MR1185 - DOES THE PRESENCE OF THROMBOPHILIA INCREASE THE RISK OF DEVELOPING IDIOPATHIC PULMONARY FIBROSIS?
University of Nottingham · Academic
Expired The latest version ended on 9 May 2020. The September 2026 register still lists the agreement, but its term has passed.
- Reference
- DARS-NIC-148215-CQWFM
- Latest version
- v0.0
- Term of latest version
- 10 May 2010 to 9 May 2020
- Start date
- 10 May 2010
- Data controller
- Sole Data Controller
- Commercial purposes
- No
- Sublicensing
- No
- Files released to date
- 19
Why the data was released
Objective for processing
Does the presence of thrombophilia increase the risk of developing idiopathic pulmonary fibrosis?
a) Are defects associated with an increased tendency to clot a risk factor for developing IPF.
b) Does the presence of a thrombophillia modify the association of environmental risk factors for IPF?
c) Does thrombophillia worsen the prognosis of patients with IPF?
Processing activities
Not stated in the register.
Expected output
Not stated in the register.
Expected measurable benefits
Not stated in the register.
Benefits reported so far
Yielded Benefits is not a requirement for new applications.
Datasets on the latest version
Legal basis for provision: Health and Social Care Act 2012 – s261(7)
| Dataset | Type of data | Sensitivity | Frequency | Confidential data |
|---|---|---|---|---|
| MRIS - Cause of Death Report | Identifiable | Sensitive | One-Off | Consent (Reasonable Expectation) |
| MRIS - Cohort Event Notification Report | Identifiable | Sensitive | One-Off | Consent (Reasonable Expectation) |
| MRIS - Flagging Current Status Report | Identifiable | Sensitive | One-Off | Consent (Reasonable Expectation) |
| MRIS - Members and Postings Report | Identifiable | Sensitive | One-Off | Consent (Reasonable Expectation) |
| MRIS - Personal Demographics Service | Identifiable | Sensitive | One-Off | Consent (Reasonable Expectation) |
Files released
Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.
Patient opt-outs were applied to 10 of the 19 files released under this agreement, across every version. About opt-outs
Files released against version 0.0 of this agreement, summarised by dataset.
| Dataset | Files | First released | Last released | Opt-outs applied |
|---|---|---|---|---|
| MRIS - Cause of Death Report | 10 | May 2016 | March 2020 | Mixed |
| MRIS - Cohort Event Notification Report | 9 | May 2016 | March 2020 | Mixed |
Version history
The register lists each renewal of this agreement as a separate row. This site has 1 version.
DARS-NIC-148215-CQWFM-v0.0 10 May 2010 to 9 May 2020
- Title
- MR1185 - DOES THE PRESENCE OF THROMBOPHILIA INCREASE THE RISK OF DEVELOPING IDIOPATHIC PULMONARY FIBROSIS?
- Commercial
- No
- Sublicensing
- No
- Datasets
- 5
- Files released
- 19
Datasets: MRIS - Cause of Death Report; MRIS - Cohort Event Notification Report; MRIS - Flagging Current Status Report; MRIS - Members and Postings Report; MRIS - Personal Demographics Service
Register history
When this agreement appeared in, or was edited in, each monthly edition of the register. Built by comparing every edition this site holds, the earliest of which is July 2021.
-
July 2021 —
already listed in the earliest edition this site holds, so it may be older. 1 version: DARS-NIC-148215-CQWFM-v0.0
Cite this page
NHS England (2026) Data Uses Register, September 2026 edition, agreement DARS-NIC-148215-CQWFM, “MR1185 - DOES THE PRESENCE OF THROMBOPHILIA INCREASE THE RISK OF DEVELOPING IDIOPATHIC PULMONARY FIBROSIS?”. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/agreements/dars-nic-148215-cqwfm/ (accessed [date]).
This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.
Source: datausesregister_september2026.xlsx, September 2026 edition of the NHS England Data Uses Register. Search that workbook for DARS-NIC-148215-CQWFM to see the original rows.