity within the DAP environment
• Secure build configuration for infrastructure
• Vulnerability tested infrastructure with appropriate remediation and patching
• Compliance checks against security enforcing controls
• Architectural review against standards and best practice
• Staff security cleared to the appropriate level based on their supervised and/or unsupervised access to sensitive data in accordance with ONS clearance policies and data access processes
• Education and awareness of environment users covering security policies and secure working practices
• Operational support processes to securely manage the environment
• Risk assessment to identify security risks and mitigation actions to reduce this risk.
Following policy specified by the ONS Chief Security Officer, ONS user access to the data environment is only provided on a need-to-know basis depending on the individual’s role. Approval of an application by the Information Asset Owner (with advice from Security and Information Management) is required including an ethical assessment of proposed data use. A list of approved users is available on request. Staff requesting access to these data must be cleared to the appropriate National Vetting level, which is higher than the standard basic clearance required for all ONS staff. Only authorised ONS staff with appropriate security clearance will have access to identifiable PDS data, with regular audit and monitoring in place to ensure compliance.
With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS England to confirm compliance with this application.
ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS England on request. ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS England.
As described in section 5a, the proposed purposes require linkage of records at the individual level. However, ONS is only interested in producing aggregate statistics and using these to uncover trends in line with their statutory functions.
As noted above, within the ONS data environment, users set up 'project spaces' and apply for access to data through the Information Asset Owner. Each 'project space' includes only the data required to carry out the proposed analysis and is only accessible to the users who require access to that data. Users will not be permitted to access identifiers for the purposes of analysis. In addition to the system protocols above, ONS will therefore keep the number of staff permitted to process identifiers to an absolute minimum, and these staff will have a higher level of clearance. All other staff will only be permitted to access non-identifying data.
This processing activity takes place in a dedicated ONS environment provided by Amazon Web Services, and based in England and Wales only.
The data will reside within Google Cloud Platform (GCP). All cloud services consumed for the storage and use of the data are scoped to securely managed GCP Projects. GCP Projects in scope for this project are not connected to ONS corporate networks. GCP Projects in scope for this project are accessible via the internet for administration/analytical work. Access is securely bound up with Google identity services, internet authentication proxies and multi-factor authentication. All platform infrastructure and storage is deployed into the Europe-west2 region (London) and in any of the 3 available zones for redundancy and high availability (where applicable). Processing of data can only be carried out on GCP infrastructure within the deployed region. Access to GCP platform is region locked to UK IP addresses only. Access to GCP and any data it holds is not permitted from outside the UK. Overseas connections are monitored, and connection attempts will lead to account suspension.
ONS will never seek to intentionally re-identify individuals within the PDS data supplied. ONS staff are suitably trained in data protection and confidentiality and are experienced in working with highly sensitive data.
Further, only statistical disclosure controlled aggregate outputs will be exportable from the secure data analysis environment. In other words, other than the initial transfer of the data from NHS England to ONS, the identifiable data will never be in transit and will always be protected by procedural controls.
Access to data held within ONS’s Data Access Platform (DAP), is granted to users on a need-to-know basis depending on their role, through a request process which provides a business justification. Access is authorised on a case-by-case basis by the ONS Information Asset Owner (IAO) responsible for PDS data, with advice from Security and Information Management. Staff requesting access to these data must be cleared to the appropriate National Vetting level, which is higher than the standard basic clearance required for all ONS staff. Only authorised ONS staff with appropriate security clearance will have access to identifiable PDS data, with regular audit and monitoring in place to ensure compliance.
Verian has been contracted to provide the Crime Survey for England and Wales (CSEW) fieldwork for 2024-2029, including online fieldwork for the CSEW online transformation. This covers Verian’s work to develop and deliver an online survey, including testing of alternative sampling approaches.
Data Linkage
In order to develop a complete picture of the of the size and characteristics of the population, it is necessary to link PDS data to other record level datasets that ONS hold.
If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their usually-resident population definition. Previous research in the Beyond 2011 Programme explored how population statistics could be produced without linkage. This so called pre-aggregated approach (essentially by using non-identifiable data) was unable to deliver statistics that could meet the required quality. The Beyond 2011 Programme concluded that linkage of administrative data would be required in an administrative data-based approach to the Census in the future.
Under previous versions of this Agreement, Population and Migration Statistics Transformation had based their research on a prototype ‘population spine’ of linked datasets, based on encrypted data held in ONS’ recently decommissioned Secure Research Environment (SRE). This has now been significantly redesigned by ONS Data Architecture to improve quality and meet wider requirements across ONS business areas for linked data. This new architecture, The Demographic Index (DI), is now key for producing underlying population counts in the future population statistics system.
PDS is linked to the following datasets:
• ONS Birth registrations
• ONS Census 2011
• NHS England Patient Register data (formerly CHRIS and NHAIS) (discontinued)
• Department for Education (DfE) English Schools Census
• DfE Individualised Learner Record (ILR)
• Welsh Government Welsh Schools Census
• Higher Education Statistics Authority (HESA) Student Data
• Department for Work and Pensions Customer Information System (CIS)
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Health Insight Survey
ONS analysts will process PDS data in DAP in line with the standard security controls stated above. Decisions about who makes it into the sample may take into account other data on people’s characteristics derived as part of our population statistics transformation work (e.g. ethnicity data from Census or HES).
Once the sample has been drawn the NHS numbers for those identified will be temporarily exported from DAP and stored within a secure ONS shared drive, with access restricted to a very limited number of staff. NHS numbers held outside of DAP will only be stored for as long as is necessary to administer the quarterly boost, following which they will be deleted. The NHS numbers will be shared with the NHS Notify Service. NHS Notify will be directed to send invitations to participate on a quarterly basis via the NHS app and email, with the potential to utilise texts to mobiles and letters if required by NHSE, using the contact details held by NHS Notify.
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Data Variables and Delivery
Two supplies of record level data are requested from NHS England for the ongoing supply of the PDS Weekly Movers file and the annual Mid-Year Stock Extract file. These are bespoke extracts from the PDS and use pipelines from NHS England hosted SPINE and Data Processing Services (DPS). NHS England will redact all data pertaining to s-flag status prior to dissemination (this includes geographical identification including address, NHAIS posting and primary care registration identifier).
The specific data items required are as follows:
1) PDS Weekly Update (formerly ‘Movers’) Extract
Provided weekly to ONS - required in order to assess population movements.
Variables:
• NHS Number
• Names Business Effective from date
• Gender
• Date of Birth
• Postcode from usual Address
• Address Business Effective from date
• Type of Registration
• Previous Posting (from Registration Request)
• NHAIS Posting System Identifier*
• NHAIS Posting Business Effective from date*
• Reason for Removal Type
• Reason For Removal Business Effective from date
Due to the impending discontinuation of the NHAIS Posting Variables (*), ONS requires the following variables to be added onto the weekly feed to allow critical business as usual processes in population statistics to continue:
• Address line (Person address)
• Address Business Effective to date (Person address)
In order to further improve the statistics that ONS are able to produce for the purposes outlined above, ONS are also requesting the addition of the following variables to the Weekly Update File. These are to be disseminated upon the establishment of a new feed which is being developed by NHS England:
• Language (Language communication)
• Address description (Person address)
• Name type (Person name)
• Country (Place of birth)
• Primary care identifier (Primary care registration)
• Business effective to date (Reason for removal)
• Reason not supplied (Reason for removal)
• Date of patient UK entry (Registration encounter)
• Date of patients UK exit (Registration encounter)
• Original acceptance posting date (Registration encounter)
• Place of birth (Registration encounter)
2) Annual Mid-Year PDS Stock Extract File
Annual run to be initiated on the closest Saturday to 31st July each year. This date is in line with the former supply of the annual Patient Register.
Variables:
• NHS Number
• Family Name
• First given name
• Other given names
• Names Business Effective from date
• Gender
• Date of Birth
• Address Line
• Postcode (usual Address)
• Address Business Effective from date
• Type of Registration
• NHAIS Posting System Identifier (due to be removed)
• NHAIS Posting Business Effective from date (due to be removed)
• Reason For Removal Type
• Reason For Removal Business Effective from date
In order to further improve that statistics that ONS is able to produce for the purposes outlined above, ONS are also requesting the addition of the following variables to the Annual Mid-Year Stock Extract. These are to be disseminated upon the establishment of a new feed which is developed by NHS England:
• Language (Language communication)
• Address Business Effective to date (Person address)
• Country (Place of birth)
• Primary care identifier (Primary care registration)
• Date of patient UK entry (Registration encounter)
• Date of patients UK exit (Registration encounter)
• Previous address (Registration encounter)
• Original acceptance posting date (Registration encounter)
• Place of birth (Registration encounter)
• Postcode (Related person)
• Address line (Related person)
• Address type (Related person)
• Family name (Related person)
• First given name (Related person)
• NHAIS Posting
• NHS number (Related person)
• Other given names (Related person)
• Patient care provision type
• Relationship type (Related person)
For extracts from 31 July 2023 the following fields have been requested to be added:
• Previous NHAIS posting (most recent entry)
• Primary Care Registration Business Effective From Date
Cross Border Flows
ONS, National Records of Scotland (NRS) and Northern Ireland Statistics and Research Agency (NISRA) share aggregated information on the movement of individuals between the four countries of the UK. The sharing of information was previously covered by a data access agreement. The NHS Central Register (NHSCR) system in England that provided this data was closed in February 2016.
The number of cross border moves between Scotland, England & Wales and Northern Ireland is shared by the three statistical offices (NRS, ONS and NISRA). The total numbers are agreed, and the totals from the receiving countries are used for each flow because these are considered to be the most accurate.
In addition NRS receive record level data to ensure a higher level of accuracy for the large number of moves between Scotland and England & Wales. The data from the receiving country is considered to be the most reliable as this is based on persons registering with a GP in their new location, whereas estimates from the origin country are based on de-registration of persons who notify their GP that they are moving. Both registering and de-registering are voluntary processes and people are more likely to re-register than de-register.
To continue with the cross border moves, aggregate totals and record level data is required from the PDS system. This data will be extracted from the PDS stocks/weekly movers file using new, approved methodology. The variables required to produce the data are:
1. Gender
2. Date of Birth
3. NHAIS Posting
4. NHAIS Posting Business Effective From Date
5. Previous Posting (from Registration Request)
6. Type of Registration
7. Reason for Removal Type
8. Reason for Removal Business Effective from date
In order to distribute local authority population estimates to lower levels of geography (the small area population estimates) a combination of ratio change and apportionment are used based on Patient Register Data from NHAIS.
ONS is permitted to share the above data items with NRS on condition that ONS ensures there are adequate controls in place to ensure that NRS:
a) must not combine the data with other datasets which could potentially increase the risk of reidentification of individuals in the dataset;
b) must not attempt to re-identify individuals in the dataset;
c) must not onwardly share the dataset;
d) must use the dataset solely for the defined purpose of the production of cross-border flows between the four countries of the United Kingdom, using the movement of people, as part of population estimates for the United Kingdom for the Population Estimates Unit, and;
e) must not publish the data.
ONS must maintain its Data Sharing Agreement with NRS as a means of applying the above controls.
ONS will only share aggregate data with NISRA on the total number of moves between England or Wales and Northern Ireland. No record level data will be shared with NISRA.
Expected output
The outputs expected from this work include statistics, statistical reports, presentations, methodology papers and analyses. All outputs are produced in order to meet ONS’ role to produce statistics for the public good. Should outputs contain any data, this data will be aggregated with small numbers supressed.
Any official statistics produced will be published so that they are publicly available - for example on the ONS website, in statistical bulletins, analysis articles or on data dashboards.
Projects focused on new topics or new data sources will include exploration of the feasibility of using and/or linking the data. They will also quality assess the data and linkage prior to full development of analyses and publication of statistics. Briefings for technical/expert audiences or methodology reports may be written for internal use in the development and assessment of new data sources and analysis. These reports will be published alongside experimental statistics or official statistics on the ONS website or in peer-reviewed journals as appropriate.
All ONS statistical teams engage regularly with users and will seek to provide frequent updates on the production of official statistics through regular stakeholder conversations, presentations and events.
ONS have a publishing strategy and team which supports analytical teams in developing different outputs to suit a range of different audiences. ONS also has active communications, media and social media teams to promote dissemination of statistics and enable outputs to reach a wide-ranging audience.
Census and Data Collection Transformation Programme (CDCTP)
ONS has committed to publishing regular annual Administrative Data Research Outputs (ABPEs) on the population, including estimates on the size of the population (produced using administrative data).
The aims of these research outputs are to:
- Update users on the progress made through administrative data and to seek feedback from users - the aim being to improve the methods used.
- Aid the process of working with data suppliers to improve data quality for statistical purposes.
ONS has already developed ABPEs in both method and content in the run up to the 2021 Census and plan to compare the ABPEs with results from the 2021 Census. ONS will also expand on the range of topics and granularity of information published each year.
ONS recognise the need for continued development of their methodology. Future releases will therefore include further outputs based on future methodology developments which hope to allow for user feedback, newly available data and alternative techniques to facilitate the production of population statistics.
The research on the feasibility of producing administrative, data-based characteristics estimates that ONS should be able to provide evidence to feed into the 2023 recommendation on the future of the Census. ONS aim to produce research outputs on the progress they have made on the feasibility research they’re conducting on user feedback. The outputs will be in the form of aggregate statistics, with statistics disclosure rules applied where necessary.
Population and Migration
Main publication dates are as follows:
Internal migration - Annually – June
Internal migration statistics are published at local authority level by age and sex. They are used widely by local authorities and academics to, for example, feed into alternative population projections models and subsequent resource allocation planning.
Mid-year estimates - Annually - June, with lower-level geography releases after this until Small Area Population Estimates are released in November.
National Population projections - normally published at the end of October. Releases have traditionally been produced bi-annually. Following the release of the national projections, there are now sub-national releases between national releases.
Internal migration estimates form a key component of population estimates and population projections, which are of important use in the UK. Estimates are used by central government, local government and health authorities to support resource allocation as well as forming a fundamental basis for other statistics across government which feed into policy decisions.
Projections are used to determine the future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services needed - for example a hospital may use projections to determine whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Health and Mortality Analysis
Specific outputs will include published aggregate statistics on the number, characteristics and condition of population groups such as the social care, care home and disabled population (providing more detail on specific impairments). ONS will produce mortality, morbidity and life expectancy statistics by protected characteristics such as ethnicity, disability and specific age groups.
Admin Based Census (ABC)
As part of ONS' work on producing more accurate statistics on the population at a local level through administrative data, a non-disclosive, de-identified Administrative Based Census (ABC) dataset will be created for research use. This will be a heavily derived data product containing only the age, sex and Lower Layer Super Output Area (LSOA) for records included within the ABC. This ABC output dataset will be produced through amalgamating multiple administrative data sources (including NHS Personal Demographics Service, Hospital Episode Statistics, Emergency Care Dataset plus a multitude of data from other sources) to generate a de-identified record for every usual resident in England and Wales and help estimate the population at a local level. This de-identified, non-disclosive ONS product (the ABC) will be made available for approved / accredited research use within ONS operated Trusted Research Environments (TREs).
The data that are being used for sampling purposes will enable the sharing of analysis and publishing of statistics, such as but not limited to:
Health Insight Survey
ONS and NHS England are entering into a Memorandum of Understanding to set out the basis on which they will collaborate with each other on the provision of the Health Insight Survey. The objective of this collaboration necessitate the use of PDS data to enhance the sample for the survey, namely:
- To boost the sample to seek to a) counteract attrition, b) increase the number of participants in groups that are currently under-represented including younger and people from ethnic minorities, and c) achieve a sample size consistently large enough within the 22 Primary Care Network (PCN) test sites to provide actionable insight
This will enable ONS to make available to NHS England insight into patient experience of health services based on HIS, including with regards to inequalities, and at regional, ICB-level and PCN level.
Children’s Crime Survey and Safety During Childhood Survey
Redesigned CCSEW ready to run live at 15K by September 2025, (replacing the existing face-to-face Children's CSEW which ends in March 2025. This will enable continuation of the regular collection of much needed nationally representative data on the prevalence and nature of crime and other harmful experiences among children in England and Wales. Utilising PDS data for sampling purposes will enable ONS to enhance this children’s data collection through improving flexibility, sustainability and efficiency of survey delivery. It will allow an increased sample size to improve quality and use of the data, and will enable greater demographic and intersectional breakdowns to better meet user needs. It will also provide opportunities for expanding the sample as required in the future. Ultimately the redesigned survey will improve official statistics on children’s victimisation and other crime-related topics to enable evidence-informed government decisions and help with the framing of policy and legislative initiatives that support and protect children, aligning with two of the new Government missions: Breaking Down the Barriers to Opportunity and Making Britain’s Streets Safe. These statistics will also be important for informing and monitoring the impact of policy recommendations for improving children’s safety in the community and online, such as those highlighted in the Children's Commissioners' Big Answer.
https://labour.org.uk/wp-content/uploads/2023/07/Mission-breaking-down-barriers.pdf
https://labour.org.uk/wp-content/uploads/2023/03/Mission-Safety.pdf
https://www.childrenscommissioner.gov.uk/the-big-answer/
The Safety During Childhood Survey has two expected key outputs:
- A pilot of the online 16-25 survey is due to be completed in 2025 for which a sample frame is required. This will be part of evaluating the operational design of the survey.
- The full survey is planned for 2026. It is from that survey which we will produce national estimates of child abuse experienced by 12-17 year olds and 18-25 year olds.
All of the above outputs will feed into the realisation of the benefit ES1: Better informed decisions that better reflect experiences in all the UK – at a national and local level, for government departments, local governments and regional agencies, this will generate approximately £32.48M.
It is hoped within the next year to two years, the Safety During Childhood Survey and the redesigned Children’s Crime Survey will become fully integrated surveys within the ONS contributing towards various government statistics to drive crime policy forward.
Expected measurable benefits
The Department of Health and Social Care and their agencies specifically use both census and population statistics (branded as national statistics) in the planning and provision of health and social care services and the allocation of funding. National statistics are used as the population baseline for any statistics that are published on a per capita basis.
The internal migration estimates are one of the components of the mid-year population estimates that are produced at various geographical levels (including CCGs). It is these mid-year estimates that form the population baseline for a large proportion of health statistics. For instance, any health data published per capita for a particular level of geography (national, region, local authority, CCG, parliamentary constituency etc) is almost certain to have ONS population estimates or projections as the population baseline. Estimates and projections are published by age and sex. This means they can also be used to better target age and sex specific health and care services (e.g. maternity, aging populations etc.).
The population estimates and projections are also used extensively throughout government and specifically by the Department of Health and related agencies for the planning and provision of health and social care services and the distribution of funds. Throughout government, decisions on the distribution of billions of pounds of funds are made based on population estimates and projections.
The National Statistician's recommended in March 2014 to the Board of the UK Statistics Authority that the future provision of population statistics and the next census should be through “increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses." Therefore, CTP are conducting research into this to produce accurate and more timely population statistics.
The research outputs are used by academics, local authorities, other Government Departments and other Statistical institutions for the allocation of funding and resource and other ongoing research into the use of administrative data to production information about the population. This work will enable efficient funding and resource allocation for a range of services, including health and social care.
Information about main languages used and English language proficiency is used to plan services, for example in relation to education and translation, and to target interventions aimed at increasing integration.
Information about general health enables the monitoring of general health over time, enables tracking and assessment of fitness for work and helps to estimate the need for care and benefits. It also enables the calculation of healthy life expectancy. Data collected on health contributes to the funding, development and planning of healthcare and helps reduce social inequalities in health. Disability data is essential for public health spending and resource allocation and for monitoring the quality and outcomes of policies for persons with disabilities. Central and local government users use long term health problem and disability data with a wide range of sub-topics to identify and understand associations to inform service planning and delivery.
Going forward, one of the key uses of PDS will be to link the data to a range of other datasets at record level. This work is anticipated to support ONS in developing a methodology to produce population and migration estimates by sex and age to levels of geography. These are expected to be published by the official Population Estimates going forward. Being able to link administrative data in this way will also allow the Society for Sex Therapy and Research to produce statistics on the characteristics of the population.
In May 2023, NHS England launched the Delivery plan for recovering access to primary care and they require granular data to monitor this policy. NHS England have requested that ONS deliver a study (the Health Insight Survey) spanning the period April 2024 to March 2025 in the first instance, which will be focussed predominately on collecting and collating data relating to public access and experience when utilising GP Surgeries, Pharmacies and NHS funded Dentistry services. NHS England will utilise this data to support the benefit realisation work associated with the Plan for Recovering Access to Primary Care (PCARP). The results will also be utilised to monitor expected benefits of the implementation of PCARP, including cross referenced analysis to Primary Care Networks (PCN) and Integrated care Boards (ICB).
Admin Based Census
The availability of a non-disclosive, de-identified Admin Based Census (ABC) dataset for approved / accredited use through ONS operated Trusted Research Environments (TREs) will enable much richer insights to be gained when used alongside other research datasets. For example it will allow for more detailed analysis at a local level to be undertaken by researchers, to help policy makers and the public better understand what is happening in towns and cities across England and Wales and any disparities that may exist between areas.
The use of data for sampling purposes will enable improvements to surveys that underpin key statistics and analysis that inform government decision making. Examples of the benefits that may be generated include but are not limited to:
Health Insight Survey
In May 2023, NHS England published the Plan for Recovering Access to Primary Care (PCARP) which aims to make it quicker and easier for patients to get the help they need from primary care. The Health Insight Survey generates insights of patients experiences with health services that can be utilised in the impact, insight and monitoring associated with general practise reform, as well as other key NHSE strategies, and to monitor progress against the Government's Health Mission. Boosting and improving the representativeness of the sample will enable the findings generated to provide actionable insight for NHSE.
Additionally, the use of PDS data for sampling will generate cost reduction for NHSE. The sampling will enable the survey to be less reliant on postal invitations, reducing the cost on postage, thus saving money for NHSE who provide funding for the survey operations.
Children’s Crime Survey and Safety During Childhood Survey
Crime causes substantial negative impacts to individuals and society. Such harm can include a wide range of outcomes for both individuals, such as financial loss and physical harm, and for communities and wider society, such as fear of crime and increased use of health and victim services.
Specifically, the redesigned CCSEW will measure, among other things, the prevalence of violence, bullying and online harms among children, which are known to impact children’s physical and mental health. Better understanding the impacts of crime on children, through enhancing the evidence base on the prevalence and nature of crime and other harmful (online) experiences among children, enables better targeting of interventions and services for those impacted by crime. The data will be used by government departments and charities to campaign for and influence policy to reduce violence and online harms, resulting in better health and social outcomes for children in later life.
Evidence on the need for the Safety During Childhood Survey
Child abuse is an appalling crime against some of the most vulnerable in society. Measuring the extent and nature of child abuse is difficult because it is usually hidden from view and comes in many forms. The World Health Organisation recognises that accurate prevalence data is needed to monitor trends over time, develop effective prevention strategies, and appropriately support those who have experienced abuse.
https://www.who.int/publications/i/item/preventing-child-maltreatment-a-guide-to-taking-action-and-generating-evidence
The last child abuse prevalence survey was carried out in the UK by NSPCC in 2009.
https://learning.nspcc.org.uk/media/1042/child-abuse-neglect-uk-today-research-report.pdf
Recommendations have been made by the NSPCC, the Centre of expertise on child sexual abuse (CSA centre) and the National Statistician's Crime Statistics Advisory Committee Child Abuse Statistics Task and Finish Group for Government to run a new prevalence survey to measure child abuse.
https://learning.nspcc.org.uk/media/1358/how-safe-children-2017-report.pdf
https://www.csacentre.org.uk/app/uploads/2023/09/Scale-and-nature-review-of-evidence-2021.pdf?_rt=MnwxfGNoaWxkIHNleHVhbCBhYnVzZXwxNzUwNDI5MzY5&_rt_nonce=6a44b7030c
https://uksa.statisticsauthority.gov.uk/wp-content/uploads/2015/12/National-Statisticians-Crime-Statistics-Advisory-Committee-11-May-2017.pdf
The report published by the Independent Inquiry into Child Sexual Abuse reflect on the limitations of current data and that the lack of reliable data measuring the current prevalence of child sexual abuse across the UK impedes the ability of statutory agencies and society more generally to prevent and respond appropriately to such abuse. They recognised that the survey we are developing is likely to provide valuable information for those working to protect children from sexual abuse in the future.
https://www.iicsa.org.uk/document/report-independent-inquiry-child-sexual-abuse-october-2022-0.html
The research review as part of the Scottish Child Abuse Inquiry also supports such a survey, stating “Child and youth self-report surveys giving lifetime and past year rates of victimisation are regarded as providing the best estimates of the prevalence of child abuse (Gilbert et al, 2008; Sethi et al, 2013; UNICEF, 2014)”.
https://www.childabuseinquiry.scot/sites/default/files/2023-03/prevalence-of-abuse-in-scotland-professor-lorraine-radford.pdf
It Is worth noting that further administrative data would be required to create sampling frames for Scotland and Northern Ireland, with current plans focused on England and Wales using the PDS data.
And more recently, the head of policy and public affairs at NSPCC presented evidence to the Education Committee calling for government to fund the survey.
https://committees.parliament.uk/event/23053/formal-meeting-oral-evidence-session/
Benefits reported so far
PDS data feed into mid-year population estimates, among the most important official statistics. Population estimate have a wide range of uses across government, including the health sector, in terms of resource allocation, policy making and service planning. Population estimates are also used as a denominator for rates relating to health such as mortality rates and fertility rates.
PDS data are also vital for the Statistical Population Dataset (SPD), Admin Based Living Arrangements Datasets, migration disaggregation, longitudinal linkage, internal migration stocks and cross-border flows, as well as Longitudinal Population Database, international and internal migration analysis, and RIO cohort maintenance.
PDS supports longitudinal assets by identifying activity, absence and long-term residence, while improving insight into health, economic and social outcomes and admin data quality.
Combined with other sources, PDS helps produce a spine for the usually resident population of England and Wales, known as the SPD. Without it, SPD delivery would be significantly affected, and no alternative dataset offers comparable coverage.
The PDS is also a key data source used in the Refugee Integration Outcomes (RIO) project. The RIO project links Home Office data on refugees granted asylum and individuals who came to the UK under a resettlement scheme with data from the PDS, Home Office Borders and Immigration (HOBI), Census 2021 and several other administrative data sources, to create an anonymised analytical dataset covering health, housing, economic, education and social outcomes. The current iteration of RIO includes refugees resettled in England and Wales under the Vulnerable Persons Resettlement Scheme (VPRS) and Vulnerable Children’s Resettlement Scheme (VCRS) and those granted asylum between 2015 and 2020, with data for additional cohorts currently being linked.
Refugee integration is a challenging and high-profile policy area, with refugee status most often invisible in analytical datasets. The RIO project aims to fill this evidence gap and is now providing unique insights into social and economic integration outcomes through the evaluation of refugee integration programmes. We published early analysis from RIO in June 2023, which provided new insights into health and housing outcomes for resettled refugees using linked Census 2021 data, alongside a report on linkage quality. This analysis would not have been possible without PDS stocks data. Linking data is the optimal way of generating new insights on refugee integration outcomes, both in terms of coverage and quality. The value of data already collected is maximised and the burden involved in collecting data directly from refugees or support providers is minimised.
Datasets on the current version
Legal basis for provision: Health and Social Care Act 2012 – s261(7); Other-Section 43 Statistics and Registration Service Act 2007
| Dataset | Type of data | Sensitivity | Frequency | Confidential data |
|---|---|---|---|---|
| Personal Demographic Service | Identifiable | Non-Sensitive | One-Off | Statutory exemption to flow confidential data without consent |
Files released
Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.
This agreement permits sublicensing: the applicant may pass data on to others. Anything passed on is not recorded in this register.
No files recorded as released under this agreement.
Version history
The register lists each renewal of this agreement as a separate row. This site has 12 versions — earlier versions existed before this site's records begin.
DARS-NIC-20951-D2K6S-v15.2 7 August 2026 to 7 August 2027 Added this month
- Title
- Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- Yes
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v14.4
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2026-08-07 | |
| End date | 2027-08-07 |
Objective for processing
[10 paragraphs unchanged]
The Integrated Data Service (IDS)
Google Cloud Platform Analytical Platform (GCP AP)
is a cloud-based Trusted Research Environment (TRE) where analysts process data for the purposes listed in this Agreement.
Google UK Limited provide IT hosting services to ONS
for the IDS
and will store the data as contracted by ONS as a processor.
[44 paragraphs unchanged]
Processing activities
[20 paragraphs unchanged]
The data will reside within Google Cloud Platform (GCP). All cloud services
[104 words unchanged]
GCP platform is region locked to UK IP addresses only. Access to
IDS
GCP
and any data it holds is not permitted from outside the UK. Overseas connections are monitored, and connection attempts will lead to account suspension.
[3 paragraphs unchanged]
Verian has been contracted to provide the Crime Survey for England and Wales (CSEW) fieldwork for 2024-2029, including online fieldwork for the CSEW online transformation. This covers Verian’s work to develop and deliver an online survey, including testing of alternative sampling approaches.
[114 paragraphs unchanged]
Benefits reported
PDS is a key data source for the admin-based population estimates (ABPEs) produced using the Dynamic Population model (DPM). The DPM balances input data on population (stocks) at specific points in time with the components of population change (flows of births, deaths, and migrants) over time. PDS data is used within the population stock data and migrant estimates (internal and international).
PDS data feed into mid-year population estimates, among the most important official statistics. Population estimate have a wide range of uses across government, including the health sector, in terms of resource allocation, policy making and service planning. Population estimates are also used as a denominator for rates relating to health such as mortality rates and fertility rates.
We published provisional mid-2023 ABPEs for local authorities in England and Wales in December 2023 and updated mid-2011 to mid-2023 ABPEs in July 2024. Commentary for our July release is provided in our Population estimates for England and Wales: mid-2023 bulletin alongside the latest official estimates (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/dynamicpopulationmodelimprovementstodatasourcesandmethodology/localauthoritiesinenglandandwalesmid2011tomid2023). This allows users to compare the ABPEs with official population estimates.
PDS data are also vital for the Statistical Population Dataset (SPD), Admin Based Living Arrangements Datasets, migration disaggregation, longitudinal linkage, internal migration stocks and cross-border flows, as well as Longitudinal Population Database, international and internal migration analysis, and RIO cohort maintenance.
The ABPEs are currently official statistics in development while we refine our methods and the data sources used to estimate the usual resident population. We are aiming for our APBEs to become the official mid-year population estimates in 2025. This is dependent on the use of PDS data.
PDS supports longitudinal assets by identifying activity, absence and long-term residence, while improving insight into health, economic and social outcomes and admin data quality.
Population estimates have a wide range of uses across government, including the health sector, in terms of resource allocation, policy making and service planning. Population estimates are also used as a denominator for rates relating to health such as mortality rates and fertility rates.
Combined with other sources, PDS helps produce a spine for the usually resident population of England and Wales, known as the SPD. Without it, SPD delivery would be significantly affected, and no alternative dataset offers comparable coverage.
[2 paragraphs unchanged]
Unchanged: Expected output, Expected measurable benefits.
DARS-NIC-20951-D2K6S-v14.4 8 August 2025 to 7 August 2026
- Title
- Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- Yes
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v13.6
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2025-08-08 | |
| End date | 2026-08-07 |
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes, as agreed with NHS
Digital:
England:
[13 paragraphs unchanged]
NHS
Digital
England
previously supplied CHRIS data and Patient Register (NHAIS) data to ONS for
[116 words unchanged]
PDS will also help ONS to understand how migrants interact with services.
[31 paragraphs unchanged]
Survey Sampling Purposes
ONS require the use of administrative data to improve sampling frames for survey collections. The PDS data will be used to increase sample sizes, improve representativeness and ensure survey response rates remain high enough to produce statistics and analysis with actionable insights. Examples of surveys that will be enhanced through the use of PDS data include but are not limited to:
Health Insight Survey
The Health Insight Survey is an online questionnaire designed to give patients the opportunity to offer regular feedback about their experiences of the NHS to ensure the NHS can offer the best possible service. The survey asks people about their experiences of accessing care at their local GP practice and experience of other NHS services in England.
Participants consist of people who took part in the Coronavirus (COVID-19) Infection Survey (CIS) and agreed to be approached about other ethically approved research studies. To improve the representativeness of the sample, demographic and geographic data available in PDS will be used to identify and invite new participants to complete the survey.
Children’s Crime Survey
The current Children’s Crime Survey for England and Wales (CCSEW) is a face-to-face survey of children aged 10 to 15 years. One child is invited to take part in households where an individual aged 16 years or over has taken part in the adult Crime Survey for England and Wales (CSEW). It is one of few continuous, nationally representative surveys of children and provides important information on the prevalence and nature of crime and other harmful experiences among children.
Unfortunately, the ability to achieve the key outcome has been severely restricted in recent years by declining response rates to face-to-face interviews. In response to evolving user needs and changes in respondent behaviour following the COVID-19 pandemic, there has been a need for us to review how the CCSEW operates to ensure we can continue to produce timely and quality statistics which meet the needs of users. The CCSEW is therefore being redesigned to transform it to an online mode of data collection, and decouple it from the CSEW through sampling children directly from administrative data sources.
Safety During Childhood Survey
The Safety During Childhood Survey has been designed as two surveys – one which is conducted in school and one conducted online. The online component is for people aged 16 to 25. This is an essential part of filling the evidence gap for child abuse. It ensures we can develop a prevalence estimate for 12-17 year olds (and not just those up to age 16 in school). It also allows us to produce estimates for young adult (18-25) who are close to childhood age but with a perspective of what happened to them that may well be different to under 18s. In order to target our online sample, we need a sampling frame which contains date of birth.
Processing activities
[15 paragraphs unchanged]
With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS
Digital
England
to confirm compliance with this application.
ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS
Digital
England
on request. ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS
Digital.
England.
[5 paragraphs unchanged]
Further, only statistical disclosure controlled aggregate outputs will be exportable from the
[5 words unchanged]
other words, other than the initial transfer of the data from NHS
Digital
England
to ONS, the identifiable data will never be in transit and will always be protected by procedural controls.
[8 paragraphs unchanged]
• NHS
Digital
England
Patient Register data (formerly CHRIS and NHAIS) (discontinued)
[5 paragraphs unchanged]
*****************************************************
Health Insight Survey
ONS analysts will process PDS data in DAP in line with the standard security controls stated above. Decisions about who makes it into the sample may take into account other data on people’s characteristics derived as part of our population statistics transformation work (e.g. ethnicity data from Census or HES).
Once the sample has been drawn the NHS numbers for those identified will be temporarily exported from DAP and stored within a secure ONS shared drive, with access restricted to a very limited number of staff. NHS numbers held outside of DAP will only be stored for as long as is necessary to administer the quarterly boost, following which they will be deleted. The NHS numbers will be shared with the NHS Notify Service. NHS Notify will be directed to send invitations to participate on a quarterly basis via the NHS app and email, with the potential to utilise texts to mobiles and letters if required by NHSE, using the contact details held by NHS Notify.
*******************************************************
[1 paragraph unchanged]
Two supplies of record level data are requested from NHS
Digital
England
for the ongoing supply of the PDS Weekly Movers file and the
[39 words unchanged]
includes geographical identification including address, NHAIS posting and primary care registration identifier).
[19 paragraphs unchanged]
In order to further improve the statistics that ONS are able to
[27 words unchanged]
the establishment of a new feed which is being developed by NHS
Digital:
England:
[29 paragraphs unchanged]
In order to further improve that statistics that ONS is able to
[27 words unchanged]
upon the establishment of a new feed which is developed by NHS
Digital:
England:
[44 paragraphs unchanged]
Expected output
[26 paragraphs unchanged] The data that are being used for sampling purposes will enable the sharing of analysis and publishing of statistics, such as but not limited to: Health Insight Survey ONS and NHS England are entering into a Memorandum of Understanding to set out the basis on which they will collaborate with each other on the provision of the Health Insight Survey. The objective of this collaboration necessitate the use of PDS data to enhance the sample for the survey, namely: - To boost the sample to seek to a) counteract attrition, b) increase the number of participants in groups that are currently under-represented including younger and people from ethnic minorities, and c) achieve a sample size consistently large enough within the 22 Primary Care Network (PCN) test sites to provide actionable insight This will enable ONS to make available to NHS England insight into patient experience of health services based on HIS, including with regards to inequalities, and at regional, ICB-level and PCN level. Children’s Crime Survey and Safety During Childhood Survey Redesigned CCSEW ready to run live at 15K by September 2025, (replacing the existing face-to-face Children's CSEW which ends in March 2025. This will enable continuation of the regular collection of much needed nationally representative data on the prevalence and nature of crime and other harmful experiences among children in England and Wales. Utilising PDS data for sampling purposes will enable ONS to enhance this children’s data collection through improving flexibility, sustainability and efficiency of survey delivery. It will allow an increased sample size to improve quality and use of the data, and will enable greater demographic and intersectional breakdowns to better meet user needs. It will also provide opportunities for expanding the sample as required in the future. Ultimately the redesigned survey will improve official statistics on children’s victimisation and other crime-related topics to enable evidence-informed government decisions and help with the framing of policy and legislative initiatives that support and protect children, aligning with two of the new Government missions: Breaking Down the Barriers to Opportunity and Making Britain’s Streets Safe. These statistics will also be important for informing and monitoring the impact of policy recommendations for improving children’s safety in the community and online, such as those highlighted in the Children's Commissioners' Big Answer. https://labour.org.uk/wp-content/uploads/2023/07/Mission-breaking-down-barriers.pdf https://labour.org.uk/wp-content/uploads/2023/03/Mission-Safety.pdf https://www.childrenscommissioner.gov.uk/the-big-answer/ The Safety During Childhood Survey has two expected key outputs: - A pilot of the online 16-25 survey is due to be completed in 2025 for which a sample frame is required. This will be part of evaluating the operational design of the survey. - The full survey is planned for 2026. It is from that survey which we will produce national estimates of child abuse experienced by 12-17 year olds and 18-25 year olds. All of the above outputs will feed into the realisation of the benefit ES1: Better informed decisions that better reflect experiences in all the UK – at a national and local level, for government departments, local governments and regional agencies, this will generate approximately £32.48M. It is hoped within the next year to two years, the Safety During Childhood Survey and the redesigned Children’s Crime Survey will become fully integrated surveys within the ONS contributing towards various government statistics to drive crime policy forward.
Expected measurable benefits
[11 paragraphs unchanged] The use of data for sampling purposes will enable improvements to surveys that underpin key statistics and analysis that inform government decision making. Examples of the benefits that may be generated include but are not limited to: Health Insight Survey In May 2023, NHS England published the Plan for Recovering Access to Primary Care (PCARP) which aims to make it quicker and easier for patients to get the help they need from primary care. The Health Insight Survey generates insights of patients experiences with health services that can be utilised in the impact, insight and monitoring associated with general practise reform, as well as other key NHSE strategies, and to monitor progress against the Government's Health Mission. Boosting and improving the representativeness of the sample will enable the findings generated to provide actionable insight for NHSE. Additionally, the use of PDS data for sampling will generate cost reduction for NHSE. The sampling will enable the survey to be less reliant on postal invitations, reducing the cost on postage, thus saving money for NHSE who provide funding for the survey operations. Children’s Crime Survey and Safety During Childhood Survey Crime causes substantial negative impacts to individuals and society. Such harm can include a wide range of outcomes for both individuals, such as financial loss and physical harm, and for communities and wider society, such as fear of crime and increased use of health and victim services. Specifically, the redesigned CCSEW will measure, among other things, the prevalence of violence, bullying and online harms among children, which are known to impact children’s physical and mental health. Better understanding the impacts of crime on children, through enhancing the evidence base on the prevalence and nature of crime and other harmful (online) experiences among children, enables better targeting of interventions and services for those impacted by crime. The data will be used by government departments and charities to campaign for and influence policy to reduce violence and online harms, resulting in better health and social outcomes for children in later life. Evidence on the need for the Safety During Childhood Survey Child abuse is an appalling crime against some of the most vulnerable in society. Measuring the extent and nature of child abuse is difficult because it is usually hidden from view and comes in many forms. The World Health Organisation recognises that accurate prevalence data is needed to monitor trends over time, develop effective prevention strategies, and appropriately support those who have experienced abuse. https://www.who.int/publications/i/item/preventing-child-maltreatment-a-guide-to-taking-action-and-generating-evidence The last child abuse prevalence survey was carried out in the UK by NSPCC in 2009. https://learning.nspcc.org.uk/media/1042/child-abuse-neglect-uk-today-research-report.pdf Recommendations have been made by the NSPCC, the Centre of expertise on child sexual abuse (CSA centre) and the National Statistician's Crime Statistics Advisory Committee Child Abuse Statistics Task and Finish Group for Government to run a new prevalence survey to measure child abuse. https://learning.nspcc.org.uk/media/1358/how-safe-children-2017-report.pdf https://www.csacentre.org.uk/app/uploads/2023/09/Scale-and-nature-review-of-evidence-2021.pdf?_rt=MnwxfGNoaWxkIHNleHVhbCBhYnVzZXwxNzUwNDI5MzY5&_rt_nonce=6a44b7030c https://uksa.statisticsauthority.gov.uk/wp-content/uploads/2015/12/National-Statisticians-Crime-Statistics-Advisory-Committee-11-May-2017.pdf The report published by the Independent Inquiry into Child Sexual Abuse reflect on the limitations of current data and that the lack of reliable data measuring the current prevalence of child sexual abuse across the UK impedes the ability of statutory agencies and society more generally to prevent and respond appropriately to such abuse. They recognised that the survey we are developing is likely to provide valuable information for those working to protect children from sexual abuse in the future. https://www.iicsa.org.uk/document/report-independent-inquiry-child-sexual-abuse-october-2022-0.html The research review as part of the Scottish Child Abuse Inquiry also supports such a survey, stating “Child and youth self-report surveys giving lifetime and past year rates of victimisation are regarded as providing the best estimates of the prevalence of child abuse (Gilbert et al, 2008; Sethi et al, 2013; UNICEF, 2014)”. https://www.childabuseinquiry.scot/sites/default/files/2023-03/prevalence-of-abuse-in-scotland-professor-lorraine-radford.pdf It Is worth noting that further administrative data would be required to create sampling frames for Scotland and Northern Ireland, with current plans focused on England and Wales using the PDS data. And more recently, the head of policy and public affairs at NSPCC presented evidence to the Education Committee calling for government to fund the survey. https://committees.parliament.uk/event/23053/formal-meeting-oral-evidence-session/
Changed only in punctuation, spacing or capitalisation: Benefits reported.
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes, as agreed with NHS England:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act (SRSA) 2007 the Statistics Board (UK Statistics Authority) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics (ONS) as the Executive Office of The Board carries out this function. Within ONS, the Health, Population and Methods Group are responsible for providing key data on the population of the United Kingdom and are comprised of a number of divisions that undertake demographic analysis in, for example, migration, fertility, mortality, life expectancy, ageing and families. These analyses are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to, from time to time, collect and publish any statistical information relating to the number and condition of the population in the interval between one census and another and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the SRSA 2007.
ONS rely on the following lawful bases under the General Data Protection Regulation for processing personal data including special categories of personal data:
• GDPR Article 6(1)(e) The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
• GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom's National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business and enable better decisions to be made. Using administrative data such as Personal Demographics Service (PDS) allows ONS to produce statistics which are more granular and timely at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census and population statistics – more detailed justifications are outlined in greater depth below. Proportionality is considered by business areas who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address, and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out under this Agreement will be requested and processed.
Amazon Web Services provide IT hosting services to ONS and will store the data as contracted by ONS as a processor.
The Integrated Data Service (IDS) is a cloud-based Trusted Research Environment (TRE) where analysts process data for the purposes listed in this Agreement.
Google UK Limited provide IT hosting services to ONS for the IDS and will store the data as contracted by ONS as a processor.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by employees of ONS or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigorous disclosure controls and access restrictions, thus ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading 'Data Environment'.
Population Statistics
NHS England previously supplied CHRIS data and Patient Register (NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. PDS stocks are also to be used in place of the now defunct PR data to produce small area population estimates at Lower Layer Super Output Area (LSOA), Middle Layer Super Output Area (MSOA), Output Area (OA), ward, Clinical Commissioning Group (CCG), parliamentary constituencies, and National Park levels. With the loss of the NHAIS posting information, the PDS will be used to produce estimates of internal migration - therefore more detailed address information is required from weekly PDS updates so that the address data can be run through ONS’ Address Index Matching System (AIMS). The PDS will also help ONS to understand how migrants interact with services.
Internal migration estimates are national statistics and are a key component in population estimates, projections and national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, for estimating the local authority distribution of international migrants component of change mid-year estimates and small area population estimates within England and Wales and for estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students and data from HMRC and DWP.
Census and Data Collection Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
• Population and housing estimates: counts of the population by age and sex, and the number of housing units.
• Population structures: households, families and household relationships.
• Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. The Census also provides a precise estimate of the UK population. Any statistics produced that relate to the general population are understood by comparing against this estimate. Mortality rates, household income, disease prevalence, employment rates, vaccination rates and more all rely on an accurate population estimate. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended to the Board of the UK Statistics Authority that the future provision of population statistics and the next census should be through:
"An online census of all households and communal establishments in England and Wales in 2021 recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses."
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
'Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA's plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.' - Government's response to the National Statistician's recommendation, 18 July 2014.
The Census and Data Collection Transformation Programme (CDCTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether, in ONS' view, the Government's ambition can be realised. To that end, ONS has committed to publishing an annual assessment of progress towards the Government's ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. Since 2015 ONS has produced annual Admin Based Population Estimates (ABPEs), formerly known as Statistical Population Datasets (SPDs), based on linking multiple administrative datasets (including NHS Patient Registration (PR) Data, Department for Work and Pensions (DWP)/Her Majesty’s Revenue and Customs (HMRC), Customer Information System data and higher education data).
No one dataset in its' own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual's interactions with this system. This 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics by helping to address issues relating to definitional differences between administrative data and population definitions and time lags.
To enable ONS’s Administrative Based Census Project, including placing administrative data at the core of migration statistics, using ‘activity’ and characteristics data from PDS ONS’s Administrative Based Census Project (ABC) is assessing whether the Government’s ambition that ‘censuses after 2021 be conducted using other sources of data’ can be realised. ONS aims to replicate the type of information collected through a census by using administrative data already held by government, supplemented by surveys. This can then be compared with the data collected by the 2021 census itself. This will allow ONS to determine whether this alternative approach can meet users’ needs. As part of this work ONS will be producing a non-disclosive, de-identified Administrative Based Census (ABC) dataset for research use. This will be a heavily derived data product containing only the age, sex and Lower Layer Super Output Area (LSOA) for records included within the ABC. This ABC output dataset will be produced through amalgamating multiple administrative data sources (including NHS Personal Demographics Service, Hospital Episode Statistics, Emergency Care Dataset plus a multitude of data from other sources) to generate a de-identified record for every usual resident in England and Wales and help estimate the population at a local level. This de-identified, non-disclosive ONS product (the ABC) will be made available for approved / accredited research use within ONS operated Trusted Research Environments (TREs).
There is no common identifier that can be used to link individuals' records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, full name, addresses and postcodes) to link the datasets and establish the aforementioned ABPEs. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data was needed to support the 2021 Census and continues to be needed to provide evidence for the annual assessment of progress towards the Government's ambition beyond 2021, whilst also ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other administrative data sources, however no clinical data is being requested. Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce ABPEs and allow analyses to meet the 2023 recommendation of the future of the Census.
Census 2021 Quality Assurance
ONS conducted the Census for England and Wales on 21st March 2021, which is one of the most important and highest profile National Statistical productions. The Census will provide a decennial picture of the size and state of the population and will feed directly into funding and service provision policies. Although the Census is mandatory, not everyone is captured. Data collected in the Census can be compared with data from the PDS to ensure it is reliable and will allow ONS to gather data needed to inform work around the Census. This will help ONS to quality assure Census returns and prepare outputs.
International Migration
The Centre for International Migration is leading on work to transform international migration statistics through the development of administrative data-based migration estimates (ABMEs) that will better meet user needs for timely and accurate statistics on this topic area. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee's report and government response.
The PDS data forms an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved international migration estimates at local level. Improved statistics, at a more granular level, may enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data hopes to allow the centre to:
• Compare signs of the arrival, activity and departures of international migrants by linking PDS to other public sector datasets.
• Use knowledge and information from PDS to inform ABMEs and modelled estimates of international migration.
• Provide analysis and research into how international migrants interact with the health system and the impact of international migration on the health sector, including via linkage to other public sector datasets.
ONS use PR/PDS data to carry out population level analysis. PDS data includes address and date of birth variables which can be used as analytical variables for population groups for example. This may facilitate the creation of location-based variables or flags for analysis. By using the PDS data to assign 'location-based variables' ONS can ensure population indicators collected in other linked data sources such as the Census are updated to reflect the most recent living situation of the population of interest. For example, between the 10-yearly census information on the size and condition of the population living in deprived areas, information on small geographic locations or communal establishments (such as care homes) are not readily available. PDS data can be used to identify and quantify the size of these populations. The PDS data can also be used alongside other data sources such as Provider Information Returns data held by the Care Quality Commission to identify and better understand the characteristics of the population receiving social care.
To note, ONS analysts do not actually scrutinize individual rows of data, rather they run models on large scale datasets with millions of rows, and then scrutinize the outputs and aggregate results. Once aggregated ONS analysts will never try to identify or re-identify individuals.
Survey Sampling Purposes
ONS require the use of administrative data to improve sampling frames for survey collections. The PDS data will be used to increase sample sizes, improve representativeness and ensure survey response rates remain high enough to produce statistics and analysis with actionable insights. Examples of surveys that will be enhanced through the use of PDS data include but are not limited to:
Health Insight Survey
The Health Insight Survey is an online questionnaire designed to give patients the opportunity to offer regular feedback about their experiences of the NHS to ensure the NHS can offer the best possible service. The survey asks people about their experiences of accessing care at their local GP practice and experience of other NHS services in England.
Participants consist of people who took part in the Coronavirus (COVID-19) Infection Survey (CIS) and agreed to be approached about other ethically approved research studies. To improve the representativeness of the sample, demographic and geographic data available in PDS will be used to identify and invite new participants to complete the survey.
Children’s Crime Survey
The current Children’s Crime Survey for England and Wales (CCSEW) is a face-to-face survey of children aged 10 to 15 years. One child is invited to take part in households where an individual aged 16 years or over has taken part in the adult Crime Survey for England and Wales (CSEW). It is one of few continuous, nationally representative surveys of children and provides important information on the prevalence and nature of crime and other harmful experiences among children.
Unfortunately, the ability to achieve the key outcome has been severely restricted in recent years by declining response rates to face-to-face interviews. In response to evolving user needs and changes in respondent behaviour following the COVID-19 pandemic, there has been a need for us to review how the CCSEW operates to ensure we can continue to produce timely and quality statistics which meet the needs of users. The CCSEW is therefore being redesigned to transform it to an online mode of data collection, and decouple it from the CSEW through sampling children directly from administrative data sources.
Safety During Childhood Survey
The Safety During Childhood Survey has been designed as two surveys – one which is conducted in school and one conducted online. The online component is for people aged 16 to 25. This is an essential part of filling the evidence gap for child abuse. It ensures we can develop a prevalence estimate for 12-17 year olds (and not just those up to age 16 in school). It also allows us to produce estimates for young adult (18-25) who are close to childhood age but with a perspective of what happened to them that may well be different to under 18s. In order to target our online sample, we need a sampling frame which contains date of birth.
Expected output
The outputs expected from this work include statistics, statistical reports, presentations, methodology papers and analyses. All outputs are produced in order to meet ONS’ role to produce statistics for the public good. Should outputs contain any data, this data will be aggregated with small numbers supressed.
Any official statistics produced will be published so that they are publicly available - for example on the ONS website, in statistical bulletins, analysis articles or on data dashboards.
Projects focused on new topics or new data sources will include exploration of the feasibility of using and/or linking the data. They will also quality assess the data and linkage prior to full development of analyses and publication of statistics. Briefings for technical/expert audiences or methodology reports may be written for internal use in the development and assessment of new data sources and analysis. These reports will be published alongside experimental statistics or official statistics on the ONS website or in peer-reviewed journals as appropriate.
All ONS statistical teams engage regularly with users and will seek to provide frequent updates on the production of official statistics through regular stakeholder conversations, presentations and events.
ONS have a publishing strategy and team which supports analytical teams in developing different outputs to suit a range of different audiences. ONS also has active communications, media and social media teams to promote dissemination of statistics and enable outputs to reach a wide-ranging audience.
Census and Data Collection Transformation Programme (CDCTP)
ONS has committed to publishing regular annual Administrative Data Research Outputs (ABPEs) on the population, including estimates on the size of the population (produced using administrative data).
The aims of these research outputs are to:
- Update users on the progress made through administrative data and to seek feedback from users - the aim being to improve the methods used.
- Aid the process of working with data suppliers to improve data quality for statistical purposes.
ONS has already developed ABPEs in both method and content in the run up to the 2021 Census and plan to compare the ABPEs with results from the 2021 Census. ONS will also expand on the range of topics and granularity of information published each year.
ONS recognise the need for continued development of their methodology. Future releases will therefore include further outputs based on future methodology developments which hope to allow for user feedback, newly available data and alternative techniques to facilitate the production of population statistics.
The research on the feasibility of producing administrative, data-based characteristics estimates that ONS should be able to provide evidence to feed into the 2023 recommendation on the future of the Census. ONS aim to produce research outputs on the progress they have made on the feasibility research they’re conducting on user feedback. The outputs will be in the form of aggregate statistics, with statistics disclosure rules applied where necessary.
Population and Migration
Main publication dates are as follows:
Internal migration - Annually – June
Internal migration statistics are published at local authority level by age and sex. They are used widely by local authorities and academics to, for example, feed into alternative population projections models and subsequent resource allocation planning.
Mid-year estimates - Annually - June, with lower-level geography releases after this until Small Area Population Estimates are released in November.
National Population projections - normally published at the end of October. Releases have traditionally been produced bi-annually. Following the release of the national projections, there are now sub-national releases between national releases.
Internal migration estimates form a key component of population estimates and population projections, which are of important use in the UK. Estimates are used by central government, local government and health authorities to support resource allocation as well as forming a fundamental basis for other statistics across government which feed into policy decisions.
Projections are used to determine the future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services needed - for example a hospital may use projections to determine whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Health and Mortality Analysis
Specific outputs will include published aggregate statistics on the number, characteristics and condition of population groups such as the social care, care home and disabled population (providing more detail on specific impairments). ONS will produce mortality, morbidity and life expectancy statistics by protected characteristics such as ethnicity, disability and specific age groups.
Admin Based Census (ABC)
As part of ONS' work on producing more accurate statistics on the population at a local level through administrative data, a non-disclosive, de-identified Administrative Based Census (ABC) dataset will be created for research use. This will be a heavily derived data product containing only the age, sex and Lower Layer Super Output Area (LSOA) for records included within the ABC. This ABC output dataset will be produced through amalgamating multiple administrative data sources (including NHS Personal Demographics Service, Hospital Episode Statistics, Emergency Care Dataset plus a multitude of data from other sources) to generate a de-identified record for every usual resident in England and Wales and help estimate the population at a local level. This de-identified, non-disclosive ONS product (the ABC) will be made available for approved / accredited research use within ONS operated Trusted Research Environments (TREs).
The data that are being used for sampling purposes will enable the sharing of analysis and publishing of statistics, such as but not limited to:
Health Insight Survey
ONS and NHS England are entering into a Memorandum of Understanding to set out the basis on which they will collaborate with each other on the provision of the Health Insight Survey. The objective of this collaboration necessitate the use of PDS data to enhance the sample for the survey, namely:
- To boost the sample to seek to a) counteract attrition, b) increase the number of participants in groups that are currently under-represented including younger and people from ethnic minorities, and c) achieve a sample size consistently large enough within the 22 Primary Care Network (PCN) test sites to provide actionable insight
This will enable ONS to make available to NHS England insight into patient experience of health services based on HIS, including with regards to inequalities, and at regional, ICB-level and PCN level.
Children’s Crime Survey and Safety During Childhood Survey
Redesigned CCSEW ready to run live at 15K by September 2025, (replacing the existing face-to-face Children's CSEW which ends in March 2025. This will enable continuation of the regular collection of much needed nationally representative data on the prevalence and nature of crime and other harmful experiences among children in England and Wales. Utilising PDS data for sampling purposes will enable ONS to enhance this children’s data collection through improving flexibility, sustainability and efficiency of survey delivery. It will allow an increased sample size to improve quality and use of the data, and will enable greater demographic and intersectional breakdowns to better meet user needs. It will also provide opportunities for expanding the sample as required in the future. Ultimately the redesigned survey will improve official statistics on children’s victimisation and other crime-related topics to enable evidence-informed government decisions and help with the framing of policy and legislative initiatives that support and protect children, aligning with two of the new Government missions: Breaking Down the Barriers to Opportunity and Making Britain’s Streets Safe. These statistics will also be important for informing and monitoring the impact of policy recommendations for improving children’s safety in the community and online, such as those highlighted in the Children's Commissioners' Big Answer.
https://labour.org.uk/wp-content/uploads/2023/07/Mission-breaking-down-barriers.pdf
https://labour.org.uk/wp-content/uploads/2023/03/Mission-Safety.pdf
https://www.childrenscommissioner.gov.uk/the-big-answer/
The Safety During Childhood Survey has two expected key outputs:
- A pilot of the online 16-25 survey is due to be completed in 2025 for which a sample frame is required. This will be part of evaluating the operational design of the survey.
- The full survey is planned for 2026. It is from that survey which we will produce national estimates of child abuse experienced by 12-17 year olds and 18-25 year olds.
All of the above outputs will feed into the realisation of the benefit ES1: Better informed decisions that better reflect experiences in all the UK – at a national and local level, for government departments, local governments and regional agencies, this will generate approximately £32.48M.
It is hoped within the next year to two years, the Safety During Childhood Survey and the redesigned Children’s Crime Survey will become fully integrated surveys within the ONS contributing towards various government statistics to drive crime policy forward.
Benefits reported
PDS is a key data source for the admin-based population estimates (ABPEs) produced using the Dynamic Population model (DPM). The DPM balances input data on population (stocks) at specific points in time with the components of population change (flows of births, deaths, and migrants) over time. PDS data is used within the population stock data and migrant estimates (internal and international).
We published provisional mid-2023 ABPEs for local authorities in England and Wales in December 2023 and updated mid-2011 to mid-2023 ABPEs in July 2024. Commentary for our July release is provided in our Population estimates for England and Wales: mid-2023 bulletin alongside the latest official estimates (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/dynamicpopulationmodelimprovementstodatasourcesandmethodology/localauthoritiesinenglandandwalesmid2011tomid2023). This allows users to compare the ABPEs with official population estimates.
The ABPEs are currently official statistics in development while we refine our methods and the data sources used to estimate the usual resident population. We are aiming for our APBEs to become the official mid-year population estimates in 2025. This is dependent on the use of PDS data.
Population estimates have a wide range of uses across government, including the health sector, in terms of resource allocation, policy making and service planning. Population estimates are also used as a denominator for rates relating to health such as mortality rates and fertility rates.
The PDS is also a key data source used in the Refugee Integration Outcomes (RIO) project. The RIO project links Home Office data on refugees granted asylum and individuals who came to the UK under a resettlement scheme with data from the PDS, Home Office Borders and Immigration (HOBI), Census 2021 and several other administrative data sources, to create an anonymised analytical dataset covering health, housing, economic, education and social outcomes. The current iteration of RIO includes refugees resettled in England and Wales under the Vulnerable Persons Resettlement Scheme (VPRS) and Vulnerable Children’s Resettlement Scheme (VCRS) and those granted asylum between 2015 and 2020, with data for additional cohorts currently being linked.
Refugee integration is a challenging and high-profile policy area, with refugee status most often invisible in analytical datasets. The RIO project aims to fill this evidence gap and is now providing unique insights into social and economic integration outcomes through the evaluation of refugee integration programmes. We published early analysis from RIO in June 2023, which provided new insights into health and housing outcomes for resettled refugees using linked Census 2021 data, alongside a report on linkage quality. This analysis would not have been possible without PDS stocks data. Linking data is the optimal way of generating new insights on refugee integration outcomes, both in terms of coverage and quality. The value of data already collected is maximised and the burden involved in collecting data directly from refugees or support providers is minimised.
DARS-NIC-20951-D2K6S-v13.6 6 December 2024 to 21 August 2025
- Title
- Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- Yes
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v12.2
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2024-12-06 | |
| End date | 2025-08-21 |
Objective for processing
[9 paragraphs unchanged] Amazon Web Services provide IT hosting services to ONS and will store the data as contracted by ONS as a processor. The Integrated Data Service (IDS) is a cloud-based Trusted Research Environment (TRE) where analysts process data for the purposes listed in this Agreement. Google UK Limited provide IT hosting services to ONS for the IDS and will store the data as contracted by ONS as a processor. [21 paragraphs unchanged] To enable ONS’s Administrative Based Census Project, including placing administrative data at the core of migration statistics, using ‘activity’ and characteristics data from PDS ONS’s Administrative Based Census Project (ABC) is assessing whether the Government’s ambition that ‘censuses after 2021 be conducted using other sources of data’ can be realised. ONS aims to replicate the type of information collected through a census by using administrative data already held by government, supplemented by surveys. This can then be compared with the data collected by the 2021 census itself. This will allow ONS to determine whether this alternative approach can meet users’ needs. As part of this work ONS will be producing a non-disclosive, de-identified Administrative Based Census (ABC) dataset for research use. This will be a heavily derived data product containing only the age, sex and Lower Layer Super Output Area (LSOA) for records included within the ABC. This ABC output dataset will be produced through amalgamating multiple administrative data sources (including NHS Personal Demographics Service, Hospital Episode Statistics, Emergency Care Dataset plus a multitude of data from other sources) to generate a de-identified record for every usual resident in England and Wales and help estimate the population at a local level. This de-identified, non-disclosive ONS product (the ABC) will be made available for approved / accredited research use within ONS operated Trusted Research Environments (TREs). [12 paragraphs unchanged]
Processing activities
[19 paragraphs unchanged] This processing activity takes place in a dedicated ONS environment provided by Amazon Web Services, and based in England and Wales only. The data will reside within Google Cloud Platform (GCP). All cloud services consumed for the storage and use of the data are scoped to securely managed GCP Projects. GCP Projects in scope for this project are not connected to ONS corporate networks. GCP Projects in scope for this project are accessible via the internet for administration/analytical work. Access is securely bound up with Google identity services, internet authentication proxies and multi-factor authentication. All platform infrastructure and storage is deployed into the Europe-west2 region (London) and in any of the 3 available zones for redundancy and high availability (where applicable). Processing of data can only be carried out on GCP infrastructure within the deployed region. Access to GCP platform is region locked to UK IP addresses only. Access to IDS and any data it holds is not permitted from outside the UK. Overseas connections are monitored, and connection attempts will lead to account suspension. [112 paragraphs unchanged]
Expected output
[24 paragraphs unchanged] Admin Based Census (ABC) As part of ONS' work on producing more accurate statistics on the population at a local level through administrative data, a non-disclosive, de-identified Administrative Based Census (ABC) dataset will be created for research use. This will be a heavily derived data product containing only the age, sex and Lower Layer Super Output Area (LSOA) for records included within the ABC. This ABC output dataset will be produced through amalgamating multiple administrative data sources (including NHS Personal Demographics Service, Hospital Episode Statistics, Emergency Care Dataset plus a multitude of data from other sources) to generate a de-identified record for every usual resident in England and Wales and help estimate the population at a local level. This de-identified, non-disclosive ONS product (the ABC) will be made available for approved / accredited research use within ONS operated Trusted Research Environments (TREs).
Expected measurable benefits
[8 paragraphs unchanged] In May 2023, NHS England launched the Delivery plan for recovering access to primary care and they require granular data to monitor this policy. NHS England have requested that ONS deliver a study (the Health Insight Survey) spanning the period April 2024 to March 2025 in the first instance, which will be focussed predominately on collecting and collating data relating to public access and experience when utilising GP Surgeries, Pharmacies and NHS funded Dentistry services. NHS England will utilise this data to support the benefit realisation work associated with the Plan for Recovering Access to Primary Care (PCARP). The results will also be utilised to monitor expected benefits of the implementation of PCARP, including cross referenced analysis to Primary Care Networks (PCN) and Integrated care Boards (ICB). Admin Based Census The availability of a non-disclosive, de-identified Admin Based Census (ABC) dataset for approved / accredited use through ONS operated Trusted Research Environments (TREs) will enable much richer insights to be gained when used alongside other research datasets. For example it will allow for more detailed analysis at a local level to be undertaken by researchers, to help policy makers and the public better understand what is happening in towns and cities across England and Wales and any disparities that may exist between areas.
Benefits reported
PDS data has been integral for:
PDS is a key data source for the admin-based population estimates (ABPEs) produced using the Dynamic Population model (DPM). The DPM balances input data on population (stocks) at specific points in time with the components of population change (flows of births, deaths, and migrants) over time. PDS data is used within the population stock data and migrant estimates (internal and international).
• Research in developing an approach for producing Admin Based Population Estimates (ABPEs), formerly known as SPDs. By combining PDS with income, education and life event data sources and applying an activity based approach, ONS have published two ABPE time series for 2016-2020 (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/developingadminbasedpopulationestimatesenglandandwales/2016to2020). Analysing these time series helps ONS understand if and how the quality of the estimates change over time, which feeds into ONS' future methodological improvements.
We published provisional mid-2023 ABPEs for local authorities in England and Wales in December 2023 and updated mid-2011 to mid-2023 ABPEs in July 2024. Commentary for our July release is provided in our Population estimates for England and Wales: mid-2023 bulletin alongside the latest official estimates (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/dynamicpopulationmodelimprovementstodatasourcesandmethodology/localauthoritiesinenglandandwalesmid2011tomid2023). This allows users to compare the ABPEs with official population estimates.
• Understanding any changes in the way the population interacts with health registration systems and whether there have been changes to these patterns during the pandemic. This information will support ONS in further developing their ABPEs.
The ABPEs are currently official statistics in development while we refine our methods and the data sources used to estimate the usual resident population. We are aiming for our APBEs to become the official mid-year population estimates in 2025. This is dependent on the use of PDS data.
• Providing address information for the population and helping ONS understand changes in population between local areas and over time.
Population estimates have a wide range of uses across government, including the health sector, in terms of resource allocation, policy making and service planning. Population estimates are also used as a denominator for rates relating to health such as mortality rates and fertility rates.
Census Statistical Outputs Design are using the PDS data to quality assure the Census. In preparation for the census ONS used PDS data to understand the quality of the address frame planned for use. The frame is the list of addresses ONS use as the basis for making initial contact with the public. ONS analysts looked for evidence of where there was a clustering of addresses which were on the PDS but not on the frame, for example a newly built block of flats.
The PDS is also a key data source used in the Refugee Integration Outcomes (RIO) project. The RIO project links Home Office data on refugees granted asylum and individuals who came to the UK under a resettlement scheme with data from the PDS, Home Office Borders and Immigration (HOBI), Census 2021 and several other administrative data sources, to create an anonymised analytical dataset covering health, housing, economic, education and social outcomes. The current iteration of RIO includes refugees resettled in England and Wales under the Vulnerable Persons Resettlement Scheme (VPRS) and Vulnerable Children’s Resettlement Scheme (VCRS) and those granted asylum between 2015 and 2020, with data for additional cohorts currently being linked.
As part of quality assurance of the census statistics ONS have a systematic approach to validating against a range of data and other statistics. This includes the PDS. Where inconsistencies are seen between the census and the PDS, analysts take a deeper look at ONS statistics to understand whether there is evidence of an issue with the census process. As an example this could include if ONS data has missed a student hall of residence.
Refugee integration is a challenging and high-profile policy area, with refugee status most often invisible in analytical datasets. The RIO project aims to fill this evidence gap and is now providing unique insights into social and economic integration outcomes through the evaluation of refugee integration programmes. We published early analysis from RIO in June 2023, which provided new insights into health and housing outcomes for resettled refugees using linked Census 2021 data, alongside a report on linkage quality. This analysis would not have been possible without PDS stocks data. Linking data is the optimal way of generating new insights on refugee integration outcomes, both in terms of coverage and quality. The value of data already collected is maximised and the burden involved in collecting data directly from refugees or support providers is minimised.
In compiling the final census estimates ONS has also used the PDS to understand whether there is any systematic bias in how the size of the population has been estimated. ONS’ final statistics are estimates as they aren’t simply the number of people of people who completed a questionnaire, instead analysts adjust for the number of people who were not included on a form. ONS used PDS data to validate the assumptions made in this modelling.
The Centre for International Migration have previously linked the PDS to HMRC's Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many 'new migrants' on the MWS are seen in PDS. This is part of ONS' wider work to link different administrative data sources together and to test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
Using PR (in future PDS) data ONS have linked census and deaths data to produce new insights on the ethnic differences in mortality and life expectancy.
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes, as agreed with NHS Digital:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act (SRSA) 2007 the Statistics Board (UK Statistics Authority) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics (ONS) as the Executive Office of The Board carries out this function. Within ONS, the Health, Population and Methods Group are responsible for providing key data on the population of the United Kingdom and are comprised of a number of divisions that undertake demographic analysis in, for example, migration, fertility, mortality, life expectancy, ageing and families. These analyses are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to, from time to time, collect and publish any statistical information relating to the number and condition of the population in the interval between one census and another and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the SRSA 2007.
ONS rely on the following lawful bases under the General Data Protection Regulation for processing personal data including special categories of personal data:
• GDPR Article 6(1)(e) The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
• GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom's National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business and enable better decisions to be made. Using administrative data such as Personal Demographics Service (PDS) allows ONS to produce statistics which are more granular and timely at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census and population statistics – more detailed justifications are outlined in greater depth below. Proportionality is considered by business areas who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address, and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out under this Agreement will be requested and processed.
Amazon Web Services provide IT hosting services to ONS and will store the data as contracted by ONS as a processor.
The Integrated Data Service (IDS) is a cloud-based Trusted Research Environment (TRE) where analysts process data for the purposes listed in this Agreement.
Google UK Limited provide IT hosting services to ONS for the IDS and will store the data as contracted by ONS as a processor.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by employees of ONS or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigorous disclosure controls and access restrictions, thus ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading 'Data Environment'.
Population Statistics
NHS Digital previously supplied CHRIS data and Patient Register (NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. PDS stocks are also to be used in place of the now defunct PR data to produce small area population estimates at Lower Layer Super Output Area (LSOA), Middle Layer Super Output Area (MSOA), Output Area (OA), ward, Clinical Commissioning Group (CCG), parliamentary constituencies, and National Park levels. With the loss of the NHAIS posting information, the PDS will be used to produce estimates of internal migration - therefore more detailed address information is required from weekly PDS updates so that the address data can be run through ONS’ Address Index Matching System (AIMS). The PDS will also help ONS to understand how migrants interact with services.
Internal migration estimates are national statistics and are a key component in population estimates, projections and national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, for estimating the local authority distribution of international migrants component of change mid-year estimates and small area population estimates within England and Wales and for estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students and data from HMRC and DWP.
Census and Data Collection Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
• Population and housing estimates: counts of the population by age and sex, and the number of housing units.
• Population structures: households, families and household relationships.
• Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. The Census also provides a precise estimate of the UK population. Any statistics produced that relate to the general population are understood by comparing against this estimate. Mortality rates, household income, disease prevalence, employment rates, vaccination rates and more all rely on an accurate population estimate. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended to the Board of the UK Statistics Authority that the future provision of population statistics and the next census should be through:
"An online census of all households and communal establishments in England and Wales in 2021 recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses."
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
'Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA's plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.' - Government's response to the National Statistician's recommendation, 18 July 2014.
The Census and Data Collection Transformation Programme (CDCTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether, in ONS' view, the Government's ambition can be realised. To that end, ONS has committed to publishing an annual assessment of progress towards the Government's ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. Since 2015 ONS has produced annual Admin Based Population Estimates (ABPEs), formerly known as Statistical Population Datasets (SPDs), based on linking multiple administrative datasets (including NHS Patient Registration (PR) Data, Department for Work and Pensions (DWP)/Her Majesty’s Revenue and Customs (HMRC), Customer Information System data and higher education data).
No one dataset in its' own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual's interactions with this system. This 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics by helping to address issues relating to definitional differences between administrative data and population definitions and time lags.
To enable ONS’s Administrative Based Census Project, including placing administrative data at the core of migration statistics, using ‘activity’ and characteristics data from PDS ONS’s Administrative Based Census Project (ABC) is assessing whether the Government’s ambition that ‘censuses after 2021 be conducted using other sources of data’ can be realised. ONS aims to replicate the type of information collected through a census by using administrative data already held by government, supplemented by surveys. This can then be compared with the data collected by the 2021 census itself. This will allow ONS to determine whether this alternative approach can meet users’ needs. As part of this work ONS will be producing a non-disclosive, de-identified Administrative Based Census (ABC) dataset for research use. This will be a heavily derived data product containing only the age, sex and Lower Layer Super Output Area (LSOA) for records included within the ABC. This ABC output dataset will be produced through amalgamating multiple administrative data sources (including NHS Personal Demographics Service, Hospital Episode Statistics, Emergency Care Dataset plus a multitude of data from other sources) to generate a de-identified record for every usual resident in England and Wales and help estimate the population at a local level. This de-identified, non-disclosive ONS product (the ABC) will be made available for approved / accredited research use within ONS operated Trusted Research Environments (TREs).
There is no common identifier that can be used to link individuals' records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, full name, addresses and postcodes) to link the datasets and establish the aforementioned ABPEs. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data was needed to support the 2021 Census and continues to be needed to provide evidence for the annual assessment of progress towards the Government's ambition beyond 2021, whilst also ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other administrative data sources, however no clinical data is being requested. Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce ABPEs and allow analyses to meet the 2023 recommendation of the future of the Census.
Census 2021 Quality Assurance
ONS conducted the Census for England and Wales on 21st March 2021, which is one of the most important and highest profile National Statistical productions. The Census will provide a decennial picture of the size and state of the population and will feed directly into funding and service provision policies. Although the Census is mandatory, not everyone is captured. Data collected in the Census can be compared with data from the PDS to ensure it is reliable and will allow ONS to gather data needed to inform work around the Census. This will help ONS to quality assure Census returns and prepare outputs.
International Migration
The Centre for International Migration is leading on work to transform international migration statistics through the development of administrative data-based migration estimates (ABMEs) that will better meet user needs for timely and accurate statistics on this topic area. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee's report and government response.
The PDS data forms an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved international migration estimates at local level. Improved statistics, at a more granular level, may enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data hopes to allow the centre to:
• Compare signs of the arrival, activity and departures of international migrants by linking PDS to other public sector datasets.
• Use knowledge and information from PDS to inform ABMEs and modelled estimates of international migration.
• Provide analysis and research into how international migrants interact with the health system and the impact of international migration on the health sector, including via linkage to other public sector datasets.
ONS use PR/PDS data to carry out population level analysis. PDS data includes address and date of birth variables which can be used as analytical variables for population groups for example. This may facilitate the creation of location-based variables or flags for analysis. By using the PDS data to assign 'location-based variables' ONS can ensure population indicators collected in other linked data sources such as the Census are updated to reflect the most recent living situation of the population of interest. For example, between the 10-yearly census information on the size and condition of the population living in deprived areas, information on small geographic locations or communal establishments (such as care homes) are not readily available. PDS data can be used to identify and quantify the size of these populations. The PDS data can also be used alongside other data sources such as Provider Information Returns data held by the Care Quality Commission to identify and better understand the characteristics of the population receiving social care.
To note, ONS analysts do not actually scrutinize individual rows of data, rather they run models on large scale datasets with millions of rows, and then scrutinize the outputs and aggregate results. Once aggregated ONS analysts will never try to identify or re-identify individuals.
Expected output
The outputs expected from this work include statistics, statistical reports, presentations, methodology papers and analyses. All outputs are produced in order to meet ONS’ role to produce statistics for the public good. Should outputs contain any data, this data will be aggregated with small numbers supressed.
Any official statistics produced will be published so that they are publicly available - for example on the ONS website, in statistical bulletins, analysis articles or on data dashboards.
Projects focused on new topics or new data sources will include exploration of the feasibility of using and/or linking the data. They will also quality assess the data and linkage prior to full development of analyses and publication of statistics. Briefings for technical/expert audiences or methodology reports may be written for internal use in the development and assessment of new data sources and analysis. These reports will be published alongside experimental statistics or official statistics on the ONS website or in peer-reviewed journals as appropriate.
All ONS statistical teams engage regularly with users and will seek to provide frequent updates on the production of official statistics through regular stakeholder conversations, presentations and events.
ONS have a publishing strategy and team which supports analytical teams in developing different outputs to suit a range of different audiences. ONS also has active communications, media and social media teams to promote dissemination of statistics and enable outputs to reach a wide-ranging audience.
Census and Data Collection Transformation Programme (CDCTP)
ONS has committed to publishing regular annual Administrative Data Research Outputs (ABPEs) on the population, including estimates on the size of the population (produced using administrative data).
The aims of these research outputs are to:
- Update users on the progress made through administrative data and to seek feedback from users - the aim being to improve the methods used.
- Aid the process of working with data suppliers to improve data quality for statistical purposes.
ONS has already developed ABPEs in both method and content in the run up to the 2021 Census and plan to compare the ABPEs with results from the 2021 Census. ONS will also expand on the range of topics and granularity of information published each year.
ONS recognise the need for continued development of their methodology. Future releases will therefore include further outputs based on future methodology developments which hope to allow for user feedback, newly available data and alternative techniques to facilitate the production of population statistics.
The research on the feasibility of producing administrative, data-based characteristics estimates that ONS should be able to provide evidence to feed into the 2023 recommendation on the future of the Census. ONS aim to produce research outputs on the progress they have made on the feasibility research they’re conducting on user feedback. The outputs will be in the form of aggregate statistics, with statistics disclosure rules applied where necessary.
Population and Migration
Main publication dates are as follows:
Internal migration - Annually – June
Internal migration statistics are published at local authority level by age and sex. They are used widely by local authorities and academics to, for example, feed into alternative population projections models and subsequent resource allocation planning.
Mid-year estimates - Annually - June, with lower-level geography releases after this until Small Area Population Estimates are released in November.
National Population projections - normally published at the end of October. Releases have traditionally been produced bi-annually. Following the release of the national projections, there are now sub-national releases between national releases.
Internal migration estimates form a key component of population estimates and population projections, which are of important use in the UK. Estimates are used by central government, local government and health authorities to support resource allocation as well as forming a fundamental basis for other statistics across government which feed into policy decisions.
Projections are used to determine the future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services needed - for example a hospital may use projections to determine whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Health and Mortality Analysis
Specific outputs will include published aggregate statistics on the number, characteristics and condition of population groups such as the social care, care home and disabled population (providing more detail on specific impairments). ONS will produce mortality, morbidity and life expectancy statistics by protected characteristics such as ethnicity, disability and specific age groups.
Admin Based Census (ABC)
As part of ONS' work on producing more accurate statistics on the population at a local level through administrative data, a non-disclosive, de-identified Administrative Based Census (ABC) dataset will be created for research use. This will be a heavily derived data product containing only the age, sex and Lower Layer Super Output Area (LSOA) for records included within the ABC. This ABC output dataset will be produced through amalgamating multiple administrative data sources (including NHS Personal Demographics Service, Hospital Episode Statistics, Emergency Care Dataset plus a multitude of data from other sources) to generate a de-identified record for every usual resident in England and Wales and help estimate the population at a local level. This de-identified, non-disclosive ONS product (the ABC) will be made available for approved / accredited research use within ONS operated Trusted Research Environments (TREs).
Benefits reported
PDS is a key data source for the admin-based population estimates (ABPEs) produced using the Dynamic Population model (DPM). The DPM balances input data on population (stocks) at specific points in time with the components of population change (flows of births, deaths, and migrants) over time. PDS data is used within the population stock data and migrant estimates (internal and international).
We published provisional mid-2023 ABPEs for local authorities in England and Wales in December 2023 and updated mid-2011 to mid-2023 ABPEs in July 2024. Commentary for our July release is provided in our Population estimates for England and Wales: mid-2023 bulletin alongside the latest official estimates (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/dynamicpopulationmodelimprovementstodatasourcesandmethodology/localauthoritiesinenglandandwalesmid2011tomid2023). This allows users to compare the ABPEs with official population estimates.
The ABPEs are currently official statistics in development while we refine our methods and the data sources used to estimate the usual resident population. We are aiming for our APBEs to become the official mid-year population estimates in 2025. This is dependent on the use of PDS data.
Population estimates have a wide range of uses across government, including the health sector, in terms of resource allocation, policy making and service planning. Population estimates are also used as a denominator for rates relating to health such as mortality rates and fertility rates.
The PDS is also a key data source used in the Refugee Integration Outcomes (RIO) project. The RIO project links Home Office data on refugees granted asylum and individuals who came to the UK under a resettlement scheme with data from the PDS, Home Office Borders and Immigration (HOBI), Census 2021 and several other administrative data sources, to create an anonymised analytical dataset covering health, housing, economic, education and social outcomes. The current iteration of RIO includes refugees resettled in England and Wales under the Vulnerable Persons Resettlement Scheme (VPRS) and Vulnerable Children’s Resettlement Scheme (VCRS) and those granted asylum between 2015 and 2020, with data for additional cohorts currently being linked.
Refugee integration is a challenging and high-profile policy area, with refugee status most often invisible in analytical datasets. The RIO project aims to fill this evidence gap and is now providing unique insights into social and economic integration outcomes through the evaluation of refugee integration programmes. We published early analysis from RIO in June 2023, which provided new insights into health and housing outcomes for resettled refugees using linked Census 2021 data, alongside a report on linkage quality. This analysis would not have been possible without PDS stocks data. Linking data is the optimal way of generating new insights on refugee integration outcomes, both in terms of coverage and quality. The value of data already collected is maximised and the burden involved in collecting data directly from refugees or support providers is minimised.
DARS-NIC-20951-D2K6S-v12.2 4 August 2023 to 24 August 2025
- Title
- Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- Yes
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v11.2
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2023-08-04 |
Processing activities
[36 paragraphs unchanged]
Two supplies of record level data are requested from NHS Digital for
[10 words unchanged]
the annual Mid-Year Stock Extract file. These are bespoke extracts from the
PDS.
PDS and use pipelines from NHS England hosted SPINE and Data Processing Services (DPS). NHS England will redact all data pertaining to s-flag status prior to dissemination (this includes geographical identification including address, NHAIS posting and primary care registration identifier).
[69 paragraphs unchanged]
For extracts from 31 July 2023 the following fields have been requested to be added:
• Previous NHAIS posting (most recent entry)
• Primary Care Registration Business Effective From Date
[22 paragraphs unchanged]
Unchanged: Objective for processing, Expected output, Expected measurable benefits, Benefits reported.
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes, as agreed with NHS Digital:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act (SRSA) 2007 the Statistics Board (UK Statistics Authority) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics (ONS) as the Executive Office of The Board carries out this function. Within ONS, the Health, Population and Methods Group are responsible for providing key data on the population of the United Kingdom and are comprised of a number of divisions that undertake demographic analysis in, for example, migration, fertility, mortality, life expectancy, ageing and families. These analyses are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to, from time to time, collect and publish any statistical information relating to the number and condition of the population in the interval between one census and another and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the SRSA 2007.
ONS rely on the following lawful bases under the General Data Protection Regulation for processing personal data including special categories of personal data:
• GDPR Article 6(1)(e) The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
• GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom's National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business and enable better decisions to be made. Using administrative data such as Personal Demographics Service (PDS) allows ONS to produce statistics which are more granular and timely at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census and population statistics – more detailed justifications are outlined in greater depth below. Proportionality is considered by business areas who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address, and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out under this Agreement will be requested and processed.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by employees of ONS or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigorous disclosure controls and access restrictions, thus ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading 'Data Environment'.
Population Statistics
NHS Digital previously supplied CHRIS data and Patient Register (NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. PDS stocks are also to be used in place of the now defunct PR data to produce small area population estimates at Lower Layer Super Output Area (LSOA), Middle Layer Super Output Area (MSOA), Output Area (OA), ward, Clinical Commissioning Group (CCG), parliamentary constituencies, and National Park levels. With the loss of the NHAIS posting information, the PDS will be used to produce estimates of internal migration - therefore more detailed address information is required from weekly PDS updates so that the address data can be run through ONS’ Address Index Matching System (AIMS). The PDS will also help ONS to understand how migrants interact with services.
Internal migration estimates are national statistics and are a key component in population estimates, projections and national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, for estimating the local authority distribution of international migrants component of change mid-year estimates and small area population estimates within England and Wales and for estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students and data from HMRC and DWP.
Census and Data Collection Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
• Population and housing estimates: counts of the population by age and sex, and the number of housing units.
• Population structures: households, families and household relationships.
• Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. The Census also provides a precise estimate of the UK population. Any statistics produced that relate to the general population are understood by comparing against this estimate. Mortality rates, household income, disease prevalence, employment rates, vaccination rates and more all rely on an accurate population estimate. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended to the Board of the UK Statistics Authority that the future provision of population statistics and the next census should be through:
"An online census of all households and communal establishments in England and Wales in 2021 recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses."
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
'Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA's plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.' - Government's response to the National Statistician's recommendation, 18 July 2014.
The Census and Data Collection Transformation Programme (CDCTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether, in ONS' view, the Government's ambition can be realised. To that end, ONS has committed to publishing an annual assessment of progress towards the Government's ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. Since 2015 ONS has produced annual Admin Based Population Estimates (ABPEs), formerly known as Statistical Population Datasets (SPDs), based on linking multiple administrative datasets (including NHS Patient Registration (PR) Data, Department for Work and Pensions (DWP)/Her Majesty’s Revenue and Customs (HMRC), Customer Information System data and higher education data).
No one dataset in its' own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual's interactions with this system. This 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics by helping to address issues relating to definitional differences between administrative data and population definitions and time lags.
There is no common identifier that can be used to link individuals' records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, full name, addresses and postcodes) to link the datasets and establish the aforementioned ABPEs. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data was needed to support the 2021 Census and continues to be needed to provide evidence for the annual assessment of progress towards the Government's ambition beyond 2021, whilst also ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other administrative data sources, however no clinical data is being requested. Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce ABPEs and allow analyses to meet the 2023 recommendation of the future of the Census.
Census 2021 Quality Assurance
ONS conducted the Census for England and Wales on 21st March 2021, which is one of the most important and highest profile National Statistical productions. The Census will provide a decennial picture of the size and state of the population and will feed directly into funding and service provision policies. Although the Census is mandatory, not everyone is captured. Data collected in the Census can be compared with data from the PDS to ensure it is reliable and will allow ONS to gather data needed to inform work around the Census. This will help ONS to quality assure Census returns and prepare outputs.
International Migration
The Centre for International Migration is leading on work to transform international migration statistics through the development of administrative data-based migration estimates (ABMEs) that will better meet user needs for timely and accurate statistics on this topic area. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee's report and government response.
The PDS data forms an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved international migration estimates at local level. Improved statistics, at a more granular level, may enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data hopes to allow the centre to:
• Compare signs of the arrival, activity and departures of international migrants by linking PDS to other public sector datasets.
• Use knowledge and information from PDS to inform ABMEs and modelled estimates of international migration.
• Provide analysis and research into how international migrants interact with the health system and the impact of international migration on the health sector, including via linkage to other public sector datasets.
ONS use PR/PDS data to carry out population level analysis. PDS data includes address and date of birth variables which can be used as analytical variables for population groups for example. This may facilitate the creation of location-based variables or flags for analysis. By using the PDS data to assign 'location-based variables' ONS can ensure population indicators collected in other linked data sources such as the Census are updated to reflect the most recent living situation of the population of interest. For example, between the 10-yearly census information on the size and condition of the population living in deprived areas, information on small geographic locations or communal establishments (such as care homes) are not readily available. PDS data can be used to identify and quantify the size of these populations. The PDS data can also be used alongside other data sources such as Provider Information Returns data held by the Care Quality Commission to identify and better understand the characteristics of the population receiving social care.
To note, ONS analysts do not actually scrutinize individual rows of data, rather they run models on large scale datasets with millions of rows, and then scrutinize the outputs and aggregate results. Once aggregated ONS analysts will never try to identify or re-identify individuals.
Expected output
The outputs expected from this work include statistics, statistical reports, presentations, methodology papers and analyses. All outputs are produced in order to meet ONS’ role to produce statistics for the public good. Should outputs contain any data, this data will be aggregated with small numbers supressed.
Any official statistics produced will be published so that they are publicly available - for example on the ONS website, in statistical bulletins, analysis articles or on data dashboards.
Projects focused on new topics or new data sources will include exploration of the feasibility of using and/or linking the data. They will also quality assess the data and linkage prior to full development of analyses and publication of statistics. Briefings for technical/expert audiences or methodology reports may be written for internal use in the development and assessment of new data sources and analysis. These reports will be published alongside experimental statistics or official statistics on the ONS website or in peer-reviewed journals as appropriate.
All ONS statistical teams engage regularly with users and will seek to provide frequent updates on the production of official statistics through regular stakeholder conversations, presentations and events.
ONS have a publishing strategy and team which supports analytical teams in developing different outputs to suit a range of different audiences. ONS also has active communications, media and social media teams to promote dissemination of statistics and enable outputs to reach a wide-ranging audience.
Census and Data Collection Transformation Programme (CDCTP)
ONS has committed to publishing regular annual Administrative Data Research Outputs (ABPEs) on the population, including estimates on the size of the population (produced using administrative data).
The aims of these research outputs are to:
- Update users on the progress made through administrative data and to seek feedback from users - the aim being to improve the methods used.
- Aid the process of working with data suppliers to improve data quality for statistical purposes.
ONS has already developed ABPEs in both method and content in the run up to the 2021 Census and plan to compare the ABPEs with results from the 2021 Census. ONS will also expand on the range of topics and granularity of information published each year.
ONS recognise the need for continued development of their methodology. Future releases will therefore include further outputs based on future methodology developments which hope to allow for user feedback, newly available data and alternative techniques to facilitate the production of population statistics.
The research on the feasibility of producing administrative, data-based characteristics estimates that ONS should be able to provide evidence to feed into the 2023 recommendation on the future of the Census. ONS aim to produce research outputs on the progress they have made on the feasibility research they’re conducting on user feedback. The outputs will be in the form of aggregate statistics, with statistics disclosure rules applied where necessary.
Population and Migration
Main publication dates are as follows:
Internal migration - Annually – June
Internal migration statistics are published at local authority level by age and sex. They are used widely by local authorities and academics to, for example, feed into alternative population projections models and subsequent resource allocation planning.
Mid-year estimates - Annually - June, with lower-level geography releases after this until Small Area Population Estimates are released in November.
National Population projections - normally published at the end of October. Releases have traditionally been produced bi-annually. Following the release of the national projections, there are now sub-national releases between national releases.
Internal migration estimates form a key component of population estimates and population projections, which are of important use in the UK. Estimates are used by central government, local government and health authorities to support resource allocation as well as forming a fundamental basis for other statistics across government which feed into policy decisions.
Projections are used to determine the future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services needed - for example a hospital may use projections to determine whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Health and Mortality Analysis
Specific outputs will include published aggregate statistics on the number, characteristics and condition of population groups such as the social care, care home and disabled population (providing more detail on specific impairments). ONS will produce mortality, morbidity and life expectancy statistics by protected characteristics such as ethnicity, disability and specific age groups.
Benefits reported
PDS data has been integral for:
• Research in developing an approach for producing Admin Based Population Estimates (ABPEs), formerly known as SPDs. By combining PDS with income, education and life event data sources and applying an activity based approach, ONS have published two ABPE time series for 2016-2020 (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/developingadminbasedpopulationestimatesenglandandwales/2016to2020). Analysing these time series helps ONS understand if and how the quality of the estimates change over time, which feeds into ONS' future methodological improvements.
• Understanding any changes in the way the population interacts with health registration systems and whether there have been changes to these patterns during the pandemic. This information will support ONS in further developing their ABPEs.
• Providing address information for the population and helping ONS understand changes in population between local areas and over time.
Census Statistical Outputs Design are using the PDS data to quality assure the Census. In preparation for the census ONS used PDS data to understand the quality of the address frame planned for use. The frame is the list of addresses ONS use as the basis for making initial contact with the public. ONS analysts looked for evidence of where there was a clustering of addresses which were on the PDS but not on the frame, for example a newly built block of flats.
As part of quality assurance of the census statistics ONS have a systematic approach to validating against a range of data and other statistics. This includes the PDS. Where inconsistencies are seen between the census and the PDS, analysts take a deeper look at ONS statistics to understand whether there is evidence of an issue with the census process. As an example this could include if ONS data has missed a student hall of residence.
In compiling the final census estimates ONS has also used the PDS to understand whether there is any systematic bias in how the size of the population has been estimated. ONS’ final statistics are estimates as they aren’t simply the number of people of people who completed a questionnaire, instead analysts adjust for the number of people who were not included on a form. ONS used PDS data to validate the assumptions made in this modelling.
The Centre for International Migration have previously linked the PDS to HMRC's Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many 'new migrants' on the MWS are seen in PDS. This is part of ONS' wider work to link different administrative data sources together and to test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
Using PR (in future PDS) data ONS have linked census and deaths data to produce new insights on the ethnic differences in mortality and life expectancy.
DARS-NIC-20951-D2K6S-v11.2 28 February 2023 to 24 August 2025
- Title
- Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- Yes
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v10.2
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2023-02-28 |
Processing activities
[101 paragraphs unchanged] • NHAIS Posting [2 paragraphs unchanged] • Patient care provision type [23 paragraphs unchanged]
Unchanged: Objective for processing, Expected output, Expected measurable benefits, Benefits reported.
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes, as agreed with NHS Digital:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act (SRSA) 2007 the Statistics Board (UK Statistics Authority) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics (ONS) as the Executive Office of The Board carries out this function. Within ONS, the Health, Population and Methods Group are responsible for providing key data on the population of the United Kingdom and are comprised of a number of divisions that undertake demographic analysis in, for example, migration, fertility, mortality, life expectancy, ageing and families. These analyses are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to, from time to time, collect and publish any statistical information relating to the number and condition of the population in the interval between one census and another and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the SRSA 2007.
ONS rely on the following lawful bases under the General Data Protection Regulation for processing personal data including special categories of personal data:
• GDPR Article 6(1)(e) The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
• GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom's National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business and enable better decisions to be made. Using administrative data such as Personal Demographics Service (PDS) allows ONS to produce statistics which are more granular and timely at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census and population statistics – more detailed justifications are outlined in greater depth below. Proportionality is considered by business areas who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address, and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out under this Agreement will be requested and processed.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by employees of ONS or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigorous disclosure controls and access restrictions, thus ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading 'Data Environment'.
Population Statistics
NHS Digital previously supplied CHRIS data and Patient Register (NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. PDS stocks are also to be used in place of the now defunct PR data to produce small area population estimates at Lower Layer Super Output Area (LSOA), Middle Layer Super Output Area (MSOA), Output Area (OA), ward, Clinical Commissioning Group (CCG), parliamentary constituencies, and National Park levels. With the loss of the NHAIS posting information, the PDS will be used to produce estimates of internal migration - therefore more detailed address information is required from weekly PDS updates so that the address data can be run through ONS’ Address Index Matching System (AIMS). The PDS will also help ONS to understand how migrants interact with services.
Internal migration estimates are national statistics and are a key component in population estimates, projections and national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, for estimating the local authority distribution of international migrants component of change mid-year estimates and small area population estimates within England and Wales and for estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students and data from HMRC and DWP.
Census and Data Collection Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
• Population and housing estimates: counts of the population by age and sex, and the number of housing units.
• Population structures: households, families and household relationships.
• Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. The Census also provides a precise estimate of the UK population. Any statistics produced that relate to the general population are understood by comparing against this estimate. Mortality rates, household income, disease prevalence, employment rates, vaccination rates and more all rely on an accurate population estimate. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended to the Board of the UK Statistics Authority that the future provision of population statistics and the next census should be through:
"An online census of all households and communal establishments in England and Wales in 2021 recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses."
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
'Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA's plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.' - Government's response to the National Statistician's recommendation, 18 July 2014.
The Census and Data Collection Transformation Programme (CDCTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether, in ONS' view, the Government's ambition can be realised. To that end, ONS has committed to publishing an annual assessment of progress towards the Government's ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. Since 2015 ONS has produced annual Admin Based Population Estimates (ABPEs), formerly known as Statistical Population Datasets (SPDs), based on linking multiple administrative datasets (including NHS Patient Registration (PR) Data, Department for Work and Pensions (DWP)/Her Majesty’s Revenue and Customs (HMRC), Customer Information System data and higher education data).
No one dataset in its' own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual's interactions with this system. This 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics by helping to address issues relating to definitional differences between administrative data and population definitions and time lags.
There is no common identifier that can be used to link individuals' records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, full name, addresses and postcodes) to link the datasets and establish the aforementioned ABPEs. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data was needed to support the 2021 Census and continues to be needed to provide evidence for the annual assessment of progress towards the Government's ambition beyond 2021, whilst also ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other administrative data sources, however no clinical data is being requested. Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce ABPEs and allow analyses to meet the 2023 recommendation of the future of the Census.
Census 2021 Quality Assurance
ONS conducted the Census for England and Wales on 21st March 2021, which is one of the most important and highest profile National Statistical productions. The Census will provide a decennial picture of the size and state of the population and will feed directly into funding and service provision policies. Although the Census is mandatory, not everyone is captured. Data collected in the Census can be compared with data from the PDS to ensure it is reliable and will allow ONS to gather data needed to inform work around the Census. This will help ONS to quality assure Census returns and prepare outputs.
International Migration
The Centre for International Migration is leading on work to transform international migration statistics through the development of administrative data-based migration estimates (ABMEs) that will better meet user needs for timely and accurate statistics on this topic area. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee's report and government response.
The PDS data forms an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved international migration estimates at local level. Improved statistics, at a more granular level, may enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data hopes to allow the centre to:
• Compare signs of the arrival, activity and departures of international migrants by linking PDS to other public sector datasets.
• Use knowledge and information from PDS to inform ABMEs and modelled estimates of international migration.
• Provide analysis and research into how international migrants interact with the health system and the impact of international migration on the health sector, including via linkage to other public sector datasets.
ONS use PR/PDS data to carry out population level analysis. PDS data includes address and date of birth variables which can be used as analytical variables for population groups for example. This may facilitate the creation of location-based variables or flags for analysis. By using the PDS data to assign 'location-based variables' ONS can ensure population indicators collected in other linked data sources such as the Census are updated to reflect the most recent living situation of the population of interest. For example, between the 10-yearly census information on the size and condition of the population living in deprived areas, information on small geographic locations or communal establishments (such as care homes) are not readily available. PDS data can be used to identify and quantify the size of these populations. The PDS data can also be used alongside other data sources such as Provider Information Returns data held by the Care Quality Commission to identify and better understand the characteristics of the population receiving social care.
To note, ONS analysts do not actually scrutinize individual rows of data, rather they run models on large scale datasets with millions of rows, and then scrutinize the outputs and aggregate results. Once aggregated ONS analysts will never try to identify or re-identify individuals.
Expected output
The outputs expected from this work include statistics, statistical reports, presentations, methodology papers and analyses. All outputs are produced in order to meet ONS’ role to produce statistics for the public good. Should outputs contain any data, this data will be aggregated with small numbers supressed.
Any official statistics produced will be published so that they are publicly available - for example on the ONS website, in statistical bulletins, analysis articles or on data dashboards.
Projects focused on new topics or new data sources will include exploration of the feasibility of using and/or linking the data. They will also quality assess the data and linkage prior to full development of analyses and publication of statistics. Briefings for technical/expert audiences or methodology reports may be written for internal use in the development and assessment of new data sources and analysis. These reports will be published alongside experimental statistics or official statistics on the ONS website or in peer-reviewed journals as appropriate.
All ONS statistical teams engage regularly with users and will seek to provide frequent updates on the production of official statistics through regular stakeholder conversations, presentations and events.
ONS have a publishing strategy and team which supports analytical teams in developing different outputs to suit a range of different audiences. ONS also has active communications, media and social media teams to promote dissemination of statistics and enable outputs to reach a wide-ranging audience.
Census and Data Collection Transformation Programme (CDCTP)
ONS has committed to publishing regular annual Administrative Data Research Outputs (ABPEs) on the population, including estimates on the size of the population (produced using administrative data).
The aims of these research outputs are to:
- Update users on the progress made through administrative data and to seek feedback from users - the aim being to improve the methods used.
- Aid the process of working with data suppliers to improve data quality for statistical purposes.
ONS has already developed ABPEs in both method and content in the run up to the 2021 Census and plan to compare the ABPEs with results from the 2021 Census. ONS will also expand on the range of topics and granularity of information published each year.
ONS recognise the need for continued development of their methodology. Future releases will therefore include further outputs based on future methodology developments which hope to allow for user feedback, newly available data and alternative techniques to facilitate the production of population statistics.
The research on the feasibility of producing administrative, data-based characteristics estimates that ONS should be able to provide evidence to feed into the 2023 recommendation on the future of the Census. ONS aim to produce research outputs on the progress they have made on the feasibility research they’re conducting on user feedback. The outputs will be in the form of aggregate statistics, with statistics disclosure rules applied where necessary.
Population and Migration
Main publication dates are as follows:
Internal migration - Annually – June
Internal migration statistics are published at local authority level by age and sex. They are used widely by local authorities and academics to, for example, feed into alternative population projections models and subsequent resource allocation planning.
Mid-year estimates - Annually - June, with lower-level geography releases after this until Small Area Population Estimates are released in November.
National Population projections - normally published at the end of October. Releases have traditionally been produced bi-annually. Following the release of the national projections, there are now sub-national releases between national releases.
Internal migration estimates form a key component of population estimates and population projections, which are of important use in the UK. Estimates are used by central government, local government and health authorities to support resource allocation as well as forming a fundamental basis for other statistics across government which feed into policy decisions.
Projections are used to determine the future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services needed - for example a hospital may use projections to determine whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Health and Mortality Analysis
Specific outputs will include published aggregate statistics on the number, characteristics and condition of population groups such as the social care, care home and disabled population (providing more detail on specific impairments). ONS will produce mortality, morbidity and life expectancy statistics by protected characteristics such as ethnicity, disability and specific age groups.
Benefits reported
PDS data has been integral for:
• Research in developing an approach for producing Admin Based Population Estimates (ABPEs), formerly known as SPDs. By combining PDS with income, education and life event data sources and applying an activity based approach, ONS have published two ABPE time series for 2016-2020 (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/developingadminbasedpopulationestimatesenglandandwales/2016to2020). Analysing these time series helps ONS understand if and how the quality of the estimates change over time, which feeds into ONS' future methodological improvements.
• Understanding any changes in the way the population interacts with health registration systems and whether there have been changes to these patterns during the pandemic. This information will support ONS in further developing their ABPEs.
• Providing address information for the population and helping ONS understand changes in population between local areas and over time.
Census Statistical Outputs Design are using the PDS data to quality assure the Census. In preparation for the census ONS used PDS data to understand the quality of the address frame planned for use. The frame is the list of addresses ONS use as the basis for making initial contact with the public. ONS analysts looked for evidence of where there was a clustering of addresses which were on the PDS but not on the frame, for example a newly built block of flats.
As part of quality assurance of the census statistics ONS have a systematic approach to validating against a range of data and other statistics. This includes the PDS. Where inconsistencies are seen between the census and the PDS, analysts take a deeper look at ONS statistics to understand whether there is evidence of an issue with the census process. As an example this could include if ONS data has missed a student hall of residence.
In compiling the final census estimates ONS has also used the PDS to understand whether there is any systematic bias in how the size of the population has been estimated. ONS’ final statistics are estimates as they aren’t simply the number of people of people who completed a questionnaire, instead analysts adjust for the number of people who were not included on a form. ONS used PDS data to validate the assumptions made in this modelling.
The Centre for International Migration have previously linked the PDS to HMRC's Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many 'new migrants' on the MWS are seen in PDS. This is part of ONS' wider work to link different administrative data sources together and to test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
Using PR (in future PDS) data ONS have linked census and deaths data to produce new insights on the ethnic differences in mortality and life expectancy.
DARS-NIC-20951-D2K6S-v10.2 25 August 2022 to 24 August 2025
- Title
- Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- Yes
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v9.5
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2022-08-25 | |
| End date | 2025-08-24 | |
| Sublicensing | Yes |
Objective for processing
The Data Recipient agrees to process the Data only for the following
purposes
purposes, as
agreed with NHS
Digital. No new data will be disseminated under this Agreement:
Digital:
[1 paragraph unchanged]
Under section 20 of the Statistics and Registration Service Act
(SRSA)
2007 the Statistics Board (UK Statistics
Authority- UKSA)
Authority)
may itself produce and publish statistics on any matter relating to the
[7 words unchanged]
Office for National Statistics (ONS) as the Executive Office of The Board
(
carries out this function. Within ONS,
the Health,
Population
Statistics Division
and Methods Group
are responsible for providing key data on the population of the United Kingdom and are comprised of
several branches
a number of divisions
that undertake demographic analysis
in
in, for example,
migration, fertility, mortality,
life expectancy,
ageing and
families which
families. These analyses
are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty
to
to,
from time to
time
time,
collect and publish any statistical information
with respect
relating
to the number and condition of the population in the interval between one census and
another…and
another and
the Registrar-General may make arrangements with any Government Department for the purpose
[14 words unchanged]
transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the
2007 Act.
SRSA 2007.
ONS
will
rely on the following lawful
basis from
bases under
the
GDPR
General Data Protection Regulation
for processing personal data including special
category
categories of
personal data:
•
GDPR Article
6(1)(e)The
6(1)(e) The
processing is necessary for the performance of a task carried out in
[24 words unchanged]
official statistics is found in the Statistics and Registration Service Act 2007.
•
GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public
[45 words unchanged]
to safeguard the fundamental rights and the interests of the data subject.
ONS is the United
Kingdom’s
Kingdom's
National Statistical Institute and largest independent producer of official statistics. It is
[14 words unchanged]
in order to inform the needs of Government, society, academia and business
to
and
enable better decisions to be made. Using administrative data such as
PDS
Personal Demographics Service (PDS)
allows ONS to produce statistics which are more granular and
timelier
timely
at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census
statistics
and population
and migration estimates: these
statistics – more detailed
justifications are outlined in greater depth below. Proportionality is considered by business
areas,
areas
who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name,
address
address,
and date of birth) are essential for these projects to ensure under
[25 words unchanged]
minimisation is applied and only data required for the purposes set out
under this Agreement
will be requested and processed.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little
[17 words unchanged]
this type to be the identification of individuals through either misuse by
persons within the organisation
employees of ONS
or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigorous disclosure controls and access
restrictions –
restrictions, thus
ensuring that physical, technical, procedural and personnel security is kept to the
[46 words unchanged]
is injected, stored, linked and analysed is detailed below under the heading
‘Data Environment’.
'Data Environment'.
Population Statistics
Division
NHS Digital previously supplied CHRIS data and Patient Register
(National Health Application and Infrastructure Service- NHAIS)
(NHAIS)
data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland.
Patient Register (NHAIS) data
PDS stocks
are
due
also
to be
decommissioned and as such ONS need to assess its proposed replacement (PDS). The Patient Register data, in addition to internal migration estimates, are also
used in
place of
the
local authority distribution of international migrants for the mid-year population estimates and in the
now defunct PR data to produce
small area population
estimates. Internal migration
estimates
are national statistics
at Lower Layer Super Output Area (LSOA), Middle Layer Super Output Area (MSOA), Output Area (OA), ward, Clinical Commissioning Group (CCG), parliamentary constituencies,
and
a key component in population estimates and projections, also national statistics, which are used extensively throughout government to allocate funds. Under Section 5
National Park levels. With the loss
of the
Census Act 1920,
NHAIS posting information, the PDS will be used to produce estimates of internal migration - therefore more detailed address information is required from weekly PDS updates so that the address data can be run through ONS’ Address Index Matching System (AIMS). The PDS will also help
ONS
have a duty
to
‘collect and publish any available statistical information
understand how migrants interact
with
respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
services.
The data will be used in conjunction with other administrative data for estimating internal and international migration, the local authority distribution of international migrants component of change for the mid-year estimates and small area population estimates within England and Wales and estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance, higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students.
Internal migration estimates are national statistics and are a key component in population estimates, projections and national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
Census Transformation Programme
The data will be used in conjunction with other administrative data for estimating internal and international migration, for estimating the local authority distribution of international migrants component of change mid-year estimates and small area population estimates within England and Wales and for estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students and data from HMRC and DWP.
Census and Data Collection Transformation Programme
[2 paragraphs unchanged]
·
•
Population and housing estimates: counts of the population by age and sex, and the number of housing units.
·
•
Population structures: households, families and household relationships.
·
•
Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as
[12 words unchanged]
very small population groups, such as some ethnic groups and religious communities.
As well as
The Census also provides a precise estimate of
the
direct census outputs,
UK population. Any statistics produced that relate to
the
census is the benchmark for the
general
population
estimates between censuses, for
are understood by comparing against this estimate. Mortality rates,
household
income, disease prevalence, employment rates, vaccination rates
and
more all rely on an accurate
population
projections and used as a denominator for numerous other statistics.
estimate.
This brings additional benefits which are delivered in the years between Censuses.
[5 words unchanged]
statistics to allocate billions of pounds to local areas using funding formulae.
[1 paragraph unchanged]
In March 2014, the National Statistician recommended:
In March 2014, the National Statistician recommended to the Board of the UK Statistics Authority that the future provision of population statistics and the next census should be through:
To the Board of the UK Statistics Authority that future provision of population statistics and the next census should be through:
"An online census of all households and communal establishments in England and Wales in 2021 recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
· “An online census of all households and communal establishments in England and Wales in 2021 … recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses."
· Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses.”
[3 paragraphs unchanged]
The Census
and Data Collection
Transformation Programme
(CTP)
(CDCTP)
has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess
whether
whether,
in
ONS’ view
ONS' view,
the
Government’s
Government's
ambition can be realised. To that end,
CTP
ONS
has committed to publishing an annual assessment of progress towards the
Government’s
Government's
ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data.
The first such outputs were published in October 2015,
Since 2015 ONS has produced annual Admin Based Population Estimates (ABPEs), formerly known as Statistical Population Datasets (SPDs),
based on
pseudonymously
linking multiple administrative datasets (including NHS Patient Registration
(PR)
Data,
DWP/HMRC
Department for Work and Pensions (DWP)/Her Majesty’s Revenue and Customs (HMRC),
Customer Information System data and higher education
data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
data).
No one dataset in
its’
its'
own right can be used to produce a reliable estimate of the
[33 words unchanged]
currently receives would provide information about the timing and nature of an
individual’s
individual's
interactions with this system.
Th‘s
This
'activity' data can be used by ONS to determine whether a record
[9 words unchanged]
This can then be used to improve the quality of population statistics
through
by
helping to address issues
with
relating to
definitional differences between administrative data and population definitions and time lags.
Research outputs produce aggregated statistics and are subject to the same disclosure control requirements as described by Population Statistics Division.
There is no common identifier that can be used to link
individuals’
individuals'
records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex,
Full
full
name, addresses and postcodes) to link the datasets and establish the aforementioned
SPD.
ABPEs.
This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data
is
was
needed to support the 2021 Census and
continues to be needed to
provide evidence for the annual assessment of progress towards the
Government’s
Government's
ambition beyond
2021. This linkage of identifiable data is required to support the 2021 Census and work towards fulfilling the Government’s ambition to conduct future censuses using other sources, while
2021, whilst also
ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other
admin
administrative
data sources, however no clinical data is being requested.
Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce ABPEs and allow analyses to meet the 2023 recommendation of the future of the Census.
Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce Admin Data Based Population Estimates. The Patient Register Extract is currently a key data source used by the Census Transformation Programme (CTP) to produce Admin Data Based Population Estimates, with this being shut down a full understanding of the PDS Stocks data is required to assess its suitability as a replacement. If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their usually resident population definition
Census 2021 Quality Assurance
In addition to replacing the CHRIS dataset, PDS has been proposed by NHS Digital as a replacement dataset for the NHAIS Patient Register extract that ONS currently receive. PDS has been linked to NHAIS using the NHS number as the data currently held allows ONS to initially assess the data for this purpose and is in accordance with permitted use. However, the numbers of records on NHAIS and PDS datasets are very different and ONS need to understand why a record may appear on one dataset and not the other. Research into this has begun but ONS are hampered in their investigations due to the lack of name information (received on NHAIS), which prevents further data linkage that may uncover characteristics of those that do not present on both datasets. If ONS cannot understand the root causes of the differences, then ONS cannot then take account of them in their methodologies. This could result in ONS not being able to adopt PDS as a fit for purpose replacement for NHAIS and subsequently have a need for NHAIS data in 2019 and beyond, due to the longitudinal nature of their methods requiring more than one year of data. It may also result in delays to planned changes in methodology as ONS would be unable to link from PDS to other sources where name is required, for example within a component of mid-year population estimates.
ONS conducted the Census for England and Wales on 21st March 2021, which is one of the most important and highest profile National Statistical productions. The Census will provide a decennial picture of the size and state of the population and will feed directly into funding and service provision policies. Although the Census is mandatory, not everyone is captured. Data collected in the Census can be compared with data from the PDS to ensure it is reliable and will allow ONS to gather data needed to inform work around the Census. This will help ONS to quality assure Census returns and prepare outputs.
Data Environment
International Migration
The protection of data received from partners is very important to ONS and significant investment, activity and assurance is undertaken to ensure this data is secured throughout the lifecycle from ingest to processing and export. ONS are developing advanced approaches that enable improved statistical analytical capabilities including the linking and matching of personally identifiable information, while maintaining and enhancing procedural, personnel, physical and technological security protections that provide assurance to internal stakeholders and external partners. A developing data analysis environment, the Data Access Platform (DAP), will support this as ONS moves away from the Statistical Research Environment for the analysis work.
The Centre for International Migration is leading on work to transform international migration statistics through the development of administrative data-based migration estimates (ABMEs) that will better meet user needs for timely and accurate statistics on this topic area. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee's report and government response.
Data security for storage and linkage of the data will be provided with an assured ONS data analysis environment (DAP) that includes the following elements of security control:
The PDS data forms an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved international migration estimates at local level. Improved statistics, at a more granular level, may enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data hopes to allow the centre to:
• Need To Know applied through user account access and management
• Compare signs of the arrival, activity and departures of international migrants by linking PDS to other public sector datasets.
• Controlled ingest and export of data into/out from the environment
• Use knowledge and information from PDS to inform ABMEs and modelled estimates of international migration.
• Controlled account access using unique credentials based on job role
• Provide analysis and research into how international migrants interact with the health system and the impact of international migration on the health sector, including via linkage to other public sector datasets.
• Logged and monitored access of user activity within the environment
ONS use PR/PDS data to carry out population level analysis. PDS data includes address and date of birth variables which can be used as analytical variables for population groups for example. This may facilitate the creation of location-based variables or flags for analysis. By using the PDS data to assign 'location-based variables' ONS can ensure population indicators collected in other linked data sources such as the Census are updated to reflect the most recent living situation of the population of interest. For example, between the 10-yearly census information on the size and condition of the population living in deprived areas, information on small geographic locations or communal establishments (such as care homes) are not readily available. PDS data can be used to identify and quantify the size of these populations. The PDS data can also be used alongside other data sources such as Provider Information Returns data held by the Care Quality Commission to identify and better understand the characteristics of the population receiving social care.
• Secure build configuration for infrastructure, including cloud services
To note, ONS analysts do not actually scrutinize individual rows of data, rather they run models on large scale datasets with millions of rows, and then scrutinize the outputs and aggregate results. Once aggregated ONS analysts will never try to identify or re-identify individuals.
• Vulnerability tested infrastructure with appropriate remediation and patching
• Compliance checks against security enforcing controls
• Architectural review against standards and best practice
• Staff security cleared to the appropriate level based on their supervised and/or unsupervised access to sensitive data in accordance with ONS clearance policies and data access processes
• Education and awareness of environment users covering security policies and secure working practices
• Operational support processes to securely manage the environment
• Risk assessment to identify security risks and mitigation actions to reduce this risk.
Following policy specified by the ONS Chief Security Officer, users will be granted supervised or unsupervised access following a clearance application. The ONS Information Asset Owner (IAO) grants access and a list of all authorised users is available on request.
With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS Digital to confirm compliance with this DSA.
ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS Digital on request.
ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS Digital.
Migration – Business Case for 2018/19
The Centre for International Migration is leading on work which will begin to put administrative data at the core of migration statistics in 2019. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee’s report and government response.
The Personal Demographic Service (PDS) data would form an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved migration estimates at local level. Improved statistics, at a more granular level, will enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data will allow migration statistics to:
1. Build on ONS' work identifying migrant interactions within the health system as a sign of activity and the impact of migration on the health sector. This will be achieved by linking to other health datasets including the Hospital Episode Statistics and the Improving Access to Psychological Therapies dataset.
2. Compare signs of arrival, activity and departures by linking PDS to other public-sector datasets.
Processing activities
Population Statistics Division
Data Environment
Internal and International migration is a key component of population estimates and population projections. In the majority of areas, it is the largest component of change between one year and the next.
Data security for storage and linkage of the data will be provided within an assured ONS data analysis environment that includes the following elements of security control:
The data being retained herein will form part of the internal migration method alongside other datasets, primarily Higher Education Statistical Agency (HESA) student data and replacing the Patient Register data from NHAIS In order to distribute international migrants to local authorities, a registration type denoting new registrations is used, in conjunction with data from other sources such as HESA student data and data from Her Majesty’s Revenue and Customs (HMRC) and the Department of Work and Pensions (DWP) are used to apportion the national total of migrants to the local level.
• Need To Access applied through user account access and management. Access to the data is restricted to individuals granted access on the basis of a justified need to access the data
ONS, National Records of Scotland (NRS) and Northern Ireland Statistics and Research Agency (NISRA) share aggregated information on the movements of patients between the four countries of the UK from the NHS systems in the productions of mid-year population estimates and other statistical outputs. The sharing of information was previously covered by a data access agreement.
• Controlled ingest and export of data into/out of the Data Access Platform (DAP) environment
The number of cross border moves between Scotland, England & Wales, and Northern Ireland is shared by the three statistical offices (NRS, ONS and NISRA). The total numbers are agreed, and the totals from the receiving countries are used for each flow because these are considered to be most accurate.
• Controlled account access using unique credentials based on job role
In addition NRS received record level data to ensure a higher level of accuracy for the large number of moves between Scotland and England & Wales, which is a large proportion of all moves for Scotland. The data from the receiving country is considered to be the most reliable, as this is based on persons registering with a GP in their new location, whereas estimates from the origin country are based on de-registration of persons who notify their GP that they are moving. Both registering and de-registering are voluntary, and people are more likely to re-register than to de-register.
• Logged and monitored access of user activity within the DAP environment
The following variables were shared.
• Secure build configuration for infrastructure
• Vulnerability tested infrastructure with appropriate remediation and patching
• Compliance checks against security enforcing controls
• Architectural review against standards and best practice
• Staff security cleared to the appropriate level based on their supervised and/or unsupervised access to sensitive data in accordance with ONS clearance policies and data access processes
• Education and awareness of environment users covering security policies and secure working practices
• Operational support processes to securely manage the environment
• Risk assessment to identify security risks and mitigation actions to reduce this risk.
Following policy specified by the ONS Chief Security Officer, ONS user access to the data environment is only provided on a need-to-know basis depending on the individual’s role. Approval of an application by the Information Asset Owner (with advice from Security and Information Management) is required including an ethical assessment of proposed data use. A list of approved users is available on request. Staff requesting access to these data must be cleared to the appropriate National Vetting level, which is higher than the standard basic clearance required for all ONS staff. Only authorised ONS staff with appropriate security clearance will have access to identifiable PDS data, with regular audit and monitoring in place to ensure compliance.
With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS Digital to confirm compliance with this application.
ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS Digital on request. ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS Digital.
As described in section 5a, the proposed purposes require linkage of records at the individual level. However, ONS is only interested in producing aggregate statistics and using these to uncover trends in line with their statutory functions.
As noted above, within the ONS data environment, users set up 'project spaces' and apply for access to data through the Information Asset Owner. Each 'project space' includes only the data required to carry out the proposed analysis and is only accessible to the users who require access to that data. Users will not be permitted to access identifiers for the purposes of analysis. In addition to the system protocols above, ONS will therefore keep the number of staff permitted to process identifiers to an absolute minimum, and these staff will have a higher level of clearance. All other staff will only be permitted to access non-identifying data.
ONS will never seek to intentionally re-identify individuals within the PDS data supplied. ONS staff are suitably trained in data protection and confidentiality and are experienced in working with highly sensitive data.
Further, only statistical disclosure controlled aggregate outputs will be exportable from the secure data analysis environment. In other words, other than the initial transfer of the data from NHS Digital to ONS, the identifiable data will never be in transit and will always be protected by procedural controls.
Access to data held within ONS’s Data Access Platform (DAP), is granted to users on a need-to-know basis depending on their role, through a request process which provides a business justification. Access is authorised on a case-by-case basis by the ONS Information Asset Owner (IAO) responsible for PDS data, with advice from Security and Information Management. Staff requesting access to these data must be cleared to the appropriate National Vetting level, which is higher than the standard basic clearance required for all ONS staff. Only authorised ONS staff with appropriate security clearance will have access to identifiable PDS data, with regular audit and monitoring in place to ensure compliance.
Data Linkage
In order to develop a complete picture of the of the size and characteristics of the population, it is necessary to link PDS data to other record level datasets that ONS hold.
If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their usually-resident population definition. Previous research in the Beyond 2011 Programme explored how population statistics could be produced without linkage. This so called pre-aggregated approach (essentially by using non-identifiable data) was unable to deliver statistics that could meet the required quality. The Beyond 2011 Programme concluded that linkage of administrative data would be required in an administrative data-based approach to the Census in the future.
Under previous versions of this Agreement, Population and Migration Statistics Transformation had based their research on a prototype ‘population spine’ of linked datasets, based on encrypted data held in ONS’ recently decommissioned Secure Research Environment (SRE). This has now been significantly redesigned by ONS Data Architecture to improve quality and meet wider requirements across ONS business areas for linked data. This new architecture, The Demographic Index (DI), is now key for producing underlying population counts in the future population statistics system.
PDS is linked to the following datasets:
• ONS Birth registrations
• ONS Census 2011
• NHS Digital Patient Register data (formerly CHRIS and NHAIS) (discontinued)
• Department for Education (DfE) English Schools Census
• DfE Individualised Learner Record (ILR)
• Welsh Government Welsh Schools Census
• Higher Education Statistics Authority (HESA) Student Data
• Department for Work and Pensions Customer Information System (CIS)
Data Variables and Delivery
Two supplies of record level data are requested from NHS Digital for the ongoing supply of the PDS Weekly Movers file and the annual Mid-Year Stock Extract file. These are bespoke extracts from the PDS.
The specific data items required are as follows:
1) PDS Weekly Update (formerly ‘Movers’) Extract
Provided weekly to ONS - required in order to assess population movements.
Variables:
• NHS Number
• Names Business Effective from date
• Gender
• Date of Birth
• Postcode from usual Address
• Address Business Effective from date
• Type of Registration
• Previous Posting (from Registration Request)
• NHAIS Posting System Identifier*
• NHAIS Posting Business Effective from date*
• Reason for Removal Type
• Reason For Removal Business Effective from date
Due to the impending discontinuation of the NHAIS Posting Variables (*), ONS requires the following variables to be added onto the weekly feed to allow critical business as usual processes in population statistics to continue:
• Address line (Person address)
• Address Business Effective to date (Person address)
In order to further improve the statistics that ONS are able to produce for the purposes outlined above, ONS are also requesting the addition of the following variables to the Weekly Update File. These are to be disseminated upon the establishment of a new feed which is being developed by NHS Digital:
• Language (Language communication)
• Address description (Person address)
• Name type (Person name)
• Country (Place of birth)
• Primary care identifier (Primary care registration)
• Business effective to date (Reason for removal)
• Reason not supplied (Reason for removal)
• Date of patient UK entry (Registration encounter)
• Date of patients UK exit (Registration encounter)
• Original acceptance posting date (Registration encounter)
• Place of birth (Registration encounter)
2) Annual Mid-Year PDS Stock Extract File
Annual run to be initiated on the closest Saturday to 31st July each year. This date is in line with the former supply of the annual Patient Register.
Variables:
• NHS Number
• Family Name
• First given name
• Other given names
• Names Business Effective from date
• Gender
• Date of Birth
• Address Line
• Postcode (usual Address)
• Address Business Effective from date
• Type of Registration
• NHAIS Posting System Identifier (due to be removed)
• NHAIS Posting Business Effective from date (due to be removed)
• Reason For Removal Type
• Reason For Removal Business Effective from date
In order to further improve that statistics that ONS is able to produce for the purposes outlined above, ONS are also requesting the addition of the following variables to the Annual Mid-Year Stock Extract. These are to be disseminated upon the establishment of a new feed which is developed by NHS Digital:
• Language (Language communication)
• Address Business Effective to date (Person address)
• Country (Place of birth)
• Primary care identifier (Primary care registration)
• Date of patient UK entry (Registration encounter)
• Date of patients UK exit (Registration encounter)
• Previous address (Registration encounter)
• Original acceptance posting date (Registration encounter)
• Place of birth (Registration encounter)
• Postcode (Related person)
• Address line (Related person)
• Address type (Related person)
• Family name (Related person)
• First given name (Related person)
• NHS number (Related person)
• Other given names (Related person)
• Relationship type (Related person)
Cross Border Flows
ONS, National Records of Scotland (NRS) and Northern Ireland Statistics and Research Agency (NISRA) share aggregated information on the movement of individuals between the four countries of the UK. The sharing of information was previously covered by a data access agreement. The NHS Central Register (NHSCR) system in England that provided this data was closed in February 2016.
The number of cross border moves between Scotland, England & Wales and Northern Ireland is shared by the three statistical offices (NRS, ONS and NISRA). The total numbers are agreed, and the totals from the receiving countries are used for each flow because these are considered to be the most accurate.
In addition NRS receive record level data to ensure a higher level of accuracy for the large number of moves between Scotland and England & Wales. The data from the receiving country is considered to be the most reliable as this is based on persons registering with a GP in their new location, whereas estimates from the origin country are based on de-registration of persons who notify their GP that they are moving. Both registering and de-registering are voluntary processes and people are more likely to re-register than de-register.
To continue with the cross border moves, aggregate totals and record level data is required from the PDS system. This data will be extracted from the PDS stocks/weekly movers file using new, approved methodology. The variables required to produce the data are:
[9 paragraphs unchanged]
ONS is no longer permitted to share record level data with NRS. Record level data should not be shared with any third party.
ONS is permitted to share the above data items with NRS on condition that ONS ensures there are adequate controls in place to ensure that NRS:
ONS will only share data with NISRA that is aggregate totals of moves between England or Wales and Northern Ireland. No record level data will be shared with NISRA.
a) must not combine the data with other datasets which could potentially increase the risk of reidentification of individuals in the dataset;
Though it is acknowledged that previous versions of this Agreement have permitted ONS to share record level data with NRS, under this Agreement ONS will only share data with NRS that is aggregated totals of moves between England and Wales and Scotland. No new record level data will be shared with NRS.
b) must not attempt to re-identify individuals in the dataset;
Census Transformation Programme (CTP)
c) must not onwardly share the dataset;
The matching methods ONS use are based on a privacy-preserving approach, where identifiable data (names, dates of birth, and addresses) are pseudonymised consistently using the same algorithm that has been applied to all record level datasets supplied to ONS. CTP plan to link PDS data to other identifiable datasets through linkage to NHAIS GP Registration data via NHS number. At present CTP use the following identifiable administrative data sources in the development of research outputs and to support the 2021 Census:
d) must use the dataset solely for the defined purpose of the production of cross-border flows between the four countries of the United Kingdom, using the movement of people, as part of population estimates for the United Kingdom for the Population Estimates Unit, and;
• NHS Patient Register
e) must not publish the data.
• DWP Customer Information System
ONS must maintain its Data Sharing Agreement with NRS as a means of applying the above controls.
• Higher Education Statistics Agency Student Record
ONS will only share aggregate data with NISRA on the total number of moves between England or Wales and Northern Ireland. No record level data will be shared with NISRA.
• English and Welsh School Censuses
ONS are working with departments across government to gain access to administrative data to understand the feasibility of using these data sources to meet the Government’s ambition for census taking beyond 2021.
PDS data would undergo the same pre-processing and pseudonymisation steps as all other datasets used in the programme. The ONS policy on safeguarding data when linking multiple administrative datasets is set out in the previous Beyond 2011 paper Safeguarding Data.
If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their usually resident population definition. Previous research in the Beyond 2011 Programme explored how population statistics could be produced without linking. This so called pre-aggregated approach (essentially by using non-identifiable data) was unable to deliver statistics that could meet the required quality. The Beyond 2011 Programme concluded that linkage of administrative data would be required in an administrative data-based approach to the Census in the future.
Two supplies of data have previously been requested from NHS Digital for the supply of PDS Weekly Movers file and the annual Mid Year Stock Extract file. The specific data items that have previously been requested from the Personal Demographic Service are as follows:-
PDS Periodic Movers Extract
Previously provided Weekly via Messaging Exchange for Social Care and Health (MESH) to ONS, this reflects patients who have moved, in order to assess population movements.
Variables
NHS Number
Gender
Date Of Birth
Postcode from usual Address
NHAIS Posting
NHAIS Posting Business Effective from date
Previous Posting
Type of Registration
Reason for Removal Type
Reason For Removal Business Effective from date
Annual Mid Year PDS Stock Extract File
Previously the annual run was initiated on the closest Saturday to 31st July each year which times in line with the supply of the annual Patient Register and supplied to ONS via MESH
Variables
NHS Number
Gender
Date of Birth
NHAIS Posting
NHAIS Posting Business Effective from date
Reason For Removal
Reason For Removal Business Effective from date
Type of Registration
Address
Postcode (usual Address)
Family Name
First given name
Other given names
Names Business Effective from date.
These are bespoke extracts from the Personal Demographic Service PDS.
From February 2018 ONS moved data onto a new Data Access Platform (DAP). Both the PDS weekly Files and PDS Annual Stock Extracts have moved to DAP.
Data Environment.
The protection of data received from partners is very important to ONS and significant investment, activity and assurance is undertaken to ensure this data is secured throughout the lifecycle from ingest to processing and export. ONS are developing advanced approaches that enable improved statistical analytical capabilities while maintaining and enhancing security protections that provide assurance to internal stakeholders and external partners. A developing data analysis environment, the Data Access Platform (DAP), will support this as ONS moves away from the Statistical Research Environment for analysis work.
1.1 Data security for storage and linkage of the data will be provided with an assured ONS data analysis environment (DAP) that includes the following elements of security control:
• Need To Know applied through user account access and management
• Controlled ingest and export of data into/out from the environment
• Controlled account access using unique credentials based on job role
• Logged and monitored access of user activity within the environment
• Secure build configuration for infrastructure, including cloud services
• Vulnerability tested infrastructure with appropriate remediation and patching
• Compliance checks against security enforcing controls
• Architectural review against standards and best practice
• Staff security cleared to the appropriate level based on their supervised and/or unsupervised access to sensitive data in accordance with ONS clearance policies and data access processes
• Education and awareness of environment users covering security policies and secure working practices
• Operational support processes to securely manage the environment
• Risk assessment to identify security risks and mitigation actions to reduce this risk.
1.2 Following policy specified by the ONS Chief Security Officer, users will be granted supervised or unsupervised access following a clearance application. The ONS Information Asset Owner (IAO) grants access and a list of all authorised users is available on request.
1.3 With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS Digital to confirm compliance with this DSA
1.4 ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS Digital on request.
1.5 ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS Digital.
Expected output
The outputs expected from this work include statistics, statistical reports, presentations, methodology papers and analyses. All outputs are produced in order to meet ONS’ role to produce statistics for the public good. Should outputs contain any data, this data will be aggregated with small numbers supressed.
Any official statistics produced will be published so that they are publicly available - for example on the ONS website, in statistical bulletins, analysis articles or on data dashboards.
Projects focused on new topics or new data sources will include exploration of the feasibility of using and/or linking the data. They will also quality assess the data and linkage prior to full development of analyses and publication of statistics. Briefings for technical/expert audiences or methodology reports may be written for internal use in the development and assessment of new data sources and analysis. These reports will be published alongside experimental statistics or official statistics on the ONS website or in peer-reviewed journals as appropriate.
All ONS statistical teams engage regularly with users and will seek to provide frequent updates on the production of official statistics through regular stakeholder conversations, presentations and events.
ONS have a publishing strategy and team which supports analytical teams in developing different outputs to suit a range of different audiences. ONS also has active communications, media and social media teams to promote dissemination of statistics and enable outputs to reach a wide-ranging audience.
Census and Data Collection Transformation Programme (CDCTP)
ONS has committed to publishing regular annual Administrative Data Research Outputs (ABPEs) on the population, including estimates on the size of the population (produced using administrative data).
The aims of these research outputs are to:
- Update users on the progress made through administrative data and to seek feedback from users - the aim being to improve the methods used.
- Aid the process of working with data suppliers to improve data quality for statistical purposes.
ONS has already developed ABPEs in both method and content in the run up to the 2021 Census and plan to compare the ABPEs with results from the 2021 Census. ONS will also expand on the range of topics and granularity of information published each year.
ONS recognise the need for continued development of their methodology. Future releases will therefore include further outputs based on future methodology developments which hope to allow for user feedback, newly available data and alternative techniques to facilitate the production of population statistics.
The research on the feasibility of producing administrative, data-based characteristics estimates that ONS should be able to provide evidence to feed into the 2023 recommendation on the future of the Census. ONS aim to produce research outputs on the progress they have made on the feasibility research they’re conducting on user feedback. The outputs will be in the form of aggregate statistics, with statistics disclosure rules applied where necessary.
Population and Migration
[2 paragraphs unchanged]
Internal migration statistics are published at local authority level by age and sex. They
have wide use
are used widely
by local authorities and
academics, including feeding
academics to, for example, feed
into alternative population projections models and subsequent resource allocation planning.
Mid-year estimates – Annually – June, with lower level geography releases after this until Small Area Population Estimates are released in November.
National Population projections – normally published at the end of October. Releases have traditionally been every other year. Following the national projections, there are sub-national releases between national releases.
Mid-year estimates - Annually - June, with lower-level geography releases after this until Small Area Population Estimates are released in November.
Internal migration estimates are a key component of population estimates and population projections, which have wide and important use in the UK. Estimates are used in resource allocation from Central Government to local government and health authorities as well as in denominators for other statistics across government, which feed into policy decisions. Projections are used to determine future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services which are needed, for example a hospital may use them in determining whether or not to alter the level of provision of maternity or geriatric services.
National Population projections - normally published at the end of October. Releases have traditionally been produced bi-annually. Following the release of the national projections, there are now sub-national releases between national releases.
Internal migration estimates form a key component of population estimates and population projections, which are of important use in the UK. Estimates are used by central government, local government and health authorities to support resource allocation as well as forming a fundamental basis for other statistics across government which feed into policy decisions.
Projections are used to determine the future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services needed - for example a hospital may use projections to determine whether or not to alter the level of provision of maternity or geriatric services.
[1 paragraph unchanged]
Census Transformation Programme (CTP)
Health and Mortality Analysis
CTP has committed to publishing regular annual Administrative Data Research Outputs on the population, including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015 and included pseudonymously linked multiple datasets (including NHS Patient Register data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
Specific outputs will include published aggregate statistics on the number, characteristics and condition of population groups such as the social care, care home and disabled population (providing more detail on specific impairments). ONS will produce mortality, morbidity and life expectancy statistics by protected characteristics such as ethnicity, disability and specific age groups.
The aim of these research outputs is to:
• Update users on the progress with administrative data and to seek feedback with the aim of improving the methods used.
• Help the process of working with data suppliers to improve data quality for statistical purposes
ONS will aim to develop them in both method and content in the run up to the 2021 Census, and ultimately compare them with results from the 2021 Census. ONS will also expand on the range of topics and granularity published each year.
ONS recognise the need for continued development of their methodology, so future releases will also include outputs based on future developments which will allow feedback to be taken on board from users, new data that becomes available, and alternative techniques to produce population statistics.
A new series was introduced in 2016 to include these developments which showed improvements to the methodology. Additionally, subject to satisfactory data access and quality, ONS also aim to release population statistics at more detailed levels, and outputs about other topics or characteristics of the population (other than age and sex) such as qualifications, personal or household income, and ethnicity, as well as on the number and the size and composition of households. ONS also plan to present their research into the development of a methodology to estimate and adjust for coverage error in the SPD.
In the spring of each year, starting in 2016, ONS will publish an assessment of progress towards the Government’s ambition to produce population statistics from administrative data after 2021.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). These outputs are produced annually, the most recent being October 2016. SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013, 2014 and 2015.
NHAIS feeds into annual releases for mid-year population estimates, internal migration estimates and small area population estimates (including clinical commissioning groups); through these estimates, NHAIS then indirectly feeds into the national population projections and the subnational population projections (including clinical commissioning groups) which are produced every two years. These statistics have onward use in resource allocation for example in the distribution of funds from central to local government.
Record level data will be held securely within ONS. The data will be held in the accredited Statistical Research Environment (SRE) located at ONS premises. The environment has been specifically designed to support the linkage of personal data and has security measures in place to mitigate the associated risks. NHS digital were consulted during the design and build of this facility and have continued to be involved in its oversight since it became operational. Only named researchers have access to SRE and it is not possible to access a printer, disks, internet or rest of the ONS network whilst in this room. It is a secure room that requires additional security clearance to gain access to. The approach taken to manage data is described in the ONS's safeguarding data for research policy.
Expected measurable benefits
The Department of Health
and Social Care
and their agencies specifically use both census and population statistics
which are branded
(branded
as national
statistics
statistics)
in the planning and provision of health and social care services and
funding allocations. They
the allocation of funding. National statistics
are
almost certainly
used as the
denominator in
population baseline for
any statistics that are published on a per capita basis.
The internal migration estimates are one of the components of the mid-year population estimates that are produced at various
geographical
levels
of geography
(including
clinical commissioning group).
CCGs).
It is these mid-year estimates that
are
form
the
denominator
population baseline
for a
lot
large proportion
of health statistics. For instance, any health data published per capita for a particular level of geography (national, region, local authority,
clinical commissioning group,
CCG,
parliamentary constituency etc) is almost certain to have ONS
estimated
population estimates
or
projected population
projections
as the
denominator.
population baseline.
Estimates and projections are published by age and sex. This means
that
they can also be used to better target age and sex specific health and care services (e.g. maternity, aging populations
etc.)
etc.).
The population estimates and projections are also used extensively throughout government and specifically by the Department of Health and
their
related
agencies for the planning and provision of health and social care services
[13 words unchanged]
of pounds of funds are made based on population estimates and projections.
The National
Statistician’s recommendation
Statistician's recommended
in March 2014 to the Board of the UK Statistics Authority that
the
future provision of population statistics and the next census should be through
“Increased
“increased
use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between
censuses.”
censuses."
Therefore, CTP are conducting research into this to produce accurate and more timely population statistics.
The research outputs are used by academics, local authorities, other Government Departments and other Statistical institutions for the allocation of funding and resource and other ongoing research
in to
into
the use of administrative data to production information about the population. This
[6 words unchanged]
resource allocation for a range of services, including health and social care.
Information about main languages used and English language proficiency is used to plan services, for example in relation to education and translation, and to target interventions aimed at increasing integration.
Information about general health enables the monitoring of general health over time, enables tracking and assessment of fitness for work and helps to estimate the need for care and benefits. It also enables the calculation of healthy life expectancy. Data collected on health contributes to the funding, development and planning of healthcare and helps reduce social inequalities in health. Disability data is essential for public health spending and resource allocation and for monitoring the quality and outcomes of policies for persons with disabilities. Central and local government users use long term health problem and disability data with a wide range of sub-topics to identify and understand associations to inform service planning and delivery.
Going forward, one of the key uses of PDS will be to link the data to a range of other datasets at record level. This work is anticipated to support ONS in developing a methodology to produce population and migration estimates by sex and age to levels of geography. These are expected to be published by the official Population Estimates going forward. Being able to link administrative data in this way will also allow the Society for Sex Therapy and Research to produce statistics on the characteristics of the population.
Benefits reported
Since the last Data Access Request Service was agreed ONS have continued to work with the PDS data to understand the size and structure of the population, the characteristics of the population, and how the population change over time.
PDS data has been integral for:
PDS has been integral for:
• Research in developing an approach for producing Admin Based Population Estimates (ABPEs), formerly known as SPDs. By combining PDS with income, education and life event data sources and applying an activity based approach, ONS have published two ABPE time series for 2016-2020 (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/developingadminbasedpopulationestimatesenglandandwales/2016to2020). Analysing these time series helps ONS understand if and how the quality of the estimates change over time, which feeds into ONS' future methodological improvements.
• Research in developing an approach for producing Admin Based Population Estimates (ABPEs), formerly known as SPDs. By combining PDS with income, education and life event data sources and applying an activity based approach, we have published two ABPE time series for 2016-2020 (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/developingadminbasedpopulationestimatesenglandandwales/2016to2020). Analysing these time series helps us understand if and how the quality of the estimates change over time which feeds into our future methodological improvements.
• Understanding any changes in the way the population interacts with health registration systems and whether there have been changes to these patterns during the pandemic. This information will support ONS in further developing their ABPEs.
• Understanding any changes in the way the population interact with health registration systems and whether there have been changes to these patterns during the pandemic. This information will inform our research to further develop our ABPEs.
• Providing address information for the population and helping ONS understand changes in population between local areas and over time.
• Providing address information for the population and helping us to understand changes in population, between local areas and over time.
Census Statistical Outputs Design are using the PDS data to quality assure the Census. In preparation for the census ONS used PDS data to understand the quality of the address frame planned for use. The frame is the list of addresses ONS use as the basis for making initial contact with the public. ONS analysts looked for evidence of where there was a clustering of addresses which were on the PDS but not on the frame, for example a newly built block of flats.
Census Statistical Outputs Design are using the PDS to aid in the quality assurance of Census. In preparation for the census ONS used PDS data to understand the quality of the address frame planned for use. The frame is the list of addresses ONS use as the basis for making initial contact with the public. ONS analysts looked for evidence of where there was clustering of addresses which were on the PDS which were not on our frame, for example a newly built block of flats.
[1 paragraph unchanged]
In compiling the final census estimates ONS has also used the PDS
[6 words unchanged]
systematic bias in how the size of the population has been estimated.
ONS’s
ONS’
final statistics are estimates as they aren’t simply the number of people
[21 words unchanged]
ONS used PDS data to validate the assumptions made in this modelling.
The Centre for International Migration have previously linked the PDS to HMRC's
[46 words unchanged]
in PDS. This is part of ONS' wider work to link different
admin
administrative
data sources together and
to
test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
[1 paragraph unchanged]
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes, as agreed with NHS Digital:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act (SRSA) 2007 the Statistics Board (UK Statistics Authority) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics (ONS) as the Executive Office of The Board carries out this function. Within ONS, the Health, Population and Methods Group are responsible for providing key data on the population of the United Kingdom and are comprised of a number of divisions that undertake demographic analysis in, for example, migration, fertility, mortality, life expectancy, ageing and families. These analyses are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to, from time to time, collect and publish any statistical information relating to the number and condition of the population in the interval between one census and another and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the SRSA 2007.
ONS rely on the following lawful bases under the General Data Protection Regulation for processing personal data including special categories of personal data:
• GDPR Article 6(1)(e) The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
• GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom's National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business and enable better decisions to be made. Using administrative data such as Personal Demographics Service (PDS) allows ONS to produce statistics which are more granular and timely at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census and population statistics – more detailed justifications are outlined in greater depth below. Proportionality is considered by business areas who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address, and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out under this Agreement will be requested and processed.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by employees of ONS or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigorous disclosure controls and access restrictions, thus ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading 'Data Environment'.
Population Statistics
NHS Digital previously supplied CHRIS data and Patient Register (NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. PDS stocks are also to be used in place of the now defunct PR data to produce small area population estimates at Lower Layer Super Output Area (LSOA), Middle Layer Super Output Area (MSOA), Output Area (OA), ward, Clinical Commissioning Group (CCG), parliamentary constituencies, and National Park levels. With the loss of the NHAIS posting information, the PDS will be used to produce estimates of internal migration - therefore more detailed address information is required from weekly PDS updates so that the address data can be run through ONS’ Address Index Matching System (AIMS). The PDS will also help ONS to understand how migrants interact with services.
Internal migration estimates are national statistics and are a key component in population estimates, projections and national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, for estimating the local authority distribution of international migrants component of change mid-year estimates and small area population estimates within England and Wales and for estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students and data from HMRC and DWP.
Census and Data Collection Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
• Population and housing estimates: counts of the population by age and sex, and the number of housing units.
• Population structures: households, families and household relationships.
• Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. The Census also provides a precise estimate of the UK population. Any statistics produced that relate to the general population are understood by comparing against this estimate. Mortality rates, household income, disease prevalence, employment rates, vaccination rates and more all rely on an accurate population estimate. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended to the Board of the UK Statistics Authority that the future provision of population statistics and the next census should be through:
"An online census of all households and communal establishments in England and Wales in 2021 recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses."
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
'Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA's plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.' - Government's response to the National Statistician's recommendation, 18 July 2014.
The Census and Data Collection Transformation Programme (CDCTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether, in ONS' view, the Government's ambition can be realised. To that end, ONS has committed to publishing an annual assessment of progress towards the Government's ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. Since 2015 ONS has produced annual Admin Based Population Estimates (ABPEs), formerly known as Statistical Population Datasets (SPDs), based on linking multiple administrative datasets (including NHS Patient Registration (PR) Data, Department for Work and Pensions (DWP)/Her Majesty’s Revenue and Customs (HMRC), Customer Information System data and higher education data).
No one dataset in its' own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual's interactions with this system. This 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics by helping to address issues relating to definitional differences between administrative data and population definitions and time lags.
There is no common identifier that can be used to link individuals' records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, full name, addresses and postcodes) to link the datasets and establish the aforementioned ABPEs. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data was needed to support the 2021 Census and continues to be needed to provide evidence for the annual assessment of progress towards the Government's ambition beyond 2021, whilst also ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other administrative data sources, however no clinical data is being requested. Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce ABPEs and allow analyses to meet the 2023 recommendation of the future of the Census.
Census 2021 Quality Assurance
ONS conducted the Census for England and Wales on 21st March 2021, which is one of the most important and highest profile National Statistical productions. The Census will provide a decennial picture of the size and state of the population and will feed directly into funding and service provision policies. Although the Census is mandatory, not everyone is captured. Data collected in the Census can be compared with data from the PDS to ensure it is reliable and will allow ONS to gather data needed to inform work around the Census. This will help ONS to quality assure Census returns and prepare outputs.
International Migration
The Centre for International Migration is leading on work to transform international migration statistics through the development of administrative data-based migration estimates (ABMEs) that will better meet user needs for timely and accurate statistics on this topic area. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee's report and government response.
The PDS data forms an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved international migration estimates at local level. Improved statistics, at a more granular level, may enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data hopes to allow the centre to:
• Compare signs of the arrival, activity and departures of international migrants by linking PDS to other public sector datasets.
• Use knowledge and information from PDS to inform ABMEs and modelled estimates of international migration.
• Provide analysis and research into how international migrants interact with the health system and the impact of international migration on the health sector, including via linkage to other public sector datasets.
ONS use PR/PDS data to carry out population level analysis. PDS data includes address and date of birth variables which can be used as analytical variables for population groups for example. This may facilitate the creation of location-based variables or flags for analysis. By using the PDS data to assign 'location-based variables' ONS can ensure population indicators collected in other linked data sources such as the Census are updated to reflect the most recent living situation of the population of interest. For example, between the 10-yearly census information on the size and condition of the population living in deprived areas, information on small geographic locations or communal establishments (such as care homes) are not readily available. PDS data can be used to identify and quantify the size of these populations. The PDS data can also be used alongside other data sources such as Provider Information Returns data held by the Care Quality Commission to identify and better understand the characteristics of the population receiving social care.
To note, ONS analysts do not actually scrutinize individual rows of data, rather they run models on large scale datasets with millions of rows, and then scrutinize the outputs and aggregate results. Once aggregated ONS analysts will never try to identify or re-identify individuals.
Expected output
The outputs expected from this work include statistics, statistical reports, presentations, methodology papers and analyses. All outputs are produced in order to meet ONS’ role to produce statistics for the public good. Should outputs contain any data, this data will be aggregated with small numbers supressed.
Any official statistics produced will be published so that they are publicly available - for example on the ONS website, in statistical bulletins, analysis articles or on data dashboards.
Projects focused on new topics or new data sources will include exploration of the feasibility of using and/or linking the data. They will also quality assess the data and linkage prior to full development of analyses and publication of statistics. Briefings for technical/expert audiences or methodology reports may be written for internal use in the development and assessment of new data sources and analysis. These reports will be published alongside experimental statistics or official statistics on the ONS website or in peer-reviewed journals as appropriate.
All ONS statistical teams engage regularly with users and will seek to provide frequent updates on the production of official statistics through regular stakeholder conversations, presentations and events.
ONS have a publishing strategy and team which supports analytical teams in developing different outputs to suit a range of different audiences. ONS also has active communications, media and social media teams to promote dissemination of statistics and enable outputs to reach a wide-ranging audience.
Census and Data Collection Transformation Programme (CDCTP)
ONS has committed to publishing regular annual Administrative Data Research Outputs (ABPEs) on the population, including estimates on the size of the population (produced using administrative data).
The aims of these research outputs are to:
- Update users on the progress made through administrative data and to seek feedback from users - the aim being to improve the methods used.
- Aid the process of working with data suppliers to improve data quality for statistical purposes.
ONS has already developed ABPEs in both method and content in the run up to the 2021 Census and plan to compare the ABPEs with results from the 2021 Census. ONS will also expand on the range of topics and granularity of information published each year.
ONS recognise the need for continued development of their methodology. Future releases will therefore include further outputs based on future methodology developments which hope to allow for user feedback, newly available data and alternative techniques to facilitate the production of population statistics.
The research on the feasibility of producing administrative, data-based characteristics estimates that ONS should be able to provide evidence to feed into the 2023 recommendation on the future of the Census. ONS aim to produce research outputs on the progress they have made on the feasibility research they’re conducting on user feedback. The outputs will be in the form of aggregate statistics, with statistics disclosure rules applied where necessary.
Population and Migration
Main publication dates are as follows:
Internal migration - Annually – June
Internal migration statistics are published at local authority level by age and sex. They are used widely by local authorities and academics to, for example, feed into alternative population projections models and subsequent resource allocation planning.
Mid-year estimates - Annually - June, with lower-level geography releases after this until Small Area Population Estimates are released in November.
National Population projections - normally published at the end of October. Releases have traditionally been produced bi-annually. Following the release of the national projections, there are now sub-national releases between national releases.
Internal migration estimates form a key component of population estimates and population projections, which are of important use in the UK. Estimates are used by central government, local government and health authorities to support resource allocation as well as forming a fundamental basis for other statistics across government which feed into policy decisions.
Projections are used to determine the future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services needed - for example a hospital may use projections to determine whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Health and Mortality Analysis
Specific outputs will include published aggregate statistics on the number, characteristics and condition of population groups such as the social care, care home and disabled population (providing more detail on specific impairments). ONS will produce mortality, morbidity and life expectancy statistics by protected characteristics such as ethnicity, disability and specific age groups.
Benefits reported
PDS data has been integral for:
• Research in developing an approach for producing Admin Based Population Estimates (ABPEs), formerly known as SPDs. By combining PDS with income, education and life event data sources and applying an activity based approach, ONS have published two ABPE time series for 2016-2020 (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/developingadminbasedpopulationestimatesenglandandwales/2016to2020). Analysing these time series helps ONS understand if and how the quality of the estimates change over time, which feeds into ONS' future methodological improvements.
• Understanding any changes in the way the population interacts with health registration systems and whether there have been changes to these patterns during the pandemic. This information will support ONS in further developing their ABPEs.
• Providing address information for the population and helping ONS understand changes in population between local areas and over time.
Census Statistical Outputs Design are using the PDS data to quality assure the Census. In preparation for the census ONS used PDS data to understand the quality of the address frame planned for use. The frame is the list of addresses ONS use as the basis for making initial contact with the public. ONS analysts looked for evidence of where there was a clustering of addresses which were on the PDS but not on the frame, for example a newly built block of flats.
As part of quality assurance of the census statistics ONS have a systematic approach to validating against a range of data and other statistics. This includes the PDS. Where inconsistencies are seen between the census and the PDS, analysts take a deeper look at ONS statistics to understand whether there is evidence of an issue with the census process. As an example this could include if ONS data has missed a student hall of residence.
In compiling the final census estimates ONS has also used the PDS to understand whether there is any systematic bias in how the size of the population has been estimated. ONS’ final statistics are estimates as they aren’t simply the number of people of people who completed a questionnaire, instead analysts adjust for the number of people who were not included on a form. ONS used PDS data to validate the assumptions made in this modelling.
The Centre for International Migration have previously linked the PDS to HMRC's Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many 'new migrants' on the MWS are seen in PDS. This is part of ONS' wider work to link different administrative data sources together and to test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
Using PR (in future PDS) data ONS have linked census and deaths data to produce new insights on the ethnic differences in mortality and life expectancy.
DARS-NIC-20951-D2K6S-v9.5 1 July 2022 to 30 September 2022
- Title
- Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- No
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v8.7
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2022-07-01 | |
| End date | 2022-09-30 |
Benefits reported
Statistical Design and Research
Since the last Data Access Request Service was agreed ONS have continued to work with the PDS data to understand the size and structure of the population, the characteristics of the population, and how the population change over time.
The following developments have been made:
PDS has been integral for:
• ONS have conducted quality assurance analysis on the dataset, which has fed into internal report on the dataset.
• Research in developing an approach for producing Admin Based Population Estimates (ABPEs), formerly known as SPDs. By combining PDS with income, education and life event data sources and applying an activity based approach, we have published two ABPE time series for 2016-2020 (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/developingadminbasedpopulationestimatesenglandandwales/2016to2020). Analysing these time series helps us understand if and how the quality of the estimates change over time which feeds into our future methodological improvements.
• ONS have received Name variables from NHS Digital as part of the extract received which now feeds into analysis.
• Understanding any changes in the way the population interact with health registration systems and whether there have been changes to these patterns during the pandemic. This information will inform our research to further develop our ABPEs.
• PDS has been used as a tool to quality assure the linkage of address data between PR and CIS in a previous SPD publication.
• Providing address information for the population and helping us to understand changes in population, between local areas and over time.
• PDS has been used as for the quality assurance of Births and Deaths Registration data which will feed into the migration publication to be released by ONS in late autumn 2018.
Census Statistical Outputs Design are using the PDS to aid in the quality assurance of Census. In preparation for the census ONS used PDS data to understand the quality of the address frame planned for use. The frame is the list of addresses ONS use as the basis for making initial contact with the public. ONS analysts looked for evidence of where there was clustering of addresses which were on the PDS which were not on our frame, for example a newly built block of flats.
• PDS has primarily been used to link to other datasets and develop an iterative methodology to produce population and migration estimates. Early parts of this work were presented at the British Society of Population Studies (BSPS) conference earlier this year.
As part of quality assurance of the census statistics ONS have a systematic approach to validating against a range of data and other statistics. This includes the PDS. Where inconsistencies are seen between the census and the PDS, analysts take a deeper look at ONS statistics to understand whether there is evidence of an issue with the census process. As an example this could include if ONS data has missed a student hall of residence.
Going forward, within SDR one of the key uses of PDS will be continuing to link the data to a range of other datasets at record level to develop a methodology to produce population and migration estimates by sex and age to levels of geography currently published by the official Population Estimates going forward.
In compiling the final census estimates ONS has also used the PDS to understand whether there is any systematic bias in how the size of the population has been estimated. ONS’s final statistics are estimates as they aren’t simply the number of people of people who completed a questionnaire, instead analysts adjust for the number of people who were not included on a form. ONS used PDS data to validate the assumptions made in this modelling.
ONS have recently raised a request for a number of additional variables to be delivered going forward however discussions surrounding the acquisition of these variables is ongoing so no further update can be provided on specific variables. The key variables that have been requested are those which provide some form of identification which is descriptive of a person and any variable which would highlight activity.
The Centre for International Migration have previously linked the PDS to HMRC's Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many 'new migrants' on the MWS are seen in PDS. This is part of ONS' wider work to link different admin data sources together and test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
Additionally, it is likely be used to pick up the demographic information that is missing on other datasets, for example HES and IAPT, to allow for easier, more consistent linkage.
Using PR (in future PDS) data ONS have linked census and deaths data to produce new insights on the ethnic differences in mortality and life expectancy.
Census Statistical Outputs Design
Census Statistical Outputs Design are hoping to use the PDS to aid in the imputation and quality assurance of Census, particularly of people resident in communal establishments such as care homes and mental health establishments. This mirrors what was done in 2011 using the PR. Response to Census in communal establishments is variable, and it’s not always clear where non-respondents are located due to unreliable administrative data estimates about the care homes themselves (referring to total capacity rather than occupied capacity). It is hoped that if a person is usually resident in a care home, the chances of them not appearing on the PDS will be small. Therefore, estimates of currently occupied beds in care homes derived from the PDS linked to a list of identified care homes and then compared to Census responses for that care home will identify approximate numbers of people missing from that care home’s Census responses. Demographic information from the PDS for that care home can then be used to determine appropriate types of donor records to impute missing responses. Work to develop this approach is ongoing, with a test of the approach to be conducted during the 2019 Rehearsal.
Migration Statistics Division
The Centre for International Migration have linked the PDS to HMRC’s Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many ‘new migrants’ on the MWS are seen in PDS. This is part of ONS’ wider work to link different admin data sources together and test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
Changed only in punctuation, spacing or capitalisation: Expected measurable benefits, Processing activities.
Unchanged: Objective for processing, Expected output.
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes agreed with NHS Digital. No new data will be disseminated under this Agreement:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act 2007 the Statistics Board (UK Statistics Authority- UKSA) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics (ONS) as the Executive Office of The Board ( carries out this function. Within ONS, Population Statistics Division are responsible for providing key data on the population of the United Kingdom and are comprised of several branches that undertake demographic analysis in migration, fertility, mortality, ageing and families which are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to from time to time collect and publish any statistical information with respect to the number and condition of the population in the interval between one census and another…and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the 2007 Act.
ONS will rely on the following lawful basis from the GDPR for processing personal data including special category personal data:
GDPR Article 6(1)(e)The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom’s National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business to enable better decisions to be made. Using administrative data such as PDS allows ONS to produce statistics which are more granular and timelier at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census statistics and population and migration estimates: these justifications are outlined in greater depth below. Proportionality is considered by business areas, who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out will be requested and processed.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by persons within the organisation or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigorous disclosure controls and access restrictions – ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading ‘Data Environment’.
Population Statistics Division
NHS Digital previously supplied CHRIS data and Patient Register (National Health Application and Infrastructure Service- NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. Patient Register (NHAIS) data are due to be decommissioned and as such ONS need to assess its proposed replacement (PDS). The Patient Register data, in addition to internal migration estimates, are also used in the local authority distribution of international migrants for the mid-year population estimates and in the small area population estimates. Internal migration estimates are national statistics and a key component in population estimates and projections, also national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, the local authority distribution of international migrants component of change for the mid-year estimates and small area population estimates within England and Wales and estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance, higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students.
Census Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
· Population and housing estimates: counts of the population by age and sex, and the number of housing units.
· Population structures: households, families and household relationships.
· Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. As well as the direct census outputs, the census is the benchmark for the population estimates between censuses, for household and population projections and used as a denominator for numerous other statistics. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended:
To the Board of the UK Statistics Authority that future provision of population statistics and the next census should be through:
· “An online census of all households and communal establishments in England and Wales in 2021 … recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
· Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses.”
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
‘Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA’s plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.’ - Government’s response to the National Statistician’s recommendation, 18 July 2014.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
No one dataset in its’ own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual’s interactions with this system. Th‘s 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics through helping to address issues with definitional differences between administrative data and population definitions and time lags. Research outputs produce aggregated statistics and are subject to the same disclosure control requirements as described by Population Statistics Division.
There is no common identifier that can be used to link individuals’ records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, Full name, addresses and postcodes) to link the datasets and establish the aforementioned SPD. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data is needed to support the 2021 Census and provide evidence for the annual assessment of progress towards the Government’s ambition beyond 2021. This linkage of identifiable data is required to support the 2021 Census and work towards fulfilling the Government’s ambition to conduct future censuses using other sources, while ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other admin data sources, however no clinical data is being requested.
Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce Admin Data Based Population Estimates. The Patient Register Extract is currently a key data source used by the Census Transformation Programme (CTP) to produce Admin Data Based Population Estimates, with this being shut down a full understanding of the PDS Stocks data is required to assess its suitability as a replacement. If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their usually resident population definition
In addition to replacing the CHRIS dataset, PDS has been proposed by NHS Digital as a replacement dataset for the NHAIS Patient Register extract that ONS currently receive. PDS has been linked to NHAIS using the NHS number as the data currently held allows ONS to initially assess the data for this purpose and is in accordance with permitted use. However, the numbers of records on NHAIS and PDS datasets are very different and ONS need to understand why a record may appear on one dataset and not the other. Research into this has begun but ONS are hampered in their investigations due to the lack of name information (received on NHAIS), which prevents further data linkage that may uncover characteristics of those that do not present on both datasets. If ONS cannot understand the root causes of the differences, then ONS cannot then take account of them in their methodologies. This could result in ONS not being able to adopt PDS as a fit for purpose replacement for NHAIS and subsequently have a need for NHAIS data in 2019 and beyond, due to the longitudinal nature of their methods requiring more than one year of data. It may also result in delays to planned changes in methodology as ONS would be unable to link from PDS to other sources where name is required, for example within a component of mid-year population estimates.
Data Environment
The protection of data received from partners is very important to ONS and significant investment, activity and assurance is undertaken to ensure this data is secured throughout the lifecycle from ingest to processing and export. ONS are developing advanced approaches that enable improved statistical analytical capabilities including the linking and matching of personally identifiable information, while maintaining and enhancing procedural, personnel, physical and technological security protections that provide assurance to internal stakeholders and external partners. A developing data analysis environment, the Data Access Platform (DAP), will support this as ONS moves away from the Statistical Research Environment for the analysis work.
Data security for storage and linkage of the data will be provided with an assured ONS data analysis environment (DAP) that includes the following elements of security control:
• Need To Know applied through user account access and management
• Controlled ingest and export of data into/out from the environment
• Controlled account access using unique credentials based on job role
• Logged and monitored access of user activity within the environment
• Secure build configuration for infrastructure, including cloud services
• Vulnerability tested infrastructure with appropriate remediation and patching
• Compliance checks against security enforcing controls
• Architectural review against standards and best practice
• Staff security cleared to the appropriate level based on their supervised and/or unsupervised access to sensitive data in accordance with ONS clearance policies and data access processes
• Education and awareness of environment users covering security policies and secure working practices
• Operational support processes to securely manage the environment
• Risk assessment to identify security risks and mitigation actions to reduce this risk.
Following policy specified by the ONS Chief Security Officer, users will be granted supervised or unsupervised access following a clearance application. The ONS Information Asset Owner (IAO) grants access and a list of all authorised users is available on request.
With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS Digital to confirm compliance with this DSA.
ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS Digital on request.
ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS Digital.
Migration – Business Case for 2018/19
The Centre for International Migration is leading on work which will begin to put administrative data at the core of migration statistics in 2019. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee’s report and government response.
The Personal Demographic Service (PDS) data would form an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved migration estimates at local level. Improved statistics, at a more granular level, will enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data will allow migration statistics to:
1. Build on ONS' work identifying migrant interactions within the health system as a sign of activity and the impact of migration on the health sector. This will be achieved by linking to other health datasets including the Hospital Episode Statistics and the Improving Access to Psychological Therapies dataset.
2. Compare signs of arrival, activity and departures by linking PDS to other public-sector datasets.
Expected output
Main publication dates are as follows:
Internal migration – Annually – June
Internal migration statistics are published at local authority level by age and sex. They have wide use by local authorities and academics, including feeding into alternative population projections models and subsequent resource allocation planning. Mid-year estimates – Annually – June, with lower level geography releases after this until Small Area Population Estimates are released in November.
National Population projections – normally published at the end of October. Releases have traditionally been every other year. Following the national projections, there are sub-national releases between national releases.
Internal migration estimates are a key component of population estimates and population projections, which have wide and important use in the UK. Estimates are used in resource allocation from Central Government to local government and health authorities as well as in denominators for other statistics across government, which feed into policy decisions. Projections are used to determine future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services which are needed, for example a hospital may use them in determining whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Census Transformation Programme (CTP)
CTP has committed to publishing regular annual Administrative Data Research Outputs on the population, including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015 and included pseudonymously linked multiple datasets (including NHS Patient Register data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
The aim of these research outputs is to:
• Update users on the progress with administrative data and to seek feedback with the aim of improving the methods used.
• Help the process of working with data suppliers to improve data quality for statistical purposes
ONS will aim to develop them in both method and content in the run up to the 2021 Census, and ultimately compare them with results from the 2021 Census. ONS will also expand on the range of topics and granularity published each year.
ONS recognise the need for continued development of their methodology, so future releases will also include outputs based on future developments which will allow feedback to be taken on board from users, new data that becomes available, and alternative techniques to produce population statistics.
A new series was introduced in 2016 to include these developments which showed improvements to the methodology. Additionally, subject to satisfactory data access and quality, ONS also aim to release population statistics at more detailed levels, and outputs about other topics or characteristics of the population (other than age and sex) such as qualifications, personal or household income, and ethnicity, as well as on the number and the size and composition of households. ONS also plan to present their research into the development of a methodology to estimate and adjust for coverage error in the SPD.
In the spring of each year, starting in 2016, ONS will publish an assessment of progress towards the Government’s ambition to produce population statistics from administrative data after 2021.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). These outputs are produced annually, the most recent being October 2016. SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013, 2014 and 2015.
NHAIS feeds into annual releases for mid-year population estimates, internal migration estimates and small area population estimates (including clinical commissioning groups); through these estimates, NHAIS then indirectly feeds into the national population projections and the subnational population projections (including clinical commissioning groups) which are produced every two years. These statistics have onward use in resource allocation for example in the distribution of funds from central to local government.
Record level data will be held securely within ONS. The data will be held in the accredited Statistical Research Environment (SRE) located at ONS premises. The environment has been specifically designed to support the linkage of personal data and has security measures in place to mitigate the associated risks. NHS digital were consulted during the design and build of this facility and have continued to be involved in its oversight since it became operational. Only named researchers have access to SRE and it is not possible to access a printer, disks, internet or rest of the ONS network whilst in this room. It is a secure room that requires additional security clearance to gain access to. The approach taken to manage data is described in the ONS's safeguarding data for research policy.
Benefits reported
Since the last Data Access Request Service was agreed ONS have continued to work with the PDS data to understand the size and structure of the population, the characteristics of the population, and how the population change over time.
PDS has been integral for:
• Research in developing an approach for producing Admin Based Population Estimates (ABPEs), formerly known as SPDs. By combining PDS with income, education and life event data sources and applying an activity based approach, we have published two ABPE time series for 2016-2020 (https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/internationalmigration/articles/developingadminbasedpopulationestimatesenglandandwales/2016to2020). Analysing these time series helps us understand if and how the quality of the estimates change over time which feeds into our future methodological improvements.
• Understanding any changes in the way the population interact with health registration systems and whether there have been changes to these patterns during the pandemic. This information will inform our research to further develop our ABPEs.
• Providing address information for the population and helping us to understand changes in population, between local areas and over time.
Census Statistical Outputs Design are using the PDS to aid in the quality assurance of Census. In preparation for the census ONS used PDS data to understand the quality of the address frame planned for use. The frame is the list of addresses ONS use as the basis for making initial contact with the public. ONS analysts looked for evidence of where there was clustering of addresses which were on the PDS which were not on our frame, for example a newly built block of flats.
As part of quality assurance of the census statistics ONS have a systematic approach to validating against a range of data and other statistics. This includes the PDS. Where inconsistencies are seen between the census and the PDS, analysts take a deeper look at ONS statistics to understand whether there is evidence of an issue with the census process. As an example this could include if ONS data has missed a student hall of residence.
In compiling the final census estimates ONS has also used the PDS to understand whether there is any systematic bias in how the size of the population has been estimated. ONS’s final statistics are estimates as they aren’t simply the number of people of people who completed a questionnaire, instead analysts adjust for the number of people who were not included on a form. ONS used PDS data to validate the assumptions made in this modelling.
The Centre for International Migration have previously linked the PDS to HMRC's Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many 'new migrants' on the MWS are seen in PDS. This is part of ONS' wider work to link different admin data sources together and test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
Using PR (in future PDS) data ONS have linked census and deaths data to produce new insights on the ethnic differences in mortality and life expectancy.
DARS-NIC-20951-D2K6S-v8.7 17 March 2022 to 16 June 2022
- Title
- Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- No
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v7.5
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2022-03-17 | |
| End date | 2022-06-16 |
Processing activities
For the purpose of clarity, no new data will be disseminated under this Agreement.
[6 paragraphs unchanged]
To continue with the cross border moves, aggregate totals and record level data is required from the PDS system. This data will be extracted from the PDS stocks/weekly movers file using new approved methodology. The variables required to produce the data are:
The following variables were shared.
[9 paragraphs unchanged]
ONS is no longer permitted to share record level data with NRS. Record level data should not be shared with any third party.
[63 paragraphs unchanged]
Benefits reported
[1 paragraph unchanged]
Since the last Data Access Request Service was agreed, the
The
following developments have been made:
[12 paragraphs unchanged]
Unchanged: Objective for processing, Expected output, Expected measurable benefits.
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes agreed with NHS Digital. No new data will be disseminated under this Agreement:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act 2007 the Statistics Board (UK Statistics Authority- UKSA) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics (ONS) as the Executive Office of The Board ( carries out this function. Within ONS, Population Statistics Division are responsible for providing key data on the population of the United Kingdom and are comprised of several branches that undertake demographic analysis in migration, fertility, mortality, ageing and families which are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to from time to time collect and publish any statistical information with respect to the number and condition of the population in the interval between one census and another…and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the 2007 Act.
ONS will rely on the following lawful basis from the GDPR for processing personal data including special category personal data:
GDPR Article 6(1)(e)The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom’s National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business to enable better decisions to be made. Using administrative data such as PDS allows ONS to produce statistics which are more granular and timelier at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census statistics and population and migration estimates: these justifications are outlined in greater depth below. Proportionality is considered by business areas, who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out will be requested and processed.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by persons within the organisation or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigorous disclosure controls and access restrictions – ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading ‘Data Environment’.
Population Statistics Division
NHS Digital previously supplied CHRIS data and Patient Register (National Health Application and Infrastructure Service- NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. Patient Register (NHAIS) data are due to be decommissioned and as such ONS need to assess its proposed replacement (PDS). The Patient Register data, in addition to internal migration estimates, are also used in the local authority distribution of international migrants for the mid-year population estimates and in the small area population estimates. Internal migration estimates are national statistics and a key component in population estimates and projections, also national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, the local authority distribution of international migrants component of change for the mid-year estimates and small area population estimates within England and Wales and estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance, higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students.
Census Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
· Population and housing estimates: counts of the population by age and sex, and the number of housing units.
· Population structures: households, families and household relationships.
· Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. As well as the direct census outputs, the census is the benchmark for the population estimates between censuses, for household and population projections and used as a denominator for numerous other statistics. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended:
To the Board of the UK Statistics Authority that future provision of population statistics and the next census should be through:
· “An online census of all households and communal establishments in England and Wales in 2021 … recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
· Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses.”
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
‘Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA’s plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.’ - Government’s response to the National Statistician’s recommendation, 18 July 2014.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
No one dataset in its’ own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual’s interactions with this system. Th‘s 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics through helping to address issues with definitional differences between administrative data and population definitions and time lags. Research outputs produce aggregated statistics and are subject to the same disclosure control requirements as described by Population Statistics Division.
There is no common identifier that can be used to link individuals’ records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, Full name, addresses and postcodes) to link the datasets and establish the aforementioned SPD. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data is needed to support the 2021 Census and provide evidence for the annual assessment of progress towards the Government’s ambition beyond 2021. This linkage of identifiable data is required to support the 2021 Census and work towards fulfilling the Government’s ambition to conduct future censuses using other sources, while ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other admin data sources, however no clinical data is being requested.
Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce Admin Data Based Population Estimates. The Patient Register Extract is currently a key data source used by the Census Transformation Programme (CTP) to produce Admin Data Based Population Estimates, with this being shut down a full understanding of the PDS Stocks data is required to assess its suitability as a replacement. If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their usually resident population definition
In addition to replacing the CHRIS dataset, PDS has been proposed by NHS Digital as a replacement dataset for the NHAIS Patient Register extract that ONS currently receive. PDS has been linked to NHAIS using the NHS number as the data currently held allows ONS to initially assess the data for this purpose and is in accordance with permitted use. However, the numbers of records on NHAIS and PDS datasets are very different and ONS need to understand why a record may appear on one dataset and not the other. Research into this has begun but ONS are hampered in their investigations due to the lack of name information (received on NHAIS), which prevents further data linkage that may uncover characteristics of those that do not present on both datasets. If ONS cannot understand the root causes of the differences, then ONS cannot then take account of them in their methodologies. This could result in ONS not being able to adopt PDS as a fit for purpose replacement for NHAIS and subsequently have a need for NHAIS data in 2019 and beyond, due to the longitudinal nature of their methods requiring more than one year of data. It may also result in delays to planned changes in methodology as ONS would be unable to link from PDS to other sources where name is required, for example within a component of mid-year population estimates.
Data Environment
The protection of data received from partners is very important to ONS and significant investment, activity and assurance is undertaken to ensure this data is secured throughout the lifecycle from ingest to processing and export. ONS are developing advanced approaches that enable improved statistical analytical capabilities including the linking and matching of personally identifiable information, while maintaining and enhancing procedural, personnel, physical and technological security protections that provide assurance to internal stakeholders and external partners. A developing data analysis environment, the Data Access Platform (DAP), will support this as ONS moves away from the Statistical Research Environment for the analysis work.
Data security for storage and linkage of the data will be provided with an assured ONS data analysis environment (DAP) that includes the following elements of security control:
• Need To Know applied through user account access and management
• Controlled ingest and export of data into/out from the environment
• Controlled account access using unique credentials based on job role
• Logged and monitored access of user activity within the environment
• Secure build configuration for infrastructure, including cloud services
• Vulnerability tested infrastructure with appropriate remediation and patching
• Compliance checks against security enforcing controls
• Architectural review against standards and best practice
• Staff security cleared to the appropriate level based on their supervised and/or unsupervised access to sensitive data in accordance with ONS clearance policies and data access processes
• Education and awareness of environment users covering security policies and secure working practices
• Operational support processes to securely manage the environment
• Risk assessment to identify security risks and mitigation actions to reduce this risk.
Following policy specified by the ONS Chief Security Officer, users will be granted supervised or unsupervised access following a clearance application. The ONS Information Asset Owner (IAO) grants access and a list of all authorised users is available on request.
With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS Digital to confirm compliance with this DSA.
ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS Digital on request.
ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS Digital.
Migration – Business Case for 2018/19
The Centre for International Migration is leading on work which will begin to put administrative data at the core of migration statistics in 2019. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee’s report and government response.
The Personal Demographic Service (PDS) data would form an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved migration estimates at local level. Improved statistics, at a more granular level, will enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data will allow migration statistics to:
1. Build on ONS' work identifying migrant interactions within the health system as a sign of activity and the impact of migration on the health sector. This will be achieved by linking to other health datasets including the Hospital Episode Statistics and the Improving Access to Psychological Therapies dataset.
2. Compare signs of arrival, activity and departures by linking PDS to other public-sector datasets.
Expected output
Main publication dates are as follows:
Internal migration – Annually – June
Internal migration statistics are published at local authority level by age and sex. They have wide use by local authorities and academics, including feeding into alternative population projections models and subsequent resource allocation planning. Mid-year estimates – Annually – June, with lower level geography releases after this until Small Area Population Estimates are released in November.
National Population projections – normally published at the end of October. Releases have traditionally been every other year. Following the national projections, there are sub-national releases between national releases.
Internal migration estimates are a key component of population estimates and population projections, which have wide and important use in the UK. Estimates are used in resource allocation from Central Government to local government and health authorities as well as in denominators for other statistics across government, which feed into policy decisions. Projections are used to determine future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services which are needed, for example a hospital may use them in determining whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Census Transformation Programme (CTP)
CTP has committed to publishing regular annual Administrative Data Research Outputs on the population, including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015 and included pseudonymously linked multiple datasets (including NHS Patient Register data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
The aim of these research outputs is to:
• Update users on the progress with administrative data and to seek feedback with the aim of improving the methods used.
• Help the process of working with data suppliers to improve data quality for statistical purposes
ONS will aim to develop them in both method and content in the run up to the 2021 Census, and ultimately compare them with results from the 2021 Census. ONS will also expand on the range of topics and granularity published each year.
ONS recognise the need for continued development of their methodology, so future releases will also include outputs based on future developments which will allow feedback to be taken on board from users, new data that becomes available, and alternative techniques to produce population statistics.
A new series was introduced in 2016 to include these developments which showed improvements to the methodology. Additionally, subject to satisfactory data access and quality, ONS also aim to release population statistics at more detailed levels, and outputs about other topics or characteristics of the population (other than age and sex) such as qualifications, personal or household income, and ethnicity, as well as on the number and the size and composition of households. ONS also plan to present their research into the development of a methodology to estimate and adjust for coverage error in the SPD.
In the spring of each year, starting in 2016, ONS will publish an assessment of progress towards the Government’s ambition to produce population statistics from administrative data after 2021.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). These outputs are produced annually, the most recent being October 2016. SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013, 2014 and 2015.
NHAIS feeds into annual releases for mid-year population estimates, internal migration estimates and small area population estimates (including clinical commissioning groups); through these estimates, NHAIS then indirectly feeds into the national population projections and the subnational population projections (including clinical commissioning groups) which are produced every two years. These statistics have onward use in resource allocation for example in the distribution of funds from central to local government.
Record level data will be held securely within ONS. The data will be held in the accredited Statistical Research Environment (SRE) located at ONS premises. The environment has been specifically designed to support the linkage of personal data and has security measures in place to mitigate the associated risks. NHS digital were consulted during the design and build of this facility and have continued to be involved in its oversight since it became operational. Only named researchers have access to SRE and it is not possible to access a printer, disks, internet or rest of the ONS network whilst in this room. It is a secure room that requires additional security clearance to gain access to. The approach taken to manage data is described in the ONS's safeguarding data for research policy.
Benefits reported
Statistical Design and Research
The following developments have been made:
• ONS have conducted quality assurance analysis on the dataset, which has fed into internal report on the dataset.
• ONS have received Name variables from NHS Digital as part of the extract received which now feeds into analysis.
• PDS has been used as a tool to quality assure the linkage of address data between PR and CIS in a previous SPD publication.
• PDS has been used as for the quality assurance of Births and Deaths Registration data which will feed into the migration publication to be released by ONS in late autumn 2018.
• PDS has primarily been used to link to other datasets and develop an iterative methodology to produce population and migration estimates. Early parts of this work were presented at the British Society of Population Studies (BSPS) conference earlier this year.
Going forward, within SDR one of the key uses of PDS will be continuing to link the data to a range of other datasets at record level to develop a methodology to produce population and migration estimates by sex and age to levels of geography currently published by the official Population Estimates going forward.
ONS have recently raised a request for a number of additional variables to be delivered going forward however discussions surrounding the acquisition of these variables is ongoing so no further update can be provided on specific variables. The key variables that have been requested are those which provide some form of identification which is descriptive of a person and any variable which would highlight activity.
Additionally, it is likely be used to pick up the demographic information that is missing on other datasets, for example HES and IAPT, to allow for easier, more consistent linkage.
Census Statistical Outputs Design
Census Statistical Outputs Design are hoping to use the PDS to aid in the imputation and quality assurance of Census, particularly of people resident in communal establishments such as care homes and mental health establishments. This mirrors what was done in 2011 using the PR. Response to Census in communal establishments is variable, and it’s not always clear where non-respondents are located due to unreliable administrative data estimates about the care homes themselves (referring to total capacity rather than occupied capacity). It is hoped that if a person is usually resident in a care home, the chances of them not appearing on the PDS will be small. Therefore, estimates of currently occupied beds in care homes derived from the PDS linked to a list of identified care homes and then compared to Census responses for that care home will identify approximate numbers of people missing from that care home’s Census responses. Demographic information from the PDS for that care home can then be used to determine appropriate types of donor records to impute missing responses. Work to develop this approach is ongoing, with a test of the approach to be conducted during the 2019 Rehearsal.
Migration Statistics Division
The Centre for International Migration have linked the PDS to HMRC’s Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many ‘new migrants’ on the MWS are seen in PDS. This is part of ONS’ wider work to link different admin data sources together and test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
DARS-NIC-20951-D2K6S-v7.5 18 December 2021 to 28 February 2022
- Title
- Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- No
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v6.2
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Title | Provision of data via PDS to ONS | |
| Start date | 2021-12-18 | |
| End date | 2022-02-28 |
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes agreed with NHS
Digital:
Digital. No new data will be disseminated under this Agreement:
[1 paragraph unchanged]
Under section 20 of the Statistics and Registration Service Act 2007 the Statistics Board (UK Statistics
Authority)
Authority- UKSA)
may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics
(ONS)
as the Executive Office of The Board
(ONS)
(
carries out this function. Within ONS, Population Statistics Division are responsible for
[34 words unchanged]
population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
[2 paragraphs unchanged]
GDPR Article
6(1)(e) The
6(1)(e)The
processing is necessary for the performance of a task carried out in
[24 words unchanged]
official statistics is found in the Statistics and Registration Service Act 2007.
[1 paragraph unchanged]
ONS is the United Kingdom’s National Statistical Institute and largest independent producer
[42 words unchanged]
as PDS allows ONS to produce statistics which are more granular and
timely
timelier
at a lower cost to the public, therefore enabling better decisions and resource allocation.
[1 paragraph unchanged]
ONS does not consider there to be any moral or ethical issues raised by the proposed dissemination.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little
[37 words unchanged]
of data in transfer. Therefore, to protect against these risks, ONS employs
rigours
rigorous
disclosure controls and access restrictions – ensuring that physical, technical, procedural and
[54 words unchanged]
stored, linked and analysed is detailed below under the heading ‘Data Environment’.
[1 paragraph unchanged]
NHS Digital previously supplied CHRIS data and Patient Register
(NHAIS)
(National Health Application and Infrastructure Service- NHAIS)
data to ONS for the purposes of estimating internal migration in England
[143 words unchanged]
the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for
[46 words unchanged]
with other data sources to improve accuracy and quality of estimates. For
instance
instance,
higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students.
[16 paragraphs unchanged]
No one dataset in its’ own right can be used to produce
[38 words unchanged]
currently receives would provide information about the timing and nature of an
individual's
individual’s
interactions with this system.
This
Th‘s
'activity' data can be used by ONS to determine whether a record
[46 words unchanged]
to the same disclosure control requirements as described by Population Statistics Division.
[2 paragraphs unchanged]
Name variables have been included because they are key variables that enable
[70 words unchanged]
cannot identify potential double counting or cases which do not meet their
usually-resident
usually resident
population definition
In addition to replacing the CHRIS dataset, PDS has been proposed by
[99 words unchanged]
NHAIS), which prevents further data linkage that may uncover characteristics of those
that do
not present on both datasets. If ONS cannot understand the root causes of the
differences
differences,
then ONS cannot then take account of them in their methodologies. This
[69 words unchanged]
name is required, for example within a component of mid-year population estimates.
[24 paragraphs unchanged]
Processing activities
For the purpose of clarity, no new data will be disseminated under this Agreement.
[2 paragraphs unchanged]
The data
requested
being retained
herein will form part of the internal migration method alongside other datasets, primarily
HESA
Higher Education Statistical Agency (HESA)
student data and replacing the Patient Register data from NHAIS In order
[18 words unchanged]
data from other sources such as HESA student data and data from
HMRC
Her Majesty’s Revenue
and
DWP
Customs (HMRC) and the Department of Work and Pensions (DWP)
are used to apportion the national total of migrants to the local level.
ONS, National Records of Scotland (NRS) and Northern Ireland Statistics and Research
[32 words unchanged]
The sharing of information was previously covered by a data access agreement.
The NHSCR system in England that provided this data was closed in February 2016.
[1 paragraph unchanged]
In addition NRS received record level data to ensure a higher level of accuracy for the large number of moves between Scotland and England &
Wales is large,
Wales,
which is a large proportion of all moves for Scotland. The data
[49 words unchanged]
are voluntary, and people are more likely to re-register than to de-register.
[10 paragraphs unchanged]
ONS is permitted to share the above data items with NRS on condition that ONS ensures there are adequate controls in place to ensure that NRS:
a. must not combine the data with other datasets which could potentially increase the risk of reidentification for individuals in the dataset;
b. must not attempt to re-identify individuals in the dataset;
c. must not onwardly share the dataset;
d. must use the dataset solely for the defined purpose of the production of cross-border flows between the four countries of the United Kingdom, using the movement of people, as part of population estimates for the United Kingdom for the Population Estimates Unit, and;
e. must not publish the data.
ONS must maintain its Memorandum of Understanding (MoU) with NRS as a means of applying the above controls.
[1 paragraph unchanged]
Though it is acknowledged that previous versions of this Agreement have permitted ONS to share record level data with NRS, under this Agreement ONS will only share data with NRS that is aggregated totals of moves between England and Wales and Scotland. No new record level data will be shared with NRS.
[8 paragraphs unchanged]
If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their
usually-resident
usually resident
population definition. Previous research in the Beyond 2011 Programme explored how population
[39 words unchanged]
required in an administrative data-based approach to the Census in the future.
Two supplies of data
are
have previously been
requested from NHS Digital for the
ongoing
supply of PDS Weekly Movers file and the annual Mid Year Stock Extract file. The specific data items
required
that have previously been requested
from the Personal Demographic Service are as follows:-
[1 paragraph unchanged]
Provided
Previously provided
Weekly via Messaging Exchange for Social Care and Health (MESH) to ONS, this reflects patients who have moved, in order to assess population movements.
[12 paragraphs unchanged]
Annual
Previously the annual
run
to be
was
initiated on the closest Saturday to 31st July each year which times in line with the supply of the annual Patient Register and supplied to ONS via MESH
[16 paragraphs unchanged]
From February 2018 ONS moved data onto a new Data Access Platform (DAP). Both the PDS weekly Files and PDS Annual Stock Extracts
will be moving
have moved
to DAP.
[19 paragraphs unchanged]
Benefits reported
[3 paragraphs unchanged]
• ONS have received Name variables from
NHS-Digital
NHS Digital
as part of the extract received which now feeds into analysis.
[10 paragraphs unchanged]
Unchanged: Expected output, Expected measurable benefits.
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes agreed with NHS Digital. No new data will be disseminated under this Agreement:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act 2007 the Statistics Board (UK Statistics Authority- UKSA) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics (ONS) as the Executive Office of The Board ( carries out this function. Within ONS, Population Statistics Division are responsible for providing key data on the population of the United Kingdom and are comprised of several branches that undertake demographic analysis in migration, fertility, mortality, ageing and families which are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to from time to time collect and publish any statistical information with respect to the number and condition of the population in the interval between one census and another…and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the 2007 Act.
ONS will rely on the following lawful basis from the GDPR for processing personal data including special category personal data:
GDPR Article 6(1)(e)The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom’s National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business to enable better decisions to be made. Using administrative data such as PDS allows ONS to produce statistics which are more granular and timelier at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census statistics and population and migration estimates: these justifications are outlined in greater depth below. Proportionality is considered by business areas, who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out will be requested and processed.
An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by persons within the organisation or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigorous disclosure controls and access restrictions – ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading ‘Data Environment’.
Population Statistics Division
NHS Digital previously supplied CHRIS data and Patient Register (National Health Application and Infrastructure Service- NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. Patient Register (NHAIS) data are due to be decommissioned and as such ONS need to assess its proposed replacement (PDS). The Patient Register data, in addition to internal migration estimates, are also used in the local authority distribution of international migrants for the mid-year population estimates and in the small area population estimates. Internal migration estimates are national statistics and a key component in population estimates and projections, also national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, the local authority distribution of international migrants component of change for the mid-year estimates and small area population estimates within England and Wales and estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance, higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students.
Census Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
· Population and housing estimates: counts of the population by age and sex, and the number of housing units.
· Population structures: households, families and household relationships.
· Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. As well as the direct census outputs, the census is the benchmark for the population estimates between censuses, for household and population projections and used as a denominator for numerous other statistics. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended:
To the Board of the UK Statistics Authority that future provision of population statistics and the next census should be through:
· “An online census of all households and communal establishments in England and Wales in 2021 … recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
· Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses.”
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
‘Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA’s plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.’ - Government’s response to the National Statistician’s recommendation, 18 July 2014.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
No one dataset in its’ own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual’s interactions with this system. Th‘s 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics through helping to address issues with definitional differences between administrative data and population definitions and time lags. Research outputs produce aggregated statistics and are subject to the same disclosure control requirements as described by Population Statistics Division.
There is no common identifier that can be used to link individuals’ records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, Full name, addresses and postcodes) to link the datasets and establish the aforementioned SPD. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data is needed to support the 2021 Census and provide evidence for the annual assessment of progress towards the Government’s ambition beyond 2021. This linkage of identifiable data is required to support the 2021 Census and work towards fulfilling the Government’s ambition to conduct future censuses using other sources, while ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other admin data sources, however no clinical data is being requested.
Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce Admin Data Based Population Estimates. The Patient Register Extract is currently a key data source used by the Census Transformation Programme (CTP) to produce Admin Data Based Population Estimates, with this being shut down a full understanding of the PDS Stocks data is required to assess its suitability as a replacement. If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their usually resident population definition
In addition to replacing the CHRIS dataset, PDS has been proposed by NHS Digital as a replacement dataset for the NHAIS Patient Register extract that ONS currently receive. PDS has been linked to NHAIS using the NHS number as the data currently held allows ONS to initially assess the data for this purpose and is in accordance with permitted use. However, the numbers of records on NHAIS and PDS datasets are very different and ONS need to understand why a record may appear on one dataset and not the other. Research into this has begun but ONS are hampered in their investigations due to the lack of name information (received on NHAIS), which prevents further data linkage that may uncover characteristics of those that do not present on both datasets. If ONS cannot understand the root causes of the differences, then ONS cannot then take account of them in their methodologies. This could result in ONS not being able to adopt PDS as a fit for purpose replacement for NHAIS and subsequently have a need for NHAIS data in 2019 and beyond, due to the longitudinal nature of their methods requiring more than one year of data. It may also result in delays to planned changes in methodology as ONS would be unable to link from PDS to other sources where name is required, for example within a component of mid-year population estimates.
Data Environment
The protection of data received from partners is very important to ONS and significant investment, activity and assurance is undertaken to ensure this data is secured throughout the lifecycle from ingest to processing and export. ONS are developing advanced approaches that enable improved statistical analytical capabilities including the linking and matching of personally identifiable information, while maintaining and enhancing procedural, personnel, physical and technological security protections that provide assurance to internal stakeholders and external partners. A developing data analysis environment, the Data Access Platform (DAP), will support this as ONS moves away from the Statistical Research Environment for the analysis work.
Data security for storage and linkage of the data will be provided with an assured ONS data analysis environment (DAP) that includes the following elements of security control:
• Need To Know applied through user account access and management
• Controlled ingest and export of data into/out from the environment
• Controlled account access using unique credentials based on job role
• Logged and monitored access of user activity within the environment
• Secure build configuration for infrastructure, including cloud services
• Vulnerability tested infrastructure with appropriate remediation and patching
• Compliance checks against security enforcing controls
• Architectural review against standards and best practice
• Staff security cleared to the appropriate level based on their supervised and/or unsupervised access to sensitive data in accordance with ONS clearance policies and data access processes
• Education and awareness of environment users covering security policies and secure working practices
• Operational support processes to securely manage the environment
• Risk assessment to identify security risks and mitigation actions to reduce this risk.
Following policy specified by the ONS Chief Security Officer, users will be granted supervised or unsupervised access following a clearance application. The ONS Information Asset Owner (IAO) grants access and a list of all authorised users is available on request.
With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS Digital to confirm compliance with this DSA.
ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS Digital on request.
ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS Digital.
Migration – Business Case for 2018/19
The Centre for International Migration is leading on work which will begin to put administrative data at the core of migration statistics in 2019. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee’s report and government response.
The Personal Demographic Service (PDS) data would form an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved migration estimates at local level. Improved statistics, at a more granular level, will enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data will allow migration statistics to:
1. Build on ONS' work identifying migrant interactions within the health system as a sign of activity and the impact of migration on the health sector. This will be achieved by linking to other health datasets including the Hospital Episode Statistics and the Improving Access to Psychological Therapies dataset.
2. Compare signs of arrival, activity and departures by linking PDS to other public-sector datasets.
Expected output
Main publication dates are as follows:
Internal migration – Annually – June
Internal migration statistics are published at local authority level by age and sex. They have wide use by local authorities and academics, including feeding into alternative population projections models and subsequent resource allocation planning. Mid-year estimates – Annually – June, with lower level geography releases after this until Small Area Population Estimates are released in November.
National Population projections – normally published at the end of October. Releases have traditionally been every other year. Following the national projections, there are sub-national releases between national releases.
Internal migration estimates are a key component of population estimates and population projections, which have wide and important use in the UK. Estimates are used in resource allocation from Central Government to local government and health authorities as well as in denominators for other statistics across government, which feed into policy decisions. Projections are used to determine future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services which are needed, for example a hospital may use them in determining whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Census Transformation Programme (CTP)
CTP has committed to publishing regular annual Administrative Data Research Outputs on the population, including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015 and included pseudonymously linked multiple datasets (including NHS Patient Register data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
The aim of these research outputs is to:
• Update users on the progress with administrative data and to seek feedback with the aim of improving the methods used.
• Help the process of working with data suppliers to improve data quality for statistical purposes
ONS will aim to develop them in both method and content in the run up to the 2021 Census, and ultimately compare them with results from the 2021 Census. ONS will also expand on the range of topics and granularity published each year.
ONS recognise the need for continued development of their methodology, so future releases will also include outputs based on future developments which will allow feedback to be taken on board from users, new data that becomes available, and alternative techniques to produce population statistics.
A new series was introduced in 2016 to include these developments which showed improvements to the methodology. Additionally, subject to satisfactory data access and quality, ONS also aim to release population statistics at more detailed levels, and outputs about other topics or characteristics of the population (other than age and sex) such as qualifications, personal or household income, and ethnicity, as well as on the number and the size and composition of households. ONS also plan to present their research into the development of a methodology to estimate and adjust for coverage error in the SPD.
In the spring of each year, starting in 2016, ONS will publish an assessment of progress towards the Government’s ambition to produce population statistics from administrative data after 2021.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). These outputs are produced annually, the most recent being October 2016. SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013, 2014 and 2015.
NHAIS feeds into annual releases for mid-year population estimates, internal migration estimates and small area population estimates (including clinical commissioning groups); through these estimates, NHAIS then indirectly feeds into the national population projections and the subnational population projections (including clinical commissioning groups) which are produced every two years. These statistics have onward use in resource allocation for example in the distribution of funds from central to local government.
Record level data will be held securely within ONS. The data will be held in the accredited Statistical Research Environment (SRE) located at ONS premises. The environment has been specifically designed to support the linkage of personal data and has security measures in place to mitigate the associated risks. NHS digital were consulted during the design and build of this facility and have continued to be involved in its oversight since it became operational. Only named researchers have access to SRE and it is not possible to access a printer, disks, internet or rest of the ONS network whilst in this room. It is a secure room that requires additional security clearance to gain access to. The approach taken to manage data is described in the ONS's safeguarding data for research policy.
Benefits reported
Statistical Design and Research
Since the last Data Access Request Service was agreed, the following developments have been made:
• ONS have conducted quality assurance analysis on the dataset, which has fed into internal report on the dataset.
• ONS have received Name variables from NHS Digital as part of the extract received which now feeds into analysis.
• PDS has been used as a tool to quality assure the linkage of address data between PR and CIS in a previous SPD publication.
• PDS has been used as for the quality assurance of Births and Deaths Registration data which will feed into the migration publication to be released by ONS in late autumn 2018.
• PDS has primarily been used to link to other datasets and develop an iterative methodology to produce population and migration estimates. Early parts of this work were presented at the British Society of Population Studies (BSPS) conference earlier this year.
Going forward, within SDR one of the key uses of PDS will be continuing to link the data to a range of other datasets at record level to develop a methodology to produce population and migration estimates by sex and age to levels of geography currently published by the official Population Estimates going forward.
ONS have recently raised a request for a number of additional variables to be delivered going forward however discussions surrounding the acquisition of these variables is ongoing so no further update can be provided on specific variables. The key variables that have been requested are those which provide some form of identification which is descriptive of a person and any variable which would highlight activity.
Additionally, it is likely be used to pick up the demographic information that is missing on other datasets, for example HES and IAPT, to allow for easier, more consistent linkage.
Census Statistical Outputs Design
Census Statistical Outputs Design are hoping to use the PDS to aid in the imputation and quality assurance of Census, particularly of people resident in communal establishments such as care homes and mental health establishments. This mirrors what was done in 2011 using the PR. Response to Census in communal establishments is variable, and it’s not always clear where non-respondents are located due to unreliable administrative data estimates about the care homes themselves (referring to total capacity rather than occupied capacity). It is hoped that if a person is usually resident in a care home, the chances of them not appearing on the PDS will be small. Therefore, estimates of currently occupied beds in care homes derived from the PDS linked to a list of identified care homes and then compared to Census responses for that care home will identify approximate numbers of people missing from that care home’s Census responses. Demographic information from the PDS for that care home can then be used to determine appropriate types of donor records to impute missing responses. Work to develop this approach is ongoing, with a test of the approach to be conducted during the 2019 Rehearsal.
Migration Statistics Division
The Centre for International Migration have linked the PDS to HMRC’s Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many ‘new migrants’ on the MWS are seen in PDS. This is part of ONS’ wider work to link different admin data sources together and test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
DARS-NIC-20951-D2K6S-v6.2 18 December 2020 to 17 December 2021
- Title
- ONS CHRIS Replacement System - Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- No
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v5.2
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2020-12-18 | |
| End date | 2021-12-17 |
Unchanged: Objective for processing, Processing activities, Expected output, Expected measurable benefits, Benefits reported.
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes agreed with NHS Digital:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act 2007 the Statistics Board (UK Statistics Authority) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics as the Executive Office of The Board (ONS) carries out this function. Within ONS, Population Statistics Division are responsible for providing key data on the population of the United Kingdom and are comprised of several branches that undertake demographic analysis in migration, fertility, mortality, ageing and families which are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to from time to time collect and publish any statistical information with respect to the number and condition of the population in the interval between one census and another…and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the 2007 Act.
ONS will rely on the following lawful basis from the GDPR for processing personal data including special category personal data:
GDPR Article 6(1)(e) The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom’s National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business to enable better decisions to be made. Using administrative data such as PDS allows ONS to produce statistics which are more granular and timely at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census statistics and population and migration estimates: these justifications are outlined in greater depth below. Proportionality is considered by business areas, who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out will be requested and processed.
ONS does not consider there to be any moral or ethical issues raised by the proposed dissemination. An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by persons within the organisation or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigours disclosure controls and access restrictions – ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading ‘Data Environment’.
Population Statistics Division
NHS Digital previously supplied CHRIS data and Patient Register (NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. Patient Register (NHAIS) data are due to be decommissioned and as such ONS need to assess its proposed replacement (PDS). The Patient Register data, in addition to internal migration estimates, are also used in the local authority distribution of international migrants for the mid-year population estimates and in the small area population estimates. Internal migration estimates are national statistics and a key component in population estimates and projections, also national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, the local authority distribution of international migrants component of change for the mid-year estimates and small area population estimates within England and Wales and estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students.
Census Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
· Population and housing estimates: counts of the population by age and sex, and the number of housing units.
· Population structures: households, families and household relationships.
· Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. As well as the direct census outputs, the census is the benchmark for the population estimates between censuses, for household and population projections and used as a denominator for numerous other statistics. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended:
To the Board of the UK Statistics Authority that future provision of population statistics and the next census should be through:
· “An online census of all households and communal establishments in England and Wales in 2021 … recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
· Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses.”
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
‘Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA’s plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.’ - Government’s response to the National Statistician’s recommendation, 18 July 2014.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
No one dataset in its’ own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual's interactions with this system. This 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics through helping to address issues with definitional differences between administrative data and population definitions and time lags. Research outputs produce aggregated statistics and are subject to the same disclosure control requirements as described by Population Statistics Division.
There is no common identifier that can be used to link individuals’ records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, Full name, addresses and postcodes) to link the datasets and establish the aforementioned SPD. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data is needed to support the 2021 Census and provide evidence for the annual assessment of progress towards the Government's ambition beyond 2021. This linkage of identifiable data is required to support the 2021 Census and work towards fulfilling the Government's ambition to conduct future censuses using other sources, while ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other admin data sources, however no clinical data is being requested.
Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce Admin Data Based Population Estimates. The Patient Register Extract is currently a key data source used by the Census Transformation Programme (CTP) to produce Admin Data Based Population Estimates, with this being shut down a full understanding of the PDS Stocks data is required to assess its suitability as a replacement. If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their usually-resident population definition
In addition to replacing the CHRIS dataset, PDS has been proposed by NHS Digital as a replacement dataset for the NHAIS Patient Register extract that ONS currently receive. PDS has been linked to NHAIS using the NHS number as the data currently held allows ONS to initially assess the data for this purpose and is in accordance with permitted use. However, the numbers of records on NHAIS and PDS datasets are very different and ONS need to understand why a record may appear on one dataset and not the other. Research into this has begun but ONS are hampered in their investigations due to the lack of name information (received on NHAIS), which prevents further data linkage that may uncover characteristics of those not present on both datasets. If ONS cannot understand the root causes of the differences then ONS cannot then take account of them in their methodologies. This could result in ONS not being able to adopt PDS as a fit for purpose replacement for NHAIS and subsequently have a need for NHAIS data in 2019 and beyond, due to the longitudinal nature of their methods requiring more than one year of data. It may also result in delays to planned changes in methodology as ONS would be unable to link from PDS to other sources where name is required, for example within a component of mid-year population estimates.
Data Environment
The protection of data received from partners is very important to ONS and significant investment, activity and assurance is undertaken to ensure this data is secured throughout the lifecycle from ingest to processing and export. ONS are developing advanced approaches that enable improved statistical analytical capabilities including the linking and matching of personally identifiable information, while maintaining and enhancing procedural, personnel, physical and technological security protections that provide assurance to internal stakeholders and external partners. A developing data analysis environment, the Data Access Platform (DAP), will support this as ONS moves away from the Statistical Research Environment for the analysis work.
Data security for storage and linkage of the data will be provided with an assured ONS data analysis environment (DAP) that includes the following elements of security control:
• Need To Know applied through user account access and management
• Controlled ingest and export of data into/out from the environment
• Controlled account access using unique credentials based on job role
• Logged and monitored access of user activity within the environment
• Secure build configuration for infrastructure, including cloud services
• Vulnerability tested infrastructure with appropriate remediation and patching
• Compliance checks against security enforcing controls
• Architectural review against standards and best practice
• Staff security cleared to the appropriate level based on their supervised and/or unsupervised access to sensitive data in accordance with ONS clearance policies and data access processes
• Education and awareness of environment users covering security policies and secure working practices
• Operational support processes to securely manage the environment
• Risk assessment to identify security risks and mitigation actions to reduce this risk.
Following policy specified by the ONS Chief Security Officer, users will be granted supervised or unsupervised access following a clearance application. The ONS Information Asset Owner (IAO) grants access and a list of all authorised users is available on request.
With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS Digital to confirm compliance with this DSA.
ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS Digital on request.
ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS Digital.
Migration – Business Case for 2018/19
The Centre for International Migration is leading on work which will begin to put administrative data at the core of migration statistics in 2019. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee’s report and government response.
The Personal Demographic Service (PDS) data would form an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved migration estimates at local level. Improved statistics, at a more granular level, will enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data will allow migration statistics to:
1. Build on ONS' work identifying migrant interactions within the health system as a sign of activity and the impact of migration on the health sector. This will be achieved by linking to other health datasets including the Hospital Episode Statistics and the Improving Access to Psychological Therapies dataset.
2. Compare signs of arrival, activity and departures by linking PDS to other public-sector datasets.
Expected output
Main publication dates are as follows:
Internal migration – Annually – June
Internal migration statistics are published at local authority level by age and sex. They have wide use by local authorities and academics, including feeding into alternative population projections models and subsequent resource allocation planning. Mid-year estimates – Annually – June, with lower level geography releases after this until Small Area Population Estimates are released in November.
National Population projections – normally published at the end of October. Releases have traditionally been every other year. Following the national projections, there are sub-national releases between national releases.
Internal migration estimates are a key component of population estimates and population projections, which have wide and important use in the UK. Estimates are used in resource allocation from Central Government to local government and health authorities as well as in denominators for other statistics across government, which feed into policy decisions. Projections are used to determine future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services which are needed, for example a hospital may use them in determining whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Census Transformation Programme (CTP)
CTP has committed to publishing regular annual Administrative Data Research Outputs on the population, including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015 and included pseudonymously linked multiple datasets (including NHS Patient Register data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
The aim of these research outputs is to:
• Update users on the progress with administrative data and to seek feedback with the aim of improving the methods used.
• Help the process of working with data suppliers to improve data quality for statistical purposes
ONS will aim to develop them in both method and content in the run up to the 2021 Census, and ultimately compare them with results from the 2021 Census. ONS will also expand on the range of topics and granularity published each year.
ONS recognise the need for continued development of their methodology, so future releases will also include outputs based on future developments which will allow feedback to be taken on board from users, new data that becomes available, and alternative techniques to produce population statistics.
A new series was introduced in 2016 to include these developments which showed improvements to the methodology. Additionally, subject to satisfactory data access and quality, ONS also aim to release population statistics at more detailed levels, and outputs about other topics or characteristics of the population (other than age and sex) such as qualifications, personal or household income, and ethnicity, as well as on the number and the size and composition of households. ONS also plan to present their research into the development of a methodology to estimate and adjust for coverage error in the SPD.
In the spring of each year, starting in 2016, ONS will publish an assessment of progress towards the Government’s ambition to produce population statistics from administrative data after 2021.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). These outputs are produced annually, the most recent being October 2016. SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013, 2014 and 2015.
NHAIS feeds into annual releases for mid-year population estimates, internal migration estimates and small area population estimates (including clinical commissioning groups); through these estimates, NHAIS then indirectly feeds into the national population projections and the subnational population projections (including clinical commissioning groups) which are produced every two years. These statistics have onward use in resource allocation for example in the distribution of funds from central to local government.
Record level data will be held securely within ONS. The data will be held in the accredited Statistical Research Environment (SRE) located at ONS premises. The environment has been specifically designed to support the linkage of personal data and has security measures in place to mitigate the associated risks. NHS digital were consulted during the design and build of this facility and have continued to be involved in its oversight since it became operational. Only named researchers have access to SRE and it is not possible to access a printer, disks, internet or rest of the ONS network whilst in this room. It is a secure room that requires additional security clearance to gain access to. The approach taken to manage data is described in the ONS's safeguarding data for research policy.
Benefits reported
Statistical Design and Research
Since the last Data Access Request Service was agreed, the following developments have been made:
• ONS have conducted quality assurance analysis on the dataset, which has fed into internal report on the dataset.
• ONS have received Name variables from NHS-Digital as part of the extract received which now feeds into analysis.
• PDS has been used as a tool to quality assure the linkage of address data between PR and CIS in a previous SPD publication.
• PDS has been used as for the quality assurance of Births and Deaths Registration data which will feed into the migration publication to be released by ONS in late autumn 2018.
• PDS has primarily been used to link to other datasets and develop an iterative methodology to produce population and migration estimates. Early parts of this work were presented at the British Society of Population Studies (BSPS) conference earlier this year.
Going forward, within SDR one of the key uses of PDS will be continuing to link the data to a range of other datasets at record level to develop a methodology to produce population and migration estimates by sex and age to levels of geography currently published by the official Population Estimates going forward.
ONS have recently raised a request for a number of additional variables to be delivered going forward however discussions surrounding the acquisition of these variables is ongoing so no further update can be provided on specific variables. The key variables that have been requested are those which provide some form of identification which is descriptive of a person and any variable which would highlight activity.
Additionally, it is likely be used to pick up the demographic information that is missing on other datasets, for example HES and IAPT, to allow for easier, more consistent linkage.
Census Statistical Outputs Design
Census Statistical Outputs Design are hoping to use the PDS to aid in the imputation and quality assurance of Census, particularly of people resident in communal establishments such as care homes and mental health establishments. This mirrors what was done in 2011 using the PR. Response to Census in communal establishments is variable, and it’s not always clear where non-respondents are located due to unreliable administrative data estimates about the care homes themselves (referring to total capacity rather than occupied capacity). It is hoped that if a person is usually resident in a care home, the chances of them not appearing on the PDS will be small. Therefore, estimates of currently occupied beds in care homes derived from the PDS linked to a list of identified care homes and then compared to Census responses for that care home will identify approximate numbers of people missing from that care home’s Census responses. Demographic information from the PDS for that care home can then be used to determine appropriate types of donor records to impute missing responses. Work to develop this approach is ongoing, with a test of the approach to be conducted during the 2019 Rehearsal.
Migration Statistics Division
The Centre for International Migration have linked the PDS to HMRC’s Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many ‘new migrants’ on the MWS are seen in PDS. This is part of ONS’ wider work to link different admin data sources together and test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
DARS-NIC-20951-D2K6S-v5.2 1 July 2020 to 30 June 2021
- Title
- ONS CHRIS Replacement System - Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- No
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
What changed from DARS-NIC-20951-D2K6S-v4.3
Text removed is struck through; text added is underlined. Unchanged paragraphs are summarised rather than repeated.
| Field | Was | Became |
|---|---|---|
| Start date | 2020-07-01 | |
| End date | 2021-06-30 | |
| Personal Demographic Service: common law duty of confidentiality | Statutory exemption to flow confidential data without consent |
Objective for processing
[35 paragraphs unchanged]
The protection of data received from partners is very important to ONS
[74 words unchanged]
support this as ONS moves away from the Statistical Research Environment for
our
the
analysis work.
[22 paragraphs unchanged]
Unchanged: Processing activities, Expected output, Expected measurable benefits, Benefits reported.
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes agreed with NHS Digital:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act 2007 the Statistics Board (UK Statistics Authority) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics as the Executive Office of The Board (ONS) carries out this function. Within ONS, Population Statistics Division are responsible for providing key data on the population of the United Kingdom and are comprised of several branches that undertake demographic analysis in migration, fertility, mortality, ageing and families which are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to from time to time collect and publish any statistical information with respect to the number and condition of the population in the interval between one census and another…and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the 2007 Act.
ONS will rely on the following lawful basis from the GDPR for processing personal data including special category personal data:
GDPR Article 6(1)(e) The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom’s National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business to enable better decisions to be made. Using administrative data such as PDS allows ONS to produce statistics which are more granular and timely at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census statistics and population and migration estimates: these justifications are outlined in greater depth below. Proportionality is considered by business areas, who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out will be requested and processed.
ONS does not consider there to be any moral or ethical issues raised by the proposed dissemination. An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by persons within the organisation or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigours disclosure controls and access restrictions – ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading ‘Data Environment’.
Population Statistics Division
NHS Digital previously supplied CHRIS data and Patient Register (NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. Patient Register (NHAIS) data are due to be decommissioned and as such ONS need to assess its proposed replacement (PDS). The Patient Register data, in addition to internal migration estimates, are also used in the local authority distribution of international migrants for the mid-year population estimates and in the small area population estimates. Internal migration estimates are national statistics and a key component in population estimates and projections, also national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, the local authority distribution of international migrants component of change for the mid-year estimates and small area population estimates within England and Wales and estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students.
Census Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
· Population and housing estimates: counts of the population by age and sex, and the number of housing units.
· Population structures: households, families and household relationships.
· Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. As well as the direct census outputs, the census is the benchmark for the population estimates between censuses, for household and population projections and used as a denominator for numerous other statistics. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended:
To the Board of the UK Statistics Authority that future provision of population statistics and the next census should be through:
· “An online census of all households and communal establishments in England and Wales in 2021 … recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
· Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses.”
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
‘Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA’s plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.’ - Government’s response to the National Statistician’s recommendation, 18 July 2014.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
No one dataset in its’ own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual's interactions with this system. This 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics through helping to address issues with definitional differences between administrative data and population definitions and time lags. Research outputs produce aggregated statistics and are subject to the same disclosure control requirements as described by Population Statistics Division.
There is no common identifier that can be used to link individuals’ records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, Full name, addresses and postcodes) to link the datasets and establish the aforementioned SPD. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data is needed to support the 2021 Census and provide evidence for the annual assessment of progress towards the Government's ambition beyond 2021. This linkage of identifiable data is required to support the 2021 Census and work towards fulfilling the Government's ambition to conduct future censuses using other sources, while ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other admin data sources, however no clinical data is being requested.
Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce Admin Data Based Population Estimates. The Patient Register Extract is currently a key data source used by the Census Transformation Programme (CTP) to produce Admin Data Based Population Estimates, with this being shut down a full understanding of the PDS Stocks data is required to assess its suitability as a replacement. If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their usually-resident population definition
In addition to replacing the CHRIS dataset, PDS has been proposed by NHS Digital as a replacement dataset for the NHAIS Patient Register extract that ONS currently receive. PDS has been linked to NHAIS using the NHS number as the data currently held allows ONS to initially assess the data for this purpose and is in accordance with permitted use. However, the numbers of records on NHAIS and PDS datasets are very different and ONS need to understand why a record may appear on one dataset and not the other. Research into this has begun but ONS are hampered in their investigations due to the lack of name information (received on NHAIS), which prevents further data linkage that may uncover characteristics of those not present on both datasets. If ONS cannot understand the root causes of the differences then ONS cannot then take account of them in their methodologies. This could result in ONS not being able to adopt PDS as a fit for purpose replacement for NHAIS and subsequently have a need for NHAIS data in 2019 and beyond, due to the longitudinal nature of their methods requiring more than one year of data. It may also result in delays to planned changes in methodology as ONS would be unable to link from PDS to other sources where name is required, for example within a component of mid-year population estimates.
Data Environment
The protection of data received from partners is very important to ONS and significant investment, activity and assurance is undertaken to ensure this data is secured throughout the lifecycle from ingest to processing and export. ONS are developing advanced approaches that enable improved statistical analytical capabilities including the linking and matching of personally identifiable information, while maintaining and enhancing procedural, personnel, physical and technological security protections that provide assurance to internal stakeholders and external partners. A developing data analysis environment, the Data Access Platform (DAP), will support this as ONS moves away from the Statistical Research Environment for the analysis work.
Data security for storage and linkage of the data will be provided with an assured ONS data analysis environment (DAP) that includes the following elements of security control:
• Need To Know applied through user account access and management
• Controlled ingest and export of data into/out from the environment
• Controlled account access using unique credentials based on job role
• Logged and monitored access of user activity within the environment
• Secure build configuration for infrastructure, including cloud services
• Vulnerability tested infrastructure with appropriate remediation and patching
• Compliance checks against security enforcing controls
• Architectural review against standards and best practice
• Staff security cleared to the appropriate level based on their supervised and/or unsupervised access to sensitive data in accordance with ONS clearance policies and data access processes
• Education and awareness of environment users covering security policies and secure working practices
• Operational support processes to securely manage the environment
• Risk assessment to identify security risks and mitigation actions to reduce this risk.
Following policy specified by the ONS Chief Security Officer, users will be granted supervised or unsupervised access following a clearance application. The ONS Information Asset Owner (IAO) grants access and a list of all authorised users is available on request.
With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS Digital to confirm compliance with this DSA.
ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS Digital on request.
ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS Digital.
Migration – Business Case for 2018/19
The Centre for International Migration is leading on work which will begin to put administrative data at the core of migration statistics in 2019. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee’s report and government response.
The Personal Demographic Service (PDS) data would form an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved migration estimates at local level. Improved statistics, at a more granular level, will enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data will allow migration statistics to:
1. Build on ONS' work identifying migrant interactions within the health system as a sign of activity and the impact of migration on the health sector. This will be achieved by linking to other health datasets including the Hospital Episode Statistics and the Improving Access to Psychological Therapies dataset.
2. Compare signs of arrival, activity and departures by linking PDS to other public-sector datasets.
Expected output
Main publication dates are as follows:
Internal migration – Annually – June
Internal migration statistics are published at local authority level by age and sex. They have wide use by local authorities and academics, including feeding into alternative population projections models and subsequent resource allocation planning. Mid-year estimates – Annually – June, with lower level geography releases after this until Small Area Population Estimates are released in November.
National Population projections – normally published at the end of October. Releases have traditionally been every other year. Following the national projections, there are sub-national releases between national releases.
Internal migration estimates are a key component of population estimates and population projections, which have wide and important use in the UK. Estimates are used in resource allocation from Central Government to local government and health authorities as well as in denominators for other statistics across government, which feed into policy decisions. Projections are used to determine future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services which are needed, for example a hospital may use them in determining whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Census Transformation Programme (CTP)
CTP has committed to publishing regular annual Administrative Data Research Outputs on the population, including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015 and included pseudonymously linked multiple datasets (including NHS Patient Register data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
The aim of these research outputs is to:
• Update users on the progress with administrative data and to seek feedback with the aim of improving the methods used.
• Help the process of working with data suppliers to improve data quality for statistical purposes
ONS will aim to develop them in both method and content in the run up to the 2021 Census, and ultimately compare them with results from the 2021 Census. ONS will also expand on the range of topics and granularity published each year.
ONS recognise the need for continued development of their methodology, so future releases will also include outputs based on future developments which will allow feedback to be taken on board from users, new data that becomes available, and alternative techniques to produce population statistics.
A new series was introduced in 2016 to include these developments which showed improvements to the methodology. Additionally, subject to satisfactory data access and quality, ONS also aim to release population statistics at more detailed levels, and outputs about other topics or characteristics of the population (other than age and sex) such as qualifications, personal or household income, and ethnicity, as well as on the number and the size and composition of households. ONS also plan to present their research into the development of a methodology to estimate and adjust for coverage error in the SPD.
In the spring of each year, starting in 2016, ONS will publish an assessment of progress towards the Government’s ambition to produce population statistics from administrative data after 2021.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). These outputs are produced annually, the most recent being October 2016. SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013, 2014 and 2015.
NHAIS feeds into annual releases for mid-year population estimates, internal migration estimates and small area population estimates (including clinical commissioning groups); through these estimates, NHAIS then indirectly feeds into the national population projections and the subnational population projections (including clinical commissioning groups) which are produced every two years. These statistics have onward use in resource allocation for example in the distribution of funds from central to local government.
Record level data will be held securely within ONS. The data will be held in the accredited Statistical Research Environment (SRE) located at ONS premises. The environment has been specifically designed to support the linkage of personal data and has security measures in place to mitigate the associated risks. NHS digital were consulted during the design and build of this facility and have continued to be involved in its oversight since it became operational. Only named researchers have access to SRE and it is not possible to access a printer, disks, internet or rest of the ONS network whilst in this room. It is a secure room that requires additional security clearance to gain access to. The approach taken to manage data is described in the ONS's safeguarding data for research policy.
Benefits reported
Statistical Design and Research
Since the last Data Access Request Service was agreed, the following developments have been made:
• ONS have conducted quality assurance analysis on the dataset, which has fed into internal report on the dataset.
• ONS have received Name variables from NHS-Digital as part of the extract received which now feeds into analysis.
• PDS has been used as a tool to quality assure the linkage of address data between PR and CIS in a previous SPD publication.
• PDS has been used as for the quality assurance of Births and Deaths Registration data which will feed into the migration publication to be released by ONS in late autumn 2018.
• PDS has primarily been used to link to other datasets and develop an iterative methodology to produce population and migration estimates. Early parts of this work were presented at the British Society of Population Studies (BSPS) conference earlier this year.
Going forward, within SDR one of the key uses of PDS will be continuing to link the data to a range of other datasets at record level to develop a methodology to produce population and migration estimates by sex and age to levels of geography currently published by the official Population Estimates going forward.
ONS have recently raised a request for a number of additional variables to be delivered going forward however discussions surrounding the acquisition of these variables is ongoing so no further update can be provided on specific variables. The key variables that have been requested are those which provide some form of identification which is descriptive of a person and any variable which would highlight activity.
Additionally, it is likely be used to pick up the demographic information that is missing on other datasets, for example HES and IAPT, to allow for easier, more consistent linkage.
Census Statistical Outputs Design
Census Statistical Outputs Design are hoping to use the PDS to aid in the imputation and quality assurance of Census, particularly of people resident in communal establishments such as care homes and mental health establishments. This mirrors what was done in 2011 using the PR. Response to Census in communal establishments is variable, and it’s not always clear where non-respondents are located due to unreliable administrative data estimates about the care homes themselves (referring to total capacity rather than occupied capacity). It is hoped that if a person is usually resident in a care home, the chances of them not appearing on the PDS will be small. Therefore, estimates of currently occupied beds in care homes derived from the PDS linked to a list of identified care homes and then compared to Census responses for that care home will identify approximate numbers of people missing from that care home’s Census responses. Demographic information from the PDS for that care home can then be used to determine appropriate types of donor records to impute missing responses. Work to develop this approach is ongoing, with a test of the approach to be conducted during the 2019 Rehearsal.
Migration Statistics Division
The Centre for International Migration have linked the PDS to HMRC’s Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many ‘new migrants’ on the MWS are seen in PDS. This is part of ONS’ wider work to link different admin data sources together and test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
DARS-NIC-20951-D2K6S-v4.3 1 July 2019 to 30 June 2020
- Title
- ONS CHRIS Replacement System - Provision of data via PDS to ONS
- Commercial
- No
- Sublicensing
- No
- Datasets
- 1
- Files released
- 0
Datasets: Personal Demographic Service
Objective for processing
The Data Recipient agrees to process the Data only for the following purposes agreed with NHS Digital:
Statutory purpose
Under section 20 of the Statistics and Registration Service Act 2007 the Statistics Board (UK Statistics Authority) may itself produce and publish statistics on any matter relating to the UK or any part of it. The Office for National Statistics as the Executive Office of The Board (ONS) carries out this function. Within ONS, Population Statistics Division are responsible for providing key data on the population of the United Kingdom and are comprised of several branches that undertake demographic analysis in migration, fertility, mortality, ageing and families which are used to create population estimates, population projections, the Migration Statistics Quarterly Report and other demographic analytical outputs.
Under section 5 of the Census Act 1920 the Registrar-General has a duty to from time to time collect and publish any statistical information with respect to the number and condition of the population in the interval between one census and another…and the Registrar-General may make arrangements with any Government Department for the purpose of acquiring any materials or information necessary for the purpose aforesaid. This duty was transferred from the Registrar-General to the Statistics Board under s.25(2)(a) of the 2007 Act.
ONS will rely on the following lawful basis from the GDPR for processing personal data including special category personal data:
GDPR Article 6(1)(e) The processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. The authority for ONS to produce, promote and safeguard official statistics is found in the Statistics and Registration Service Act 2007.
GDPR Article 9(2)(j) Processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
ONS is the United Kingdom’s National Statistical Institute and largest independent producer of official statistics. It is responsible for producing statistics on a range of key economic, social and demographic topics in order to inform the needs of Government, society, academia and business to enable better decisions to be made. Using administrative data such as PDS allows ONS to produce statistics which are more granular and timely at a lower cost to the public, therefore enabling better decisions and resource allocation.
The specific necessity of processing these data is to develop census statistics and population and migration estimates: these justifications are outlined in greater depth below. Proportionality is considered by business areas, who are required to demonstrate that their goals cannot be achieved without the data. Demographic data (such as name, address and date of birth) are essential for these projects to ensure under coverage and over coverage within the individual data sources are dealt with appropriately. All requests for data are scrutinised to ensure the principle of data minimisation is applied and only data required for the purposes set out will be requested and processed.
ONS does not consider there to be any moral or ethical issues raised by the proposed dissemination. An internal Data Protection Impact Assessment (DPIA) indicates this process poses little risk of potential harm to the public. ONS considers the primary risk of any data share of this type to be the identification of individuals through either misuse by persons within the organisation or by a loss of data in transfer. Therefore, to protect against these risks, ONS employs rigours disclosure controls and access restrictions – ensuring that physical, technical, procedural and personnel security is kept to the highest and most up to date standards. To reduce the risk of data loss, data will be transferred using an agreed, secure, electronic transfer facility which adheres to Government requirements and assurance. An in-depth description of the security capabilities of the environment in which the data is injected, stored, linked and analysed is detailed below under the heading ‘Data Environment’.
Population Statistics Division
NHS Digital previously supplied CHRIS data and Patient Register (NHAIS) data to ONS for the purposes of estimating internal migration in England and Wales, and cross border flows to and from Scotland and Northern Ireland. Patient Register (NHAIS) data are due to be decommissioned and as such ONS need to assess its proposed replacement (PDS). The Patient Register data, in addition to internal migration estimates, are also used in the local authority distribution of international migrants for the mid-year population estimates and in the small area population estimates. Internal migration estimates are national statistics and a key component in population estimates and projections, also national statistics, which are used extensively throughout government to allocate funds. Under Section 5 of the Census Act 1920, ONS have a duty to ‘collect and publish any available statistical information with respect to the number and condition of the population in the interval between one census and another’ and ‘may make arrangements with any Government Department or local authority for the purposes of acquiring any materials or information necessary for the purposes’.
The data will be used in conjunction with other administrative data for estimating internal and international migration, the local authority distribution of international migrants component of change for the mid-year estimates and small area population estimates within England and Wales and estimating migration between England and Wales, Scotland and Northern Ireland. In doing so, it may be combined with other data sources to improve accuracy and quality of estimates. For instance higher education student records obtained from the Higher Education Statistics Agency (HESA) to enhance information on the movement of students.
Census Transformation Programme
The system for providing population and socio-demographic statistics in England and Wales has been built around having a ten-yearly census. The census provides a population count at a point in time and enables a wide range of socio-demographic statistics to be produced for a range of small geographic areas.
The census provides three broad categories of information:
· Population and housing estimates: counts of the population by age and sex, and the number of housing units.
· Population structures: households, families and household relationships.
· Population characteristics: e.g. ethnic groups, health, qualifications and employment.
These statistics are produced for geographies ranging from England and Wales as a whole down to Output Areas (125 households on average) and for very small population groups, such as some ethnic groups and religious communities. As well as the direct census outputs, the census is the benchmark for the population estimates between censuses, for household and population projections and used as a denominator for numerous other statistics. This brings additional benefits which are delivered in the years between Censuses. NHS England currently uses population statistics to allocate billions of pounds to local areas using funding formulae.
In May 2010 and ahead of the census in 2011, the UK Statistics Authority asked ONS to begin a review of the future provision of population statistics in England and Wales in order to inform Government and Parliament about the options for the next census. ONS launched the Beyond 2011 Programme of research and reviews, including a major public consultation on the two leading options at the end of 2013.
In March 2014, the National Statistician recommended:
To the Board of the UK Statistics Authority that future provision of population statistics and the next census should be through:
· “An online census of all households and communal establishments in England and Wales in 2021 … recognis[ing] that special care would need to be taken to support those who are unable to complete the census online.
· Increased use of administrative data and surveys in order to enhance the statistics from the 2021 Census and improve annual statistics between censuses.”
This would make the best use of all available data to provide the population statistics which England and Wales require and offer a springboard to the greater use of administrative data and annual surveys in the future.
The Government welcomed the recommendation, and stating their position for the future of the census in England and Wales:
‘Our ambition is that censuses after 2021 will be conducted using other sources of data and providing more timely statistical information. However, any final decision on moving to the use only of administrative data beyond 2021 will be dependent on the dual running sufficiently validating the perceived feasibility of that approach. In the period up to 2021 UKSA’s plans should include ensuring that adequate research into the use of administrative data and surveys is carried out to enable a decision about the future methodology for capturing population and census data.’ - Government’s response to the National Statistician’s recommendation, 18 July 2014.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
No one dataset in its’ own right can be used to produce a reliable estimate of the size of the usually resident population because, for example, the population registered with a GP is not the same as the usual resident population. The PDS data specified to replace the flow ONS currently receives would provide information about the timing and nature of an individual's interactions with this system. This 'activity' data can be used by ONS to determine whether a record appears to be 'active' or 'inactive' for statistical purposes. This can then be used to improve the quality of population statistics through helping to address issues with definitional differences between administrative data and population definitions and time lags. Research outputs produce aggregated statistics and are subject to the same disclosure control requirements as described by Population Statistics Division.
There is no common identifier that can be used to link individuals’ records across these datasets and therefore ONS need access to identifiable record level data (including NHS number, dates of birth, sex, Full name, addresses and postcodes) to link the datasets and establish the aforementioned SPD. This allows ONS to draw strength across multiple datasets to improve quality and methods to estimate the size of the population and their characteristics. Linkage of identifiable data is needed to support the 2021 Census and provide evidence for the annual assessment of progress towards the Government's ambition beyond 2021. This linkage of identifiable data is required to support the 2021 Census and work towards fulfilling the Government's ambition to conduct future censuses using other sources, while ensuring that population statistics in the future will continue to meet the needs of users e.g. for resource allocation, service provision and planning.
Identifiable data is required to be able to link to other admin data sources, however no clinical data is being requested.
Name variables have been included because they are key variables that enable the linking of PDS data to other administrative data sources to produce Admin Data Based Population Estimates. The Patient Register Extract is currently a key data source used by the Census Transformation Programme (CTP) to produce Admin Data Based Population Estimates, with this being shut down a full understanding of the PDS Stocks data is required to assess its suitability as a replacement. If ONS cannot link administrative sources they cannot identify potential double counting or cases which do not meet their usually-resident population definition
In addition to replacing the CHRIS dataset, PDS has been proposed by NHS Digital as a replacement dataset for the NHAIS Patient Register extract that ONS currently receive. PDS has been linked to NHAIS using the NHS number as the data currently held allows ONS to initially assess the data for this purpose and is in accordance with permitted use. However, the numbers of records on NHAIS and PDS datasets are very different and ONS need to understand why a record may appear on one dataset and not the other. Research into this has begun but ONS are hampered in their investigations due to the lack of name information (received on NHAIS), which prevents further data linkage that may uncover characteristics of those not present on both datasets. If ONS cannot understand the root causes of the differences then ONS cannot then take account of them in their methodologies. This could result in ONS not being able to adopt PDS as a fit for purpose replacement for NHAIS and subsequently have a need for NHAIS data in 2019 and beyond, due to the longitudinal nature of their methods requiring more than one year of data. It may also result in delays to planned changes in methodology as ONS would be unable to link from PDS to other sources where name is required, for example within a component of mid-year population estimates.
Data Environment
The protection of data received from partners is very important to ONS and significant investment, activity and assurance is undertaken to ensure this data is secured throughout the lifecycle from ingest to processing and export. ONS are developing advanced approaches that enable improved statistical analytical capabilities including the linking and matching of personally identifiable information, while maintaining and enhancing procedural, personnel, physical and technological security protections that provide assurance to internal stakeholders and external partners. A developing data analysis environment, the Data Access Platform (DAP), will support this as ONS moves away from the Statistical Research Environment for our analysis work.
Data security for storage and linkage of the data will be provided with an assured ONS data analysis environment (DAP) that includes the following elements of security control:
• Need To Know applied through user account access and management
• Controlled ingest and export of data into/out from the environment
• Controlled account access using unique credentials based on job role
• Logged and monitored access of user activity within the environment
• Secure build configuration for infrastructure, including cloud services
• Vulnerability tested infrastructure with appropriate remediation and patching
• Compliance checks against security enforcing controls
• Architectural review against standards and best practice
• Staff security cleared to the appropriate level based on their supervised and/or unsupervised access to sensitive data in accordance with ONS clearance policies and data access processes
• Education and awareness of environment users covering security policies and secure working practices
• Operational support processes to securely manage the environment
• Risk assessment to identify security risks and mitigation actions to reduce this risk.
Following policy specified by the ONS Chief Security Officer, users will be granted supervised or unsupervised access following a clearance application. The ONS Information Asset Owner (IAO) grants access and a list of all authorised users is available on request.
With reasonable notice, periodic written/verbal checks may be conducted by an authorised employee of NHS Digital to confirm compliance with this DSA.
ONS will keep a record of any processing of Personal Data and will provide a copy of such record to NHS Digital on request.
ONS will not transfer or permit the transfer of the Data to any territory outside the UK without the prior written consent of NHS Digital.
Migration – Business Case for 2018/19
The Centre for International Migration is leading on work which will begin to put administrative data at the core of migration statistics in 2019. This programme of work forms part of a larger Government Statistical Service (GSS) transformation plan which is recognised in the Home Affairs Select Committee’s report and government response.
The Personal Demographic Service (PDS) data would form an integral part of plans to put administrative data at the core of migration statistics. The data will help develop an understanding of international migration and improved migration estimates at local level. Improved statistics, at a more granular level, will enable more effective decision making, policy development and evaluation and resource allocation at local level. Receiving PDS data will allow migration statistics to:
1. Build on ONS' work identifying migrant interactions within the health system as a sign of activity and the impact of migration on the health sector. This will be achieved by linking to other health datasets including the Hospital Episode Statistics and the Improving Access to Psychological Therapies dataset.
2. Compare signs of arrival, activity and departures by linking PDS to other public-sector datasets.
Expected output
Main publication dates are as follows:
Internal migration – Annually – June
Internal migration statistics are published at local authority level by age and sex. They have wide use by local authorities and academics, including feeding into alternative population projections models and subsequent resource allocation planning. Mid-year estimates – Annually – June, with lower level geography releases after this until Small Area Population Estimates are released in November.
National Population projections – normally published at the end of October. Releases have traditionally been every other year. Following the national projections, there are sub-national releases between national releases.
Internal migration estimates are a key component of population estimates and population projections, which have wide and important use in the UK. Estimates are used in resource allocation from Central Government to local government and health authorities as well as in denominators for other statistics across government, which feed into policy decisions. Projections are used to determine future provision of public services such as schools and hospitals. At the local level these statistics are used to determine the types of services which are needed, for example a hospital may use them in determining whether or not to alter the level of provision of maternity or geriatric services.
Population projections and estimates are produced for CCGs and local authorities. Population estimates are also produced for output areas, parliamentary constituencies and other small area types.
Census Transformation Programme (CTP)
CTP has committed to publishing regular annual Administrative Data Research Outputs on the population, including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015 and included pseudonymously linked multiple datasets (including NHS Patient Register data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013 and 2014.
The aim of these research outputs is to:
• Update users on the progress with administrative data and to seek feedback with the aim of improving the methods used.
• Help the process of working with data suppliers to improve data quality for statistical purposes
ONS will aim to develop them in both method and content in the run up to the 2021 Census, and ultimately compare them with results from the 2021 Census. ONS will also expand on the range of topics and granularity published each year.
ONS recognise the need for continued development of their methodology, so future releases will also include outputs based on future developments which will allow feedback to be taken on board from users, new data that becomes available, and alternative techniques to produce population statistics.
A new series was introduced in 2016 to include these developments which showed improvements to the methodology. Additionally, subject to satisfactory data access and quality, ONS also aim to release population statistics at more detailed levels, and outputs about other topics or characteristics of the population (other than age and sex) such as qualifications, personal or household income, and ethnicity, as well as on the number and the size and composition of households. ONS also plan to present their research into the development of a methodology to estimate and adjust for coverage error in the SPD.
In the spring of each year, starting in 2016, ONS will publish an assessment of progress towards the Government’s ambition to produce population statistics from administrative data after 2021.
The Census Transformation Programme (CTP) has continued research from the Beyond 2011 Programme into the use of administrative data and surveys to assess whether in ONS’ view the Government’s ambition can be realised. To that end, CTP has committed to publishing an annual assessment of progress towards the Government’s ambition and regular Administrative Data Research Outputs on the population, crucially including estimates of the size of the population produced using administrative data. The first such outputs were published in October 2015, based on pseudonymously linking multiple administrative datasets (including NHS Patient Registration Data, DWP/HMRC Customer Information System data and higher education data) to produce a Statistical Population Dataset (SPD). These outputs are produced annually, the most recent being October 2016. SPD population estimates have been produced for each local authority, by five-year age groups and sex for 2011, 2013, 2014 and 2015.
NHAIS feeds into annual releases for mid-year population estimates, internal migration estimates and small area population estimates (including clinical commissioning groups); through these estimates, NHAIS then indirectly feeds into the national population projections and the subnational population projections (including clinical commissioning groups) which are produced every two years. These statistics have onward use in resource allocation for example in the distribution of funds from central to local government.
Record level data will be held securely within ONS. The data will be held in the accredited Statistical Research Environment (SRE) located at ONS premises. The environment has been specifically designed to support the linkage of personal data and has security measures in place to mitigate the associated risks. NHS digital were consulted during the design and build of this facility and have continued to be involved in its oversight since it became operational. Only named researchers have access to SRE and it is not possible to access a printer, disks, internet or rest of the ONS network whilst in this room. It is a secure room that requires additional security clearance to gain access to. The approach taken to manage data is described in the ONS's safeguarding data for research policy.
Benefits reported
Statistical Design and Research
Since the last Data Access Request Service was agreed, the following developments have been made:
• ONS have conducted quality assurance analysis on the dataset, which has fed into internal report on the dataset.
• ONS have received Name variables from NHS-Digital as part of the extract received which now feeds into analysis.
• PDS has been used as a tool to quality assure the linkage of address data between PR and CIS in a previous SPD publication.
• PDS has been used as for the quality assurance of Births and Deaths Registration data which will feed into the migration publication to be released by ONS in late autumn 2018.
• PDS has primarily been used to link to other datasets and develop an iterative methodology to produce population and migration estimates. Early parts of this work were presented at the British Society of Population Studies (BSPS) conference earlier this year.
Going forward, within SDR one of the key uses of PDS will be continuing to link the data to a range of other datasets at record level to develop a methodology to produce population and migration estimates by sex and age to levels of geography currently published by the official Population Estimates going forward.
ONS have recently raised a request for a number of additional variables to be delivered going forward however discussions surrounding the acquisition of these variables is ongoing so no further update can be provided on specific variables. The key variables that have been requested are those which provide some form of identification which is descriptive of a person and any variable which would highlight activity.
Additionally, it is likely be used to pick up the demographic information that is missing on other datasets, for example HES and IAPT, to allow for easier, more consistent linkage.
Census Statistical Outputs Design
Census Statistical Outputs Design are hoping to use the PDS to aid in the imputation and quality assurance of Census, particularly of people resident in communal establishments such as care homes and mental health establishments. This mirrors what was done in 2011 using the PR. Response to Census in communal establishments is variable, and it’s not always clear where non-respondents are located due to unreliable administrative data estimates about the care homes themselves (referring to total capacity rather than occupied capacity). It is hoped that if a person is usually resident in a care home, the chances of them not appearing on the PDS will be small. Therefore, estimates of currently occupied beds in care homes derived from the PDS linked to a list of identified care homes and then compared to Census responses for that care home will identify approximate numbers of people missing from that care home’s Census responses. Demographic information from the PDS for that care home can then be used to determine appropriate types of donor records to impute missing responses. Work to develop this approach is ongoing, with a test of the approach to be conducted during the 2019 Rehearsal.
Migration Statistics Division
The Centre for International Migration have linked the PDS to HMRC’s Migrant Worker Scan (MWS). This has enabled comparisons of potential arrival and registration dates between the two sources and in turn has tested assumptions on lag between arrival and registration with a GP. Other quality work includes how many ‘new migrants’ on the MWS are seen in PDS. This is part of ONS’ wider work to link different admin data sources together and test assumptions around putting administrative data at the core of migration statistics. This work is planned to continue going forward.
Register history
When this agreement appeared in, or was edited in, each monthly edition of the register. Built by comparing every edition this site holds, the earliest of which is July 2021.
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July 2021 —
already listed in the earliest edition this site holds, so it may be older. 3 versions: DARS-NIC-20951-D2K6S-v4.3, DARS-NIC-20951-D2K6S-v5.2, DARS-NIC-20951-D2K6S-v6.2
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January 2022
1 version added: DARS-NIC-20951-D2K6S-v7.5
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April 2022
1 version added: DARS-NIC-20951-D2K6S-v8.7
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August 2022
1 version added: DARS-NIC-20951-D2K6S-v9.5
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October 2022
1 version added: DARS-NIC-20951-D2K6S-v10.2
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April 2023
1 version added: DARS-NIC-20951-D2K6S-v11.2
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September 2023
1 version added: DARS-NIC-20951-D2K6S-v12.2
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February 2025
1 version added: DARS-NIC-20951-D2K6S-v13.6
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September 2025
1 version added: DARS-NIC-20951-D2K6S-v14.4
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September 2026
1 version added: DARS-NIC-20951-D2K6S-v15.2
Cite this page
NHS England (2026) Data Uses Register, September 2026 edition, agreement DARS-NIC-20951-D2K6S, “Provision of data via PDS to ONS”. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/agreements/dars-nic-20951-d2k6s/ (accessed [date]).
This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.
Source: datausesregister_september2026.xlsx, September 2026 edition of the NHS England Data Uses Register. Search that workbook for DARS-NIC-20951-D2K6S to see the original rows.