MR1250 - Survival of babies with trisomy 13 or trisomy 18 born in England and Wales since 2004
Barts and the London School of Medicine and Dentistry · Academic
Listed under Queen Mary University of London.
Expired The latest version ended on 3 July 2026. The September 2026 register still lists the agreement, but its term has passed.
- Reference
- DARS-NIC-148194-QYCWF
- Latest version
- v0.0
- Term of latest version
- 4 July 2011 to 3 July 2026
- Start date
- 4 July 2011
- Data controller
- Sole Data Controller
- Commercial purposes
- No
- Sublicensing
- No
- Files released to date
- 0
Data controllers
Why the data was released
Objective for processing
To determine the current life expectancy of newborns with trisomy 13 or trisomy 18 in England and Wales.
Processing activities
Not stated in the register.
Expected output
Not stated in the register.
Expected measurable benefits
Not stated in the register.
Benefits reported so far
Yielded Benefits is not a requirement for new applications.
Datasets on the latest version
Legal basis for provision: Approved researcher accreditation under section 39(4)(i) and 39(5) of the Statistical Registration Service Act 2007 ; National Health Service Act 2006 - s251 - 'Control of patient information'.
| Dataset | Type of data | Sensitivity | Frequency | Confidential data |
|---|---|---|---|---|
| MRIS - Cause of Death Report | Identifiable | Sensitive | One-Off | — |
| MRIS - Flagging Current Status Report | Identifiable | Non-Sensitive | One-Off | — |
| MRIS - Personal Demographics Service | Identifiable | Sensitive | One-Off | — |
Files released
Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.
No files recorded as released under this agreement.
Version history
The register lists each renewal of this agreement as a separate row. This site has 1 version.
DARS-NIC-148194-QYCWF-v0.0 4 July 2011 to 3 July 2026
- Title
- MR1250 - Survival of babies with trisomy 13 or trisomy 18 born in England and Wales since 2004
- Commercial
- No
- Sublicensing
- No
- Datasets
- 3
- Files released
- 0
Datasets: MRIS - Cause of Death Report; MRIS - Flagging Current Status Report; MRIS - Personal Demographics Service
Register history
When this agreement appeared in, or was edited in, each monthly edition of the register. Built by comparing every edition this site holds, the earliest of which is July 2021.
-
July 2021 —
already listed in the earliest edition this site holds, so it may be older. 1 version: DARS-NIC-148194-QYCWF-v0.0
-
June 2023
Amended DARS-NIC-148194-QYCWF-v0.0
- MRIS - Personal Demographics Service: legal basis:
“
2007;” became “2007 ;”
- MRIS - Personal Demographics Service: legal basis:
“
"Amended in place" means NHS England changed the record without issuing a new version number. The register publishes no changelog for those edits; this site infers them by comparing editions. An edit is attributed to the edition it first appears in, not to the date it was made.
Cite this page
NHS England (2026) Data Uses Register, September 2026 edition, agreement DARS-NIC-148194-QYCWF, “MR1250 - Survival of babies with trisomy 13 or trisomy 18 born in England and Wales since 2004”. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/agreements/dars-nic-148194-qycwf/ (accessed [date]).
This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.
Source: datausesregister_september2026.xlsx, September 2026 edition of the NHS England Data Uses Register. Search that workbook for DARS-NIC-148194-QYCWF to see the original rows.