MR1262 - Teenage and Young Adult Cancer Survivor Study (TYACSS)
University of Birmingham · Academic
In term In term in the September 2026 edition: the latest version runs to 27 September 2026.
- Reference
- DARS-NIC-147797-45YHZ
- Current version
- v0.0
- Term of current version
- 28 September 2011 to 27 September 2026
- Start date
- 28 September 2011
- Data controller
- Sole Data Controller
- Commercial purposes
- No
- Sublicensing
- No
- Files released to date
- 88
Why the data was released
Objective for processing
The principal aim of the research is to establish a database of approximately between 170,000 to 200,000 individuals diagnosed with cancer aged 15 to 39 years, in England and Wales, between 1971 and 2006 and who survived for at least 5-years from original cancer diagnosis. This database of teenage & young adult cancer survivors would be used to investigate the observed and expected risks of: specific causes of death, specific types of subsequent primary cancer, and specific types of non-cancer morbidity (including cardiovascular, pulmonary, urological, hepatic and endocrine conditions). Evidence for the cure of specific types of cancer would also be assessed. Record linkages between the established database and NHS-IC (for deaths and subsequent primary cancers), the Hospital Episode Statistics (HES) for England, the Patient Episode Database for Wales (PEDW) in Wales and the Myocardial Ischaemia National Audit Project (MINAP) would be undertaken. From such linkages it will be possible to identify subgroups of patients (defined in terms of type of cancer, age at treatment, calendar year of diagnosis, period of follow-up, attained age and sex) at a substantially increased risk of specific adverse health outcomes.
Processing activities
Not stated in the register.
Expected output
Not stated in the register.
Expected measurable benefits
Not stated in the register.
Benefits reported so far
Yielded Benefits is not a requirement for new applications.
Datasets on the current version
Legal basis for provision: Approved researcher accreditation under section 39(4)(i) and 39(5) of the Statistical Registration Service Act 2007; National Health Service Act 2006 - s251 - 'Control of patient information'.; Approved researcher accreditation under section 39(4)(i) and 39(5) of the Statistical Registration Service Act 2007 ; National Health Service Act 2006 - s251 - 'Control of patient information'.
| Dataset | Type of data | Sensitivity | Frequency | Confidential data |
|---|---|---|---|---|
| MRIS - Cause of Death Report | Identifiable | Sensitive | Ongoing | — |
| MRIS - Cohort Event Notification Report | Identifiable | Sensitive | Ongoing | — |
| MRIS - Flagging Current Status Report | Identifiable | Sensitive | Ongoing | — |
| MRIS - Members and Postings Report | Identifiable | Sensitive | Ongoing | — |
| MRIS - Personal Demographics Service | Identifiable | Sensitive | Ongoing | — |
| MRIS - Scottish NHS / Registration | Identifiable | Sensitive | Ongoing | — |
Files released
Files released counts only files released externally by DARS. Access granted in NHS England's own systems, such as its Secure Data Environment, is not included.
Patient opt-outs were applied to 87 of the 88 files released under this agreement, across every version. About opt-outs
Files released against version 0.0 of this agreement, summarised by dataset.
| Dataset | Files | First released | Last released | Opt-outs applied |
|---|---|---|---|---|
| MRIS - Scottish NHS / Registration | 39 | July 2016 | March 2020 | Mixed |
| MRIS - Cause of Death Report | 33 | May 2016 | March 2020 | Yes |
| MRIS - Cohort Event Notification Report | 16 | July 2016 | March 2020 | Yes |
Version history
The register lists each renewal of this agreement as a separate row. This site has 1 version.
DARS-NIC-147797-45YHZ-v0.0 28 September 2011 to 27 September 2026
- Title
- MR1262 - Teenage and Young Adult Cancer Survivor Study (TYACSS)
- Commercial
- No
- Sublicensing
- No
- Datasets
- 6
- Files released
- 88
Datasets: MRIS - Cause of Death Report; MRIS - Cohort Event Notification Report; MRIS - Flagging Current Status Report; MRIS - Members and Postings Report; MRIS - Personal Demographics Service; MRIS - Scottish NHS / Registration
Register history
When this agreement appeared in, or was edited in, each monthly edition of the register. Built by comparing every edition this site holds, the earliest of which is July 2021.
-
July 2021 —
already listed in the earliest edition this site holds, so it may be older. 1 version: DARS-NIC-147797-45YHZ-v0.0
-
June 2023
Amended DARS-NIC-147797-45YHZ-v0.0
- MRIS - Personal Demographics Service: legal basis:
“
2007;” became “2007 ;”
- MRIS - Personal Demographics Service: legal basis:
“
"Amended in place" means NHS England changed the record without issuing a new version number. The register publishes no changelog for those edits; this site infers them by comparing editions. An edit is attributed to the edition it first appears in, not to the date it was made.
Cite this page
NHS England (2026) Data Uses Register, September 2026 edition, agreement DARS-NIC-147797-45YHZ, “MR1262 - Teenage and Young Adult Cancer Survivor Study (TYACSS)”. Read via NHS Data Access Explorer (unofficial), https://healthdatauses.uk/agreements/dars-nic-147797-45yhz/ (accessed [date]).
This address stays the same, but the page is rebuilt with each monthly edition, so the citation names the edition it shows. Every edition's data is kept in the facts store.
Source: datausesregister_september2026.xlsx, September 2026 edition of the NHS England Data Uses Register. Search that workbook for DARS-NIC-147797-45YHZ to see the original rows.